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    Last Updated: 01/09/2026

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    MediFind found 78 doctor with experience in Neurofibromatosis Type 1 (NF1) near Washington, DC. Of these, 24 are Experienced, 4 are Advanced, 3 are Distinguished and 1 are Elite.

    Location
    LocationClose
    78 providers found
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      8906 Bradmoor Dr, 
      Bethesda, MD 
       (8.0 miles away)
      Languages Spoken:
      English

      Brigitte Widemann is a Pediatric Hematologist Oncology provider in Bethesda, Maryland. Dr. Widemann is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Adult Soft Tissue Sarcoma, and Thyroidectomy.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurology | Pediatrics
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurology | Pediatrics
      111 Michigan Ave Nw, 
      Washington, DC 
       (1.8 miles away)
      Languages Spoken:
      English

      Roger Packer is a Neurologist and a Pediatrics provider in Washington, Washington, D.c.. Dr. Packer is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Brain Tumor, Diffuse Midline Glioma H3 K27M-Mutant, Medulloblastoma, and Gliomatosis Cerebri.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Distinguished in Neurofibromatosis Type 1 (NF1)
      111 Michigan Ave Nw, Dept Of Hematology/oncology, 
      Washington, DC 
       (1.8 miles away)
      Languages Spoken:
      English

      Srivandana Akshintala is a Pediatrics provider in Washington, Washington, D.c.. Dr. Akshintala is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neuroendocrine Tumor, Clouston Syndrome, and Thyroidectomy.

      Learn about our expert tiers
      Michail Mavros
      Surgical Oncology
      Surgical Oncology

      Sibley Memorial Hospital

      5255 Loughboro Road Northwest, Building B, Building B, 
      Washington, DC 
       (3.5 miles away)
      Languages Spoken:
      English, Greek

      Dr. Michail Mavros, a surgical oncologist specializing in complex cancers, is deeply committed to offering his patients personalized, advanced care. Originally from Athens, Greece, Dr. Mavros's passion for oncology was sparked during medical school after losing a close friend to cancer. This life-changing event inspired him to dedicate his career to improving the lives of cancer patients. Dr. Mavros is one of few surgeons with accredited subspecialty training in both complex surgical oncology and hepato-pancreato-biliary (HPB) surgery, making him highly qualified to treat cancers of the liver, pancreas, and bile ducts. He is also skilled in minimally invasive techniques, including laparoscopic and robotic-assisted surgery, which offer benefits such as faster recovery, reduced pain, and improved outcomes. At the heart of Dr. Mavros' approach is his belief in individualized care. He works closely with a multidisciplinary team of experts, including medical oncologists, radiation oncologists, and pathologists, to ensure each patient receives a thorough evaluation. This collaborative approach results in comprehensive, personalized treatment plans. By leveraging the latest advances in precision medicine, Dr. Mavros tailors his treatments to meet the unique needs of each patient, guided by the most current scientific research and evidence-based practices. Dr. Mavros is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Familial Pancreatic Cancer, Neuroendocrine Tumor, Pancreatic Cancer, Pancreaticoduodenectomy, and Pancreatectomy.

      Pediatric Cardiology
      Pediatric Cardiology

      Children's National Hospital

      111 Michigan Ave NW, 
      Washington, DC 
       (1.8 miles away)
      Languages Spoken:
      English

      Niti Dham is a Pediatric Cardiologist in Washington, Washington, D.c.. Dr. Dham is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Hypochondroplasia, Rommen Mueller Sybert Syndrome, Multisystem Inflammatory Syndrome in Children (MIS-C), and Pediatric Myocarditis.

      Anesthesiology
      Anesthesiology

      Children's National Hospital

      111 Michigan Ave NW, 
      Washington, DC 
       (1.8 miles away)
      Languages Spoken:
      English

      Nikhil Patel is an Anesthesiologist in Washington, Washington, D.c.. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top area of expertise is Neurofibromatosis Type 1 (NF1).

      Pediatric Cardiology
      Pediatric Cardiology

      Children's National Hospital

      111 Michigan Ave NW, 
      Washington,, DC 
       (1.8 miles away)
      Languages Spoken:
      English

      Christopher Spurney is a Pediatric Cardiologist in Washington,, Washington, D.c.. His top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Cardiomyopathy, and Atrioventricular Septal Defect.

      Pediatric Cardiology
      Pediatric Cardiology

      CNMC Cardiology Dept

      111 Michigan Avenue Northwest, Suite 200, Suite 200, 
      Washington, DC 
       (1.8 miles away)
      Languages Spoken:
      English

      Ian Hovis is a Pediatric Cardiologist in Washington, Washington, D.c.. His top areas of expertise are Heart Murmurs, Congenital Heart Block, Ventricular Septal Defects, and Scarlet Fever.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)
      111 Michigan Ave Nw, Children's National Medical Center, 
      Washington, DC 
       (1.8 miles away)
      Languages Spoken:
      English

      Dominique Pichard is a Dermatologist in Washington, Washington, D.c.. Dr. Pichard is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Livedo Reticularis, and Graft Versus Host Disease (GvHD).

      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      111 Michigan Ave Nw, 
      Washington, DC 
       (1.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Kenneth Rosenbaum is a Medical Genetics specialist and a Pediatrics provider in Washington, Washington, D.c.. Dr. Rosenbaum is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Triple X Syndrome, and Williams Syndrome. Dr. Rosenbaum is currently accepting new patients.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      10 Center Dr, Building 10, Crc, Rm 1-3872, 
      Bethesda, MD 
       (7.5 miles away)
      Languages Spoken:
      English

      Aerang Kim is a Pediatric Hematologist Oncology provider in Bethesda, Maryland. Dr. Kim is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Rhabdomyosarcoma.

      Drew Carey
      Ophthalmology
      Ophthalmology

      Johns Hopkins Health Care & Surgery Center — Bethesda

      6430 Rockledge Drive, Building 6, Building 6, 
      Bethesda, MD 
       (8.8 miles away)
      Languages Spoken:
      English

      Andrew R. Carey, MD is a the Neil R. Miller Rising Professor of Ophthalmology in the division of Neuro-Ophthalmology at the Wilmer Eye Institute. He specializes in neuro-ophthalmic disorders such as optic neuritis, uveitis related papillitis, ischemic & hereditary optic neuropathies as well as diseases of the retina, including age-related macular degeneration, diabetic retinopathy, toxic retinopathies and inherited disorders of the retina such as retinitis pigmentosa. Dr. Carey’s clinical and research interests include comparative effectiveness and cost-benefit of intravitreal medications, long-term outcome of treatments for choroidal neovascularization, novel treatments for papillitis, and the use of novel imaging modalities to better diagnose and understand optic nerve and retinal diseases. Dr. Carey received his bachelor's from Davidson College in mathematics in 2006. In 2010, he received his medical degree from the University of South Florida. He completed his ophthalmology residency as Chief Resident in 2014 at the University of South Florida. He then went on to complete his fellowship in neuro-ophthalmology at Bascom Palmer Eye Institute in 2015 and his fellowship in medical retina at the University of Iowa in 2016. Videos Dr. Andrew R. CareyNeuro-Ophthalmology. Dr. Carey is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Papilledema, Increased Intracranial Pressure, Optic Nerve Atrophy, and Optic Neuritis.

      Ophthalmology
      Ophthalmology

      Medical Faculty Associates, Inc

      2150 Pennsylvania Ave Nw, 
      Washington, DC 
       (0.8 miles away)
      Languages Spoken:
      English

      Mehdi Tavakoli is an Ophthalmologist in Washington, Washington, D.c.. His top areas of expertise are Increased Intracranial Pressure, Optic Neuritis, Papilledema, and Strabismus.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Howard University

      2041 Georgia Nw Ave, 
      Washington, DC 
       (1.1 miles away)
      Languages Spoken:
      English

      Roger Weir is a Neurologist in Washington, Washington, D.c.. Dr. Weir is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Memory Loss, Stroke, Epilepsy, Seizures, and Gastrostomy.

      Pediatric Radiology | Radiology
      Pediatric Radiology | Radiology
      111 Michigan Avenue, NW, Childrens National Medical Center, 
      Washington, DC 
       (1.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Darragh Brady is a Pediatric Radiologist and a Radiologist in Washington, Washington, D.c.. Dr. Brady is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Microtia and Neurofibromatosis Type 1 (NF1).

      Experienced in Neurofibromatosis Type 1 (NF1)
      Radiology | Pediatric Radiology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Radiology | Pediatric Radiology

      Children's Hospital

      111 Michigan Ave Nw, 
      Washington, DC 
       (1.8 miles away)
      Languages Spoken:
      English

      Narendra Shet is a Radiologist and a Pediatric Radiologist in Washington, Washington, D.c.. Dr. Shet is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Atresia of Small Intestine, Scoliosis, Short Stature (Growth Disorders), and Situs Inversus.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology

      Children's Hospital

      111 Michigan Ave Nw, 
      Washington, DC 
       (1.8 miles away)
      Languages Spoken:
      English

      Benjamin Siegel is a Pediatric Neurologist and a Neurologist in Washington, Washington, D.c.. Dr. Siegel is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Pediatric Low-Grade Glioma (pLGG), Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Brain Tumor, and Thrombectomy.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Nurse Practitioner
      Experienced in Neurofibromatosis Type 1 (NF1)
      Nurse Practitioner
      111 Michigan Ave NW, 
      Washington, DC 
       (1.8 miles away)
      Languages Spoken:
      English

      Rachael Raskin is a Nurse Practitioner in Washington, Washington, D.c.. Ms. Raskin is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Coach Syndrome, Bilateral Perisylvian Polymicrogyria, Agyria Pachygyria Polymicrogyria, and VLDLR-Associated Cerebellar Hypoplasia.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Radiology | Pediatrics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Radiology | Pediatrics

      Children's Hospital

      111 Michigan Ave Nw, 
      Washington, DC 
       (1.8 miles away)
      Languages Spoken:
      English

      Ramon Sanchez is a Radiologist and a Pediatrics provider in Washington, Washington, D.c.. Dr. Sanchez is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Hirschsprung Disease, Scoliosis, Caudal Regression Syndrome, and Spondylocarpotarsal Synostosis Syndrome.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      111 Michigan Ave Nw, 
      Washington, DC 
       (1.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Mohamad Jaafar is an Ophthalmologist in Washington, Washington, D.c.. Dr. Jaafar is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Strabismus, Congenital Cataract, Lowe Syndrome, Amblyopia, and Cataract Removal.

      Showing 1-20 of 78

      Last Updated: 01/09/2026

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor near Washington, DC?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Washington, DC?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Washington, DC?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Washington, DC?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Washington, DC?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Washington, DC?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Washington, DC?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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