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    Last Updated: 10/30/2025

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    MediFind found 9 doctor with experience in Limb-Girdle Muscular Dystrophy near Rochester, NY. Of these, 6 are Experienced and 3 are Advanced.

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    9 providers found
      Advanced in Limb-Girdle Muscular Dystrophy
      Advanced in Limb-Girdle Muscular Dystrophy

      University Of Rochester

      738 Library Rd, 
      Rochester, NY 
       (2.1 miles away)
      Languages Spoken:
      English

      Emma Ciafaloni is a Neurologist in Rochester, New York. Dr. Ciafaloni is rated as an Advanced provider by MediFind in the treatment of Limb-Girdle Muscular Dystrophy. Her top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Myasthenia Gravis, Spinal Muscular Atrophy (SMA), and Thymectomy.

      Advanced in Limb-Girdle Muscular Dystrophy
      Advanced in Limb-Girdle Muscular Dystrophy
      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Alrabi Tawil is a Neurologist in Rochester, New York. Dr. Tawil is rated as an Advanced provider by MediFind in the treatment of Limb-Girdle Muscular Dystrophy. His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Spinal Muscular Atrophy (SMA), Limb-Girdle Muscular Dystrophy Type 2A, and Limb-Girdle Muscular Dystrophy Type 1B.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Limb-Girdle Muscular Dystrophy
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in Limb-Girdle Muscular Dystrophy
      Pediatric Neurology | Pediatrics | Neurology

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Brianna Brun is a Pediatric Neurologist and a Pediatrics provider in Rochester, New York. Dr. Brun is rated as an Advanced provider by MediFind in the treatment of Limb-Girdle Muscular Dystrophy. Her top areas of expertise are Limb-Girdle Muscular Dystrophy Type 2I, Limb-Girdle Muscular Dystrophy, Lissencephaly 2, and Inclusion Body Myositis.

      Learn about our expert tiers
      Robert C. Griggs
      Experienced in Limb-Girdle Muscular Dystrophy
      Experienced in Limb-Girdle Muscular Dystrophy

      University Of Rochester Medical Center - School Of Medicine And Dentistry

      601 Elmwood Ave, Box CU 420669, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Robert Griggs is a Neurologist in Rochester, NY. Dr. Griggs is rated as an Experienced provider by MediFind in the treatment of Limb-Girdle Muscular Dystrophy. His top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Familial Periodic Paralysis, and Hyperkalemic Periodic Paralysis.

      Experienced in Limb-Girdle Muscular Dystrophy
      Experienced in Limb-Girdle Muscular Dystrophy

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Chad Heatwole is a Neurologist in Rochester, New York. Dr. Heatwole is rated as an Experienced provider by MediFind in the treatment of Limb-Girdle Muscular Dystrophy. His top areas of expertise are Myotonic Dystrophy, Myotonic Dystrophy Type 2, Paramyotonia Congenita, and Facioscapulohumeral Muscular Dystrophy (FSHD).

      Experienced in Limb-Girdle Muscular Dystrophy
      Experienced in Limb-Girdle Muscular Dystrophy
      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Charles Thornton is a Neurologist in Rochester, New York. Dr. Thornton is rated as an Experienced provider by MediFind in the treatment of Limb-Girdle Muscular Dystrophy. His top areas of expertise are Paramyotonia Congenita, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

      Experienced in Limb-Girdle Muscular Dystrophy
      Neurology | Child and Adolescent Psychiatry
      Experienced in Limb-Girdle Muscular Dystrophy
      Neurology | Child and Adolescent Psychiatry

      U Of R Neurology Department

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Michelle Kvalsund is a Neurologist and a Child and Adolescent Psychiatrist in Rochester, New York. Dr. Kvalsund has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Limb-Girdle Muscular Dystrophy. Her top areas of expertise are Cramp-Fasciculation Syndrome, Meningitis, Generalized Tonic-Clonic Seizure, and Vitamin B12 Deficiency Anemia.

      Experienced in Limb-Girdle Muscular Dystrophy
      Pediatric Neurology | Neurology
      Experienced in Limb-Girdle Muscular Dystrophy
      Pediatric Neurology | Neurology

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      David Bearden is a Pediatric Neurologist and a Neurologist in Rochester, New York. Dr. Bearden is rated as an Experienced provider by MediFind in the treatment of Limb-Girdle Muscular Dystrophy. His top areas of expertise are Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE), Epilepsy, Seizures, and Cramp-Fasciculation Syndrome.

      Experienced in Limb-Girdle Muscular Dystrophy
      Internal Medicine
      Experienced in Limb-Girdle Muscular Dystrophy
      Internal Medicine

      University Of Rochester

      2400 S Clinton Ave, Bldg H, 
      Rochester, NY 
       (3.2 miles away)
      Languages Spoken:
      English

      Anthony Sousou is a primary care provider, practicing in Internal Medicine in Rochester, New York. Dr. Sousou is rated as an Experienced provider by MediFind in the treatment of Limb-Girdle Muscular Dystrophy. His top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Hypertension, Familial Hypertension, and Pelvic Congestion Syndrome.

      Showing 1-9 of 9

      Last Updated: 10/30/2025

      What is the definition of Limb-Girdle Muscular Dystrophy?

      Limb-girdle muscular dystrophies include at least 33 different inherited diseases. These disorders first affect the muscles around the shoulder girdle and hips. These diseases get worse over time. Eventually, it may involve other muscles.

      When should I see a Limb-Girdle Muscular Dystrophy doctor near Rochester, NY?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Limb-Girdle Muscular Dystrophy doctor near Rochester, NY?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Limb-Girdle Muscular Dystrophy doctors near Rochester, NY?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Limb-Girdle Muscular Dystrophy doctors near Rochester, NY?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Limb-Girdle Muscular Dystrophy doctor near Rochester, NY?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Limb-Girdle Muscular Dystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Limb-Girdle Muscular Dystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Limb-Girdle Muscular Dystrophy doctor near Rochester, NY?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Limb-Girdle Muscular Dystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Limb-Girdle Muscular Dystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Limb-Girdle Muscular Dystrophy doctors near Rochester, NY?

      Look for the filter feature on the left side of the Limb-Girdle Muscular Dystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Limb-Girdle Muscular Dystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Limb-Girdle Muscular Dystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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