The 20 Best Metachromatic Leukodystrophy Doctors Near Me in Utrecht, UT

Find the Top Metachromatic Leukodystrophy Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 14 doctor with experience in Metachromatic Leukodystrophy near Utrecht, UT. Of these, 11 are Experienced and 3 are Distinguished.

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14 providers found
    Distinguished in Metachromatic Leukodystrophy
    Distinguished in Metachromatic Leukodystrophy
    Referral may be required
    Utrecht, UT, NL 
     (0.1 km away)

    Caroline Lindemans practices practicing medicine in Utrecht, Netherlands. Ms. Lindemans is rated as a Distinguished expert by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, Graft Versus Host Disease (GvHD), CACH Syndrome, and Bone Marrow Transplant.

    Distinguished in Metachromatic Leukodystrophy
    Distinguished in Metachromatic Leukodystrophy
    Referral may be required
    Utrecht, UT, NL 
     (0.1 km away)

    Diane Van Rappard practices practicing medicine in Utrecht, Netherlands. Ms. Van Rappard is rated as a Distinguished expert by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Megalencephalic Leukoencephalopathy with Subcortical Cysts.

    Distinguished in Metachromatic Leukodystrophy
    Distinguished in Metachromatic Leukodystrophy
    Referral may be required
    Utrecht, UT, NL 
     (0.1 km away)

    Peter Van Hasselt practices practicing medicine in Utrecht, Netherlands. Mr. Van Hasselt is rated as a Distinguished expert by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Metachromatic Leukodystrophy, Leukodystrophy, Osteotomy, and Bone Marrow Transplant.

    Learn about our expert tiers
    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy
    Referral may be required
    Utrecht, UT, NL 
     (0.1 km away)

    Moniek De Witte practices practicing medicine in Utrecht, Netherlands. De Witte is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. They are also highly rated in 4 other conditions, according to our data. Their clinical expertise encompasses Graft Versus Host Disease (GvHD), Myelofibrosis, Chronic Graft Versus Host Disease (cGvHD), Bone Marrow Transplant, and Bone Graft.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy
    Referral may be required
    Utrecht, UT, NL 
     (0.1 km away)

    Stefan Nierkens practices practicing medicine in Utrecht, Netherlands. Mr. Nierkens is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Childhood Acute Myeloid Leukemia, Graft Versus Host Disease (GvHD), Leukemia, Bone Marrow Transplant, and Vitrectomy.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy
    Referral may be required
    Utrecht, UT, NL 
     (0.1 km away)

    Maria Van Der Ham practices practicing medicine in Utrecht, Netherlands. Ms. Van Der Ham is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. Her clinical expertise encompasses Purine Nucleoside Phosphorylase Deficiency, Multiple Sulfatase Deficiency, Neuroblastoma, and Metachromatic Leukodystrophy.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy
    Referral may be required
    Utrecht, UT, NL 
     (0.1 km away)

    Brigitte Van Den Broek practices practicing medicine in Utrecht, Netherlands. Ms. Van Den Broek is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Metachromatic Leukodystrophy, and Krabbe Disease.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy
    Referral may be required
    Utrecht, UT, NL 
     (0.1 km away)

    Hubertus Prinsen practices practicing medicine in Utrecht, Netherlands. Prinsen is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Hartnup Disease, Purine Nucleoside Phosphorylase Deficiency, Lysinuric Protein Intolerance, and Pyridoxine Deficiency.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy
    Referral may be required
    Utrecht, UT, NL 
     (0.1 km away)

    Alexander Vrancken practices practicing medicine in Utrecht, Netherlands. Mr. Vrancken is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Chronic Inflammatory Demyelinating Polyneuropathy, Chronic Polyradiculoneuritis, Neuralgia, and Chronic Demyelinizing Neuropathy with IgM Monoclonal.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy
    Referral may be required
    Utrecht, UT, NL 
     (0.1 km away)

    Judith Jans practices practicing medicine in Utrecht, Netherlands. Ms. Jans is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Propionic Acidemia, Inborn Amino Acid Metabolism Disorder, Pyridoxine Deficiency, Methylmalonic Acidemia, and Nephrectomy.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy
    Referral may be required
    Utrecht, UT, NL 
     (0.1 km away)

    Johan Gerrits practices practicing medicine in Utrecht, Netherlands. Mr. Gerrits is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. His clinical expertise encompasses Purine Nucleoside Phosphorylase Deficiency, Pyridoxine Deficiency, Multiple Sulfatase Deficiency, and Argininosuccinic Aciduria.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy
    Referral may be required
    Utrecht, UT, NL 
     (0.1 km away)

    Monique De Sain-Van Der Velden practices practicing medicine in Utrecht, Netherlands. Ms. De Sain-Van Der Velden is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, Hartnup Disease, Purine Nucleoside Phosphorylase Deficiency, and Rhabdomyolysis.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy
    Referral may be required
    Utrecht, UT, NL 
     (0.1 km away)

    Maarten Kole practices practicing medicine in Utrecht, Netherlands. Mr. Kole is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Megalencephalic Leukoencephalopathy with Subcortical Cysts, CACH Syndrome, Leukodystrophy, and Metachromatic Leukodystrophy.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy
    Referral may be required
    Utrecht, UT, NL 
     (0.1 km away)

    Eva Konijnenburg-Van practices practicing medicine in Utrecht, Netherlands. Ms. Konijnenburg-Van is rated as an Experienced expert by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Zellweger Syndrome, Riboflavin Transporter Deficiency Neuronopathy, Dihydrolipoamide Dehydrogenase Deficiency, and Mevalonate Kinase Deficiency.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-14 of 14

    Last Updated: 11/08/2026

    What is the definition of Metachromatic Leukodystrophy?

    Metachromatic leukodystrophy is an inherited disorder characterized by the accumulation of fats called sulfatides in cells. This accumulation especially affects cells in the nervous system that produce myelin, the substance that insulates and protects nerves. Nerve cells covered by myelin make up a tissue called white matter. Sulfatide accumulation in myelin-producing cells causes progressive destruction of white matter (leukodystrophy) throughout the nervous system, including in the brain and spinal cord (the central nervous system) and the nerves connecting the brain and spinal cord to muscles and sensory cells that detect sensations such as touch, pain, heat, and sound (the peripheral nervous system).

    When should I see a Metachromatic Leukodystrophy doctor near Utrecht, UT?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Metachromatic Leukodystrophy doctor near Utrecht, UT?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Metachromatic Leukodystrophy doctor near Utrecht, UT?

    You can find a Metachromatic Leukodystrophy doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Metachromatic Leukodystrophy doctors near Utrecht, UT?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Metachromatic Leukodystrophy doctors near Utrecht, UT?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Metachromatic Leukodystrophy doctor near Utrecht, UT?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Metachromatic Leukodystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Metachromatic Leukodystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Metachromatic Leukodystrophy doctor near Utrecht, UT?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Metachromatic Leukodystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Metachromatic Leukodystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Metachromatic Leukodystrophy doctors near Utrecht, UT?

    Look for the filter feature on the left side of the Metachromatic Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Metachromatic Leukodystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Metachromatic Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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