The 20 Best Myofibrillar Myopathy Doctors in France

Find the Top Myofibrillar Myopathy Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 64 doctor with experience in Myofibrillar Myopathy near France. Of these, 38 are Experienced, 17 are Advanced and 9 are Distinguished.

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64 providers found
    Distinguished in Myofibrillar Myopathy

    Onnik Agbulut
    Distinguished in Myofibrillar Myopathy

    Onnik Agbulut
    Referral may be required
    UMR CNRS 8263, INSERM U1345, Adaptation And Ageing, Campus Pierre Et Marie Curie, 4 Place Jussieu, 75252 Paris Cedex 05, 
    Paris, FR 

    Onnik Agbulut practices practicing medicine in Paris, France. Agbulut is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. They are also highly rated in 6 other conditions, according to our data. Their clinical expertise encompasses Myofibrillar Myopathy, Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Dilated Cardiomyopathy (DCM).

    Distinguished in Myofibrillar Myopathy

    Arnaud Ferry
    Distinguished in Myofibrillar Myopathy

    Arnaud Ferry
    Referral may be required
    Paris, FR 

    Arnaud Ferry practices practicing medicine in Paris, France. Mr. Ferry is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Myofibrillar Myopathy, Oculopharyngeal Muscular Dystrophy, Duchenne Muscular Dystrophy, and Becker Muscular Dystrophy.

    Distinguished in Myofibrillar Myopathy

    Alain Lilienbaum
    Distinguished in Myofibrillar Myopathy

    Alain Lilienbaum
    Referral may be required
    Paris, FR 

    Alain Lilienbaum practices practicing medicine in Paris, France. Mr. Lilienbaum is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Myofibrillar Myopathy, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

    Learn about our expert tiers
    Distinguished in Myofibrillar Myopathy

    Pierre Joanne
    Distinguished in Myofibrillar Myopathy

    Pierre Joanne
    Referral may be required
    UMR CNRS 8263, INSERM U1345, Adaptation And Ageing, Campus Pierre Et Marie Curie, 4 Place Jussieu, 75252 Paris Cedex 05, 
    Paris, FR 

    Pierre Joanne practices practicing medicine in Paris, France. Mr. Joanne is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Myofibrillar Myopathy, Dilated Cardiomyopathy (DCM), Cardiomyopathy, and Duchenne Muscular Dystrophy.

    Distinguished in Myofibrillar Myopathy

    Zhenlin Li
    Distinguished in Myofibrillar Myopathy

    Zhenlin Li
    Referral may be required
    Paris, FR 

    Zhenlin Li practices practicing medicine in Paris, France. Li is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Myofibrillar Myopathy, Dilated Cardiomyopathy (DCM), Cardiomyopathy, and Duchenne Muscular Dystrophy.

    Distinguished in Myofibrillar Myopathy

    Sabrina Pichon-Batonnet
    Distinguished in Myofibrillar Myopathy

    Sabrina Pichon-Batonnet
    Referral may be required
    Paris, FR 

    Sabrina Pichon-Batonnet practices practicing medicine in Paris, France. Ms. Pichon-Batonnet is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Myofibrillar Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    Distinguished in Myofibrillar Myopathy

    Florence Delort
    Distinguished in Myofibrillar Myopathy

    Florence Delort
    Referral may be required
    Paris, FR 

    Florence Delort practices practicing medicine in Paris, France. Ms. Delort is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Myofibrillar Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    Distinguished in Myofibrillar Myopathy

    Yeranuhi Hovhannisyan
    Distinguished in Myofibrillar Myopathy

    Yeranuhi Hovhannisyan
    Referral may be required
    Paris, FR 

    Yeranuhi Hovhannisyan practices practicing medicine in Paris, France. Hovhannisyan is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Myofibrillar Myopathy, Cardiomyopathy, Becker Muscular Dystrophy, and Duchenne Muscular Dystrophy.

    Distinguished in Myofibrillar Myopathy

    Patrick Vicart
    Distinguished in Myofibrillar Myopathy

    Patrick Vicart
    Referral may be required
    Paris, FR 

    Patrick Vicart practices practicing medicine in Paris, France. Mr. Vicart is rated as a Distinguished expert by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Myofibrillar Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    Advanced in Myofibrillar Myopathy

    Megane Lemaitre
    Advanced in Myofibrillar Myopathy

    Megane Lemaitre
    Referral may be required
    CNRS UMR 8263, Inserm U1345, 7, Quai St Bernard, 
    Paris, FR 

    Megane Lemaitre practices practicing medicine in Paris, France. Lemaitre is rated as an Advanced expert by MediFind in the treatment of Myofibrillar Myopathy. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Myofibrillar Myopathy, Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and X-Linked Dominant Scapuloperoneal Myopathy.

    Advanced in Myofibrillar Myopathy

    Denis Furling
    Advanced in Myofibrillar Myopathy

    Denis Furling
    Referral may be required
    Paris, FR 

    Denis Furling practices practicing medicine in Paris, France. Mr. Furling is rated as an Advanced expert by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Myotonic Dystrophy, Myotonic Dystrophy Type 2, Paramyotonia Congenita, and Myofibrillar Myopathy.

    Advanced in Myofibrillar Myopathy

    Alban Vignaud
    Advanced in Myofibrillar Myopathy

    Alban Vignaud
    Referral may be required
    Les Ulis, FR 

    Alban Vignaud practices practicing medicine in Les Ulis, France. Mr. Vignaud is rated as an Advanced expert by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Crigler-Najjar Syndrome.

    Advanced in Myofibrillar Myopathy

    Anna Bello-Buj
    Advanced in Myofibrillar Myopathy

    Anna Bello-Buj
    Referral may be required
    1 Bis Rue De L'Internationale, 
    Evry, FR 

    Anna Bello-Buj practices practicing medicine in Evry, France. Ms. Bello-Buj is rated as an Advanced expert by MediFind in the treatment of Myofibrillar Myopathy. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Centronuclear Myopathy.

    Advanced in Myofibrillar Myopathy

    Federico Mingozzi
    Advanced in Myofibrillar Myopathy

    Federico Mingozzi
    Referral may be required
    Evry, FR 

    Federico Mingozzi practices practicing medicine in Evry, France. Mr. Mingozzi is rated as an Advanced expert by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Crigler-Najjar Syndrome, Rotor Syndrome, Pompe Disease, Hemophilia B, and Liver Transplant.

    Advanced in Myofibrillar Myopathy

    Philippe Veron
    Advanced in Myofibrillar Myopathy

    Philippe Veron
    Referral may be required
    1bis, Rue De L'Internationale, 
    Evry, FR 

    Philippe Veron practices practicing medicine in Evry, France. Mr. Veron is rated as an Advanced expert by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Crigler-Najjar Syndrome, Rotor Syndrome, Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome), and Myofibrillar Myopathy.

    Advanced in Myofibrillar Myopathy

    Eva Cabet
    Advanced in Myofibrillar Myopathy

    Eva Cabet
    Referral may be required
    Paris, FR 

    Eva Cabet practices practicing medicine in Paris, France. Ms. Cabet is rated as an Advanced expert by MediFind in the treatment of Myofibrillar Myopathy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Myofibrillar Myopathy, Restrictive Cardiomyopathy (RCM), Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Advanced in Myofibrillar Myopathy

    Ara Parlakian
    Advanced in Myofibrillar Myopathy

    Ara Parlakian
    Referral may be required
    CNRS UMR 8263, Inserm U1345, 7, Quai St Bernard, 
    Paris, FR 

    Ara Parlakian practices practicing medicine in Paris, France. Ms. Parlakian is rated as an Advanced expert by MediFind in the treatment of Myofibrillar Myopathy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Myofibrillar Myopathy, Becker Muscular Dystrophy, and Duchenne Muscular Dystrophy.

    Advanced in Myofibrillar Myopathy

    Clement Delacroix
    Advanced in Myofibrillar Myopathy

    Clement Delacroix
    Referral may be required
    Paris, FR 

    Clement Delacroix practices practicing medicine in Paris, France. Mr. Delacroix is rated as an Advanced expert by MediFind in the treatment of Myofibrillar Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Myofibrillar Myopathy, Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Heart Attack.

    Advanced in Myofibrillar Myopathy

    Ekaterini Kordeli
    Advanced in Myofibrillar Myopathy

    Ekaterini Kordeli
    Referral may be required
    Paris, FR 

    Ekaterini Kordeli practices practicing medicine in Paris, France. Ms. Kordeli is rated as an Advanced expert by MediFind in the treatment of Myofibrillar Myopathy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Myofibrillar Myopathy, Cardiac Amyloidosis, and Primary Amyloidosis.

    Advanced in Myofibrillar Myopathy

    Ana Ferreiro
    Advanced in Myofibrillar Myopathy

    Ana Ferreiro
    Referral may be required
    Centre De Référence Maladies Neuromusculaires Paris Est, 
    Paris, FR 

    Ana Ferreiro practices practicing medicine in Paris, France. Ms. Ferreiro is rated as an Advanced expert by MediFind in the treatment of Myofibrillar Myopathy. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Rigid Spine Syndrome, Centronuclear Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 64

    Last Updated: 06/30/2026

    What is the definition of Myofibrillar Myopathy?

    Myofibrilar myopathy (MFM) is a neuromuscular disease characterized by slowly progressive muscle weakness that can involve both proximal muscles (such as hips and shoulders) and distal muscles (those further away from the trunk). Some affected individuals also experience muscle stiffness, aching, or cramps. Other symptoms that can be associated with MFM include pain and tingling in the limbs (peripheral neuropathy) or an enlarged and weakened heart (cardiomyopathy). Most people with MFM begin to develop muscle weakness in mid-adulthood, but features of the disease can appear anytime between infancy and late adulthood. MFM is caused by a genetic change (change) in any of several genes, including DES, CRYAB, MYOT, LDB3, FLNC, BAG3, FHL1, TTN, and DNAJB6. The signs and symptoms of MFM can vary depending on the genetic cause. For some people, the exact genetic cause may be unknown. The mode of inheritance of the disease depends on exactly which gene is changed. MFM can be diagnosed with a muscle biopsy or other studies of muscle function. The diagnosis can be confirmed with genetic testing.

    When should I see a Myofibrillar Myopathy doctor in France?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Myofibrillar Myopathy doctor in France?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Myofibrillar Myopathy doctor in France?

    You can find a Myofibrillar Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Myofibrillar Myopathy doctors in France?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Myofibrillar Myopathy doctors in France?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Myofibrillar Myopathy doctor in France?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Myofibrillar Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different Myofibrillar Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Myofibrillar Myopathy doctor in France?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Myofibrillar Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Myofibrillar Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Myofibrillar Myopathy doctors in France?

    Look for the filter feature on the left side of the Myofibrillar Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Myofibrillar Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Myofibrillar Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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