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    Last Updated: 01/09/2026

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    MediFind found 74 doctor with experience in Myotonia Congenita near The United Kingdom. Of these, 48 are Experienced, 17 are Advanced and 9 are Distinguished.

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    74 providers found
      Distinguished in Myotonia Congenita

      Emma L. Matthews
      Distinguished in Myotonia Congenita

      Emma L. Matthews
      St George's University Of London, 
      London, ENG, GB 

      Emma Matthews practices in London, United Kingdom. Ms. Matthews is rated as a Distinguished expert by MediFind in the treatment of Myotonia Congenita. Her top areas of expertise are Familial Periodic Paralysis, Hypokalemic Periodic Paralysis, Potassium-Aggravated Myotonia, and Hyperkalemic Periodic Paralysis.

      Distinguished in Myotonia Congenita

      Francesco Muntoni
      Distinguished in Myotonia Congenita

      Francesco Muntoni
      Great Ormond Street Hospital Biomedical Research Centre, 
      London, ENG, GB 

      Francesco Muntoni practices in London, United Kingdom. Mr. Muntoni is rated as a Distinguished expert by MediFind in the treatment of Myotonia Congenita. His top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), and Gastrostomy.

      Distinguished in Myotonia Congenita

      Susan Treves
      Distinguished in Myotonia Congenita

      Susan Treves
      Queen Square, 
      London, ENG, GB 

      Susan Treves practices in London, United Kingdom. Ms. Treves is rated as a Distinguished expert by MediFind in the treatment of Myotonia Congenita. Her top areas of expertise are Myotonia Congenita, Amyotonia Congenita, Rhabdomyolysis, and Hyperthermia.

      Learn about our expert tiers
      Distinguished in Myotonia Congenita

      Vinojini Vivekanandam
      Distinguished in Myotonia Congenita

      Vinojini Vivekanandam
      Queen Square, 
      London, ENG, GB 

      Vinojini Vivekanandam practices in London, United Kingdom. Vivekanandam is rated as a Distinguished expert by MediFind in the treatment of Myotonia Congenita. Their top areas of expertise are Hyperkalemic Periodic Paralysis, Familial Periodic Paralysis, Potassium-Aggravated Myotonia, and Hypokalemic Periodic Paralysis.

      Distinguished in Myotonia Congenita

      Roope Mannikko
      Distinguished in Myotonia Congenita

      Roope Mannikko

      UCL Queen Square Institute Of Neurology

      London, ENG, GB 

      Roope Mannikko practices in London, United Kingdom. Mannikko is rated as a Distinguished expert by MediFind in the treatment of Myotonia Congenita. Their top areas of expertise are Familial Periodic Paralysis, Hyperkalemic Periodic Paralysis, Hypokalemic Periodic Paralysis, and Amyotonia Congenita.

      Distinguished in Myotonia Congenita

      Rahul Phadke
      Distinguished in Myotonia Congenita

      Rahul Phadke
      UCL Queen Square Institute Of Neurology, Queen Square, 
      London, ENG, GB 

      Rahul Phadke practices in London, United Kingdom. Mr. Phadke is rated as a Distinguished expert by MediFind in the treatment of Myotonia Congenita. His top areas of expertise are Arthrogryposis Multiplex Congenita, Congenital Contractures, Amyotonia Congenita, and Myotonia Congenita.

      Distinguished in Myotonia Congenita

      Anna Sarkozy
      Distinguished in Myotonia Congenita

      Anna Sarkozy
      Dubowitz Neuromuscular Centre Great Ormond Street Hospital, 
      London, ENG, GB 

      Anna Sarkozy practices in London, United Kingdom. Ms. Sarkozy is rated as a Distinguished expert by MediFind in the treatment of Myotonia Congenita. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Becker Muscular Dystrophy, and Gastrostomy.

      Distinguished in Myotonia Congenita

      Heinz J. Jungbluth
      Distinguished in Myotonia Congenita

      Heinz J. Jungbluth
      Guy's And St. Thomas' Hospitals, 
      London, ENG, GB 

      Heinz Jungbluth practices in London, United Kingdom. Mr. Jungbluth is rated as a Distinguished expert by MediFind in the treatment of Myotonia Congenita. His top areas of expertise are Vici Syndrome, Centronuclear Myopathy, Rhabdomyolysis, Congenital Fiber-Type Disproportion, and Heart Transplant.

      Distinguished in Myotonia Congenita

      Caroline A. Sewry
      Distinguished in Myotonia Congenita

      Caroline A. Sewry
      Manchester, ENG, GB 

      Caroline Sewry practices in Manchester, United Kingdom. Ms. Sewry is rated as a Distinguished expert by MediFind in the treatment of Myotonia Congenita. Her top areas of expertise are X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Centronuclear Myopathy.

      Advanced in Myotonia Congenita

      Karen J. Suetterlin
      Advanced in Myotonia Congenita

      Karen J. Suetterlin

      UCL Queen Square Institute Of Neurology

      London, ENG, GB 

      Karen Suetterlin practices in London, United Kingdom. Ms. Suetterlin is rated as an Advanced expert by MediFind in the treatment of Myotonia Congenita. Her top areas of expertise are Familial Periodic Paralysis, Hypokalemic Periodic Paralysis, Potassium-Aggravated Myotonia, and Hyperkalemic Periodic Paralysis.

      Advanced in Myotonia Congenita

      Ana Topf
      Advanced in Myotonia Congenita

      Ana Topf
      Central Parkway, 
      Newcastle Upon Tyne, ENG, GB 

      Ana Topf practices in Newcastle Upon Tyne, United Kingdom. Ms. Topf is rated as an Advanced expert by MediFind in the treatment of Myotonia Congenita. Her top areas of expertise are Congenital Myasthenic Syndrome, Limb-Girdle Muscular Dystrophy, Limb-Girdle Muscular Dystrophy Type 1A, and Cerebellar Hypoplasia.

      Advanced in Myotonia Congenita

      Dipa L. Jayaseelan
      Advanced in Myotonia Congenita

      Dipa L. Jayaseelan
      Queen Square, 
      London, ENG, GB 

      Dipa Jayaseelan practices in London, United Kingdom. Ms. Jayaseelan is rated as an Advanced expert by MediFind in the treatment of Myotonia Congenita. Her top areas of expertise are Potassium-Aggravated Myotonia, Hyperkalemic Periodic Paralysis, Myotonia Congenita, and Amyotonia Congenita.

      Advanced in Myotonia Congenita

      Irina T. Zaharieva
      Advanced in Myotonia Congenita

      Irina T. Zaharieva
      UCL Queen Square Institute Of Neurology, 
      London, ENG, GB 

      Irina Zaharieva practices in London, United Kingdom. Ms. Zaharieva is rated as an Advanced expert by MediFind in the treatment of Myotonia Congenita. Her top areas of expertise are Amyotonia Congenita, Myotonia Congenita, Primary Lateral Sclerosis, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

      Advanced in Myotonia Congenita

      Hanns Lochmuller
      Advanced in Myotonia Congenita

      Hanns Lochmuller
      Central Parkway, 
      Newcastle Upon Tyne, ENG, GB 

      Hanns Lochmuller practices in Newcastle Upon Tyne, United Kingdom. Mr. Lochmuller is rated as an Advanced expert by MediFind in the treatment of Myotonia Congenita. His top areas of expertise are Congenital Myasthenic Syndrome, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Paramyotonia Congenita.

      Advanced in Myotonia Congenita

      Richa Sud
      Advanced in Myotonia Congenita

      Richa Sud

      UCL Queen Square Institute Of Neurology

      London, ENG, GB 

      Richa Sud practices in London, United Kingdom. Ms. Sud is rated as an Advanced expert by MediFind in the treatment of Myotonia Congenita. Her top areas of expertise are Familial Periodic Paralysis, Hypokalemic Periodic Paralysis, Potassium-Aggravated Myotonia, and Andersen-Tawil Syndrome.

      Advanced in Myotonia Congenita

      Adnan Y. Manzur
      Advanced in Myotonia Congenita

      Adnan Y. Manzur
      Great Ormond Street Hospital Biomedical Research Centre, 
      London, ENG, GB 

      Adnan Manzur practices in London, United Kingdom. Manzur is rated as an Advanced expert by MediFind in the treatment of Myotonia Congenita. Their top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Primary Lateral Sclerosis, Congenital Myasthenic Syndrome, and Gastrostomy.

      Advanced in Myotonia Congenita

      Doreen Fialho
      Advanced in Myotonia Congenita

      Doreen Fialho
      UCL Queen Square Institute Of Neurology, 
      London, ENG, GB 

      Doreen Fialho practices in London, United Kingdom. Ms. Fialho is rated as an Advanced expert by MediFind in the treatment of Myotonia Congenita. Her top areas of expertise are Familial Periodic Paralysis, Hypokalemic Periodic Paralysis, Andersen-Tawil Syndrome, Hyperkalemic Periodic Paralysis, and Deep Brain Stimulation.

      Advanced in Myotonia Congenita

      Mathias Gautel
      Advanced in Myotonia Congenita

      Mathias Gautel
      London, ENG, GB 

      Mathias Gautel practices in London, United Kingdom. Mr. Gautel is rated as an Advanced expert by MediFind in the treatment of Myotonia Congenita. His top areas of expertise are Vici Syndrome, Corpus Callosum Agenesis, Amyotonia Congenita, Myotonia Congenita, and Heart Transplant.

      Advanced in Myotonia Congenita

      Lucy Feng
      Advanced in Myotonia Congenita

      Lucy Feng
      Great Ormond Street Institute Of Child Health, 
      London, ENG, GB 

      Lucy Feng practices in London, United Kingdom. Ms. Feng is rated as an Advanced expert by MediFind in the treatment of Myotonia Congenita. Her top areas of expertise are Myotonia Congenita, Amyotonia Congenita, Collagen VI-Related Myopathy, and Duchenne Muscular Dystrophy.

      Advanced in Myotonia Congenita

      Hugh Bostock
      Advanced in Myotonia Congenita

      Hugh Bostock

      UCL Queen Square Institute Of Neurology, Queen Square

      London, ENG, GB 

      Hugh Bostock practices in London, United Kingdom. Mr. Bostock is rated as an Advanced expert by MediFind in the treatment of Myotonia Congenita. His top areas of expertise are Hypokalemic Periodic Paralysis, Myotonia Congenita, Amyotonia Congenita, and Familial Periodic Paralysis.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 74

      Last Updated: 01/09/2026

      What is the definition of Myotonia Congenita?

      Myotonia congenita is an inherited condition that affects muscle relaxation. It is congenital, meaning that it is present from birth. It occurs more frequently in northern Scandinavia.

      When should I see a Myotonia Congenita doctor in The United Kingdom?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Myotonia Congenita doctor in The United Kingdom?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Myotonia Congenita doctor in The United Kingdom?

      You can find a Myotonia Congenita doctor in any of the 10 largest U.S. cities by clicking below:

      Myotonia Congenita doctor near New York, NY
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      Myotonia Congenita doctor near Boston, MA
      Myotonia Congenita doctor near Dallas, TX
      Myotonia Congenita doctor near San Jose, CA

      How does MediFind rank Myotonia Congenita doctors in The United Kingdom?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Myotonia Congenita doctors in The United Kingdom?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Myotonia Congenita doctor in The United Kingdom?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Myotonia Congenita doctor search results page. 

      Why is it important to get a second opinion from a different Myotonia Congenita doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Myotonia Congenita doctor in The United Kingdom?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Myotonia Congenita doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Myotonia Congenita doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Myotonia Congenita doctors in The United Kingdom?

      Look for the filter feature on the left side of the Myotonia Congenita doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Myotonia Congenita doctor that offers video calls?

      Look for the filter feature on the left-side of the Myotonia Congenita doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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