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    Last Updated: 02/22/2026

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    MediFind found 12 doctor with experience in Metachromatic Leukodystrophy near Dallas, TX. Of these, 10 are Experienced and 2 are Advanced.

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    12 providers found
      Advanced in Metachromatic Leukodystrophy
      Neurology | Pediatrics
      Advanced in Metachromatic Leukodystrophy
      Neurology | Pediatrics

      UT Southwestern - Neurology

      5323 Harry Hines Blvd., 
      Dallas, TX 
       (3.5 miles away)
      Languages Spoken:
      English

      Saima Kayani is a Neurologist and a Pediatrics provider in Dallas, Texas. Dr. Kayani is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Leigh Syndrome, CLN5 Disease, CLN4 Disease, and CLN1 Disease.

      Experienced in Metachromatic Leukodystrophy
      Experienced in Metachromatic Leukodystrophy

      UT Southwestern Pediatric Neurology Clinic

      2350 N Stemmons Fwy, Ste F5400, 
      Dallas, TX 
       (3.1 miles away)
      Languages Spoken:
      English

      Michael Dowling is a Neurologist in Dallas, Texas. Dr. Dowling is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Stroke, Moyamoya Disease, Seizures, Thrombectomy, and Craniectomy.

      Experienced in Metachromatic Leukodystrophy
      Neurology | Neuromusculoskeletal Medicine | Holistic Medicine
      Experienced in Metachromatic Leukodystrophy
      Neurology | Neuromusculoskeletal Medicine | Holistic Medicine

      UT Southwestern - Dept Of Pediatric Neurology

      5323 Harry Hines Blvd, 
      Dallas, TX 
       (3.5 miles away)
      Languages Spoken:
      English

      Kaitlin Batley is a Neurologist and a Neuromusculoskeletal Medicine provider in Dallas, Texas. Ms. Batley is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Duchenne Muscular Dystrophy, Congenital Myasthenic Syndrome, Amyotonia Congenita, Spinal Muscular Atrophy Type 2, and Thymectomy.

      Learn about our expert tiers
      Raphael Schiffmann
      Advanced in Metachromatic Leukodystrophy
      Advanced in Metachromatic Leukodystrophy

      Texas Neurology, P.A.

      6080 N Central Expy, Ste 100, 
      Dallas, TX 
       (4.6 miles away)
      Languages Spoken:
      English, French
      Offers Telehealth

      Dr. Schiffmann is a renowned expert on neurometabolic diseases. He earned his medical degree from the University of Liège, Belgium and a Master of Health Sciences in Clinical Research from Duke University. He is board-certified in Neurology with a Special Qualification in Child Neurology and is a Fellow of the American Academy of Neurology. Dr. Schiffmann was a lead researcher at the United States National Institutes of Health in Bethesda, Maryland for over 17 years (1991-2007) and then the Director of the Institute of Metabolic Disease at the Baylor Scott & White Research Institute in Dallas, Texas, 2008-2019. Dr. Schiffmann is a Professor in the Department of Internal Medicine, Texas Christian University and a Clinical Professor, Texas A&M University Medical School College of Medicine. He is also a Senior Vice President for Clinical Research at 4D Molecular Therapeutics. Dr. Schiffmann has been performing pre-clinical and clinical research on lysosomal storage diseases since 1991 with a special focus on the natural history, pathogenesis and therapy of Fabry disease, Gaucher disease and the leukodystrophies. One of his particular interests and areas of expertise is to address patients with undiagnosed neurological diseases. Dr. Schiffmann has published 276 peer-reviewed research articles and over 15 book chapters. Dr. Schiffmann is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Gaucher Disease Type 3, Fabry Disease, Gaucher Disease, and Leukodystrophy.

      Jennifer M. Thomas
      Experienced in Metachromatic Leukodystrophy
      Experienced in Metachromatic Leukodystrophy

      UT Southwestern - Neurology

      5323 Harry Hines Blvd., 
      Dallas, TX 
       (3.5 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Jennifer Thomas is a Neurologist in Dallas, Texas. Dr. Thomas has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Aphantasia, GAPO Syndrome, Lissencephaly 1, and Hydranencephaly.

      Arun Nagaraj
      Experienced in Metachromatic Leukodystrophy
      Neurology | Cardiac Electrophysiology
      Experienced in Metachromatic Leukodystrophy
      Neurology | Cardiac Electrophysiology

      Texas Neurology, P.A.

      6080 N Central Expy, Ste 100, 
      Dallas, TX 
       (4.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Dr. Nagaraj is a board-certified neurologist who practices general neurology with special interests in multiple sclerosis and neuromuscular disorders. He received his medical degree at the University of Cincinnati College of Medicine and completed neurology residency at the University of North Carolina Hospitals. Dr. Nagaraj completed his fellowship in clinical neurophysiology at Ohio State University in Columbus, Ohio. He is co-director of the Multiple Sclerosis Center at Texas Neurology, which focuses on clinical research and advanced therapies for the treatment of patients with multiple sclerosis. Dr. Nagaraj is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Relapsing Multiple Sclerosis (RMS), Multiple Sclerosis (MS), Peripheral Neuropathy, and Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease.

      Experienced in Metachromatic Leukodystrophy
      Pediatric Neurology
      Experienced in Metachromatic Leukodystrophy
      Pediatric Neurology

      Texas Scottish Rite Hospital For Children

      2222 Welborn St, 
      Dallas, TX 
       (2.0 miles away)
      Languages Spoken:
      English

      Kendra Beneski is a Pediatric Neurologist in Dallas, Texas. Dr. Beneski is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Seizures, Memory Loss, Aphantasia, and Benign Rolandic Epilepsy.

      Experienced in Metachromatic Leukodystrophy
      Experienced in Metachromatic Leukodystrophy

      Scottish Rite For Children

      2222 Welborn St, 
      Dallas, TX 
       (2.0 miles away)
      Languages Spoken:
      English

      Michelle Christie is a Neurologist in Dallas, Texas. Dr. Christie is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Spastic Paraplegia Type 7, Spastic Paraplegia Type 2, Cerebral Palsy, and Paraplegia.

      Experienced in Metachromatic Leukodystrophy
      Experienced in Metachromatic Leukodystrophy

      Children's Medical Center/Children's Health

      1935 Medical District Dr, 
      Dallas, TX 
       (3.3 miles away)
      Languages Spoken:
      English

      Wilmot Bonnet is a Neurologist in Dallas, Texas. Dr. Bonnet is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Seizures, Spasmus Nutans, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), and Bilateral Perisylvian Polymicrogyria.

      Experienced in Metachromatic Leukodystrophy
      Experienced in Metachromatic Leukodystrophy

      UT Southwestern Medical Center

      5303 Harry Hines Blvd, 
      Dallas, TX 
       (3.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Brendan Kelley is a Neurologist in Dallas, Texas. Dr. Kelley is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Lewy Body Dementia (LBD), Cerebellar Degeneration, Neuronal Intranuclear Inclusion Disease (NIID), and Alzheimer's Disease.

      Experienced in Metachromatic Leukodystrophy
      Experienced in Metachromatic Leukodystrophy

      UT Southwestern Medical Center

      5303 Harry Hines Blvd, 
      Dallas, TX 
       (3.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Lindsay Horton is a Neurologist in Dallas, Texas. Dr. Horton is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Transverse Myelitis, and Optic Neuritis.

      Experienced in Metachromatic Leukodystrophy
      Experienced in Metachromatic Leukodystrophy

      University Of Texas Southwestern Medical Center

      5323 Harry Hines Blvd, 
      Dallas, TX 
       (3.5 miles away)
      Languages Spoken:
      English

      Sharon Nations is a Neurologist in Dallas, Texas. Dr. Nations is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myasthenia Gravis, Spinal Muscular Atrophy (SMA), Stiff Person Syndrome, and Thymectomy.

      Showing 1-12 of 12

      Last Updated: 02/22/2026

      What is the definition of Metachromatic Leukodystrophy?

      Metachromatic leukodystrophy is an inherited disorder characterized by the accumulation of fats called sulfatides in cells. This accumulation especially affects cells in the nervous system that produce myelin, the substance that insulates and protects nerves. Nerve cells covered by myelin make up a tissue called white matter. Sulfatide accumulation in myelin-producing cells causes progressive destruction of white matter (leukodystrophy) throughout the nervous system, including in the brain and spinal cord (the central nervous system) and the nerves connecting the brain and spinal cord to muscles and sensory cells that detect sensations such as touch, pain, heat, and sound (the peripheral nervous system).

      When should I see a Metachromatic Leukodystrophy doctor near Dallas, TX?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Metachromatic Leukodystrophy doctor near Dallas, TX?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Metachromatic Leukodystrophy doctors near Dallas, TX?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Metachromatic Leukodystrophy doctors near Dallas, TX?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Metachromatic Leukodystrophy doctor near Dallas, TX?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Metachromatic Leukodystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Metachromatic Leukodystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Metachromatic Leukodystrophy doctor near Dallas, TX?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Metachromatic Leukodystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Metachromatic Leukodystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Metachromatic Leukodystrophy doctors near Dallas, TX?

      Look for the filter feature on the left side of the Metachromatic Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Metachromatic Leukodystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Metachromatic Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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