The 20 Best Myofibrillar Myopathy Doctors Near Me

Find the Top Myofibrillar Myopathy Experts and Specialists

The 20 Best Myofibrillar Myopathy Doctors Near Me

Last Updated: 02/22/2026

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MediFind found 685 doctor with experience in Myofibrillar Myopathy. Of these, 542 are Experienced, 121 are Advanced, 19 are Distinguished and 2 are Elite.

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685 providers found
    Elite in Myofibrillar Myopathy
    Elite in Myofibrillar Myopathy
    Vienna, AT 

    Lilli Winter practices in Vienna, Austria. Ms. Winter is rated as an Elite expert by MediFind in the treatment of Myofibrillar Myopathy. Her top areas of expertise are Myofibrillar Myopathy, Dominant Dystrophic Epidermolysis Bullosa, Dowling-Meara Epidermolysis Bullosa Simplex, and Epidermolysis Bullosa with Pyloric Atresia.

    Elite in Myofibrillar Myopathy
    Elite in Myofibrillar Myopathy
    Bad Oeynhausen, NW, DE 

    Andreas Brodehl practices in Bad Oeynhausen, Germany. Mr. Brodehl is rated as an Elite expert by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Restrictive Cardiomyopathy (RCM), Myofibrillar Myopathy, Cardiomyopathy, Dilated Cardiomyopathy (DCM), and Heart Transplant.

    Jan F. Gummert
    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Ruhr Un, 
    Bad Oeynhausen, NW, DE 

    Jan Gummert practices in Bad Oeynhausen, Germany. Gummert is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. Their top areas of expertise are Heart Failure, Cardiomyopathy, Myofibrillar Myopathy, Heart Transplant, and Heart Bypass Surgery.

    Learn about our expert tiers
    Kerry Levin
    Advanced in Myofibrillar Myopathy
    Neurology
    Advanced in Myofibrillar Myopathy
    Neurology

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    53+ years
    Languages Spoken:
    English
    Offers Telehealth

    Kerry Levin is a Neurologist in Cleveland, Ohio. Dr. Levin has been practicing medicine for over 53 years and is rated as an Advanced provider by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Myasthenia Gravis, Ptosis, Lambert-Eaton Syndrome, and Peripheral Neuropathy.

    Mazen M. Dimachkie
    Advanced in Myofibrillar Myopathy
    Advanced in Myofibrillar Myopathy

    Clinical Research Center

    4350 Shawnee Mission Parkway, 
    Fairway, KS 
    Experience:
    38+ years
    Languages Spoken:
    English, Arabic, French
    Accepting New Patients
    Offers Telehealth

    Mazen Dimachkie is a Neurologist in Fairway, Kansas. Dr. Dimachkie has been practicing medicine for over 38 years and is rated as an Advanced provider by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Myositis, Inclusion Body Myositis, Myasthenia Gravis, Thymectomy, and Tissue Biopsy. Dr. Dimachkie is currently accepting new patients.

    Mamatha Pasnoor
    Advanced in Myofibrillar Myopathy
    Advanced in Myofibrillar Myopathy

    Clinical Research Center

    4350 Shawnee Mission Parkway, 
    Fairway, KS 
    Experience:
    30+ years
    Languages Spoken:
    English, Hindi, Telugu
    Accepting New Patients
    Offers Telehealth

    Mamatha Pasnoor is a Neurologist in Fairway, Kansas. Dr. Pasnoor has been practicing medicine for over 30 years and is rated as an Advanced provider by MediFind in the treatment of Myofibrillar Myopathy. Her top areas of expertise are Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, Thymectomy, and Tissue Biopsy. Dr. Pasnoor is currently accepting new patients.

    Stephen Youmans
    Advanced in Myofibrillar Myopathy
    Family Medicine
    Advanced in Myofibrillar Myopathy
    Family Medicine

    University Medical Associates Of Aiken

    934 Dougherty Rd, 
    Aiken, SC 
    Languages Spoken:
    English
    Offers Telehealth

    Stephen Youmans is a primary care provider, practicing in Family Medicine in Aiken, South Carolina. Dr. Youmans is rated as an Advanced provider by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Familial Combined Hyperlipidemia, Xanthoma, Cirrhosis, and Migraine with Brainstem Aura.

    Kumaraswamy Sivakumar
    Advanced in Myofibrillar Myopathy
    Advanced in Myofibrillar Myopathy

    Neuromuscular Research Center

    4545 E Shea Blvd, Ste 175, 
    Phoenix, AZ 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kumaraswamy Sivakumar is a Neurologist in Phoenix, Arizona. Dr. Sivakumar is rated as an Advanced provider by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, and Pompe Disease. Dr. Sivakumar is currently accepting new patients.

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Erlangen, BY, DE 

    Rolf Schroder practices in Erlangen, Germany. Mr. Schroder is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Myofibrillar Myopathy, Dowling-Meara Epidermolysis Bullosa Simplex, Dominant Dystrophic Epidermolysis Bullosa, and Tubular Aggregate Myopathy.

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Joseph Stelzmann Str. 26, 
    Koeln, NW, DE 

    Christoph Clemen practices in Koeln, Germany. Mr. Clemen is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Myofibrillar Myopathy, Paget's Disease of Bone, Emery-Dreifuss Muscular Dystrophy, and Primary Lateral Sclerosis.

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Paris, FR 

    Pierre Joanne practices in Paris, France. Mr. Joanne is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Myofibrillar Myopathy, Dilated Cardiomyopathy (DCM), Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Paris, FR 

    Onnik Agbulut practices in Paris, France. Agbulut is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. Their top areas of expertise are Myofibrillar Myopathy, Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Dilated Cardiomyopathy (DCM).

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Paris, FR 

    Arnaud Ferry practices in Paris, France. Mr. Ferry is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Myofibrillar Myopathy, Oculopharyngeal Muscular Dystrophy, Duchenne Muscular Dystrophy, and Becker Muscular Dystrophy.

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Modena, IT 

    Fulvio Mavilio practices in Modena, Italy. Mr. Mavilio is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Myofibrillar Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Ernst Grube Str. 40, 
    Halle (saale), ST, DE 

    Hendrik Milting practices in Halle (saale), Germany. Mr. Milting is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Cardiomyopathy, Myofibrillar Myopathy, Dilated Cardiomyopathy (DCM), Restrictive Cardiomyopathy (RCM), and Heart Transplant.

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Paris, FR 

    Alain Lilienbaum practices in Paris, France. Mr. Lilienbaum is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Myofibrillar Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Paris, FR 

    Zhenlin Li practices in Paris, France. Li is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. Their top areas of expertise are Myofibrillar Myopathy, Dilated Cardiomyopathy (DCM), Cardiomyopathy, and Muscle Atrophy.

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Paris, FR 

    Sabrina Pichon-Batonnet practices in Paris, France. Ms. Pichon-Batonnet is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. Her top areas of expertise are Myofibrillar Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Erlangen, BY, DE 

    Ursula Schrehardt-Schlotzer practices in Erlangen, Germany. Ms. Schrehardt-Schlotzer is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. Her top areas of expertise are Macular Corneal Dystrophy Type 1, Fuchs Dystrophy, Glaucoma, Corneal Transplant, and Cataract Removal.

    Distinguished in Myofibrillar Myopathy
    Distinguished in Myofibrillar Myopathy
    Koeln, NW, DE 

    Carolin Berwanger practices in Koeln, Germany. Ms. Berwanger is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. Her top areas of expertise are Myofibrillar Myopathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, and Emery-Dreifuss Muscular Dystrophy.

    Showing 1-20 of 685

    Last Updated: 02/22/2026

    What is the definition of Myofibrillar Myopathy?

    Myofibrilar myopathy (MFM) is a neuromuscular disease characterized by slowly progressive muscle weakness that can involve both proximal muscles (such as hips and shoulders) and distal muscles (those further away from the trunk). Some affected individuals also experience muscle stiffness, aching, or cramps. Other symptoms that can be associated with MFM include pain and tingling in the limbs (peripheral neuropathy) or an enlarged and weakened heart (cardiomyopathy). Most people with MFM begin to develop muscle weakness in mid-adulthood, but features of the disease can appear anytime between infancy and late adulthood. MFM is caused by a genetic change (change) in any of several genes, including DES, CRYAB, MYOT, LDB3, FLNC, BAG3, FHL1, TTN, and DNAJB6. The signs and symptoms of MFM can vary depending on the genetic cause. For some people, the exact genetic cause may be unknown. The mode of inheritance of the disease depends on exactly which gene is changed. MFM can be diagnosed with a muscle biopsy or other studies of muscle function. The diagnosis can be confirmed with genetic testing.

    When should I see a Myofibrillar Myopathy doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Myofibrillar Myopathy doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Myofibrillar Myopathy doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Myofibrillar Myopathy doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Myofibrillar Myopathy doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Myofibrillar Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different Myofibrillar Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Myofibrillar Myopathy doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Myofibrillar Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Myofibrillar Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Myofibrillar Myopathy doctors near me?

    Look for the filter feature on the left side of the Myofibrillar Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Myofibrillar Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Myofibrillar Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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