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    Last Updated: 10/30/2025

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    MediFind found 9 doctor with experience in Metachromatic Leukodystrophy near Maryland, US. Of these, 6 are Experienced, 2 are Distinguished and 1 are Advanced.

    Location
    LocationClose
    9 providers found
      Distinguished in Metachromatic Leukodystrophy
      Distinguished in Metachromatic Leukodystrophy
      19 Overshot Ct, 
      Phoenix, MD 
      Languages Spoken:
      English

      Norman Barton is a Neurologist in Phoenix, Maryland. Dr. Barton is rated as a Distinguished provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, Gaucher Disease, and CACH Syndrome.

      Distinguished in Metachromatic Leukodystrophy
      Pediatric Neurology | Pediatrics | Neurology
      Distinguished in Metachromatic Leukodystrophy
      Pediatric Neurology | Pediatrics | Neurology

      Johns Hopkins University

      600 N Wolfe St, Blalock 266, 
      Baltimore, MD 
      Languages Spoken:
      English

      Gerald Raymond is a Pediatric Neurologist and a Pediatrics provider in Baltimore, Maryland. Dr. Raymond is rated as a Distinguished provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Zellweger Syndrome, and Leukodystrophy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Metachromatic Leukodystrophy
      Pediatric Neurology | Neurology
      Advanced in Metachromatic Leukodystrophy
      Pediatric Neurology | Neurology
      707 N Broadway, 5th Floor Towere, 
      Baltimore, MD 
      Languages Spoken:
      English, Arabic, Farsi, German
      Accepting New Patients

      Seyed Fatemi is a Pediatric Neurologist and a Neurologist in Baltimore, Maryland. Dr. Fatemi is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Alexander Disease, and Pelizaeus-Merzbacher Disease. Dr. Fatemi is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Metachromatic Leukodystrophy
      Neurology | Psychiatry
      Experienced in Metachromatic Leukodystrophy
      Neurology | Psychiatry

      Johns Hopkins University

      600 N Wolfe St, Blalock 266, 
      Baltimore, MD 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Ankur Butala is a Neurologist and a Psychiatrist in Baltimore, Maryland. Dr. Butala is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Parkinson's Disease, Corticobasal Degeneration, Movement Disorders, Drug Induced Dyskinesia, and Deep Brain Stimulation. Dr. Butala is currently accepting new patients.

      Experienced in Metachromatic Leukodystrophy
      Pediatrics | Neurology
      Experienced in Metachromatic Leukodystrophy
      Pediatrics | Neurology

      Kennedy Krieger Associates

      707 N Broadway, 
      Baltimore, MD 
      Languages Spoken:
      English
      Accepting New Patients

      Amena Smith is a Pediatrics specialist and a Neurologist in Baltimore, Maryland. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, HNRNPH2-Related Disorder, and Alexander Disease. Dr. Smith is currently accepting new patients.

      Experienced in Metachromatic Leukodystrophy
      Family Medicine
      Experienced in Metachromatic Leukodystrophy
      Family Medicine
      3700 Fleet St Ste 200, 
      Baltimore, MD 
      Languages Spoken:
      English
      Accepting New Patients

      Harry Holt is a primary care provider, practicing in Family Medicine in Baltimore, Maryland. Dr. Holt is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Maturity Onset Diabetes of the Young, Pelizaeus-Merzbacher Disease, Leukodystrophy, and CACH Syndrome. Dr. Holt is currently accepting new patients.

      Experienced in Metachromatic Leukodystrophy
      Pediatrics | Internal Medicine
      Experienced in Metachromatic Leukodystrophy
      Pediatrics | Internal Medicine

      Johns Hopkins University

      601 N Caroline St, 
      Baltimore, MD 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sara Mixter is a primary care provider, practicing in Pediatrics and Internal Medicine in Baltimore, Maryland. Dr. Mixter is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Cerebral Palsy, Gastroparesis, Orbital Cellulitis, and Sickle Cell Disease. Dr. Mixter is currently accepting new patients.

      Experienced in Metachromatic Leukodystrophy
      Experienced in Metachromatic Leukodystrophy

      University Of Maryland Community Medical Group Inc

      5 Garrett Ave, 
      La Plata, MD 
      Languages Spoken:
      English, Amharic
      Accepting New Patients

      Getinet Kassa is a Neurologist in La Plata, Maryland. Dr. Kassa is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Epilepsy, Seizures, Opsoclonus-Myoclonus Syndrome, and Memory Loss. Dr. Kassa is currently accepting new patients.

      Experienced in Metachromatic Leukodystrophy
      Pediatric Neurology | Neurology | Pediatrics
      Experienced in Metachromatic Leukodystrophy
      Pediatric Neurology | Neurology | Pediatrics

      Kennedy Krieger Associates

      707 N Broadway, 
      Baltimore, MD 
      Languages Spoken:
      English
      Accepting New Patients

      Eric Mallack is a Pediatric Neurologist and a Neurologist in Baltimore, Maryland. Dr. Mallack is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Early Infantile Epileptic Encephalopathy, and Leukodystrophy. Dr. Mallack is currently accepting new patients.

      Showing 1-9 of 9

      Last Updated: 10/30/2025

      What is the definition of Metachromatic Leukodystrophy?

      Metachromatic leukodystrophy is an inherited disorder characterized by the accumulation of fats called sulfatides in cells. This accumulation especially affects cells in the nervous system that produce myelin, the substance that insulates and protects nerves. Nerve cells covered by myelin make up a tissue called white matter. Sulfatide accumulation in myelin-producing cells causes progressive destruction of white matter (leukodystrophy) throughout the nervous system, including in the brain and spinal cord (the central nervous system) and the nerves connecting the brain and spinal cord to muscles and sensory cells that detect sensations such as touch, pain, heat, and sound (the peripheral nervous system).

      When should I see a Metachromatic Leukodystrophy doctor in Maryland, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Metachromatic Leukodystrophy doctor in Maryland, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Metachromatic Leukodystrophy doctors in Maryland, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Metachromatic Leukodystrophy doctors in Maryland, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Metachromatic Leukodystrophy doctor in Maryland, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Metachromatic Leukodystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Metachromatic Leukodystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Metachromatic Leukodystrophy doctor in Maryland, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Metachromatic Leukodystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Metachromatic Leukodystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Metachromatic Leukodystrophy doctors in Maryland, US?

      Look for the filter feature on the left side of the Metachromatic Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Metachromatic Leukodystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Metachromatic Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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