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    Last Updated: 02/22/2026

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    MediFind found 12 doctor with experience in Metachromatic Leukodystrophy near Minnesota, US. Of these, 8 are Experienced, 3 are Advanced and 1 are Distinguished.

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    12 providers found
      Paul Orchard
      Distinguished in Metachromatic Leukodystrophy
      Hematology | Oncology
      Distinguished in Metachromatic Leukodystrophy
      Hematology | Oncology

      University Of Minnesota Masonic Children's Hospital

      420 Delaware St SE, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Paul Orchard is a Hematologist and an Oncologist in Minneapolis, Minnesota. Dr. Orchard is rated as a Distinguished provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Adrenoleukodystrophy (ALD), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Bone Marrow Transplant, and Osteotomy.

      Advanced in Metachromatic Leukodystrophy
      Hematology | Oncology
      Advanced in Metachromatic Leukodystrophy
      Hematology | Oncology

      University Of Minnesota Masonic Children's Hospital

      420 Delaware St SE, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Troy Lund is a Hematologist and an Oncologist in Minneapolis, Minnesota. Dr. Lund is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Adrenoleukodystrophy (ALD), Alpha Mannosidosis, Aspartylglucosaminuria, Glucose-6-Phosphate Dehydrogenase Deficiency, and Bone Marrow Transplant.

      Advanced in Metachromatic Leukodystrophy
      Pediatric Neurology
      Advanced in Metachromatic Leukodystrophy
      Pediatric Neurology

      MN - Neuro Pediatric

      200 1st St SW, 
      Rochester, MN 
      Languages Spoken:
      English

      Marc Patterson is a Pediatric Neurologist in Rochester, Minnesota. Dr. Patterson is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Leukodystrophy, and CACH Syndrome.

      Learn about our expert tiers
      Advanced in Metachromatic Leukodystrophy
      Advanced in Metachromatic Leukodystrophy

      Gillette Children's-Maple Grove Clinic

      9550 Upland Ln N, 
      Maple Grove, MN 
      Languages Spoken:
      English

      Nicole Williams is a Neurologist in Maple Grove, Minnesota. Dr. Williams is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Lennox-Gastaut Syndrome (LGS), Moebius Syndrome, Hydranencephaly, and Orofaciodigital Syndrome 6.

      Experienced in Metachromatic Leukodystrophy
      Neuromusculoskeletal Medicine
      Experienced in Metachromatic Leukodystrophy
      Neuromusculoskeletal Medicine

      Gillette Children's

      200 University Ave E, 
      Saint Paul, MN 
      Languages Spoken:
      English

      Randal Richardson is a Neuromusculoskeletal Medicine provider in Saint Paul, Minnesota. Dr. Richardson is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Miyoshi Myopathy, Emery-Dreifuss Muscular Dystrophy, Fukuyama Type Muscular Dystrophy, and X-Linked Dominant Scapuloperoneal Myopathy.

      Experienced in Metachromatic Leukodystrophy
      Internal Medicine
      Experienced in Metachromatic Leukodystrophy
      Internal Medicine

      Office

      6401 France Ave S, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Melissa White is a primary care provider, practicing in Internal Medicine in Minneapolis, Minnesota. Dr. White is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, Sepsis, Apoplexy, and Pacemaker Implantation.

      Experienced in Metachromatic Leukodystrophy
      Family Medicine
      Experienced in Metachromatic Leukodystrophy
      Family Medicine

      Allina Health System

      150 Emerson Ave E, 
      Saint Paul, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Alexis Vosooney is a primary care provider, practicing in Family Medicine in Saint Paul, Minnesota. Dr. Vosooney is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Meniere Disease, Farber Lipogranulomatosis, Pelizaeus-Merzbacher Disease, and Leukodystrophy.

      Experienced in Metachromatic Leukodystrophy
      Experienced in Metachromatic Leukodystrophy

      MN - Neuro MS

      200 1st St SW, 
      Rochester, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Eoin Flanagan is a Neurologist in Rochester, Minnesota. Dr. Flanagan is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Encephalitis, Rasmussen Encephalitis, Anti-NMDA Receptor Encephalitis, and Neuromyelitis Optica.

      Experienced in Metachromatic Leukodystrophy
      Neurology
      Experienced in Metachromatic Leukodystrophy
      Neurology

      Abbott Northwestern Hospital

      800 E 28th St, 
      Minneapolis, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Nathan Sit is a Neurologist in Minneapolis, Minnesota. Dr. Sit is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy (SMA), and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

      Experienced in Metachromatic Leukodystrophy
      Experienced in Metachromatic Leukodystrophy

      Gillette Children's

      200 University Ave E, 
      Saint Paul, MN 
      Languages Spoken:
      English

      Galen Breningstall is a Neurologist in Saint Paul, Minnesota. Dr. Breningstall is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Epilepsy, Seizures, Orofaciodigital Syndrome 6, and Agyria Pachygyria Polymicrogyria.

      Experienced in Metachromatic Leukodystrophy
      Hematology | Oncology
      Experienced in Metachromatic Leukodystrophy
      Hematology | Oncology

      University Of Minnesota Masonic Children's Hospital

      420 Delaware St SE, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Jakub Tolar is a Hematologist and an Oncologist in Minneapolis, Minnesota. Dr. Tolar is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Dyskeratosis Congenita, Fanconi Anemia, Congenital Aplastic Anemia, Bone Marrow Transplant, and Osteotomy.

      Experienced in Metachromatic Leukodystrophy
      Medical Genetics | Neurology | Pediatric Neurology
      Experienced in Metachromatic Leukodystrophy
      Medical Genetics | Neurology | Pediatric Neurology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Radhika Dhamija is a Medical Genetics specialist and a Neurologist in Rochester, Minnesota. Dr. Dhamija is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Cowden Syndrome, Lhermitte-Duclos Disease, Bannayan-Riley-Ruvalcaba Syndrome, and Retinal Vasculopathy with Cerebral Leukodystrophy.

      Showing 1-12 of 12

      Last Updated: 02/22/2026

      What is the definition of Metachromatic Leukodystrophy?

      Metachromatic leukodystrophy is an inherited disorder characterized by the accumulation of fats called sulfatides in cells. This accumulation especially affects cells in the nervous system that produce myelin, the substance that insulates and protects nerves. Nerve cells covered by myelin make up a tissue called white matter. Sulfatide accumulation in myelin-producing cells causes progressive destruction of white matter (leukodystrophy) throughout the nervous system, including in the brain and spinal cord (the central nervous system) and the nerves connecting the brain and spinal cord to muscles and sensory cells that detect sensations such as touch, pain, heat, and sound (the peripheral nervous system).

      When should I see a Metachromatic Leukodystrophy doctor in Minnesota, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Metachromatic Leukodystrophy doctor in Minnesota, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Metachromatic Leukodystrophy doctors in Minnesota, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Metachromatic Leukodystrophy doctors in Minnesota, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Metachromatic Leukodystrophy doctor in Minnesota, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Metachromatic Leukodystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Metachromatic Leukodystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Metachromatic Leukodystrophy doctor in Minnesota, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Metachromatic Leukodystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Metachromatic Leukodystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Metachromatic Leukodystrophy doctors in Minnesota, US?

      Look for the filter feature on the left side of the Metachromatic Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Metachromatic Leukodystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Metachromatic Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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