The 20 Best Myofibrillar Myopathy Doctors Near Me

Find the Top Myofibrillar Myopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 661 doctor with experience in Myofibrillar Myopathy. Of these, 520 are Experienced, 116 are Advanced, 21 are Distinguished and 3 are Elite.

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661 providers found
    Elite in Myofibrillar Myopathy
    Elite in Myofibrillar Myopathy
    Evry, FR 

    Samia Martin practices practicing medicine in Evry, France. Ms. Martin is rated as an Elite expert by MediFind in the treatment of Myofibrillar Myopathy. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Myofibrillar Myopathy, Crigler-Najjar Syndrome, Rotor Syndrome, and Congenital Fiber-Type Disproportion.

    Elite in Myofibrillar Myopathy
    Elite in Myofibrillar Myopathy
    Bochum, NW, DE 

    Andreas Brodehl practices practicing medicine in Bochum, Germany. Mr. Brodehl is rated as an Elite expert by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Restrictive Cardiomyopathy (RCM), Myofibrillar Myopathy, Cardiomyopathy, Dilated Cardiomyopathy (DCM), and Heart Transplant.

    Elite in Myofibrillar Myopathy
    Elite in Myofibrillar Myopathy
    Vienna, AT 

    Lilli Winter practices practicing medicine in Vienna, Austria. Ms. Winter is rated as an Elite expert by MediFind in the treatment of Myofibrillar Myopathy. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Myofibrillar Myopathy, Dowling-Meara Epidermolysis Bullosa Simplex, Dominant Dystrophic Epidermolysis Bullosa, and Epidermolysis Bullosa with Pyloric Atresia.

    Learn about our expert tiers
    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Ruhr Un, 
    Bad Oeynhausen, NW, DE 

    Jan Gummert practices practicing medicine in Bad Oeynhausen, Germany. Gummert is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. They are also highly rated in 23 other conditions, according to our data. Their clinical expertise encompasses Heart Failure, Cardiomyopathy, Myofibrillar Myopathy, Heart Transplant, and Heart Bypass Surgery.

    Advanced in Myofibrillar Myopathy
    Advanced in Myofibrillar Myopathy

    Kennedy Krieger Institute

    1741 Ashland Avenue, Room 847, Room 847, 
    Baltimore, MD 
    Languages Spoken:
    English

    Dr. Leung obtained her undergraduate degree in biochemical sciences from Harvard University. While attending medical school at Duke University, she completed a year-long research fellowship studying genetic markers of late-onset Alzheimer’s disease at the National Institute on Aging as part of the NIH Clinical Research Training Program. She completed her neurology residency and clinical neurophysiology fellowship at Stanford University Medical Center, and is currently a Ph.D. candidate in the graduate training program in clinical investigation at the Johns Hopkins Bloomberg School of Public Health. Dr. Leung joined the Center for Genetic Muscle Disorders at the Kennedy Krieger Institute as a translational research fellow in 2010 and was appointed to the faculty in 2014. Her clinic specializes in electromyography and the diagnosis and treatment of hereditary muscle diseases. Dr. Leung’s research focuses on the development of imaging biomarkers and outcome measures for muscle diseases. She is the principal investigator for a longitudinal cohort study of whole-body MRI in facioscapulohumeral muscular dystrophy. Dr. Leung is also a site principal investigator for the Ionis-DMPKRx trial, a phase Ib/IIa clinical trial of a novel RNA-based therapy for myotonic muscular dystrophy. Dr. Leung is rated as an Advanced provider by MediFind in the treatment of Myofibrillar Myopathy. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Limb-Girdle Muscular Dystrophy Type 2I, Limb-Girdle Muscular Dystrophy, and Dysferlinopathy. Dr. Leung is board certified in American Board Of Psychiatry And Neurology.

    Advanced in Myofibrillar Myopathy
    Neurology
    Advanced in Myofibrillar Myopathy
    Neurology

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    53+ years
    Languages Spoken:
    English
    Offers Telehealth

    Kerry Levin is a Neurologist practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 53 years. Dr. Levin is rated as an Advanced provider by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Ptosis, Lambert-Eaton Syndrome, and Peripheral Neuropathy. Dr. Levin is board certified in American Board Of Psychiatry And Neurology, 2008.

    Advanced in Myofibrillar Myopathy
    Advanced in Myofibrillar Myopathy

    Clinical Research Center

    4350 Shawnee Mission Parkway, 
    Fairway, KS 
    Experience:
    38+ years
    Languages Spoken:
    English, Arabic, French
    Accepting New Patients
    Offers Telehealth

    Mazen Dimachkie is a Neurologist practicing medicine in Fairway, Kansas. He has been practicing medicine for over 38 years. Dr. Dimachkie is rated as an Advanced provider by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Myositis, Inclusion Body Myositis, Myasthenia Gravis, Thymectomy, and Tissue Biopsy. Dr. Dimachkie is board certified in United Council For Neurologic Subspecialties, Clinical Neuromuscular Pathology - 2015 , American Board Of Psychiatry And Neurology, Neuromuscular Medicine - 2008 , American Board Of Psychiatry And Neurology, Clinical Neurophysiology - 1996 , and American Board Of Psychiatry And Neurology, Neurology - 1995. Dr. Dimachkie is currently accepting new patients.

    Advanced in Myofibrillar Myopathy
    Advanced in Myofibrillar Myopathy

    Office

    3599 Rainbow Blvd, 
    Kansas City, KS 
    Languages Spoken:
    English

    Richard Barohn is a Neurologist practicing medicine in Kansas City, Kansas. Dr. Barohn is rated as an Advanced provider by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Inclusion Body Myositis, Myositis, Myasthenia Gravis, Thymectomy, and Tissue Biopsy.

    Advanced in Myofibrillar Myopathy
    Advanced in Myofibrillar Myopathy

    Clinical Research Center

    4350 Shawnee Mission Parkway, 
    Fairway, KS 
    Experience:
    30+ years
    Languages Spoken:
    English, Hindi, Telugu
    Accepting New Patients
    Offers Telehealth

    Mamatha Pasnoor is a Neurologist practicing medicine in Fairway, Kansas. She has been practicing medicine for over 30 years. Dr. Pasnoor is rated as an Advanced provider by MediFind in the treatment of Myofibrillar Myopathy. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, Thymectomy, and Tissue Biopsy. Dr. Pasnoor is board certified in American Board Of Psychiatry And Neurology, Clinical Neurophysiology - 2009 , American Board Of Psychiatry And Neurology, Neuromuscular Medicine - 2008 , and American Board Of Psychiatry And Neurology, Neurology - 2006. Dr. Pasnoor is currently accepting new patients.

    Advanced in Myofibrillar Myopathy
    Family Medicine
    Advanced in Myofibrillar Myopathy
    Family Medicine

    University Medical Associates Of Aiken

    934 Dougherty Rd, 
    Aiken, SC 
    Languages Spoken:
    English
    Offers Telehealth

    Stephen Youmans is a primary care provider, practicing in Family Medicine in Aiken, South Carolina. Dr. Youmans is rated as an Advanced provider by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Familial Combined Hyperlipidemia, Xanthoma, Cirrhosis, and Migraine with Brainstem Aura. Dr. Youmans is board certified in Family Medicine.

    Advanced in Myofibrillar Myopathy
    Advanced in Myofibrillar Myopathy

    Neuromuscular Research Center

    4545 E Shea Blvd, Ste 175, 
    Phoenix, AZ 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kumaraswamy Sivakumar is a Neurologist practicing medicine in Phoenix, Arizona. Dr. Sivakumar is rated as an Advanced provider by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 73 other conditions, according to our data. His clinical expertise encompasses Inclusion Body Myositis, Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, and Pompe Disease. Dr. Sivakumar is board certified in Psychiatry & Neurology (Neurology), Psychiatry & Neurology (Sub: Clinical Neurophysiolog, and Psychiatry & Neurology (Sub: Neuromuscular Medicine). Dr. Sivakumar is currently accepting new patients.

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Erlangen, BY, DE 

    Rolf Schroder practices practicing medicine in Erlangen, Germany. Mr. Schroder is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Myofibrillar Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Tubular Aggregate Myopathy.

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Joseph Stelzmann Str. 26, 
    Koeln, NW, DE 

    Christoph Clemen practices practicing medicine in Koeln, Germany. Mr. Clemen is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Myofibrillar Myopathy, Paget's Disease of Bone, Emery-Dreifuss Muscular Dystrophy, and Primary Lateral Sclerosis.

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Paris, FR 

    Pierre Joanne practices practicing medicine in Paris, France. Mr. Joanne is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Myofibrillar Myopathy, Dilated Cardiomyopathy (DCM), Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Paris, FR 

    Onnik Agbulut practices practicing medicine in Paris, France. Agbulut is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Myofibrillar Myopathy, Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Dilated Cardiomyopathy (DCM).

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Paris, FR 

    Arnaud Ferry practices practicing medicine in Paris, France. Mr. Ferry is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Myofibrillar Myopathy, Oculopharyngeal Muscular Dystrophy, Duchenne Muscular Dystrophy, and Becker Muscular Dystrophy.

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Ernst Grube Str. 40, 
    Halle (saale), ST, DE 

    Hendrik Milting practices practicing medicine in Halle (saale), Germany. Mr. Milting is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Myofibrillar Myopathy, Dilated Cardiomyopathy (DCM), Restrictive Cardiomyopathy (RCM), and Heart Transplant.

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Modena, IT 

    Fulvio Mavilio practices practicing medicine in Modena, Italy. Mr. Mavilio is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Myofibrillar Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Tubular Aggregate Myopathy.

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Paris, FR 

    Alain Lilienbaum practices practicing medicine in Paris, France. Mr. Lilienbaum is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Myofibrillar Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Paris, FR 

    Sabrina Pichon-Batonnet practices practicing medicine in Paris, France. Ms. Pichon-Batonnet is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Myofibrillar Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Showing 1-20 of 661

    Last Updated: 04/28/2026

    What is the definition of Myofibrillar Myopathy?

    Myofibrilar myopathy (MFM) is a neuromuscular disease characterized by slowly progressive muscle weakness that can involve both proximal muscles (such as hips and shoulders) and distal muscles (those further away from the trunk). Some affected individuals also experience muscle stiffness, aching, or cramps. Other symptoms that can be associated with MFM include pain and tingling in the limbs (peripheral neuropathy) or an enlarged and weakened heart (cardiomyopathy). Most people with MFM begin to develop muscle weakness in mid-adulthood, but features of the disease can appear anytime between infancy and late adulthood. MFM is caused by a genetic change (change) in any of several genes, including DES, CRYAB, MYOT, LDB3, FLNC, BAG3, FHL1, TTN, and DNAJB6. The signs and symptoms of MFM can vary depending on the genetic cause. For some people, the exact genetic cause may be unknown. The mode of inheritance of the disease depends on exactly which gene is changed. MFM can be diagnosed with a muscle biopsy or other studies of muscle function. The diagnosis can be confirmed with genetic testing.

    When should I see a Myofibrillar Myopathy doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Myofibrillar Myopathy doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Myofibrillar Myopathy doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Myofibrillar Myopathy doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Myofibrillar Myopathy doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Myofibrillar Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different Myofibrillar Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Myofibrillar Myopathy doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Myofibrillar Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Myofibrillar Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Myofibrillar Myopathy doctors near me?

    Look for the filter feature on the left side of the Myofibrillar Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Myofibrillar Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Myofibrillar Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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