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    Last Updated: 10/30/2025

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    MediFind found 5 doctor with experience in Multiple Sulfatase Deficiency near Rochester, NY. Of these, 5 are Experienced.

    Location
    LocationClose
    5 providers found
      Experienced in Multiple Sulfatase Deficiency
      Pediatrics | Internal Medicine
      Experienced in Multiple Sulfatase Deficiency
      Pediatrics | Internal Medicine

      Highland Hospital Of Rochester

      913 Culver Rd, 
      Rochester, NY 
       (2.2 miles away)
      Languages Spoken:
      English

      Karen Nead is a primary care provider, practicing in Pediatrics and Internal Medicine in Rochester, New York. Dr. Nead is rated as an Experienced provider by MediFind in the treatment of Multiple Sulfatase Deficiency. Her top areas of expertise are Sickle Cell Disease, Headache, Type 1 Diabetes (T1D), and Alexander Disease.

      Experienced in Multiple Sulfatase Deficiency
      Medical Genetics | Pediatrics
      Experienced in Multiple Sulfatase Deficiency
      Medical Genetics | Pediatrics
      601 Elmwood Ave Box, 
      Rochester, NY 
       (2.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Chin-to Fong is a Medical Genetics specialist and a Pediatrics provider in Rochester, New York. Dr. Fong is rated as an Experienced provider by MediFind in the treatment of Multiple Sulfatase Deficiency. His top areas of expertise are Phenylketonuria (PKU), Ehlers-Danlos Syndrome (EDS), Dihydropteridine Reductase Deficiency, and Maternal Hyperphenylalaninemia.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Multiple Sulfatase Deficiency
      Hematology Oncology | Nurse Practitioner | Hematology
      Experienced in Multiple Sulfatase Deficiency
      Hematology Oncology | Nurse Practitioner | Hematology

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Frank Akwaa is a Hematologist Oncology specialist and a Nurse Practitioner in Rochester, New York. Mr. Akwaa is rated as an Experienced provider by MediFind in the treatment of Multiple Sulfatase Deficiency. His top areas of expertise are Sickle Cell Disease, Monoclonal Gammopathy of Undetermined Significance (MGUS), D-Plus Hemolytic Uremic Syndrome, and Hemolytic-Uremic Syndrome.

      Learn about our expert tiers
      Experienced in Multiple Sulfatase Deficiency
      Experienced in Multiple Sulfatase Deficiency

      Strong Renal Group

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Matthew Gross is a Nephrologist in Rochester, New York. Dr. Gross is rated as an Experienced provider by MediFind in the treatment of Multiple Sulfatase Deficiency. His top areas of expertise are Glomerulonephritis, End-Stage Renal Disease (ESRD), Poststreptococcal Glomerulonephritis, and Chronic Kidney Disease.

      Experienced in Multiple Sulfatase Deficiency
      Internal Medicine
      Experienced in Multiple Sulfatase Deficiency
      Internal Medicine

      University Of Rochester

      2400 S Clinton Ave, Bldg H, 
      Rochester, NY 
       (3.2 miles away)
      Languages Spoken:
      English

      Geoffrey Morris is a primary care provider, practicing in Internal Medicine in Rochester, New York. Dr. Morris is rated as an Experienced provider by MediFind in the treatment of Multiple Sulfatase Deficiency. His top areas of expertise are Fabry Disease, Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Maturity Onset Diabetes of the Young.

      Showing 1-5 of 5

      Last Updated: 10/30/2025

      What is the definition of Multiple Sulfatase Deficiency?

      Multiple sulfatase deficiency is a condition that mainly affects the brain, skin, and skeleton. Because the signs and symptoms of multiple sulfatase deficiency vary widely, researchers have split the condition into three types: neonatal, late-infantile, and juvenile.

      When should I see a Multiple Sulfatase Deficiency doctor near Rochester, NY?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Multiple Sulfatase Deficiency doctor near Rochester, NY?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Multiple Sulfatase Deficiency doctors near Rochester, NY?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Multiple Sulfatase Deficiency doctors near Rochester, NY?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Multiple Sulfatase Deficiency doctor near Rochester, NY?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Multiple Sulfatase Deficiency doctor search results page. 

      Why is it important to get a second opinion from a different Multiple Sulfatase Deficiency doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Multiple Sulfatase Deficiency doctor near Rochester, NY?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Multiple Sulfatase Deficiency doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Multiple Sulfatase Deficiency doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Multiple Sulfatase Deficiency doctors near Rochester, NY?

      Look for the filter feature on the left side of the Multiple Sulfatase Deficiency doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Multiple Sulfatase Deficiency doctor that offers video calls?

      Look for the filter feature on the left-side of the Multiple Sulfatase Deficiency doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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