The 20 Best Metachromatic Leukodystrophy Doctors Near Me in North Rhine-Westphalia, DE

Find the Top Metachromatic Leukodystrophy Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 16 doctor with experience in Metachromatic Leukodystrophy near North Rhine-Westphalia, DE. Of these, 12 are Experienced, 2 are Advanced and 2 are Distinguished.

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16 providers found
    Distinguished in Metachromatic Leukodystrophy

    Volkmar Gieselmann
    Distinguished in Metachromatic Leukodystrophy

    Volkmar Gieselmann
    Referral may be required
    Bonn, NW, DE 

    Volkmar Gieselmann practices practicing medicine in Bonn, Germany. Gieselmann is rated as a Distinguished expert by MediFind in the treatment of Metachromatic Leukodystrophy. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Hereditary Spastic Paraparesis.

    Distinguished in Metachromatic Leukodystrophy

    Ulrich Matzner
    Distinguished in Metachromatic Leukodystrophy

    Ulrich Matzner
    Referral may be required
    Bonn, NW, DE 

    Ulrich Matzner practices practicing medicine in Bonn, Germany. Mr. Matzner is rated as a Distinguished expert by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, and CACH Syndrome.

    Advanced in Metachromatic Leukodystrophy

    Karthikeyan Radhakrishnan
    Advanced in Metachromatic Leukodystrophy

    Karthikeyan Radhakrishnan
    Referral may be required
    Bielefeld, NW, DE 

    Karthikeyan Radhakrishnan practices practicing medicine in Bielefeld, Germany. Mr. Radhakrishnan is rated as an Advanced expert by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Multiple Sulfatase Deficiency, Metachromatic Leukodystrophy, Chondrodysplasia Punctata with Steroid Sulfatase Deficiency, and Leukodystrophy.

    Learn about our expert tiers
    Advanced in Metachromatic Leukodystrophy

    Marc D. Sylvester
    Advanced in Metachromatic Leukodystrophy

    Marc D. Sylvester
    Referral may be required
    Bonn, NW, DE 

    Marc Sylvester practices practicing medicine in Bonn, Germany. Mr. Sylvester is rated as an Advanced expert by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Glutaric Acidemia Type 1.

    Experienced in Metachromatic Leukodystrophy

    Soren G. Gatermann
    Experienced in Metachromatic Leukodystrophy

    Soren G. Gatermann
    Referral may be required
    Bochum, NW, DE 

    Soren Gatermann practices practicing medicine in Bochum, Germany. Gatermann is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Pseudomonas Stutzeri Infections, Hospital-Acquired Pneumonia, Pneumonia, and Tularemia.

    Experienced in Metachromatic Leukodystrophy

    Thomas B. Schultz
    Experienced in Metachromatic Leukodystrophy

    Thomas B. Schultz
    Referral may be required
    Endenicher Allee 19a, 
    Bonn, NW, DE 

    Thomas Schultz practices practicing medicine in Bonn, Germany. Mr. Schultz is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. His clinical expertise encompasses Metachromatic Leukodystrophy, Multiple Sulfatase Deficiency, Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), and Cataract Removal.

    Experienced in Metachromatic Leukodystrophy

    Kee-pyo Kim
    Experienced in Metachromatic Leukodystrophy

    Kee-pyo Kim
    Referral may be required
    Muenster, NW, DE 

    Kee-pyo Kim practices practicing medicine in Muenster, Germany. Kim is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Pelizaeus-Merzbacher Disease, CACH Syndrome, Denys-Drash Syndrome (DDS), and Metachromatic Leukodystrophy.

    Experienced in Metachromatic Leukodystrophy

    Alexandra Koch
    Experienced in Metachromatic Leukodystrophy

    Alexandra Koch
    Referral may be required
    Bonn, NW, DE 

    Alexandra Koch practices practicing medicine in Bonn, Germany. Ms. Koch is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy, Multiple Sulfatase Deficiency, Metachromatic Leukodystrophy, and CACH Syndrome.

    Experienced in Metachromatic Leukodystrophy

    Rebekka Kohlmann
    Experienced in Metachromatic Leukodystrophy

    Rebekka Kohlmann
    Referral may be required
    Bochum, NW, DE 

    Rebekka Kohlmann practices practicing medicine in Bochum, Germany. Ms. Kohlmann is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. Her clinical expertise encompasses Tularemia, Metachromatic Leukodystrophy, Leukodystrophy, and Sepsis.

    Experienced in Metachromatic Leukodystrophy

    Albrecht Ropke
    Experienced in Metachromatic Leukodystrophy

    Albrecht Ropke
    Referral may be required
    Muenster, NW, DE 

    Albrecht Ropke practices practicing medicine in Muenster, Germany. Ropke is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Infertility, Lymphocytic Vasculitis, Hyperhidrosis, and Cold-Induced Sweating Syndrome.

    Experienced in Metachromatic Leukodystrophy

    Matthias Eckhardt
    Experienced in Metachromatic Leukodystrophy

    Matthias Eckhardt
    Referral may be required
    Bonn, NW, DE 

    Matthias Eckhardt practices practicing medicine in Bonn, Germany. Mr. Eckhardt is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Hereditary Spastic Paraparesis, Canavan Disease, CACH Syndrome, and Spastic Paraplegia Type 2.

    Experienced in Metachromatic Leukodystrophy

    Agnes Anders
    Experienced in Metachromatic Leukodystrophy

    Agnes Anders
    Referral may be required
    St. Josef Hospital, 
    Bochum, NW, DE 

    Agnes Anders practices practicing medicine in Bochum, Germany. Ms. Anders is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. Her clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, and Listeriosis.

    Experienced in Metachromatic Leukodystrophy

    Tony F. Stocker
    Experienced in Metachromatic Leukodystrophy

    Tony F. Stocker
    Referral may be required
    Bonn, NW, DE 

    Tony Stocker practices practicing medicine in Bonn, Germany. Mr. Stocker is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. His clinical expertise encompasses Tourette Syndrome, Multiple Sulfatase Deficiency, Attention Deficit Hyperactivity Disorder (ADHD), and Alzheimer's Disease.

    Experienced in Metachromatic Leukodystrophy

    Thomas Dierks
    Experienced in Metachromatic Leukodystrophy

    Thomas Dierks
    Referral may be required
    Bielefeld, NW, DE 

    Thomas Dierks practices practicing medicine in Bielefeld, Germany. Mr. Dierks is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Multiple Sulfatase Deficiency, Chondrodysplasia Punctata with Steroid Sulfatase Deficiency, Fucosidosis, and X-Linked Ichthyosis.

    Experienced in Metachromatic Leukodystrophy

    Hans R. Scholer
    Experienced in Metachromatic Leukodystrophy

    Hans R. Scholer
    Referral may be required
    Muenster, NW, DE 

    Hans Scholer practices practicing medicine in Muenster, Germany. Mr. Scholer is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Pelizaeus-Merzbacher Disease, Retinal Vasculopathy with Cerebral Leukodystrophy, Hairy Cell Leukemia (HCL), and Denys-Drash Syndrome (DDS).

    Experienced in Metachromatic Leukodystrophy

    Manfred Spraul
    Experienced in Metachromatic Leukodystrophy

    Manfred Spraul
    Referral may be required

    Mathias Spital Rheine

    Rheine, NW, DE 

    Manfred Spraul practices practicing medicine in Rheine, Germany. Mr. Spraul is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. His clinical expertise encompasses Phenylketonuria (PKU), Trimethylaminuria, Severe Acute Respiratory Syndrome (SARS), and Long Haul COVID.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-16 of 16

    Last Updated: 06/30/2026

    What is the definition of Metachromatic Leukodystrophy?

    Metachromatic leukodystrophy is an inherited disorder characterized by the accumulation of fats called sulfatides in cells. This accumulation especially affects cells in the nervous system that produce myelin, the substance that insulates and protects nerves. Nerve cells covered by myelin make up a tissue called white matter. Sulfatide accumulation in myelin-producing cells causes progressive destruction of white matter (leukodystrophy) throughout the nervous system, including in the brain and spinal cord (the central nervous system) and the nerves connecting the brain and spinal cord to muscles and sensory cells that detect sensations such as touch, pain, heat, and sound (the peripheral nervous system).

    When should I see a Metachromatic Leukodystrophy doctor in North Rhine-Westphalia, DE?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Metachromatic Leukodystrophy doctor in North Rhine-Westphalia, DE?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Metachromatic Leukodystrophy doctor in North Rhine-Westphalia, DE?

    You can find a Metachromatic Leukodystrophy doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Metachromatic Leukodystrophy doctors in North Rhine-Westphalia, DE?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Metachromatic Leukodystrophy doctors in North Rhine-Westphalia, DE?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Metachromatic Leukodystrophy doctor in North Rhine-Westphalia, DE?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Metachromatic Leukodystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Metachromatic Leukodystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Metachromatic Leukodystrophy doctor in North Rhine-Westphalia, DE?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Metachromatic Leukodystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Metachromatic Leukodystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Metachromatic Leukodystrophy doctors in North Rhine-Westphalia, DE?

    Look for the filter feature on the left side of the Metachromatic Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Metachromatic Leukodystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Metachromatic Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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