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    Last Updated: 10/30/2025

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    MediFind found 11 doctor with experience in Megalencephalic Leukoencephalopathy with Subcortical Cysts near Washington, DC. Of these, 11 are Experienced.

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    11 providers found
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Christina Grant
      Pediatrics | Medical Genetics
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Christina Grant
      Pediatrics | Medical Genetics

      Children's Hospital

      111 Michigan Ave Nw, 
      Washington, DC 
       (1.8 miles away)
      202-476-5000
      Languages Spoken:
      English
      See accepted insurances

      Christina Grant is a Pediatrics specialist and a Medical Genetics provider in Washington, Washington, D.c.. Dr. Grant is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome), and Mucopolysaccharidosis Type 4A (MPS IVA, Morquio Syndrome Type A).

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Laura S. Tochen
      Pediatric Neurology | Neurology
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Laura S. Tochen
      Pediatric Neurology | Neurology
      111 Michigan Ave Nw, 
      Washington, DC 
       (1.8 miles away)
      202-476-2120
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients

      Laura Tochen is a Pediatric Neurologist and a Neurologist in Washington, Washington, D.c.. Dr. Tochen is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are CACH Syndrome, Stereotypic Movement Disorder, Tourette Syndrome, Chorea, and Deep Brain Stimulation. Dr. Tochen is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Natasha E. Shur
      Medical Genetics | Pediatrics
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Natasha E. Shur
      Medical Genetics | Pediatrics

      Children's Hospital

      111 Michigan Ave Nw, 
      Washington, DC 
       (1.8 miles away)
      202-476-5000
      Languages Spoken:
      English
      See accepted insurances

      Natasha Shur is a Medical Genetics specialist and a Pediatrics provider in Washington, Washington, D.c.. Dr. Shur is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are Pyruvate Carboxylase Deficiency, Phenylketonuria (PKU), Ehlers-Danlos Syndrome (EDS), and Lowe Syndrome.

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      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Jamie L. Fraser
      Medical Genetics | Pediatrics
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Jamie L. Fraser
      Medical Genetics | Pediatrics
      111 Michigan Ave Nw, Division Of Genetics And Metabolism, 
      Washington, DC 
       (1.8 miles away)
      202-476-5000
      Languages Spoken:
      English
      See accepted insurances

      Jamie Fraser is a Medical Genetics specialist and a Pediatrics provider in Washington, Washington, D.c.. Dr. Fraser is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are Methylmalonic Acidemia, Pyruvate Decarboxylase Deficiency, Leukodystrophy, Pyruvate Dehydrogenase Deficiency, and Gastrostomy.

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Hayley A. Ron
      Medical Genetics
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Hayley A. Ron
      Medical Genetics
      3800 Reservoir Rd Nw, Department Of Pediatrics, 
      Washington, DC 
       (2.1 miles away)
      202-243-3434
      Languages Spoken:
      English
      See accepted insurances

      Hayley Ron is a Medical Genetics provider in Washington, Washington, D.c.. Dr. Ron is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are 3p Deletion Syndrome, Chromosome 18p Deletion, Chromosome 9p Deletion, and Chromosome 6q Deletion.

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Henry B. Fox
      Hematology Oncology | Hematology | Oncology
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Henry B. Fox
      Hematology Oncology | Hematology | Oncology

      Privia Medical Group, LLC

      5530 Wisconsin Ave, Suite 650, 
      Chevy Chase, MD 
       (4.8 miles away)
      202-296-2440
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      Henry Fox is a Hematologist Oncology specialist and a Hematologist in Chevy Chase, Maryland. Dr. Fox is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Paroxysmal Nocturnal Hemoglobinuria (PNH), Antiphospholipid Syndrome, Glossitis, and Pernicious Anemia. Dr. Fox is currently accepting new patients.

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Robert J. Christie
      Hematology Oncology | Hematology | Oncology
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Robert J. Christie
      Hematology Oncology | Hematology | Oncology

      Virginia Cancer Specialists, P.C.

      1635 N George Mason Dr, Suite 170, 
      Arlington, VA 
       (5.1 miles away)
      703-894-3800
      Languages Spoken:
      English, French, Spanish
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      Robert Christie is a Hematologist Oncology specialist and a Hematologist in Arlington, Virginia. Dr. Christie is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Lung Cancer, Pleuropulmonary Blastoma, Paget Disease of the Breast, and Multiple Myeloma. Dr. Christie is currently accepting new patients.

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Meral Gunay-Aygun
      Medical Genetics | Pediatrics
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Meral Gunay-Aygun
      Medical Genetics | Pediatrics
      Nhgri 10 Center Dr Bldg 10, Rm 10c103, 
      Bethesda, MD 
       (6.1 miles away)
      301-594-4181
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      Meral Gunay-Aygun is a Medical Genetics specialist and a Pediatrics provider in Bethesda, Maryland. Dr. Gunay-Aygun is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are Phenylketonuria (PKU), Ornithine Translocase Deficiency, Ornithine Transcarbamylase Deficiency, and Argininosuccinic Aciduria. Dr. Gunay-Aygun is currently accepting new patients.

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Pim Suwannarat
      Medical Genetics | Pediatrics | Geriatrics
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Pim Suwannarat
      Medical Genetics | Pediatrics | Geriatrics

      Kaiser Foundation Health Plan Of The Mid Atlantic States, Inc

      5100 Auth Way, 
      Suitland, MD 
       (8.4 miles away)
      301-702-5000
      Languages Spoken:
      English, Thai
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      Pim Suwannarat is a Medical Genetics specialist and a Pediatrics provider in Suitland, Maryland. Dr. Suwannarat is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are Triple X Syndrome, Classic Galactosemia, Ehlers-Danlos Syndrome (EDS), and Chromosome 10q Deletion. Dr. Suwannarat is currently accepting new patients.

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Marta Biderman-Waberski
      Medical Genetics | Pediatrics
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. Marta Biderman-Waberski
      Medical Genetics | Pediatrics

      Inova Health Care Services

      3300 Gallows Rd, 
      Falls Church, VA 
       (10.9 miles away)
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      Marta Biderman-Waberski is a Medical Genetics specialist and a Pediatrics provider in Falls Church, Virginia. Dr. Biderman-Waberski is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. Her top areas of expertise are Perlman Syndrome, Fabry Disease, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Multiple Sulfatase Deficiency. Dr. Biderman-Waberski is currently accepting new patients.

      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. David M. Dewitte
      Family Medicine
      Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

      Dr. David M. Dewitte
      Family Medicine

      Family Healthcare Of Fairfax PC

      3025 Hamaker Ct, Suite 350, 
      Fairfax, VA 
       (11.1 miles away)
      703-573-6400
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients

      David Dewitte is a primary care provider, practicing in Family Medicine in Fairfax, Virginia. Dr. Dewitte is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. His top areas of expertise are Papular Urticaria, Dubin-Johnson Syndrome, Rotor Syndrome, and Obesity. Dr. Dewitte is currently accepting new patients.

      Showing 1-11 of 11

      Last Updated: 10/30/2025

      What is the definition of Megalencephalic Leukoencephalopathy with Subcortical Cysts?

      Megalencephalic leukoencephalopathy with subcortical cysts (MLC) is a condition that affects brain development and function. Individuals with this condition have an enlarged brain (megalencephaly) and an abnormality of the white matter in the brain (leukoencephalopathy). White matter consists of nerve fibers covered by a fatty substance called myelin that promotes the rapid transmission of nerve impulses. In MLC, the myelin is swollen and contains numerous fluid-filled pockets (vacuoles). Over time, the swelling decreases and the myelin begins to waste away (atrophy). Leukoencephalopathy can lead to abnormal muscle tensing (spasticity), difficulty coordinating movements (ataxia), cysts in the brain (subcortical cysts), abnormal muscle tone (dystonia), swallowing difficulties, mild to moderate intellectual disabilities, speech difficulties, seizures, and difficulties walking. There are three types of MLC, which are distinguished by their signs and symptoms and genetic cause. Type 1 is caused by genetic changes in the MLC1 gene. Types 2A and 2B are caused by genetic changes in the HEPACAM gene. MLC types 1 and 2A are inherited in an autosomal recessive manner, while type 2B is inherited in an autosomal dominant manner. In some cases of MLC, the cause is unknown.

      When should I see a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Washington, DC?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Washington, DC?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Washington, DC?

      You can find a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor in any of the 10 largest U.S. cities by clicking below:

      Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near New York, NY
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      How does MediFind rank Megalencephalic Leukoencephalopathy with Subcortical Cysts doctors near Washington, DC?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Megalencephalic Leukoencephalopathy with Subcortical Cysts doctors near Washington, DC?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Washington, DC?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor search results page. 

      Why is it important to get a second opinion from a different Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Washington, DC?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Megalencephalic Leukoencephalopathy with Subcortical Cysts doctors near Washington, DC?

      Look for the filter feature on the left side of the Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor that offers video calls?

      Look for the filter feature on the left-side of the Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy. 

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