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    Last Updated: 10/30/2025

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    MediFind found 642 doctor with experience in Myofibrillar Myopathy. Of these, 506 are Experienced, 114 are Advanced, 20 are Distinguished and 2 are Elite.

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    642 providers found
      Elite in Myofibrillar Myopathy

      Lilli Winter
      Elite in Myofibrillar Myopathy

      Lilli Winter
      Vienna, AT 

      Lilli Winter practices in Vienna, Austria. Ms. Winter is rated as an Elite expert by MediFind in the treatment of Myofibrillar Myopathy. Her top areas of expertise are Myofibrillar Myopathy, Dominant Dystrophic Epidermolysis Bullosa, Dowling-Meara Epidermolysis Bullosa Simplex, and Epidermolysis Bullosa with Pyloric Atresia.

      Elite in Myofibrillar Myopathy

      Andreas Brodehl
      Elite in Myofibrillar Myopathy

      Andreas Brodehl
      Bad Oeynhausen, NW, DE 

      Andreas Brodehl practices in Bad Oeynhausen, Germany. Mr. Brodehl is rated as an Elite expert by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Restrictive Cardiomyopathy (RCM), Myofibrillar Myopathy, Cardiomyopathy, Dilated Cardiomyopathy (DCM), and Heart Transplant.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Myofibrillar Myopathy

      Dr. Orel M. Everett
      Family Medicine
      Advanced in Myofibrillar Myopathy

      Dr. Orel M. Everett
      Family Medicine
      7121 S Padre Island Dr, Suite #300, 
      Corpus Christi, TX 
      361-696-6200
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients

      Orel Everett is a primary care provider, practicing in Family Medicine in Corpus Christi, Texas. Dr. Everett is rated as an Advanced provider by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Myofibrillar Myopathy, Wieacker Wolff Syndrome, Inclusion Body Myopathy 2, and Cytoplasmic Body Myopathy. Dr. Everett is currently accepting new patients.

      Learn about our expert tiers
      Jan F. Gummert
      Distinguished in Myofibrillar Myopathy

      Jan F. Gummert
      Distinguished in Myofibrillar Myopathy

      Jan F. Gummert
      Ruhr Un, 
      Bad Oeynhausen, NW, DE 

      Jan Gummert practices in Bad Oeynhausen, Germany. Gummert is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. Their top areas of expertise are Heart Failure, Cardiomyopathy, Myofibrillar Myopathy, Heart Transplant, and Heart Bypass Surgery.

      Stephen C. Youmans
      Advanced in Myofibrillar Myopathy

      Dr. Stephen C. Youmans
      Family Medicine | General Practice
      Advanced in Myofibrillar Myopathy

      Dr. Stephen C. Youmans
      Family Medicine | General Practice

      University Medical Associates Of Aiken

      934 Dougherty Rd, 
      Aiken, SC 
      803-643-0588
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      Stephen Youmans is a primary care provider, practicing in General Practice in Aiken, South Carolina. Dr. Youmans is rated as an Advanced provider by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Familial Combined Hyperlipidemia, Xanthoma, Cirrhosis, and Migraine with Brainstem Aura. Dr. Youmans is currently accepting new patients.

      Distinguished in Myofibrillar Myopathy

      Rolf J. Schroder
      Distinguished in Myofibrillar Myopathy

      Rolf J. Schroder
      Erlangen, BY, DE 

      Rolf Schroder practices in Erlangen, Germany. Mr. Schroder is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Myofibrillar Myopathy, Dominant Dystrophic Epidermolysis Bullosa, Dowling-Meara Epidermolysis Bullosa Simplex, and Tubular Aggregate Myopathy.

      Distinguished in Myofibrillar Myopathy

      Christoph S. Clemen
      Distinguished in Myofibrillar Myopathy

      Christoph S. Clemen
      Joseph Stelzmann Str. 26, 
      Koeln, NW, DE 

      Christoph Clemen practices in Koeln, Germany. Mr. Clemen is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Myofibrillar Myopathy, Paget's Disease of Bone, Primary Lateral Sclerosis, and Emery-Dreifuss Muscular Dystrophy.

      Distinguished in Myofibrillar Myopathy

      Pierre Joanne
      Distinguished in Myofibrillar Myopathy

      Pierre Joanne
      Paris, FR 

      Pierre Joanne practices in Paris, France. Mr. Joanne is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Myofibrillar Myopathy, Dilated Cardiomyopathy (DCM), Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

      Distinguished in Myofibrillar Myopathy

      Onnik Agbulut
      Distinguished in Myofibrillar Myopathy

      Onnik Agbulut
      Paris, FR 

      Onnik Agbulut practices in Paris, France. Agbulut is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. Their top areas of expertise are Myofibrillar Myopathy, Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Dilated Cardiomyopathy (DCM).

      Distinguished in Myofibrillar Myopathy

      Hendrik Milting
      Distinguished in Myofibrillar Myopathy

      Hendrik Milting
      Ernst Grube Str. 40, 
      Halle (saale), ST, DE 

      Hendrik Milting practices in Halle (saale), Germany. Mr. Milting is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Cardiomyopathy, Myofibrillar Myopathy, Dilated Cardiomyopathy (DCM), Restrictive Cardiomyopathy (RCM), and Heart Transplant.

      Distinguished in Myofibrillar Myopathy

      Fulvio Mavilio
      Distinguished in Myofibrillar Myopathy

      Fulvio Mavilio
      Modena, IT 

      Fulvio Mavilio practices in Modena, Italy. Mr. Mavilio is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Myofibrillar Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Distinguished in Myofibrillar Myopathy

      Arnaud Ferry
      Distinguished in Myofibrillar Myopathy

      Arnaud Ferry
      Paris, FR 

      Arnaud Ferry practices in Paris, France. Mr. Ferry is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Myofibrillar Myopathy, Oculopharyngeal Muscular Dystrophy, Duchenne Muscular Dystrophy, and Becker Muscular Dystrophy.

      Distinguished in Myofibrillar Myopathy

      Zhenlin Li
      Distinguished in Myofibrillar Myopathy

      Zhenlin Li
      Paris, FR 

      Zhenlin Li practices in Paris, France. Li is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. Their top areas of expertise are Myofibrillar Myopathy, Dilated Cardiomyopathy (DCM), Cardiomyopathy, and Muscle Atrophy.

      Distinguished in Myofibrillar Myopathy

      Alain Lilienbaum
      Distinguished in Myofibrillar Myopathy

      Alain Lilienbaum
      Paris, FR 

      Alain Lilienbaum practices in Paris, France. Mr. Lilienbaum is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Myofibrillar Myopathy, Restrictive Cardiomyopathy (RCM), Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

      Distinguished in Myofibrillar Myopathy

      Sabrina Pichon-Batonnet
      Distinguished in Myofibrillar Myopathy

      Sabrina Pichon-Batonnet
      Paris, FR 

      Sabrina Pichon-Batonnet practices in Paris, France. Ms. Pichon-Batonnet is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. Her top areas of expertise are Myofibrillar Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Distinguished in Myofibrillar Myopathy

      Patrick Vicart
      Distinguished in Myofibrillar Myopathy

      Patrick Vicart
      Paris, FR 

      Patrick Vicart practices in Paris, France. Mr. Vicart is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Myofibrillar Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Distinguished in Myofibrillar Myopathy

      Florence Delort
      Distinguished in Myofibrillar Myopathy

      Florence Delort
      Paris, FR 

      Florence Delort practices in Paris, France. Ms. Delort is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. Her top areas of expertise are Myofibrillar Myopathy, Cardiomyopathy, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

      Distinguished in Myofibrillar Myopathy

      Carolin Berwanger
      Distinguished in Myofibrillar Myopathy

      Carolin Berwanger
      Koeln, NW, DE 

      Carolin Berwanger practices in Koeln, Germany. Ms. Berwanger is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. Her top areas of expertise are Myofibrillar Myopathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, and Emery-Dreifuss Muscular Dystrophy.

      Distinguished in Myofibrillar Myopathy

      Katrin Marcus
      Distinguished in Myofibrillar Myopathy

      Katrin Marcus
      St. Josef Hospital, 
      Bochum, NW, DE 

      Katrin Marcus practices in Bochum, Germany. Ms. Marcus is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. Her top areas of expertise are Myofibrillar Myopathy, Cytoplasmic Body Myopathy, Parkinson's Disease, and Movement Disorders.

      Distinguished in Myofibrillar Myopathy

      Harald J. Herrmann
      Distinguished in Myofibrillar Myopathy

      Harald J. Herrmann
      Warburger Str. 100, 
      Paderborn, NW, DE 

      Harald Herrmann practices in Paderborn, Germany. Mr. Herrmann is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Chronic Myelogenous Leukemia (CML), Systemic Mastocytosis, Mast Cell Activation Syndrome (MCAS), Myofibrillar Myopathy, and Gastrostomy.

      Showing 1-20 of 642

      Last Updated: 10/30/2025

      What is the definition of Myofibrillar Myopathy?

      Myofibrilar myopathy (MFM) is a neuromuscular disease characterized by slowly progressive muscle weakness that can involve both proximal muscles (such as hips and shoulders) and distal muscles (those further away from the trunk). Some affected individuals also experience muscle stiffness, aching, or cramps. Other symptoms that can be associated with MFM include pain and tingling in the limbs (peripheral neuropathy) or an enlarged and weakened heart (cardiomyopathy). Most people with MFM begin to develop muscle weakness in mid-adulthood, but features of the disease can appear anytime between infancy and late adulthood. MFM is caused by a genetic change (change) in any of several genes, including DES, CRYAB, MYOT, LDB3, FLNC, BAG3, FHL1, TTN, and DNAJB6. The signs and symptoms of MFM can vary depending on the genetic cause. For some people, the exact genetic cause may be unknown. The mode of inheritance of the disease depends on exactly which gene is changed. MFM can be diagnosed with a muscle biopsy or other studies of muscle function. The diagnosis can be confirmed with genetic testing.

      When should I see a Myofibrillar Myopathy doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Myofibrillar Myopathy doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Myofibrillar Myopathy doctor near me?

      You can find a Myofibrillar Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

      Myofibrillar Myopathy doctor near New York, NY
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      Myofibrillar Myopathy doctor near Philadelphia, PA
      Myofibrillar Myopathy doctor near Atlanta, GA
      Myofibrillar Myopathy doctor near Boston, MA
      Myofibrillar Myopathy doctor near Dallas, TX
      Myofibrillar Myopathy doctor near San Jose, CA

      How does MediFind rank Myofibrillar Myopathy doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Myofibrillar Myopathy doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Myofibrillar Myopathy doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Myofibrillar Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different Myofibrillar Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Myofibrillar Myopathy doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Myofibrillar Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Myofibrillar Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Myofibrillar Myopathy doctors near me?

      Look for the filter feature on the left side of the Myofibrillar Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Myofibrillar Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Myofibrillar Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy. 

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