Jessie Nance
Experienced in Nemaline Myopathy

Dr. Jessie Nance

Neuromusculoskeletal Medicine | Pediatric Neurology
Johns Hopkins Medicine
Johns Hopkins Outpatient Center
601 North Caroline Street, Floor 5, Floor 5, 
Baltimore, MD 

Experienced in Nemaline Myopathy
Johns Hopkins Medicine
Johns Hopkins Outpatient Center
601 North Caroline Street, Floor 5, Floor 5, 
Baltimore, MD 
OverviewInsuranceLocationsClinical ResearchSimilar Doctors

Overview

Dr. Jessica Nance, treats pediatric patients with neuromuscular disorders, muscular dystrophies, congenital and metabolic myopathies, Charcot-Marie-Tooth (CMT) disease, peripheral neuropathy, spinal muscular atrophy, pediatric brachial plexus and hypotonia. She has cultivated expertise in the diagnosis and management of inherited neuromuscular diseases through her experience at he National Institutes of Health with Dr. Carsten Bonnemann and in the Johns Hopkins Pediatric Neuromuscular Clinic with Dr. Tom Crawford. After completing a fellowship in neuromuscular disorders at Johns Hopkins, she is now a part of the Johns Hopkins Division of Pediatric Neurology where she will continue working in the Pediatric Neuromuscular Clinic with Dr. Crawford. She received her medical degree from Indiana University School of Medicine and completed residency training in Pediatrics and Child Neurology at Children’s National Medical Center in Washington, D.C.

Dr. Nance is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Duchenne Muscular Dystrophy, Dysferlinopathy, Cytoplasmic Body Myopathy, and Cramp-Fasciculation Syndrome.

Her clinical research consists of co-authoring 11 peer reviewed articles and participating in 2 clinical trials. MediFind looks at clinical research from the past 15 years. In particular, she has co-authored 1 article in the study of Nemaline Myopathy.

Residency
Children's National Medical Center, Pediatric Neurology, 2012
Specialties
Neuromusculoskeletal Medicine
Pediatric Neurology
Licenses
Neurology with Special Qualifications in Neurology in DC
Board Certifications
American Board Of Psychiatry And Neurology
Fellowships
Johns Hopkins University School of Medicine, Neuromuscular Medicine, 2014
Hospital Affiliations
The Johns Hopkins Hospital
Johns Hopkins Bayview Medical Center
Languages Spoken
English
German
Gender
Female

Insurance

Accepted insurance can change. Please verify directly with the provider.

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Accepted insurance plans:

Aetna
  • EPO
  • HMO
  • POS
  • PPO
Blue Cross Blue Shield
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Geisinger
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Johns Hopkins Healthcare
  • HMO
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  • MEDICARE MAPD
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Medicaid
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  • OTHER MEDICARE PART D
UnitedHealthcare
  • EPO
  • HMO
  • POS
  • PPO
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Locations

Johns Hopkins Outpatient Center
601 North Caroline Street, Floor 5, Floor 5, Baltimore, MD 21287
Call: 410-955-4259

Additional Areas of Focus

Dr. Nance has provided the following conditions as areas of focus. Please note that we may not have enough data to validate their experience in some of these conditions.

Neurofibromatosis Type 1 (NF1)

Clinical Research

Clinical research consists of overseeing clinical studies of patients undergoing new treatments and therapies, and publishing articles in peer reviewed medical journals. Providers who actively participate in clinical research are generally at the forefront of the fields and aware of the most up-to-date advances in treatments for their patients.


2 Clinical Trials

A Phase 3 Multinational, Randomized, Double-Blind, Placebo-Controlled Systemic Gene Delivery Study to Evaluate the Safety and Efficacy of SRP-9001 in Subjects With Duchenne Muscular Dystrophy (EMBARK)
A Phase 3 Multinational, Randomized, Double-Blind, Placebo-Controlled Systemic Gene Delivery Study to Evaluate the Safety and Efficacy of SRP-9001 in Subjects With Duchenne Muscular Dystrophy (EMBARK)
Enrollment Status: Completed
Publish Date: July 08, 2025
Intervention Type: Genetic
Study Phase: Phase 3
A Randomized, Double-Blind, Placebo-Controlled, Global Phase 3 Study of Edasalonexent in Pediatric Patients With Duchenne Muscular Dystrophy
A Randomized, Double-Blind, Placebo-Controlled, Global Phase 3 Study of Edasalonexent in Pediatric Patients With Duchenne Muscular Dystrophy
Enrollment Status: Completed
Publish Date: June 21, 2022
Intervention Type: Drug
Study Phase: Phase 3
View 1 Less Clinical Trial

11 Total Publications

The Historical Case for a Strong and Diverse Neurology Clerkship Leadership Team.
The Historical Case for a Strong and Diverse Neurology Clerkship Leadership Team.
Journal: Neurology. Education
Published: January 08, 2024
View All 11 Publications
Similar Doctors
Thomas O. Crawford
Experienced in Nemaline Myopathy
Dr. Thomas O. Crawford
Neurology | Pediatric Neurology
Experienced in Nemaline Myopathy
Dr. Thomas O. Crawford
Neurology | Pediatric Neurology

Johns Hopkins Outpatient Center

601 North Caroline Street, Floor 5, Floor 5, 
Baltimore, MD 
 (1.2 miles away)
410-955-4259
Languages Spoken:
English
See accepted insurances

Dr. Tom Crawford has been a member of the Department of Neurology since 1987. He is co-director of the MDA clinic for Neuromuscular Disorders and Neurologist for the Ataxia Telangiectasia Clinical Center at Johns Hopkins. His practice involves general child neurology with a principal interest in caring for children with neuromuscular, neuromotor, and ataxic disorders. Primary research interests involve the basic science and clinical characterization of two important neurologic disorders that affect children: Spinal Muscular Atrophy and Ataxia Telangiectasia. He is also actively involved in the Biology of neurofilaments by characterization of transgenic animal models. He is on the Medical and Scientific Advisory Boards of Families of Spinal Muscular Atrophy, and the Medical Advisory Committee for the Muscular Dystrophy Association. He is the Neurologist for the Ataxia Telangiectasia Clinical Center at Johns Hopkins, which has evaluated almost half of the known patients with this disorder in the United States. Additional specific clinical interests include evaluation and treatment of children with brachial plexus palsies. Dr. Crawford received his medical degree from the University of Southern California. He completed a pediatric internship and residency at the Pediatric Pavilion of the Los Angeles County / University of Southern California Medical Center, followed by a pediatric chief residency. He completed his training in Neurology with Special Qualification in Child Neurology at the Los Angeles Childrens Hospital. He then traveled east to the laboratory of Dr John Griffin at Johns Hopkins for a fellowship in Neuromuscular Disorders. Prior to medical training and Neurology residency, he majored in Psychology and Religion at Yale College. Dr. Crawford has published extensively and presented nationally and internationally. He has an active role in teaching medical students and residents in neurology. In addition, Dr. Crawford has special interest and experience in EMG studies of children and adults. Dr. Crawford is rated as a Distinguished provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Ataxia-Telangiectasia, and Spinal Muscular Atrophy Type 2.

Experienced in Nemaline Myopathy
Dr. Sarah B. Neuhaus
Pediatric Neurology | Neurology
Experienced in Nemaline Myopathy
Dr. Sarah B. Neuhaus
Pediatric Neurology | Neurology
10 Center Drive Crc, 
Bethesda, MD 
 (33.0 miles away)
301-480-3230
Languages Spoken:
English

Sarah Neuhaus is a Pediatric Neurologist and a Neurologist in Bethesda, Maryland. Dr. Neuhaus is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Primary Lateral Sclerosis.

Payam Mohassel
Experienced in Nemaline Myopathy
Dr. Payam Mohassel
Neuromusculoskeletal Medicine
Experienced in Nemaline Myopathy
Dr. Payam Mohassel
Neuromusculoskeletal Medicine

Johns Hopkins Outpatient Center

601 North Caroline Street, Floor 5, Floor 5, 
Baltimore, MD 
 (1.2 miles away)
410-955-9441
Experience:
17+ years
Languages Spoken:
English, Farsi
See accepted insurances

Neurologist Payam Mohassel specializes in myopathies, muscular dystrophies, and other hereditary neuromuscular disorders and is the co-director of the Johns Hopkins Myositis Center. Dr. Mohassel obtained his medical degree from the Johns Hopkins University School of Medicine, where he remained for a medical internship, residency training in neurology, and clinical fellowship training in neuromuscular medicine. He then joined the National Institute of Neurological Disorders and Stroke Neurogenetics branch as a clinical research fellow. Dr. Mohassel’s research focuses on translational studies on neuromuscular disorders, and it spans gene discovery efforts, mechanistic studies to identify therapeutic targets, and early phase interventional clinical trials. Dr. Mohassel is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Hereditary Sensory Neuropathy Type 1 (HSN1), and Hereditary Sensory and Autonomic Neuropathy Type 2.

VIEW MORE NEMALINE MYOPATHY DOCTORS

Areas of Expertise

MediFind evaluates expertise by pulling from factors such as number of articles a doctor has published in medical journals, participation in clinical trials, speaking at industry conferences, prescribing and referral patterns, and strength of connections with other experts in their field.

Learn more about MediFind’s expert tiers

Find Dr. Nance's expertise for a condition
ConditionClose
      • Advanced
      • Duchenne Muscular Dystrophy
        Dr. Nance is
        Advanced
        . Learn about Duchenne Muscular Dystrophy.
        See more Duchenne Muscular Dystrophy experts
      • Dysferlinopathy
        Dr. Nance is
        Advanced
        . Learn about Dysferlinopathy.
        See more Dysferlinopathy experts
      • Experienced
      • Acute Flaccid Myelitis (AFM)
        Dr. Nance is
        Experienced
        . Learn about Acute Flaccid Myelitis (AFM).
        See more Acute Flaccid Myelitis (AFM) experts
      • Becker Muscular Dystrophy
        Dr. Nance is
        Experienced
        . Learn about Becker Muscular Dystrophy.
        See more Becker Muscular Dystrophy experts
      • Brain Stem Cancer
        Dr. Nance is
        Experienced
        . Learn about Brain Stem Cancer.
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      • Congenital Fiber-Type Disproportion
        Dr. Nance is
        Experienced
        . Learn about Congenital Fiber-Type Disproportion.
        See more Congenital Fiber-Type Disproportion experts
      • Cramp-Fasciculation Syndrome
        Dr. Nance is
        Experienced
        . Learn about Cramp-Fasciculation Syndrome.
        See more Cramp-Fasciculation Syndrome experts
      • Cytoplasmic Body Myopathy
        Dr. Nance is
        Experienced
        . Learn about Cytoplasmic Body Myopathy.
        See more Cytoplasmic Body Myopathy experts
      View All 20 Experienced Conditions
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