The 20 Best Metachromatic Leukodystrophy Doctors Near Me in Texas, US

Find the Top Metachromatic Leukodystrophy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 20 doctor with experience in Metachromatic Leukodystrophy near Texas, US. Of these, 15 are Experienced and 5 are Advanced.

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20 providers found
    Advanced in Metachromatic Leukodystrophy
    Advanced in Metachromatic Leukodystrophy

    Texas Neurology, P.A.

    6080 N Central Expy, Ste 100, 
    Dallas, TX 
    Languages Spoken:
    English, French
    Offers Telehealth

    Dr. Schiffmann is a renowned expert on neurometabolic diseases. He earned his medical degree from the University of Liège, Belgium and a Master of Health Sciences in Clinical Research from Duke University. He is board-certified in Neurology with a Special Qualification in Child Neurology and is a Fellow of the American Academy of Neurology. Dr. Schiffmann was a lead researcher at the United States National Institutes of Health in Bethesda, Maryland for over 17 years (1991-2007) and then the Director of the Institute of Metabolic Disease at the Baylor Scott & White Research Institute in Dallas, Texas, 2008-2019. Dr. Schiffmann is a Professor in the Department of Internal Medicine, Texas Christian University and a Clinical Professor, Texas A&M University Medical School College of Medicine. He is also a Senior Vice President for Clinical Research at 4D Molecular Therapeutics. Dr. Schiffmann has been performing pre-clinical and clinical research on lysosomal storage diseases since 1991 with a special focus on the natural history, pathogenesis and therapy of Fabry disease, Gaucher disease and the leukodystrophies. One of his particular interests and areas of expertise is to address patients with undiagnosed neurological diseases. Dr. Schiffmann has published 276 peer-reviewed research articles and over 15 book chapters. Dr. Schiffmann is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Gaucher Disease Type 3, Fabry Disease, Gaucher Disease, and Leukodystrophy. Dr. Schiffmann is board certified in Neurology With Special Qualification In Child Neurology- American Board Of Psychiatry And Neurology/Neurology With Special Qualification In Child Neurology and Neurology With Special Qualification In Child Neurology- American Board Of Psychiatry And Neurology.

    Advanced in Metachromatic Leukodystrophy
    Neurology | Pediatrics
    Advanced in Metachromatic Leukodystrophy
    Neurology | Pediatrics

    UT Southwestern - Neurology

    5323 Harry Hines Blvd., 
    Dallas, TX 
    Languages Spoken:
    English

    Saima Kayani is a Neurologist and a Pediatrics provider practicing medicine in Dallas, Texas. Dr. Kayani is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 49 other conditions, according to our data. Her clinical expertise encompasses Leigh Syndrome, CLN4 Disease, CLN1 Disease, and CLN3 Disease.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy

    UT Southwestern - Neurology

    5323 Harry Hines Blvd., 
    Dallas, TX 
    Languages Spoken:
    English

    Jennifer Thomas is a Neurologist practicing medicine in Dallas, Texas. Dr. Thomas is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 112 other conditions, according to our data. Her clinical expertise encompasses Aphantasia, GAPO Syndrome, Lissencephaly, and Joubert Syndrome.

    Learn about our expert tiers
    Experienced in Metachromatic Leukodystrophy
    Neurology | Cardiac Electrophysiology
    Experienced in Metachromatic Leukodystrophy
    Neurology | Cardiac Electrophysiology

    Texas Neurology, P.A.

    6080 N Central Expy, Ste 100, 
    Dallas, TX 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Nagaraj is a board-certified neurologist who practices general neurology with special interests in multiple sclerosis and neuromuscular disorders. He received his medical degree at the University of Cincinnati College of Medicine and completed neurology residency at the University of North Carolina Hospitals. Dr. Nagaraj completed his fellowship in clinical neurophysiology at Ohio State University in Columbus, Ohio. He is co-director of the Multiple Sclerosis Center at Texas Neurology, which focuses on clinical research and advanced therapies for the treatment of patients with multiple sclerosis. Dr. Nagaraj is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Peripheral Neuropathy, and Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease. Dr. Nagaraj is board certified in Neurology- American Board Of Psychiatry And Neurology/Neurology, Clinical Cardiac Electrophysiology- American Board Of Electrodiagnostic Medicine, and Neurology- American Board Of Psychiatry And Neurology.

    Experienced in Metachromatic Leukodystrophy
    Neurology | Neuromusculoskeletal Medicine | Holistic Medicine
    Experienced in Metachromatic Leukodystrophy
    Neurology | Neuromusculoskeletal Medicine | Holistic Medicine

    UT Southwestern - Dept Of Pediatric Neurology

    5323 Harry Hines Blvd, 
    Dallas, TX 
    Languages Spoken:
    English

    Kaitlin Batley is a Neurologist and a Neuromusculoskeletal Medicine provider practicing medicine in Dallas, Texas. Ms. Batley is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Duchenne Muscular Dystrophy, Amyotonia Congenita, Congenital Myasthenic Syndrome, Spinal Muscular Atrophy Type 2, and Thymectomy.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy

    Scottish Rite For Children

    2222 Welborn St, 
    Dallas, TX 
    Languages Spoken:
    English

    Michelle Christie is a Neurologist practicing medicine in Dallas, Texas. Dr. Christie is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Spastic Paraplegia Type 7, Seizures, Hallervorden-Spatz Disease, and Epilepsy.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy

    UT Southwestern Pediatric Neurology Clinic

    2350 N Stemmons Fwy, Ste F5400, 
    Dallas, TX 
    Languages Spoken:
    English

    Michael Dowling is a Neurologist practicing medicine in Dallas, Texas. Dr. Dowling is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 60 other conditions, according to our data. His clinical expertise encompasses Stroke, Moyamoya Disease, Seizures, Thrombectomy, and Craniectomy.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy

    Office

    100 E Alton Gloor Blvd Ste 200B, 
    Brownsville, TX 
    Languages Spoken:
    English

    Rafael Villalobos is a Neurologist practicing medicine in Brownsville, Texas. Dr. Villalobos is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Susac Syndrome, GAPO Syndrome, Autism Spectrum Disorder, and Delayed Growth.

    Advanced in Metachromatic Leukodystrophy
    Pediatrics | Pediatric Neurology | Neurology
    Advanced in Metachromatic Leukodystrophy
    Pediatrics | Pediatric Neurology | Neurology
    6701 Fannin St, Suite 1560, 
    Houston, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Lisa Emrick is a Pediatrics specialist and a Pediatric Neurologist practicing medicine in Houston, Texas. Dr. Emrick is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses MELAS Syndrome, Hypotonia, CACH Syndrome, Cortical Dysplasia, and Gastrostomy. Dr. Emrick is currently accepting new patients.

    Advanced in Metachromatic Leukodystrophy
    Pediatric Neurology
    Advanced in Metachromatic Leukodystrophy
    Pediatric Neurology

    Office

    5301 Davis Ln Bldg A200, 
    Austin, TX 
    Languages Spoken:
    English

    Jinfon Ong is a Pediatric Neurologist practicing medicine in Austin, Texas. Dr. Ong is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, GAPO Syndrome, Cerebral Arteriovenous Malformation, and Pelizaeus-Merzbacher Disease.

    Advanced in Metachromatic Leukodystrophy
    Internal Medicine
    Advanced in Metachromatic Leukodystrophy
    Internal Medicine

    Office

    Webster, TX 
    Languages Spoken:
    English

    Firoozeh Kar is a primary care provider, practicing in Internal Medicine in Webster, Texas. Dr. Kar is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Cellulitis, Muscle Atrophy, End-Stage Renal Disease (ESRD), and Dementia.

    Experienced in Metachromatic Leukodystrophy
    Pediatric Neurology
    Experienced in Metachromatic Leukodystrophy
    Pediatric Neurology

    Central Texas Subspecialists For Children PLLC

    7940 Shoal Creek Blvd Ste 100, 
    Austin, TX 
    Languages Spoken:
    English

    Holly Keeley is a Pediatric Neurologist practicing medicine in Austin, Texas. Dr. Keeley is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses GAPO Syndrome, Cerebral Palsy, Delayed Growth, and Canavan Disease.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy

    Office

    5301 Davis Ln Bldg A200, 
    Austin, TX 
    Languages Spoken:
    English
    Offers Telehealth

    Karen Keough is a Neurologist practicing medicine in Austin, Texas. Dr. Keough is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 44 other conditions, according to our data. Her clinical expertise encompasses Lennox-Gastaut Syndrome (LGS), Seizures, Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE), and Lissencephaly 1.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy

    UT Southwestern Medical Center

    5303 Harry Hines Blvd, 
    Dallas, TX 
    Languages Spoken:
    English
    Offers Telehealth

    Brendan Kelley is a Neurologist practicing medicine in Dallas, Texas. Dr. Kelley is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Lewy Body Dementia (LBD), Cerebellar Degeneration, Neuronal Intranuclear Inclusion Disease (NIID), and Primary Progressive Aphasia.

    Experienced in Metachromatic Leukodystrophy
    Pediatric Neurology
    Experienced in Metachromatic Leukodystrophy
    Pediatric Neurology

    Driscoll Children's Hospital

    3533 S Alameda St, 
    Corpus Christi, TX 
    Languages Spoken:
    English

    Robin Hougen is a Pediatric Neurologist practicing medicine in Corpus Christi, Texas. Dr. Hougen is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Tourette Syndrome, Progressive Myoclonic Epilepsy, Unverricht-Lundborg Syndrome, and Lafora Disease.

    Experienced in Metachromatic Leukodystrophy
    Pediatric Neurology
    Experienced in Metachromatic Leukodystrophy
    Pediatric Neurology

    Texas Scottish Rite Hospital For Children

    2222 Welborn St, 
    Dallas, TX 
    Languages Spoken:
    English

    Kendra Beneski is a Pediatric Neurologist practicing medicine in Dallas, Texas. Dr. Beneski is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her clinical expertise encompasses Seizures, Memory Loss, Aphantasia, and Benign Rolandic Epilepsy. Dr. Beneski is board certified in Epilepsy- American Board Of Psychiatry And Neurology and Neurology With Special Qualification In Child Neurology- American Board Of Psychiatry And Neurology.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy

    Children's Medical Center/Children's Health

    1935 Medical District Dr, 
    Dallas, TX 
    Languages Spoken:
    English

    Wilmot Bonnet is a Neurologist practicing medicine in Dallas, Texas. Dr. Bonnet is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Seizures, Spasmus Nutans, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), and Cerebellar Hypoplasia.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy

    UT Southwestern Medical Center

    5303 Harry Hines Blvd, 
    Dallas, TX 
    Languages Spoken:
    English
    Offers Telehealth

    Lindsay Horton is a Neurologist practicing medicine in Dallas, Texas. Dr. Horton is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Transverse Myelitis, and Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy

    Dr. Leonardo Garcia-Mendez, MD

    2010 S Cynthia St Ste 106, 
    Mcallen, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Leonardo Garcia is a Neurologist practicing medicine in Mcallen, Texas. Dr. Garcia is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Increased Head Circumference, Autosomal Dominant Partial Epilepsy with Auditory Features, Zika Virus Disease, and Microcephaly with Spastic Quadriplegia. Dr. Garcia is currently accepting new patients.

    Experienced in Metachromatic Leukodystrophy
    Experienced in Metachromatic Leukodystrophy

    University Of Texas Southwestern Medical Center

    5323 Harry Hines Blvd, 
    Dallas, TX 
    Languages Spoken:
    English

    Sharon Nations is a Neurologist practicing medicine in Dallas, Texas. Dr. Nations is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myasthenia Gravis, Spinal Muscular Atrophy (SMA), Stiff Person Syndrome, and Thymectomy.

    Showing 1-20 of 20

    Last Updated: 04/28/2026

    What is the definition of Metachromatic Leukodystrophy?

    Metachromatic leukodystrophy is an inherited disorder characterized by the accumulation of fats called sulfatides in cells. This accumulation especially affects cells in the nervous system that produce myelin, the substance that insulates and protects nerves. Nerve cells covered by myelin make up a tissue called white matter. Sulfatide accumulation in myelin-producing cells causes progressive destruction of white matter (leukodystrophy) throughout the nervous system, including in the brain and spinal cord (the central nervous system) and the nerves connecting the brain and spinal cord to muscles and sensory cells that detect sensations such as touch, pain, heat, and sound (the peripheral nervous system).

    When should I see a Metachromatic Leukodystrophy doctor in Texas, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Metachromatic Leukodystrophy doctor in Texas, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Metachromatic Leukodystrophy doctors in Texas, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Metachromatic Leukodystrophy doctors in Texas, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Metachromatic Leukodystrophy doctor in Texas, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Metachromatic Leukodystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Metachromatic Leukodystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Metachromatic Leukodystrophy doctor in Texas, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Metachromatic Leukodystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Metachromatic Leukodystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Metachromatic Leukodystrophy doctors in Texas, US?

    Look for the filter feature on the left side of the Metachromatic Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Metachromatic Leukodystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Metachromatic Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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