The 20 Best Myotonic Dystrophy Doctors Near Me in Orlando, FL

Find the Top Myotonic Dystrophy Experts and Specialists

Last Updated: 02/22/2026

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MediFind found 19 doctor with experience in Myotonic Dystrophy near Orlando, FL. Of these, 7 are Experienced.

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19 providers found

    Nemours Children's Health, Downtown Orlando

    1717 S. Orange Ave., 
    Orlando, FL 
     (1.1 miles away)
    Languages Spoken:
    English

    Monica Pedersen is a Neurologist in Orlando, Florida. Dr. Pedersen is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. Her top areas of expertise are Myotonic Dystrophy, Myasthenia Gravis, Epilepsy, and Seizures.

    Experienced in Myotonic Dystrophy
    Experienced in Myotonic Dystrophy

    Orlando Health Medical Group Surgery-Downtown Orlando

    14 W Gore St, 
    Orlando, FL 
     (0.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Vahid Tohidi is a Neurologist in Orlando, Florida. Dr. Tohidi is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. His top areas of expertise are Peripheral Neuropathy, Spinal Muscular Atrophy Type 3, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy (SMA).

    Experienced in Myotonic Dystrophy
    Experienced in Myotonic Dystrophy

    Neurology Associates PA

    301 N Maitland Ave, 
    Maitland, FL 
     (6.3 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    William Honeycutt is a Neurologist in Maitland, Florida. Dr. Honeycutt is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. His top areas of expertise are Relapsing Multiple Sclerosis (RMS), Multiple Sclerosis (MS), Migraine, and Memory Loss.

    Learn about our expert tiers
    Experienced in Myotonic Dystrophy
    Internal Medicine
    Experienced in Myotonic Dystrophy
    Internal Medicine

    CFP Care Team LLC

    985 State Road 436, 
    Casselberry, FL 
     (8.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Sudha Ganti is a primary care provider, practicing in Internal Medicine in Casselberry, Florida. Dr. Ganti is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. Her top areas of expertise are Urinary Tract Infection in Children, Heart Failure with Preserved Ejection Fraction (HFpEF), Renovascular Hypertension, and Childhood Iron Deficiency Anemia.

    Omer A. Hamid
    Experienced in Myotonic Dystrophy
    Experienced in Myotonic Dystrophy

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English, Arabic

    Omer Hamid is a Neurologist in Orlando, Florida. Dr. Hamid has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. His top areas of expertise are Amyotonia Congenita, Congenital Myasthenic Syndrome, Dysferlinopathy, and Duchenne Muscular Dystrophy.

    Bahram Kakavand
    Experienced in Myotonic Dystrophy
    Experienced in Myotonic Dystrophy

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Languages Spoken:
    English, Farsi, German

    I was born in Iran, moved to Germany at age 18 for college, and have lived in the United States since 1992. I’ve always been close to my parents, brothers and sister. Our relationship gave me a sense of respect for the concept of family that is reflected in the way I treat patients and families today. My interest in cardiology began when I was just eight or nine years old reading a schoolbook about heart function; I decided then and there on my career. I chose to work with children because of their great need and limited ability to express themselves. It’s rewarding to connect and understand what they’re trying to say. Because children are very delicate, I insist on precision with every service I provide. I’m also passionate about getting the diagnosis right. Sometimes parents bring their child to me after multiple doctors have given up trying to diagnose them. I like the challenge and the opportunity to provide treatment that will help. Many of my patients — for example, kids with congenital heart conditions — must be treated over a period of months or even years. I try to really manage their condition and help their family be part of the care team. I’m also interested in providing medicine that has been lacking in Florida. Dysautonomia, a nervous system disorder, is one of them. Dr. Kakavand is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. His top areas of expertise are Familial Neurocardiogenic Syncope, Ectopic Heartbeat, Fainting, and Inappropriate Sinus Tachycardia (IST).

    Yalim A. Yalcin
    Experienced in Myotonic Dystrophy
    Experienced in Myotonic Dystrophy

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Experience:
    32+ years
    Languages Spoken:
    English, Turkish

    Dr. Yalim Yalcin graduated from Istanbul University School of Medicine in 1990. He trained in pediatrics and pediatric cardiology in N.Y. He is a board certified pediatric interventional cardiologist with more than 20 years of experience in a wide range of interventional procedures and devices that are currently on the market. My father was a doctor. I grew up in an environment that appreciated both the difficulties and the spiritual satisfaction of helping people heal. I always wanted to be a doctor, and thought it was a great way to help people. During medical school and my internship year I realized that kids were very vulnerable. When their children were sick, families were hopeless and looking for help desperately. Helping a child to heal and smile, and being there for the families during difficult times was a great feeling. This is why I became a pediatrician. Being a pediatric cardiologist, most of the time we are dealing with serious, life-threatening conditions. So we need to be passionate about the safety and quality of the services that we provide. We should be able to deliver the best practices to our patients and their families. That requires us to be up to date with new treatments and continuous medical education. This is definitely a collaborative team effort, with colleagues trained and experienced in treating babies, small children, adolescents and even grown-up adults with congenital heart disease. We all need to be precise and should practice the safest and best quality medicine. It is very important that we are able to help others that can’t reach us and therefore can’t get the quality treatment they need. This is why I have been traveling to underserved areas in countries like North Macedonia and Azerbaijan for medical missions to treat and help children with heart conditions there who are not able to get the treatment options they should have. Dr. Yalcin is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. His top areas of expertise are Pulmonary Valve Stenosis, Pulmonary Supravalvular Stenosis, Patent Ductus Arteriosus, and Heart Murmurs.

    Vanessa Hormaza
    Experienced in Myotonic Dystrophy
    Experienced in Myotonic Dystrophy

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    Vanessa Hormaza is a Cardiologist in Orlando, Florida. Dr. Hormaza has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. Her top areas of expertise are Heart Murmurs, Aorta-Pulmonary Artery Fistula, Aortopulmonary Window, and Patent Ductus Arteriosus.

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Languages Spoken:
    English, German

    Matthias Zinn is a Neurologist in Orlando, Florida. Dr. Zinn is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. His top areas of expertise are Zika Virus Disease, Microcephaly with Spastic Quadriplegia, Microcephaly, and Seizures.

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Experience:
    32+ years
    Languages Spoken:
    English, Icelandic

    Medicine seems to run in my family. My father trained as a physician in Iceland, and my childhood was split between the US and Reykjavik, Iceland. At first, I wanted to be a veterinarian, but once in medical school I had my heart set on Pediatrics from the start. I love kids. With eight children of my own I have realized that every child is unique and that there is no one right way to parent. Parents can be certain that I will be upfront with them regarding their child’s illness. I treat people the way I want to be treated when I step into a physician’s office with one of my kids. I try to listen more than I speak and learn from others at every opportunity. To me the treatment of a child is a collaboration between the child, his/her parents and the physician and team at Nemours. Together we will find the best solution, always. Dr. Sigurdardottir is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, and Autism Spectrum Disorder.

    Ju Tang
    Neurology
    Neurology

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Experience:
    19+ years
    Languages Spoken:
    English, Mandarin

    Ju Tang is a Neurologist in Orlando, Florida. Dr. Tang has been practicing medicine for over 19 years and is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. Her top areas of expertise are Seizures, Epilepsy, Generalized Tonic-Clonic Seizure, and Memory Loss.

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Experience:
    21+ years
    Languages Spoken:
    English
    Offers Telehealth

    Natasha Diaz is a Neurologist in Orlando, Florida. Dr. Diaz has been practicing medicine for over 21 years and is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+).

    Heather Ammirata
    Physician Assistant | Neurology
    Physician Assistant | Neurology

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English

    Heather Ammirata is a Neurologist in Orlando, Florida. Dr. Ammirata has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. Her top areas of expertise are Coach Syndrome, Lissencephaly 2, Hydranencephaly, and Bilateral Perisylvian Polymicrogyria. She is board certified in National Commission On Certification Of Physician Assistants.

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Languages Spoken:
    English

    Rene Machado is a Neurologist in Orlando, Florida. Dr. Machado is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Lennox-Gastaut Syndrome (LGS), and Benign Rolandic Epilepsy.

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Experience:
    22+ years
    Languages Spoken:
    English

    Satyanarayana Gedela is a Neurologist in Orlando, Florida. Dr. Gedela has been practicing medicine for over 22 years and is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. His top areas of expertise are Seizures, Epilepsy, Generalized Tonic-Clonic Seizure, and Epilepsy in Children.

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Experience:
    15+ years
    Languages Spoken:
    English

    Melanie Ortiz is a Neurologist in Orlando, Florida. Dr. Ortiz has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. Her top areas of expertise are Myotonic Dystrophy, Myasthenia Gravis, Epilepsy, and Seizures.

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English

    Rohan Vaidya is a Neurologist in Orlando, Florida. Dr. Vaidya has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. His top areas of expertise are Stereotypic Movement Disorder, Spasmus Nutans, Seizures, and Generalized Tonic-Clonic Seizure.

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Experience:
    12+ years
    Languages Spoken:
    English

    Angela Rivett, APRN is an Orlando native who graduated from the University of Central Florida in 2008, after which she began her nursing career as a burn/trauma RN. She received her Master of Science degree in nursing as a family nurse practitioner in 2012 and has more than 7 years of dedicated pediatric neurology experience as a nurse practitioner. She enjoys spending time outside with her husband and two boys. I have a natural rapport with children and, at a young age, I found myself wanting to work with babies in the newborn nursery. I just knew I would end up as a provider for children.   My goal every day is to make life easier for kids. I have a passion for educating, treating and watching children get well. I especially like to teach kids about illness and symptom prevention. I strive to optimize outcomes for kids and try to instill wellness and non-pharmacologic options for them.   My medical interests include providing high-quality, comprehensive, general neurology care,  including management of chronic conditions such as: headaches  epilepsy  tic disorders I do my best to provide quality, family-centered care. And I enjoy building a real teamwork approach, coordinating with subspecialties throughout the NCH Healthcare system. Dr. Rivett is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. Her top areas of expertise are Koolen De Vries Syndrome, Bilateral Perisylvian Polymicrogyria, VLDLR-Associated Cerebellar Hypoplasia, and Hydranencephaly.

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Experience:
    2+ years
    Languages Spoken:
    English

    Rebekah Dailidonis is a board-certified family nurse practitioner and has specialized in pediatric neurology. Rebekah is board certified by the American Academy of Nurse Practitioners, a certified neuroscience registered nurse by the American Board of Neuroscience Nursing, and a critical care registered nurse by the Association of Critical Care Nurses. Rebekah is a member of the American Association of Nurse Practitioners, American Association of Neuroscience Nurses, American Association of Critical Care Nurses, and the Epilepsy Foundation. I’ve always had a love for children. I believe that treating children is the way/path to a healthier future for mankind. I’m passionate about caring for children. I try to make a difference through education, which leads to empowerment of the parent and child in their health.  My medical interests include:  Epilepsy Migraines Tics Neuromuscular disorders I try to listen, respect, respond, challenge and motivate my patients and families. Dr. Dailidonis is rated as an Experienced provider by MediFind in the treatment of Myotonic Dystrophy. Her top areas of expertise are Amniotic Band Syndrome, Poland Syndrome, Popliteal Pterygium Syndrome, and Multiple Pterygium Syndrome.

    Showing 1-19 of 19

    Last Updated: 02/22/2026

    What is the definition of Myotonic Dystrophy?

    Myotonic dystrophy is part of a group of inherited disorders called muscular dystrophies. It is the most common form of muscular dystrophy that begins in adulthood.

    When should I see a Myotonic Dystrophy doctor near Orlando, FL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Myotonic Dystrophy doctor near Orlando, FL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Myotonic Dystrophy doctors near Orlando, FL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Myotonic Dystrophy doctors near Orlando, FL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Myotonic Dystrophy doctor near Orlando, FL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Myotonic Dystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Myotonic Dystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Myotonic Dystrophy doctor near Orlando, FL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Myotonic Dystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Myotonic Dystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Myotonic Dystrophy doctors near Orlando, FL?

    Look for the filter feature on the left side of the Myotonic Dystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Myotonic Dystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Myotonic Dystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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