The 20 Best Metachromatic Leukodystrophy Doctors in Netherlands

Find the Top Metachromatic Leukodystrophy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 67 doctor with experience in Metachromatic Leukodystrophy near Netherlands. Of these, 54 are Experienced, 7 are Distinguished, 3 are Advanced and 3 are Elite.

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67 providers found
    Elite in Metachromatic Leukodystrophy
    Elite in Metachromatic Leukodystrophy
    Amsterdam, NH, NL 

    Nicole Wolf practices practicing medicine in Amsterdam, Netherlands. Ms. Wolf is rated as an Elite expert by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Leukodystrophy, CACH Syndrome, Metachromatic Leukodystrophy, Pelizaeus-Merzbacher Disease, and Bone Marrow Transplant.

    Elite in Metachromatic Leukodystrophy
    Elite in Metachromatic Leukodystrophy
    Amsterdam, NH, NL 

    Shanice Beerepoot practices practicing medicine in Amsterdam, Netherlands. Ms. Beerepoot is rated as an Elite expert by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Singleton-Merten Syndrome.

    Elite in Metachromatic Leukodystrophy
    Elite in Metachromatic Leukodystrophy
    Amsterdam, NH, NL 

    Marjo Van Der Knaap practices practicing medicine in Amsterdam, Netherlands. Ms. Van Der Knaap is rated as an Elite expert by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses CACH Syndrome, Leukodystrophy, Megalencephalic Leukoencephalopathy with Subcortical Cysts, Metachromatic Leukodystrophy, and Bone Marrow Transplant.

    Learn about our expert tiers
    Distinguished in Metachromatic Leukodystrophy
    Distinguished in Metachromatic Leukodystrophy
    Amsterdam, NH, NL 

    Daphne Schoenmakers practices practicing medicine in Amsterdam, Netherlands. Ms. Schoenmakers is rated as a Distinguished expert by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Niemann-Pick Disease.

    Distinguished in Metachromatic Leukodystrophy
    Distinguished in Metachromatic Leukodystrophy
    Utrecht, UT, NL 

    Diane Van Rappard practices practicing medicine in Utrecht, Netherlands. Ms. Van Rappard is rated as a Distinguished expert by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Megalencephalic Leukoencephalopathy with Subcortical Cysts.

    Distinguished in Metachromatic Leukodystrophy
    Distinguished in Metachromatic Leukodystrophy
    Utrecht, UT, NL 

    Caroline Lindemans practices practicing medicine in Utrecht, Netherlands. Ms. Lindemans is rated as a Distinguished expert by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, Graft Versus Host Disease (GvHD), Bone Marrow Transplant, and Bone Graft.

    Distinguished in Metachromatic Leukodystrophy
    Distinguished in Metachromatic Leukodystrophy
    Utrecht, UT, NL 

    Peter Van Hasselt practices practicing medicine in Utrecht, Netherlands. Mr. Van Hasselt is rated as a Distinguished expert by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Metachromatic Leukodystrophy, Leukodystrophy, Osteotomy, and Bone Marrow Transplant.

    Distinguished in Metachromatic Leukodystrophy
    Distinguished in Metachromatic Leukodystrophy

    Amsterdam UMC

    Amsterdam, NH, NL 

    Marianna Bugiani practices practicing medicine in Amsterdam, Netherlands. Ms. Bugiani is rated as a Distinguished expert by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Megalencephalic Leukoencephalopathy with Subcortical Cysts, CACH Syndrome, Leukodystrophy, and Metachromatic Leukodystrophy.

    Distinguished in Metachromatic Leukodystrophy
    Distinguished in Metachromatic Leukodystrophy
    Amsterdam, NH, NL 

    Petra Pouwels practices practicing medicine in Amsterdam, Netherlands. Ms. Pouwels is rated as a Distinguished expert by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Leukodystrophy, Metachromatic Leukodystrophy, CACH Syndrome, and Obsessive-Compulsive Disorder (OCD).

    Distinguished in Metachromatic Leukodystrophy
    Distinguished in Metachromatic Leukodystrophy
    Amsterdam, NH, NL 

    Carla Hollak practices practicing medicine in Amsterdam, Netherlands. Ms. Hollak is rated as a Distinguished expert by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Acid Sphingomyelinase Deficiency (ASMD), Gaucher Disease Type 1, Niemann-Pick Disease, Classic Galactosemia, and Splenectomy.

    Advanced in Metachromatic Leukodystrophy
    Advanced in Metachromatic Leukodystrophy
    Amsterdam, NH, NL 

    Murtadha Saady-Al practices practicing medicine in Amsterdam, Netherlands. Saady-Al is rated as an Advanced expert by MediFind in the treatment of Metachromatic Leukodystrophy. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, and CACH Syndrome.

    Advanced in Metachromatic Leukodystrophy
    Advanced in Metachromatic Leukodystrophy
    Amsterdam, NH, NL 

    Marjolein Breur practices practicing medicine in Amsterdam, Netherlands. Breur is rated as an Advanced expert by MediFind in the treatment of Metachromatic Leukodystrophy. They are also highly rated in 6 other conditions, according to our data. Their clinical expertise encompasses CACH Syndrome, Leukodystrophy, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Metachromatic Leukodystrophy.

    Advanced in Metachromatic Leukodystrophy
    Advanced in Metachromatic Leukodystrophy

    Olvg

    Amsterdam, NH, NL 

    Marjan Steenweg practices practicing medicine in Amsterdam, Netherlands. Ms. Steenweg is rated as an Advanced expert by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses CACH Syndrome, Metachromatic Leukodystrophy, Leukodystrophy, and Traumatic Brain Injury.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy
    Groningen, GR, NL 

    Tom De Koning practices practicing medicine in Groningen, Netherlands. Mr. De Koning is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Drug Induced Dyskinesia, Dentatorubral-Pallidoluysian Atrophy, Lafora Disease, and Harding Ataxia.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy
    Amsterdam, NH, NL 

    Johannes Berkhof practices practicing medicine in Amsterdam, Netherlands. Mr. Berkhof is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Cervical Dysplasia, Human Papillomavirus Infection, Cervical Cancer, Endoscopy, and Pancreaticoduodenectomy.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy
    Amsterdam, NH, NL 

    Marianne de Visser practices practicing medicine in Amsterdam, Netherlands. Ms. de Visser is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myositis, and Inclusion Body Myositis.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy
    Utrecht, UT, NL 

    Jurgen Kuball practices practicing medicine in Utrecht, Netherlands. Kuball is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. They are also highly rated in 10 other conditions, according to our data. Their clinical expertise encompasses Chronic Graft Versus Host Disease (cGvHD), Graft Versus Host Disease (GvHD), Cytomegalovirus Infection, Bone Marrow Transplant, and Bone Graft.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy
    Diemen, NH, NL 

    Wim Goettsch practices practicing medicine in Diemen, Netherlands. Mr. Goettsch is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Noma, Metachromatic Leukodystrophy, Leukodystrophy, and Paroxysmal Nocturnal Hemoglobinuria (PNH).

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy
    Amsterdam, NH, NL 

    Menno Stellingwerff practices practicing medicine in Amsterdam, Netherlands. Mr. Stellingwerff is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Leukodystrophy, CACH Syndrome, Metachromatic Leukodystrophy, Achalasia Microcephaly Syndrome, and Hepato-Pancreato-Biliary Surgery.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy

    VUMC Amsterdam

    Amsterdam, NH, NL 

    Charlotte Teunissen practices practicing medicine in Amsterdam, Netherlands. Ms. Teunissen is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Alzheimer's Disease, Dementia, Frontotemporal Dementia, and Parkinson's Disease.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 67

    Last Updated: 04/28/2026

    What is the definition of Metachromatic Leukodystrophy?

    Metachromatic leukodystrophy is an inherited disorder characterized by the accumulation of fats called sulfatides in cells. This accumulation especially affects cells in the nervous system that produce myelin, the substance that insulates and protects nerves. Nerve cells covered by myelin make up a tissue called white matter. Sulfatide accumulation in myelin-producing cells causes progressive destruction of white matter (leukodystrophy) throughout the nervous system, including in the brain and spinal cord (the central nervous system) and the nerves connecting the brain and spinal cord to muscles and sensory cells that detect sensations such as touch, pain, heat, and sound (the peripheral nervous system).

    When should I see a Metachromatic Leukodystrophy doctor in Netherlands?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Metachromatic Leukodystrophy doctor in Netherlands?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Metachromatic Leukodystrophy doctors in Netherlands?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Metachromatic Leukodystrophy doctors in Netherlands?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Metachromatic Leukodystrophy doctor in Netherlands?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Metachromatic Leukodystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Metachromatic Leukodystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Metachromatic Leukodystrophy doctor in Netherlands?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Metachromatic Leukodystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Metachromatic Leukodystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Metachromatic Leukodystrophy doctors in Netherlands?

    Look for the filter feature on the left side of the Metachromatic Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Metachromatic Leukodystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Metachromatic Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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