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    Last Updated: 01/09/2026

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    MediFind found 347 doctor with experience in Metachondromatosis near The United States. Of these, 260 are Experienced, 83 are Advanced and 4 are Distinguished.

    Location
    LocationClose
    347 providers found
      Advanced in Metachondromatosis
      Advanced in Metachondromatosis

      Loyola University Medical Center

      2160 S 1st Ave, 
      Maywood, IL 
      Languages Spoken:
      English
      Accepting New Patients

      Felicity Fishman is a Hand Surgeon in Maywood, Illinois. Dr. Fishman is rated as an Advanced provider by MediFind in the treatment of Metachondromatosis. Her top areas of expertise are Syndactyly Type 2, Polydactyly, Syndactyly Type 1, and Syndactyly. Dr. Fishman is currently accepting new patients.

      Advanced in Metachondromatosis
      Advanced in Metachondromatosis

      Hartford Hospital

      80 Seymour St, 
      Hartford, CT 
      Experience:
      17+ years
      Languages Spoken:
      English
      Offers Telehealth

      Adam Lindsay is an Orthopedics provider in Hartford, Connecticut. Dr. Lindsay has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Metachondromatosis. His top areas of expertise are Osteochondroma, Chondroma, Chondroblastoma, Fibrous Dysplasia, and Hip Replacement.

      Adam S. Levin
      Distinguished in Metachondromatosis
      Orthopedics
      Distinguished in Metachondromatosis
      Orthopedics

      Johns Hopkins Outpatient Center

      601 North Caroline Street, Suite 5009, Suite 5009, 
      Baltimore, MD 
      Languages Spoken:
      English

      Adam Levin, MD, joined the Johns Hopkins Department of Orthopaedic Surgery as an assistant professor in orthopaedic oncology. Dr. Levin comes to Johns Hopkins after working as an orthopaedic oncologist at the North Shore/LIJ Health System in New York. He completed his residency in orthopaedic surgery at Long Island Jewish Medical Center, and a fellowship in orthopaedic oncology at the Memorial Sloan-Kettering Cancer Center. Dr. Levin offers care and consultations for adults and children with bone and soft tissue tumors of the pelvis and extremities. He has extensive experience in performing limb-sparing and complex extremity reconstruction surgeries. Dr. Levin has a special interest in surgical palliation and biologic reconstruction. Dr. Levin is a member of the American Academy of Orthopaedic Surgeons and the Musculoskeletal Tumor Society. Dr. Levin is rated as a Distinguished provider by MediFind in the treatment of Metachondromatosis. His top areas of expertise are Adult Soft Tissue Sarcoma, Osteosarcoma, Ollier Disease, Hip Replacement, and Osteotomy.

      Learn about our expert tiers
      Experienced in Metachondromatosis
      Orthopedics | Pediatrics
      Experienced in Metachondromatosis
      Orthopedics | Pediatrics

      Multicare Health System

      200 Lilly Rd Ne, Suite C, 
      Olympia, WA 
      Languages Spoken:
      English, French, German, Spanish
      Accepting New Patients
      Offers Telehealth

      Nicholas Rajacich is an Orthopedics specialist and a Pediatrics provider in Olympia, Washington. Dr. Rajacich is rated as an Experienced provider by MediFind in the treatment of Metachondromatosis. His top areas of expertise are Clubfoot, Maffucci Syndrome, Ollier Disease, and Syndactyly Cenani Lenz Type. Dr. Rajacich is currently accepting new patients.

      Experienced in Metachondromatosis
      Orthopedics | Podiatric Surgery
      Experienced in Metachondromatosis
      Orthopedics | Podiatric Surgery

      Southern Orthopaedic Alliance PLLC

      4517 Southlake Pkwy, 
      Hoover, AL 
      Languages Spoken:
      English
      Accepting New Patients

      William Krauss is an Orthopedics specialist and a Podiatric Surgeon in Hoover, Alabama. Dr. Krauss is rated as an Experienced provider by MediFind in the treatment of Metachondromatosis. His top areas of expertise are Lethal Congenital Contracture Syndrome, Trismus-Pseudocamptodactyly Syndrome, Congenital Contractures, and Distal Arthrogryposis. Dr. Krauss is currently accepting new patients.

      Experienced in Metachondromatosis
      Interventional Radiology | Radiology
      Experienced in Metachondromatosis
      Interventional Radiology | Radiology

      UCLA Radiology Medical Group

      514 N Prospect Ave, 
      Redondo Beach, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Ravi Srinivasa is an Interventional Radiologist and a Radiologist in Redondo Beach, California. Dr. Srinivasa is rated as an Experienced provider by MediFind in the treatment of Metachondromatosis. His top areas of expertise are Chylous Ascites, Cholestasis, Bile Duct Obstruction, Liver Embolization, and Gastrostomy.

      Experienced in Metachondromatosis
      Experienced in Metachondromatosis

      University Of Vermont Medical Center Inc

      1 S Prospect St, 
      Burlington, VT 
      Languages Spoken:
      English
      Accepting New Patients

      Jennifer Lisle is an Orthopedics provider in Burlington, Vermont. Dr. Lisle is rated as an Experienced provider by MediFind in the treatment of Metachondromatosis. Her top areas of expertise are Osteochondroma, Myxoid Liposarcoma, Rhabdomyosarcoma Embryonal, Fibrosarcoma, and Hip Replacement. Dr. Lisle is currently accepting new patients.

      Experienced in Metachondromatosis
      Experienced in Metachondromatosis

      Healthone Clinic Services - Orthopedic Specialists LLC

      4105 Briargate Pkwy, Suite 300, 
      Colorado Springs, CO 
      Languages Spoken:
      English
      Accepting New Patients

      Geoffrey Doner is an Orthopedics provider in Colorado Springs, Colorado. Dr. Doner is rated as an Experienced provider by MediFind in the treatment of Metachondromatosis. His top areas of expertise are Bursitis, Tendinitis, Tenosynovitis, and Osteoarthritis. Dr. Doner is currently accepting new patients.

      Distinguished in Metachondromatosis
      Physician Assistant
      Distinguished in Metachondromatosis
      Physician Assistant
      170 William St, 
      New York, NY 
      Languages Spoken:
      English
      Accepting New Patients

      Kari Wipfli is a Physician Assistant in New York, New York. Ms. Wipfli is rated as a Distinguished provider by MediFind in the treatment of Metachondromatosis. Her top areas of expertise are Metachondromatosis and Syndactyly Cenani Lenz Type. Ms. Wipfli is currently accepting new patients.

      Distinguished in Metachondromatosis
      Distinguished in Metachondromatosis

      University Of Kansas Hospital Authority

      3901 Rainbow Blvd, 
      Kansas City, KS 
      Languages Spoken:
      English

      Howard Rosenthal is an Orthopedics provider in Kansas City, Kansas. Dr. Rosenthal is rated as a Distinguished provider by MediFind in the treatment of Metachondromatosis. His top areas of expertise are Bone Tumor, Adult Soft Tissue Sarcoma, Osteochondroma, Myxoid Liposarcoma, and Hip Replacement.

      Distinguished in Metachondromatosis
      Internal Medicine
      Distinguished in Metachondromatosis
      Internal Medicine

      Eren And Atluri, Mds,llc

      7310 Ritchie Hwy, Suite 800, 
      Glen Burnie, MD 
      Languages Spoken:
      English, Turkish
      Accepting New Patients
      Offers Telehealth

      Fer Eren is a primary care provider, practicing in Internal Medicine in Glen Burnie, Maryland. Dr. Eren is rated as a Distinguished provider by MediFind in the treatment of Metachondromatosis. His top areas of expertise are Syndactyly Cenani Lenz Type, Metachondromatosis, Familial Multiple Lipomatosis, and Adiposis Dolorosa. Dr. Eren is currently accepting new patients.

      Mihir Thacker
      Advanced in Metachondromatosis
      Orthopedics
      Advanced in Metachondromatosis
      Orthopedics

      Nemours DuPont Hospital For Children

      1600 Rockland Road, Department Of Orthopaedic Surgery, 
      Wilmington, DE 
      Languages Spoken:
      English

      Mihir Thacker is an Orthopedics provider in Wilmington, Delaware. Dr. Thacker is rated as an Advanced provider by MediFind in the treatment of Metachondromatosis. His top areas of expertise are Osteochondroma, Knock Knees, Hereditary Multiple Osteochondromas, Osteotomy, and Spinal Fusion.

      Donna Magid
      Advanced in Metachondromatosis
      Radiology
      Advanced in Metachondromatosis
      Radiology

      The Johns Hopkins Hospital

      1800 Orleans Street, 
      Baltimore, MD 
      Languages Spoken:
      English

      "Dr. Donna Magid, a Johns Hopkins Medicine Professor of Diagnostic Radiology, holds joint appointments in Orthopaedic Surgery and Functional Anatomy and Evolution. As Director of both the JHU SOM Horizontal Strand in Diagnostic Imaging, and Undergraduate Medical Education in Radiology, she develops and oversees educational programs and curriculae from Gross Anatomy through the Transition to Wards and clinical years to ensure a firm foundation in and comprehension of the intelligent, safe, effective use of imaging in medical practice and of appropriate consultation with Diagnostic Imagers. Dr. Magid is also recognized nationally and by the students for intense involvement with career mentoring and The Match, professionalism, and the 'Hidden Curriculum"", emphasizing precise appropriate use of medical English and the non-verbal aspects of professional demeanor and comportment. Her areas of clinical specialization include Musculoskeletal and Emergency Medicine radiography and joint procedures, including aspirations and pain-response studies, particularly in difficult patients who might otherwise require anesthesia for same. After receiving her BS summa cum laude in Psychology at Tufts University in Boston, she completed an M.Ed in Adolescent Psychology at Boston University. Her MD from Johns Hopkins School of Medicine was followed by one year out of the JHU system for internship at Harvard's Cambridge Hospital in Boston, after which she returned to JHM for Radiology Residency, Radiology Fellowship in CT and US , and subsequent faculty positions. Her career has been 'biphasic'; after a decade focused on nationally recognized Orthopaedic and Body CT research, she became heavily engaged with medical student and resident education and mentoring. After a decade as Co-Director of Resident Selection and Assistant Residency Program Director she shifted her focus, as she participated in the development and debut of JHU SOM's new curriculum, to the success of that curriculum and to the medical students. This focus and passion has been rewarded with multiple awards both at Hopkins and nationally, for teaching excellence and for published research in radiology education. Dr. Magid is participating in the writing and design of the ABR's new national mandated licensing exam for Diagnostic Radiology.". Dr. Magid is rated as an Advanced provider by MediFind in the treatment of Metachondromatosis. Her top areas of expertise are Scoliosis, Metachondromatosis, Maffucci Syndrome, and Ollier Disease.

      Kimberly A. Les
      Advanced in Metachondromatosis
      Advanced in Metachondromatosis

      Corewell Health William Beaumont University Hospital Orthopedic Oncology

      3577 West 13 Mile Road, Suite 402, 
      Royal Oak, MI 
      Experience:
      34+ years
      Languages Spoken:
      English
      Accepting New Patients

      Kimberly Les is an Orthopedics provider in Royal Oak, Michigan. Dr. Les has been practicing medicine for over 34 years and is rated as an Advanced provider by MediFind in the treatment of Metachondromatosis. Her top areas of expertise are Acrospiroma, Juvenile Angiofibroma, Osteochondroma, Osteosarcoma, and Hip Replacement. Dr. Les is currently accepting new patients.

      Julie E. Hoover
      Advanced in Metachondromatosis
      Pediatrics | Medical Genetics
      Advanced in Metachondromatosis
      Pediatrics | Medical Genetics

      Rubenstein Child Health Building

      200 North Wolfe Street, Rubenstein BLDG Lower Level, Rubenstein BLDG Lower Level, 
      Baltimore, MD 
      Languages Spoken:
      English

      Dr. Julie Hoover-Fong is a Professor of Genetic Medicine and Pediatrics and Director of the Greenberg Center for Skeletal Dysplasias at Johns Hopkins University. Dr. Hoover-Fong holds a bachelor’s degree in Human Nutrition from The Ohio State University, where she also completed her medical degree. She received her Ph.D. in the Graduate Training Program in Clinical Investigation at the Johns Hopkins University School of Medicine and Bloomberg School of Public Health. Dr. Hoover-Fong completed a pediatric internship and residency at Washington University in St. Louis and a fellowship in medical genetics at Johns Hopkins University in Baltimore. She joined the Johns Hopkins University faculty in 2002 and progressed to Professor of Genetic Medicine and Pediatrics in 2019. She practices and oversees the clinical operations, research and educational ventures for the patients, families and healthcare providers served by the Greenberg Center. Her clinical team develops and improves diagnostic and treatment guidelines for comprehensive care of patients with all types of bone conditions including dwarfism, orofacial clefting, craniosynostosis and more. Dr. Hoover-Fong also mentors and teaches medical students, residents and genetic medicine trainees. As an active clinical researcher, Dr. Hoover-Fong is the Principal Investigator of multiple global clinical trials for achondroplasia, the first multi-center, investigator-initiated natural history study for achondroplasia, and multiple clinical studies for patients with orofacial clefting, hypophosphatasia and other conditions. She is also a co-investigator on the ELSI and Phenotype Review Committees for the Mendel Project, a whole exome sequencing venture to identify the genetic cause of Mendelian conditions. From an institutional service perspective, Dr. Hoover-Fong serves on the Johns Hopkins Associate Professor Promotions Committee and the Advisory Committee for the Graduate Training Program in Clinical Investigation. She serves on the Medical Advisory Board of the Little People of America, is a member of the Miller-Coulson Academy of Clinical Excellence at Johns Hopkins University and is a charter member of the International Skeletal Dysplasia Management Consortium, publishing best practice guidelines for patients with skeletal dysplasias. Dr. Hoover is rated as an Advanced provider by MediFind in the treatment of Metachondromatosis. Her top areas of expertise are Achondroplasia, Rhizomelic Syndrome, Spondyloepimetaphyseal Dysplasia Strudwick Type, Adenoidectomy, and Myringotomy.

      Shadpour Demehri
      Advanced in Metachondromatosis
      Interventional Radiology
      Advanced in Metachondromatosis
      Interventional Radiology

      The Johns Hopkins Hospital

      1800 Orleans Street, 
      Baltimore, MD 
      Languages Spoken:
      English, Farsi

      Dr. Shadpour Demehri is a Professor in the Johns Hopkins Medicine Department of Radiology and Radiological Science. He specializes in diagnostic radiology and musculoskeletal (MSK) radiology. Dr. Demehri received his M.D. from Tehran University School of Medicine in 2003. He completed a fellowship in radiology at Johns Hopkins University School of Medicine. He performed his residency in diagnostic radiology in 2010 at Brigham & Women’s Hospital, where he subsequently completed two fellowships, one in musculoskeletal and nuclear radiology and a second in noninvasive cardiovascular imaging. He joined the Johns Hopkins faculty in September 2012. Dr. Demehri is rated as an Advanced provider by MediFind in the treatment of Metachondromatosis. His top areas of expertise are Undifferentiated Pleomorphic Sarcoma, Rhabdomyosarcoma Embryonal, Ollier Disease, Osteotomy, and Aneurysm Repair.

      Ryan T. Voskuil
      Advanced in Metachondromatosis
      Advanced in Metachondromatosis

      Atrium Health Levine Cancer Institute (Rare & Complex Sarcoma)

      1021 Morehead Medical Drive, Suite 3200, 
      Charlotte, NC 
      Languages Spoken:
      English
      Offers Telehealth

      Ryan Voskuil is an Orthopedics provider in Charlotte, North Carolina. Dr. Voskuil is rated as an Advanced provider by MediFind in the treatment of Metachondromatosis. His top areas of expertise are Bone Tumor, Chondroblastoma, Chondroma, Osteochondroma, and Hip Replacement.

      Nathan Mesko
      Advanced in Metachondromatosis
      Pediatrics
      Advanced in Metachondromatosis
      Pediatrics

      Cleveland Clinic Main Campus

      2049 East 100th Street, 
      Cleveland, OH 
      Experience:
      22+ years
      Languages Spoken:
      English
      Offers Telehealth

      Nathan Mesko is a Pediatrics provider in Cleveland, Ohio. Dr. Mesko has been practicing medicine for over 22 years and is rated as an Advanced provider by MediFind in the treatment of Metachondromatosis. His top areas of expertise are Anemia, Metachondromatosis, Syndactyly Cenani Lenz Type, Hip Resurfacing, and Hip Replacement.

      Drew D. Moore
      Advanced in Metachondromatosis
      Orthopedics
      Advanced in Metachondromatosis
      Orthopedics

      Corewell Health William Beaumont University Hospital Orthopedic Oncology

      3577 West 13 Mile Road, Suite 402, 
      Royal Oak, MI 
      Experience:
      18+ years
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Drew Moore is an Orthopedics provider in Royal Oak, Michigan. Dr. Moore has been practicing medicine for over 18 years and is rated as an Advanced provider by MediFind in the treatment of Metachondromatosis. His top areas of expertise are Bone Tumor, Osteosarcoma, Chondrosarcoma, Hip Replacement, and Knee Replacement. Dr. Moore is currently accepting new patients.

      Matthew R. Steensma
      Advanced in Metachondromatosis
      Pediatrics | Surgical Oncology
      Advanced in Metachondromatosis
      Pediatrics | Surgical Oncology

      Corewell Health Orthopedic Oncology - Lemmen-Holton

      145 Michigan Street Northeast, Suite 5500, 
      Grand Rapids, MI 
      Experience:
      24+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Matthew Steensma is a Pediatrics specialist and a Surgical Oncologist in Grand Rapids, Michigan. Dr. Steensma has been practicing medicine for over 24 years and is rated as an Advanced provider by MediFind in the treatment of Metachondromatosis. His top areas of expertise are Fibrosarcoma, Neurofibromatosis, Adult Soft Tissue Sarcoma, Bone Tumor, and Hip Replacement. Dr. Steensma is currently accepting new patients.

      Showing 1-20 of 347

      Last Updated: 01/09/2026

      What is the definition of Metachondromatosis?

      Metachondromatosis (MC) is a rare bone disorder characterized by the presence of both multiple enchondromas and osteochondroma-like lesions. The first signs occur during the first decade of life. Osteochondromas most commonly occur in the hands and feet (predominantly in digits and toes), and enchondromas involve the iliac crests and metaphyses of long bones. The lesions typically spontaneously decrease in size or regress. Nerve paralysis or vascular complications may occur in some cases. The condition has been linked to genetic changes in the PTPN11 gene in several families and is inherited in an autosomal dominant manner.

      When should I see a Metachondromatosis doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Metachondromatosis doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Metachondromatosis doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Metachondromatosis doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Metachondromatosis doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Metachondromatosis doctor search results page. 

      Why is it important to get a second opinion from a different Metachondromatosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Metachondromatosis doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Metachondromatosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Metachondromatosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Metachondromatosis doctors in The United States?

      Look for the filter feature on the left side of the Metachondromatosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Metachondromatosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Metachondromatosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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