The 20 Best Myofibrillar Myopathy Doctors Near Me in Kansas, US

Find the Top Myofibrillar Myopathy Experts and Specialists

The 20 Best Myofibrillar Myopathy Doctors in Kansas, US

Last Updated: 02/22/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 7 doctor with experience in Myofibrillar Myopathy near Kansas, US. Of these, 5 are Advanced and 2 are Experienced.

Location
LocationClose
7 providers found
    Mazen M. Dimachkie
    Advanced in Myofibrillar Myopathy
    Advanced in Myofibrillar Myopathy

    Clinical Research Center

    4350 Shawnee Mission Parkway, 
    Fairway, KS 
    Experience:
    38+ years
    Languages Spoken:
    English, Arabic, French
    Accepting New Patients
    Offers Telehealth

    Mazen Dimachkie is a Neurologist in Fairway, Kansas. Dr. Dimachkie has been practicing medicine for over 38 years and is rated as an Advanced provider by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Myositis, Inclusion Body Myositis, Myasthenia Gravis, Thymectomy, and Tissue Biopsy. Dr. Dimachkie is currently accepting new patients.

    Richard Barohn
    Advanced in Myofibrillar Myopathy
    Advanced in Myofibrillar Myopathy

    Office

    3599 Rainbow Blvd, 
    Kansas City, KS 
    Languages Spoken:
    English

    Richard Barohn is a Neurologist in Kansas City, Kansas. Dr. Barohn is rated as an Advanced provider by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Myositis, Thymectomy, and Tissue Biopsy.

    Mamatha Pasnoor
    Advanced in Myofibrillar Myopathy
    Advanced in Myofibrillar Myopathy

    Clinical Research Center

    4350 Shawnee Mission Parkway, 
    Fairway, KS 
    Experience:
    30+ years
    Languages Spoken:
    English, Hindi, Telugu
    Accepting New Patients
    Offers Telehealth

    Mamatha Pasnoor is a Neurologist in Fairway, Kansas. Dr. Pasnoor has been practicing medicine for over 30 years and is rated as an Advanced provider by MediFind in the treatment of Myofibrillar Myopathy. Her top areas of expertise are Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, Thymectomy, and Tissue Biopsy. Dr. Pasnoor is currently accepting new patients.

    Learn about our expert tiers
    Omar H. Jawdat
    Advanced in Myofibrillar Myopathy
    Advanced in Myofibrillar Myopathy

    Clinical Research Center

    4350 Shawnee Mission Parkway, 
    Fairway, KS 
    Experience:
    24+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Omar Jawdat is a Neurologist in Fairway, Kansas. Dr. Jawdat has been practicing medicine for over 24 years and is rated as an Advanced provider by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Inclusion Body Myositis, Spinal Muscular Atrophy (SMA), and Gastrostomy. Dr. Jawdat is currently accepting new patients.

    Jeffrey M. Statland
    Advanced in Myofibrillar Myopathy
    Advanced in Myofibrillar Myopathy

    Clinical Research Center

    4350 Shawnee Mission Parkway, 
    Fairway, KS 
    Experience:
    21+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jeffrey Statland is a Neurologist in Fairway, Kansas. Dr. Statland has been practicing medicine for over 21 years and is rated as an Advanced provider by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Paramyotonia Congenita, Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Gastrostomy. Dr. Statland is currently accepting new patients.

    Constantine Farmakidis
    Experienced in Myofibrillar Myopathy
    Experienced in Myofibrillar Myopathy

    Clinical Research Center

    4350 Shawnee Mission Parkway, 
    Fairway, KS 
    Experience:
    20+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Constantine Farmakidis is a Neurologist in Fairway, Kansas. Dr. Farmakidis has been practicing medicine for over 20 years and is rated as an Experienced provider by MediFind in the treatment of Myofibrillar Myopathy. His top areas of expertise are Myasthenia Gravis, Paramyotonia Congenita, Andermann Syndrome, Septic Arthritis, and Thymectomy. Dr. Farmakidis is currently accepting new patients.

    Experienced in Myofibrillar Myopathy
    Internal Medicine
    Experienced in Myofibrillar Myopathy
    Internal Medicine

    Ascension Via Christi Rehabilitation Hospital

    1151 N Rock Rd, 
    Wichita, KS 
    Languages Spoken:
    English

    Marilyn Jacobs is a primary care provider, practicing in Internal Medicine in Wichita, Kansas. Dr. Jacobs is rated as an Experienced provider by MediFind in the treatment of Myofibrillar Myopathy. Her top areas of expertise are Stroke, Hypertension, Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism.

    Showing 1-7 of 7

    Last Updated: 02/22/2026

    What is the definition of Myofibrillar Myopathy?

    Myofibrilar myopathy (MFM) is a neuromuscular disease characterized by slowly progressive muscle weakness that can involve both proximal muscles (such as hips and shoulders) and distal muscles (those further away from the trunk). Some affected individuals also experience muscle stiffness, aching, or cramps. Other symptoms that can be associated with MFM include pain and tingling in the limbs (peripheral neuropathy) or an enlarged and weakened heart (cardiomyopathy). Most people with MFM begin to develop muscle weakness in mid-adulthood, but features of the disease can appear anytime between infancy and late adulthood. MFM is caused by a genetic change (change) in any of several genes, including DES, CRYAB, MYOT, LDB3, FLNC, BAG3, FHL1, TTN, and DNAJB6. The signs and symptoms of MFM can vary depending on the genetic cause. For some people, the exact genetic cause may be unknown. The mode of inheritance of the disease depends on exactly which gene is changed. MFM can be diagnosed with a muscle biopsy or other studies of muscle function. The diagnosis can be confirmed with genetic testing.

    When should I see a Myofibrillar Myopathy doctor in Kansas, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Myofibrillar Myopathy doctor in Kansas, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Myofibrillar Myopathy doctors in Kansas, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Myofibrillar Myopathy doctors in Kansas, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Myofibrillar Myopathy doctor in Kansas, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Myofibrillar Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different Myofibrillar Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Myofibrillar Myopathy doctor in Kansas, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Myofibrillar Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Myofibrillar Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Myofibrillar Myopathy doctors in Kansas, US?

    Look for the filter feature on the left side of the Myofibrillar Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Myofibrillar Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Myofibrillar Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy

    More Myofibrillar Myopathy Doctors by city