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    Last Updated: 10/30/2025

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    MediFind found 2 doctor with experience in Marden-Walker Syndrome near Boston, MA. Of these, 1 are Distinguished and 1 are Experienced.

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    2 providers found
      Distinguished in Marden-Walker Syndrome

      Dr. Hans S. Kim
      Internal Medicine
      Distinguished in Marden-Walker Syndrome

      Dr. Hans S. Kim
      Internal Medicine

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      617-754-8612
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      Hans Kim is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Kim is rated as a Distinguished provider by MediFind in the treatment of Marden-Walker Syndrome. His top areas of expertise are Greig Cephalopolysyndactyly Syndrome, Hypertrichosis-Acromegaloid Facial Appearance Syndrome, Craniofacial-Deafness-Hand Syndrome, and Ascher Syndrome. Dr. Kim is currently accepting new patients.

      Experienced in Marden-Walker Syndrome

      Dr. Dineli N. Ahearn
      Internal Medicine
      Experienced in Marden-Walker Syndrome

      Dr. Dineli N. Ahearn
      Internal Medicine

      Pratt Medical Group Inc

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      617-636-5000
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      Dineli Ahearn is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Ahearn is rated as an Experienced provider by MediFind in the treatment of Marden-Walker Syndrome. Her top areas of expertise are Osteoporosis, Postmenopausal Osteoporosis, Cellulitis, and Obesity in Children. Dr. Ahearn is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Learn about our expert tiers
      Showing 1-2 of 2

      Last Updated: 10/30/2025

      What is the definition of Marden-Walker Syndrome?

      Marden-Walker syndrome (MWS) is a genetic condition affecting the connective tissue. Features may include distinctive facial features, a cleft or high-arched palate, a small or receding jaw (micrognathia), fixed bone joints (contractures or arthrogryposis), and growth delay. Other symptoms may include a mask-like face with a narrowing of the eye opening (blepharophimosis), low-set ears, failure to thrive, and a generalized slowing down of physical reactions, movements, and speech. The cause of MWS is unknown. A few individuals have been found to have a PIEZO2 gene that is not working correctly. It is likely inherited in an autosomal recessive pattern. This condition is diagnosed by a clinical exam and other medical tests.

      When should I see a Marden-Walker Syndrome doctor near Boston, MA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Marden-Walker Syndrome doctor near Boston, MA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Marden-Walker Syndrome doctor near Boston, MA?

      You can find a Marden-Walker Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Marden-Walker Syndrome doctors near Boston, MA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Marden-Walker Syndrome doctors near Boston, MA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Marden-Walker Syndrome doctor near Boston, MA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Marden-Walker Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Marden-Walker Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Marden-Walker Syndrome doctor near Boston, MA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Marden-Walker Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Marden-Walker Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Marden-Walker Syndrome doctors near Boston, MA?

      Look for the filter feature on the left side of the Marden-Walker Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Marden-Walker Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Marden-Walker Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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