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    Last Updated: 10/30/2025

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    MediFind found 26 doctor with experience in Metachromatic Leukodystrophy near Michigan, US. Of these, 20 are Experienced and 6 are Advanced.

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    LocationClose
    26 providers found
      Advanced in Metachromatic Leukodystrophy
      Neurology
      Advanced in Metachromatic Leukodystrophy
      Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Offers Telehealth

      John Fink is a Neurologist in Ann Arbor, Michigan. Dr. Fink is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Spastic Paraplegia Type 7, Spastic Paraplegia Type 2, Primary Lateral Sclerosis, and CACH Syndrome.

      Advanced in Metachromatic Leukodystrophy
      Advanced in Metachromatic Leukodystrophy

      Spectrum Health Primary Care Partners

      2249 Wealthy St Se, 110 Corewell Health Medica, 
      East Grand Rapids, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Christopher Barnes is a primary care provider, practicing in Family Medicine in East Grand Rapids, Michigan. Dr. Barnes is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Alexander Disease, Pelizaeus-Merzbacher Disease, Canavan Disease, and Metachromatic Leukodystrophy. Dr. Barnes is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Metachromatic Leukodystrophy
      Advanced in Metachromatic Leukodystrophy

      W A Foote Memorial Hospital Inc

      1201 E Michigan Ave, 240 Henry Ford Allegiance, 
      Jackson, MI 
      Languages Spoken:
      English
      Accepting New Patients

      John Wald is a Neurologist in Jackson, Michigan. Dr. Wald is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Migraine, Benign Essential Blepharospasm, Drug Induced Dyskinesia, and Migraine with Brainstem Aura. Dr. Wald is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Metachromatic Leukodystrophy
      Advanced in Metachromatic Leukodystrophy

      Regents Of The University Of Michigan

      4260 Plymouth Rd, U Of M Sleep Medicine, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Henry Paulson is a Neurologist in Ann Arbor, Michigan. Dr. Paulson is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Olivopontocerebellar Atrophy, Spinocerebellar Ataxia Type 3, Spinocerebellar Ataxia, and Drug Induced Dyskinesia. Dr. Paulson is currently accepting new patients.

      Advanced in Metachromatic Leukodystrophy
      Internal Medicine
      Advanced in Metachromatic Leukodystrophy
      Internal Medicine

      Hamilton Community Health Network Inc

      2900 N Saginaw St, 
      Flint, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Michael Giacalone is a primary care provider, practicing in Internal Medicine in Flint, Michigan. Dr. Giacalone is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Maturity Onset Diabetes of the Young, Hypertension, Headache, and Type 2 Diabetes (T2D). Dr. Giacalone is currently accepting new patients.

      Advanced in Metachromatic Leukodystrophy
      Pediatric Hematology Oncology
      Advanced in Metachromatic Leukodystrophy
      Pediatric Hematology Oncology
      1500 East Medical Center Drive, 7th Floor C.s. Mott Childrens Hospital, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Mark Vander is a Pediatric Hematologist Oncology provider in Ann Arbor, Michigan. Dr. Vander is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Severe Combined Immunodeficiency (SCID), Aplastic Anemia, Acquired Amegakaryocytic Thrombocytopenia, Bone Marrow Transplant, and Bone Marrow Aspiration.

      Experienced in Metachromatic Leukodystrophy
      Pediatric Hematology Oncology
      Experienced in Metachromatic Leukodystrophy
      Pediatric Hematology Oncology
      1500 E Medical Center Dr, 7th Floor Cs Mott Childrens Hospital, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Craig Byersdorfer is a Pediatric Hematologist Oncology provider in Ann Arbor, Michigan. Dr. Byersdorfer is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Graft Versus Host Disease (GvHD), Beta-Mannosidosis, Acquired Amegakaryocytic Thrombocytopenia, Chediak-Higashi Syndrome, and Bone Marrow Transplant.

      Experienced in Metachromatic Leukodystrophy
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Metachromatic Leukodystrophy
      Pediatric Neurology | Pediatrics | Neurology
      1500 E Medical Center Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Martha Carlson is a Pediatric Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Carlson is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Autism Spectrum Disorder, Seizures, Stereotypic Movement Disorder, and Spasmus Nutans. Dr. Carlson is currently accepting new patients.

      Experienced in Metachromatic Leukodystrophy
      Family Medicine
      Experienced in Metachromatic Leukodystrophy
      Family Medicine

      Bronson Methodist Hospital

      2700 E Centre Ave, 
      Portage, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Timothy Gatz is a primary care provider, practicing in Family Medicine in Portage, Michigan. Dr. Gatz is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Maturity Onset Diabetes of the Young. Dr. Gatz is currently accepting new patients.

      Experienced in Metachromatic Leukodystrophy
      Experienced in Metachromatic Leukodystrophy

      Advantage Health/saint Mary's Medical Group

      220 Cherry St Se, 
      Grand Rapids, MI 
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Melanie Taylor is a Neurologist in Grand Rapids, Michigan. Dr. Taylor has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Lambert-Eaton Syndrome, Spinal Muscular Atrophy (SMA), Peripheral Neuropathy, and Myasthenia Gravis. Dr. Taylor is currently accepting new patients.

      Experienced in Metachromatic Leukodystrophy
      Experienced in Metachromatic Leukodystrophy
      Henry Ford Health System, 2799 West Grand Boulevard, 
      Detroit, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Stanton Elias is a Neurologist in Detroit, Michigan. Dr. Elias is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Neurosarcoidosis, Myasthenia Gravis, Multiple Sclerosis (MS), and Relapsing Multiple Sclerosis (RMS). Dr. Elias is currently accepting new patients.

      Experienced in Metachromatic Leukodystrophy
      Experienced in Metachromatic Leukodystrophy

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Melissa Elafros is a Neurologist in Ann Arbor, Michigan. Dr. Elafros is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Peripheral Neuropathy, Myasthenia Gravis, Diabetic Neuropathy, and Seizures. Dr. Elafros is currently accepting new patients.

      Experienced in Metachromatic Leukodystrophy
      Experienced in Metachromatic Leukodystrophy

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Experience:
      9+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sharan Srinivasan is a Neurologist in Ann Arbor, Michigan. Dr. Srinivasan has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Hereditary Ataxia, Olivopontocerebellar Atrophy, Spinocerebellar Ataxia Type 3, and Spinocerebellar Ataxia Type 31. Dr. Srinivasan is currently accepting new patients.

      Experienced in Metachromatic Leukodystrophy
      Experienced in Metachromatic Leukodystrophy

      Regents Of The University Of Michigan

      4270 Plymouth Rd, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Peter Todd is a Neurologist in Ann Arbor, Michigan. Dr. Todd is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Fragile X Syndrome, Fragile XE Syndrome, Hereditary Ataxia, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Todd is currently accepting new patients.

      Experienced in Metachromatic Leukodystrophy
      Experienced in Metachromatic Leukodystrophy

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kara Wyant is a Neurologist in Ann Arbor, Michigan. Dr. Wyant is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Drug Induced Dyskinesia, Parkinson's Disease, Movement Disorders, Familial Paroxysmal Nonkinesigenic Dyskinesia, and Deep Brain Stimulation. Dr. Wyant is currently accepting new patients.

      Experienced in Metachromatic Leukodystrophy
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Metachromatic Leukodystrophy
      Pediatric Neurology | Pediatrics | Neurology
      Childrens Hospital Mi Neurology, 3901 Beaubien 3rd Flr - Main Building, 
      Detroit, MI 
      Languages Spoken:
      English

      Ahm Huq is a Pediatric Neurologist and a Pediatrics provider in Detroit, Michigan. Dr. Huq is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Microcephaly, Achalasia Microcephaly Syndrome, West Syndrome, and Myoclonic Epilepsy.

      Experienced in Metachromatic Leukodystrophy
      Pediatrics | Internal Medicine
      Experienced in Metachromatic Leukodystrophy
      Pediatrics | Internal Medicine

      Oakwood Ambulatory LLC

      18101 Oakwood Blvd, 
      Dearborn, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Jeffrey Rochlen is a primary care provider, practicing in Pediatrics and Internal Medicine in Dearborn, Michigan. Dr. Rochlen is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are High Cholesterol, Generalized Anxiety Disorder (GAD), Blood Clots, and Type 2 Diabetes (T2D). Dr. Rochlen is currently accepting new patients.

      Experienced in Metachromatic Leukodystrophy
      Pediatric Neurology | Neurology
      Experienced in Metachromatic Leukodystrophy
      Pediatric Neurology | Neurology
      7001 Orchard Lake Rd Ste 320c, 
      West Bloomfield, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Arndt is a Pediatric Neurologist and a Neurologist in West Bloomfield, Michigan. Dr. Arndt is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Absence Seizure, and Epilepsy in Children. Dr. Arndt is currently accepting new patients.

      Experienced in Metachromatic Leukodystrophy
      Internal Medicine
      Experienced in Metachromatic Leukodystrophy
      Internal Medicine
      36123 Schoolcraft Rd, 
      Livonia, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Bruce Johnson is a primary care provider, practicing in Internal Medicine in Livonia, Michigan. Dr. Johnson is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Necrosis, Lung Metastases, Anemia, Gastrostomy, and Endoscopy. Dr. Johnson is currently accepting new patients.

      Experienced in Metachromatic Leukodystrophy
      Family Medicine | Internal Medicine
      Experienced in Metachromatic Leukodystrophy
      Family Medicine | Internal Medicine
      508 Random Ln, 
      Gaylord, MI 
      Languages Spoken:
      English

      Rosanne Freeman-Paz is a primary care provider, practicing in Family Medicine and Internal Medicine in Gaylord, Michigan. Dr. Freeman-Paz is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Vascular Dementia, Urinary Tract Infection in Children, Urinary Tract Infection (UTI), Dry Mouth, and Bone Marrow Aspiration.

      Showing 1-20 of 26

      Last Updated: 10/30/2025

      What is the definition of Metachromatic Leukodystrophy?

      Metachromatic leukodystrophy is an inherited disorder characterized by the accumulation of fats called sulfatides in cells. This accumulation especially affects cells in the nervous system that produce myelin, the substance that insulates and protects nerves. Nerve cells covered by myelin make up a tissue called white matter. Sulfatide accumulation in myelin-producing cells causes progressive destruction of white matter (leukodystrophy) throughout the nervous system, including in the brain and spinal cord (the central nervous system) and the nerves connecting the brain and spinal cord to muscles and sensory cells that detect sensations such as touch, pain, heat, and sound (the peripheral nervous system).

      When should I see a Metachromatic Leukodystrophy doctor in Michigan, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Metachromatic Leukodystrophy doctor in Michigan, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Metachromatic Leukodystrophy doctors in Michigan, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Metachromatic Leukodystrophy doctors in Michigan, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Metachromatic Leukodystrophy doctor in Michigan, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Metachromatic Leukodystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Metachromatic Leukodystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Metachromatic Leukodystrophy doctor in Michigan, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Metachromatic Leukodystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Metachromatic Leukodystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Metachromatic Leukodystrophy doctors in Michigan, US?

      Look for the filter feature on the left side of the Metachromatic Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Metachromatic Leukodystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Metachromatic Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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