The 20 Best Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) Doctors in The United States

Find the Top Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 435 doctor with experience in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) near The United States. Of these, 365 are Experienced, 54 are Advanced, 9 are Distinguished and 7 are Elite.

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435 providers found
    Elite in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Medical Genetics
    Elite in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Medical Genetics
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English

    Raymond Wang is a Medical Genetics provider practicing medicine in Orange, California. Dr. Wang is rated as an Elite provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). He is also highly rated in 50 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Pompe Disease, and Adenoidectomy.

    Elite in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Pediatric Endocrinology
    Elite in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Pediatric Endocrinology
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Lynda Polgreen is a Pediatric Endocrinologist practicing medicine in Orange, California. Dr. Polgreen is rated as an Elite provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), and Osteotomy. Dr. Polgreen is currently accepting new patients.

    Elite in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Hematology | Oncology
    Elite in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Hematology | Oncology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Paul Orchard is a Hematologist and an Oncologist practicing medicine in Minneapolis, Minnesota. Dr. Orchard is rated as an Elite provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Bone Marrow Transplant, and Osteotomy. Dr. Orchard is board certified in Pediatrics.

    Learn about our expert tiers
    Elite in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Medical Genetics | Pediatrics
    Elite in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Medical Genetics | Pediatrics

    Washington University Physicians In Illinois Inc

    4500 Memorial Dr, 
    Belleville, IL 
    Languages Spoken:
    English
    Accepting New Patients

    Patricia Dickson is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Belleville, Illinois. Dr. Dickson is rated as an Elite provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), and Mucopolysaccharidosis Type 3B (MPS IIIB, Sanfilippo Syndrome B). Dr. Dickson is currently accepting new patients.

    Elite in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Pediatrics | Medical Genetics
    Elite in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Pediatrics | Medical Genetics

    Fairview Express Care

    2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Chester Whitley is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Minneapolis, Minnesota. Dr. Whitley is rated as an Elite provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A), and Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome). Dr. Whitley is currently accepting new patients.

    Elite in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Pediatric Cardiology
    Elite in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Pediatric Cardiology

    University Of Minnesota Medical Center Fairview Riverside

    2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Elizabeth Braunlin is a Pediatric Cardiologist practicing medicine in Minneapolis, Minnesota. Dr. Braunlin is rated as an Elite provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Multisystem Inflammatory Syndrome in Children (MIS-C), Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome), and Pacemaker Implantation.

    Elite in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Medical Genetics | Pediatrics
    Elite in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Medical Genetics | Pediatrics

    Southern California Permanente Medical Group

    4700 W Sunset Blvd, 
    Los Angeles, CA 
    Languages Spoken:
    English

    Moin Vera is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Los Angeles, California. Dr. Vera is rated as an Elite provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Triple X Syndrome, and Chromosome 10q Deletion.

    Distinguished in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Medical Genetics
    Distinguished in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Medical Genetics

    U Of U Medical Genetics

    50 N Medical Dr # 1, 
    Salt Lake City, UT 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    David Viskochil is a Medical Genetics provider practicing medicine in Salt Lake City, Utah. Dr. Viskochil is rated as a Distinguished provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and Prader-Willi Syndrome. Dr. Viskochil is board certified in American Board Of Medical Genetics & Genomics. Dr. Viskochil is currently accepting new patients.

    Distinguished in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Pediatric Endocrinology
    Distinguished in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Pediatric Endocrinology

    Harbor-UCLA Medical Center

    1000 W Carson St, 
    Torrance, CA 
    Languages Spoken:
    English

    Jennifer Wei Yee is a Pediatric Endocrinologist practicing medicine in Torrance, California. Dr. Wei Yee is rated as a Distinguished provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Obesity, Obesity in Children, and Orchiectomy.

    Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Geriatrics | Internal Medicine
    Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Geriatrics | Internal Medicine

    OSF HealthCare - Medical Group (Primary Care)

    2500 West Reynolds Street Suite 206, 
    Pontiac, IL 
    Languages Spoken:
    English, Gujarati , Hindi

    Mukesh Patel is a primary care provider, practicing in Internal Medicine and Geriatrics in Pontiac, Illinois. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Familial Combined Hyperlipidemia, Xanthoma, Cirrhosis, and High Cholesterol. Dr. Patel is board certified in American Board Of Internal Medicine.

    Distinguished in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Pediatric Gastroenterology
    Distinguished in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Pediatric Gastroenterology

    UCSF Benioff Children's Hospital Oakland

    747 52nd St, 
    Oakland, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Paul Harmatz is a Pediatric Gastroenterologist practicing medicine in Oakland, California. Dr. Harmatz is rated as a Distinguished provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome), Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), and Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome). Dr. Harmatz is board certified in American Board Of Pediatrics.

    Distinguished in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Medical Genetics | Pediatrics
    Distinguished in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Medical Genetics | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Ayesha Ahmad is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Ahmad is rated as a Distinguished provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). She is also highly rated in 50 other conditions, according to our data. Her clinical expertise encompasses Pompe Disease, Propionic Acidemia, Von Gierke Disease, and Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). Dr. Ahmad is board certified in Clinical Biochemical Genetics and Clinical Genetics & Genomics.

    Distinguished in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Pediatric Endocrinology
    Distinguished in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Pediatric Endocrinology

    University Of Minnesota Medical Center Fairview Riverside

    2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Bradley Miller is a Pediatric Endocrinologist practicing medicine in Minneapolis, Minnesota. Dr. Miller is rated as a Distinguished provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Growth Hormone Deficiency (GHD), Pediatric Growth Hormone Deficiency, Short Stature (Growth Disorders), Adrenal Insufficiency Pediatric, and Hormone Replacement Therapy (HRT). Dr. Miller is board certified in American Board Of Pediatrics American Board Of Pediatrics - Pediatric Endocrinology.

    Advanced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Pediatric Cardiology
    Advanced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Pediatric Cardiology

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati,, OH 
    Languages Spoken:
    English

    Thomas Ryan is a Pediatric Cardiologist practicing medicine in Cincinnati,, Ohio. Dr. Ryan is rated as an Advanced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Duchenne Muscular Dystrophy, Cardiomyopathy, Becker Muscular Dystrophy, Restrictive Cardiomyopathy (RCM), and Heart Transplant.

    Advanced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Ophthalmology
    Advanced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Ophthalmology

    Cincinnati Eye Institute

    1945 Cei Drive, 
    Blue Ash, OH 
    Experience:
    39+ years
    Languages Spoken:
    English
    Accepting New Patients

    Adam Kaufman is an Ophthalmologist practicing medicine in Blue Ash, Ohio. He has been practicing medicine for over 39 years. Dr. Kaufman is rated as an Advanced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Uveitis, Neuroretinitis, Interstitial Keratitis, Cataract, and Corneal Transplant. Dr. Kaufman is board certified in American Board Of Ophthalmology - 1994 and American Board Of Ophthalmology - None. Dr. Kaufman is currently accepting new patients.

    Advanced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Advanced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    24+ years
    Languages Spoken:
    English

    My mother’s career as a nurse started my interest in medicine. I volunteered as a candy striper during high school and worked as a nursing assistant through college. After college and medical school in my home state of Ohio, I moved to Delaware for a Nemours residency that combined pediatrics with physical medicine and rehabilitation. Physical medicine and rehabilitation is a way to help children with neuromuscular conditions reach the highest function that they can. I find my patients fun to work with, I love watching them grow, and I enjoy getting to know them and their families. The kids I treat inspire me with their resilience. I’m passionate about helping families of children with neuromuscular injuries or congenital issues become active, informed participants on their child’s care team. It takes a group effort to help an injured child return to prior function or to help a child with a chronic condition make the most of function they have. I make the patient and family’s goals my own. We may be trying to return a child to sports quickly after a concussion or helping a child with a chronic condition participate in meaningful activities. Rehab at Nemours means physicians, nurses, therapists, social workers and others working together with the family. Teamwork is one of our strengths. Dr. Owens is rated as an Advanced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, and Concussion. Dr. Owens is board certified in American Board Of Pediatrics.

    Advanced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Pediatric Radiology | Pediatrics
    Advanced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Pediatric Radiology | Pediatrics

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English

    Both of my parents were in the medical field and strongly influenced the direction of my career. I became a physical therapist, which I enjoyed immensely, but I thought I could make a different contribution to patient care by becoming a physician. In radiology, we are part of the medical team that helps diagnose or exclude an illness and we help to direct the course of our patient’s treatment. Working with children is an amazing experience. Kids are so resilient and bounce back from all types of difficult situations. They each have such a unique perspective and we try our best to tailor our interactive imaging procedures to the child. Sometimes this involves providing anatomy lessons to teen patients, other times it involves just “getting it over with.” We aim to make our imaging procedures as interesting and as comfortable as possible. My areas of interest include: Pediatric Body Imaging  Fetal Imaging Child Abuse I try to provide the most accurate information based on our imaging studies to the patient’s medical team so that the child can be treated as quickly as possible. I am fortunate to work with an incredible group of medical practitioners at Nemours/Alfred I. duPont Hospital for Children who share my passion to provide the highest quality medical care to all children. Dr. Harty is rated as an Advanced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). She is also highly rated in 52 other conditions, according to our data. Her clinical expertise encompasses X-Linked Spondyloepiphyseal Dysplasia Tarda, Weissenbacher-Zweymuller Syndrome, Kniest Dysplasia, and Spondyloepiphyseal Dysplasia. Dr. Harty is board certified in American Board Of Radiology.

    Advanced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Medical Genetics
    Advanced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Medical Genetics

    Emory Clinic At 1365 Clifton Road

    1365 Clifton Road Northeast, BldgB, 
    Atlanta, GA 
    Experience:
    38+ years
    Languages Spoken:
    English

    William Wilcox is a Medical Genetics provider practicing medicine in Atlanta, Georgia. He has been practicing medicine for over 38 years. Dr. Wilcox is rated as an Advanced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Fabry Disease, Achondroplasia, Mucopolysaccharidoses (MPS), and Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome). Dr. Wilcox is board certified in American Board Of Medical Genetics And Genomics, 1996.

    Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Experienced in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    9200 W Wisconsin Ave, Division Of Endocrinology, 
    Milwaukee, WI 
    Languages Spoken:
    English

    Irene Oshaughnessy is an Endocrinologist practicing medicine in Milwaukee, Wisconsin. Dr. Oshaughnessy is rated as an Experienced provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Diabetic Neuropathy, Type 1 Diabetes (T1D), Type 2 Diabetes (T2D), and Diabetic Nephropathy.

    Distinguished in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    Distinguished in Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)
    101 Manning Dr, 
    Chapel Hill, NC 
    Languages Spoken:
    English
    Accepting New Patients

    Joseph Muenzer is a Pediatrics provider practicing medicine in Chapel Hill, North Carolina. Dr. Muenzer is rated as a Distinguished provider by MediFind in the treatment of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), and Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A). Dr. Muenzer is currently accepting new patients.

    Showing 1-20 of 435

    Last Updated: 04/28/2026

    What is the definition of Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome)?

    Mucopolysaccharidosis type I (MPS I) is a condition that affects many parts of the body. This disorder was once divided into three separate syndromes: Hurler syndrome (MPS I-H), Hurler-Scheie syndrome (MPS I-H/S), and Scheie syndrome (MPS I-S), listed from most to least severe. Because there is so much overlap between each of these three syndromes, MPS I is currently divided into the severe and attenuated types.

    When should I see a Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor search results page. 

    Why is it important to get a second opinion from a different Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctors in The United States?

    Look for the filter feature on the left side of the Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor that offers video calls?

    Look for the filter feature on the left-side of the Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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