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    Last Updated: 01/09/2026

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    MediFind found 267 doctor with experience in Maffucci Syndrome near The United States. Of these, 194 are Experienced, 69 are Advanced and 4 are Distinguished.

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    LocationClose
    267 providers found
      Advanced in Maffucci Syndrome
      Advanced in Maffucci Syndrome

      Hartford Hospital

      80 Seymour St, 
      Hartford, CT 
      Experience:
      17+ years
      Languages Spoken:
      English
      Offers Telehealth

      Adam Lindsay is an Orthopedics provider in Hartford, Connecticut. Dr. Lindsay has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Osteochondroma, Chondroma, Chondroblastoma, Fibrous Dysplasia, and Hip Replacement.

      Adam S. Levin
      Distinguished in Maffucci Syndrome
      Orthopedics
      Distinguished in Maffucci Syndrome
      Orthopedics

      Johns Hopkins Outpatient Center

      601 North Caroline Street, Suite 5009, Suite 5009, 
      Baltimore, MD 
      Languages Spoken:
      English

      Adam Levin, MD, joined the Johns Hopkins Department of Orthopaedic Surgery as an assistant professor in orthopaedic oncology. Dr. Levin comes to Johns Hopkins after working as an orthopaedic oncologist at the North Shore/LIJ Health System in New York. He completed his residency in orthopaedic surgery at Long Island Jewish Medical Center, and a fellowship in orthopaedic oncology at the Memorial Sloan-Kettering Cancer Center. Dr. Levin offers care and consultations for adults and children with bone and soft tissue tumors of the pelvis and extremities. He has extensive experience in performing limb-sparing and complex extremity reconstruction surgeries. Dr. Levin has a special interest in surgical palliation and biologic reconstruction. Dr. Levin is a member of the American Academy of Orthopaedic Surgeons and the Musculoskeletal Tumor Society. Dr. Levin is rated as a Distinguished provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Adult Soft Tissue Sarcoma, Osteosarcoma, Ollier Disease, Hip Replacement, and Osteotomy.

      Ryan T. Voskuil
      Advanced in Maffucci Syndrome
      Advanced in Maffucci Syndrome

      Atrium Health Levine Cancer Institute (Rare & Complex Sarcoma)

      1021 Morehead Medical Drive, Suite 3200, 
      Charlotte, NC 
      Languages Spoken:
      English
      Offers Telehealth

      Ryan Voskuil is an Orthopedics provider in Charlotte, North Carolina. Dr. Voskuil is rated as an Advanced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Bone Tumor, Chondroblastoma, Chondroma, Osteochondroma, and Hip Replacement.

      Learn about our expert tiers
      Experienced in Maffucci Syndrome
      Orthopedics | Pediatrics
      Experienced in Maffucci Syndrome
      Orthopedics | Pediatrics

      Multicare Health System

      200 Lilly Rd Ne, Suite C, 
      Olympia, WA 
      Languages Spoken:
      English, French, German, Spanish
      Accepting New Patients
      Offers Telehealth

      Nicholas Rajacich is an Orthopedics specialist and a Pediatrics provider in Olympia, Washington. Dr. Rajacich is rated as an Experienced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Clubfoot, Maffucci Syndrome, Ollier Disease, and Syndactyly Cenani Lenz Type. Dr. Rajacich is currently accepting new patients.

      Experienced in Maffucci Syndrome
      Orthopedics | Podiatric Surgery
      Experienced in Maffucci Syndrome
      Orthopedics | Podiatric Surgery

      Southern Orthopaedic Alliance PLLC

      4517 Southlake Pkwy, 
      Hoover, AL 
      Languages Spoken:
      English
      Accepting New Patients

      William Krauss is an Orthopedics specialist and a Podiatric Surgeon in Hoover, Alabama. Dr. Krauss is rated as an Experienced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Lethal Congenital Contracture Syndrome, Trismus-Pseudocamptodactyly Syndrome, Congenital Contractures, and Distal Arthrogryposis. Dr. Krauss is currently accepting new patients.

      Experienced in Maffucci Syndrome
      Interventional Radiology | Radiology
      Experienced in Maffucci Syndrome
      Interventional Radiology | Radiology

      UCLA Radiology Medical Group

      514 N Prospect Ave, 
      Redondo Beach, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Ravi Srinivasa is an Interventional Radiologist and a Radiologist in Redondo Beach, California. Dr. Srinivasa is rated as an Experienced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Chylous Ascites, Cholestasis, Bile Duct Obstruction, Liver Embolization, and Gastrostomy.

      Experienced in Maffucci Syndrome
      Experienced in Maffucci Syndrome

      Healthone Clinic Services - Orthopedic Specialists LLC

      4105 Briargate Pkwy, Suite 300, 
      Colorado Springs, CO 
      Languages Spoken:
      English
      Accepting New Patients

      Geoffrey Doner is an Orthopedics provider in Colorado Springs, Colorado. Dr. Doner is rated as an Experienced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Bursitis, Tendinitis, Tenosynovitis, and Osteoarthritis. Dr. Doner is currently accepting new patients.

      Experienced in Maffucci Syndrome
      Experienced in Maffucci Syndrome

      University Of Vermont Medical Center Inc

      1 S Prospect St, 
      Burlington, VT 
      Languages Spoken:
      English
      Accepting New Patients

      Jennifer Lisle is an Orthopedics provider in Burlington, Vermont. Dr. Lisle is rated as an Experienced provider by MediFind in the treatment of Maffucci Syndrome. Her top areas of expertise are Osteochondroma, Myxoid Liposarcoma, Rhabdomyosarcoma Embryonal, Fibrosarcoma, and Hip Replacement. Dr. Lisle is currently accepting new patients.

      Distinguished in Maffucci Syndrome
      Distinguished in Maffucci Syndrome

      Mskcc Surgery Group

      205 E 64th St, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Edward Athanasian is an Orthopedics provider in New York, New York. Dr. Athanasian is rated as a Distinguished provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Adult Soft Tissue Sarcoma, Bone Tumor, Fibrosarcoma, Osteotomy, and Bone Graft.

      Distinguished in Maffucci Syndrome
      Orthopedics | Surgical Oncology
      Distinguished in Maffucci Syndrome
      Orthopedics | Surgical Oncology

      Mskcc Surgery Group

      160 E 53rd St, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Carol Morris is an Orthopedics specialist and a Surgical Oncologist in New York, New York. Dr. Morris is rated as a Distinguished provider by MediFind in the treatment of Maffucci Syndrome. Her top areas of expertise are Adult Soft Tissue Sarcoma, Bone Tumor, Osteosarcoma, Osteotomy, and Hip Replacement.

      Distinguished in Maffucci Syndrome
      Distinguished in Maffucci Syndrome

      University Of Kansas Hospital Authority

      3901 Rainbow Blvd, 
      Kansas City, KS 
      Languages Spoken:
      English

      Howard Rosenthal is an Orthopedics provider in Kansas City, Kansas. Dr. Rosenthal is rated as a Distinguished provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Bone Tumor, Adult Soft Tissue Sarcoma, Osteochondroma, Myxoid Liposarcoma, and Hip Replacement.

      Mihir Thacker
      Advanced in Maffucci Syndrome
      Orthopedics
      Advanced in Maffucci Syndrome
      Orthopedics

      Nemours DuPont Hospital For Children

      1600 Rockland Road, Department Of Orthopaedic Surgery, 
      Wilmington, DE 
      Languages Spoken:
      English

      Mihir Thacker is an Orthopedics provider in Wilmington, Delaware. Dr. Thacker is rated as an Advanced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Osteochondroma, Knock Knees, Hereditary Multiple Osteochondromas, Osteotomy, and Spinal Fusion.

      Donna Magid
      Advanced in Maffucci Syndrome
      Radiology
      Advanced in Maffucci Syndrome
      Radiology

      The Johns Hopkins Hospital

      1800 Orleans Street, 
      Baltimore, MD 
      Languages Spoken:
      English

      "Dr. Donna Magid, a Johns Hopkins Medicine Professor of Diagnostic Radiology, holds joint appointments in Orthopaedic Surgery and Functional Anatomy and Evolution. As Director of both the JHU SOM Horizontal Strand in Diagnostic Imaging, and Undergraduate Medical Education in Radiology, she develops and oversees educational programs and curriculae from Gross Anatomy through the Transition to Wards and clinical years to ensure a firm foundation in and comprehension of the intelligent, safe, effective use of imaging in medical practice and of appropriate consultation with Diagnostic Imagers. Dr. Magid is also recognized nationally and by the students for intense involvement with career mentoring and The Match, professionalism, and the 'Hidden Curriculum"", emphasizing precise appropriate use of medical English and the non-verbal aspects of professional demeanor and comportment. Her areas of clinical specialization include Musculoskeletal and Emergency Medicine radiography and joint procedures, including aspirations and pain-response studies, particularly in difficult patients who might otherwise require anesthesia for same. After receiving her BS summa cum laude in Psychology at Tufts University in Boston, she completed an M.Ed in Adolescent Psychology at Boston University. Her MD from Johns Hopkins School of Medicine was followed by one year out of the JHU system for internship at Harvard's Cambridge Hospital in Boston, after which she returned to JHM for Radiology Residency, Radiology Fellowship in CT and US , and subsequent faculty positions. Her career has been 'biphasic'; after a decade focused on nationally recognized Orthopaedic and Body CT research, she became heavily engaged with medical student and resident education and mentoring. After a decade as Co-Director of Resident Selection and Assistant Residency Program Director she shifted her focus, as she participated in the development and debut of JHU SOM's new curriculum, to the success of that curriculum and to the medical students. This focus and passion has been rewarded with multiple awards both at Hopkins and nationally, for teaching excellence and for published research in radiology education. Dr. Magid is participating in the writing and design of the ABR's new national mandated licensing exam for Diagnostic Radiology.". Dr. Magid is rated as an Advanced provider by MediFind in the treatment of Maffucci Syndrome. Her top areas of expertise are Scoliosis, Metachondromatosis, Maffucci Syndrome, and Ollier Disease.

      Kimberly A. Les
      Advanced in Maffucci Syndrome
      Advanced in Maffucci Syndrome

      Corewell Health William Beaumont University Hospital Orthopedic Oncology

      3577 West 13 Mile Road, Suite 402, 
      Royal Oak, MI 
      Experience:
      34+ years
      Languages Spoken:
      English
      Accepting New Patients

      Kimberly Les is an Orthopedics provider in Royal Oak, Michigan. Dr. Les has been practicing medicine for over 34 years and is rated as an Advanced provider by MediFind in the treatment of Maffucci Syndrome. Her top areas of expertise are Acrospiroma, Juvenile Angiofibroma, Osteochondroma, Osteosarcoma, and Hip Replacement. Dr. Les is currently accepting new patients.

      Shadpour Demehri
      Advanced in Maffucci Syndrome
      Interventional Radiology
      Advanced in Maffucci Syndrome
      Interventional Radiology

      The Johns Hopkins Hospital

      1800 Orleans Street, 
      Baltimore, MD 
      Languages Spoken:
      English, Farsi

      Dr. Shadpour Demehri is a Professor in the Johns Hopkins Medicine Department of Radiology and Radiological Science. He specializes in diagnostic radiology and musculoskeletal (MSK) radiology. Dr. Demehri received his M.D. from Tehran University School of Medicine in 2003. He completed a fellowship in radiology at Johns Hopkins University School of Medicine. He performed his residency in diagnostic radiology in 2010 at Brigham & Women’s Hospital, where he subsequently completed two fellowships, one in musculoskeletal and nuclear radiology and a second in noninvasive cardiovascular imaging. He joined the Johns Hopkins faculty in September 2012. Dr. Demehri is rated as an Advanced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Undifferentiated Pleomorphic Sarcoma, Rhabdomyosarcoma Embryonal, Ollier Disease, Osteotomy, and Aneurysm Repair.

      Drew D. Moore
      Advanced in Maffucci Syndrome
      Orthopedics
      Advanced in Maffucci Syndrome
      Orthopedics

      Corewell Health William Beaumont University Hospital Orthopedic Oncology

      3577 West 13 Mile Road, Suite 402, 
      Royal Oak, MI 
      Experience:
      18+ years
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Drew Moore is an Orthopedics provider in Royal Oak, Michigan. Dr. Moore has been practicing medicine for over 18 years and is rated as an Advanced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Bone Tumor, Osteosarcoma, Chondrosarcoma, Hip Replacement, and Knee Replacement. Dr. Moore is currently accepting new patients.

      Brian T. Muffly
      Advanced in Maffucci Syndrome
      Advanced in Maffucci Syndrome

      Emory Orthopaedics & Spine Center - Atlanta

      21 Ortho Lane, Fl1, 
      Atlanta, GA 
      Experience:
      9+ years
      Languages Spoken:
      English

      Brian Muffly is an Orthopedics provider in Atlanta, Georgia. Dr. Muffly has been practicing medicine for over 9 years and is rated as an Advanced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Slipped Capital Femoral Epiphysis, Maffucci Syndrome, Ollier Disease, Osteotomy, and Hip Replacement.

      Experienced in Maffucci Syndrome
      Experienced in Maffucci Syndrome

      Aligned Orthopedic Partners

      19735 Germantown Rd #120, 
      Germantown, MD 
      Languages Spoken:
      English
      Accepting New Patients

      Brett Hampton is an Orthopedics provider in Germantown, Maryland. Dr. Hampton is rated as an Experienced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Osteoarthritis, Spinal Stenosis, Tendinitis, Hip Replacement, and Knee Replacement. Dr. Hampton is currently accepting new patients.

      Advanced in Maffucci Syndrome
      Pediatric Radiology | Radiology
      Advanced in Maffucci Syndrome
      Pediatric Radiology | Radiology

      The Nemours Foundation

      6535 Nemours Pkwy, 
      Orlando, FL 
      Languages Spoken:
      English

      Grace Guo is a Pediatric Radiologist and a Radiologist in Orlando, Florida. Dr. Guo is rated as an Advanced provider by MediFind in the treatment of Maffucci Syndrome. Her top areas of expertise are Spondylocarpotarsal Synostosis Syndrome, Caudal Regression Syndrome, Atelosteogenesis Type 2, and Diastrophic Dysplasia.

      Advanced in Maffucci Syndrome
      Plastic Surgery | Orthopedics
      Advanced in Maffucci Syndrome
      Plastic Surgery | Orthopedics

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Steven Moran is a Plastic Surgeon and an Orthopedics provider in Rochester, Minnesota. Dr. Moran is rated as an Advanced provider by MediFind in the treatment of Maffucci Syndrome. His top areas of expertise are Kienbock's Disease, Bone Tumor, Adult Soft Tissue Sarcoma, Bone Graft, and Fasciotomy. Dr. Moran is currently accepting new patients.

      Showing 1-20 of 267

      Last Updated: 01/09/2026

      What is the definition of Maffucci Syndrome?

      Maffucci syndrome is a disorder that primarily affects the bones and skin. It is characterized by multiple enchondromas, which are noncancerous (benign) growths of cartilage that develop within the bones. These growths most commonly occur in the limb bones, especially in the bones of the hands and feet; however, they may also occur in the skull, ribs, and bones of the spine (vertebrae). Enchondromas may result in severe bone deformities, shortening of the limbs, and fractures.

      When should I see a Maffucci Syndrome doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Maffucci Syndrome doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Maffucci Syndrome doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Maffucci Syndrome doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Maffucci Syndrome doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Maffucci Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Maffucci Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Maffucci Syndrome doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Maffucci Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Maffucci Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Maffucci Syndrome doctors in The United States?

      Look for the filter feature on the left side of the Maffucci Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Maffucci Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Maffucci Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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