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    Last Updated: 01/09/2026

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    MediFind found 210 doctor with experience in Neurofibromatosis Type 1 (NF1) near Boston, MA. Of these, 68 are Experienced, 12 are Advanced, 3 are Distinguished and 2 are Elite.

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    210 providers found
      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      Mass General Brigham Cancer Institute: Neuro-Oncology

      55 Fruit Street, Yawkey Center For Outpatient Care, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Scott Plotkin is a Neurologist in Boston, Massachusetts. Dr. Plotkin is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, and Acoustic Neuroma. Dr. Plotkin is currently accepting new patients.

      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology

      Dana-Farber Cancer Institute, Inc.

      450 Brookline Ave, 
      Boston, MA 
       (2.9 miles away)
      Languages Spoken:
      English

      Nicole Ullrich is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Ullrich is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Optic Glioma.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Distinguished in Neurofibromatosis Type 1 (NF1)

      Massachusetts General Hospital

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English

      Miriam Bredella is a Radiologist in Boston, Massachusetts. Dr. Bredella is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 1 (NF1), Sleeve Gastrectomy, and Gastric Bypass.

      Learn about our expert tiers
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurology | Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurology | Oncology
      Pappas Center For Neuro-oncology, Yawkey 9e, 55 Fruit Street, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English

      Kien-ninh Ly is a Neurologist and an Oncologist in Boston, Massachusetts. Dr. Ly is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Brain Tumor, and Atypical Teratoid Rhabdoid Tumor (ATRT).

      Patricia E. Greenstein
      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      BIDMC Department Of Neurology

      Neurology Department, 330 Brookline Avenue, Shapiro 8, 
      Boston, MA 
       (2.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Patricia Greenstein is a Neurologist in Boston, Massachusetts. Dr. Greenstein is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Spinocerebellar Ataxia, Cervical Myelopathy, Spastic Ataxia Charlevoix-Saguenay Type, and Spinocerebellar Ataxia Type 28.

      Megan E. Anderson
      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Beth Israel Deaconess Medical Center

      330 Brookline Avenue, Shapiro 2, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Megan Anderson is an Orthopedics provider in Boston, Massachusetts. Dr. Anderson is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Osteochondroma, Hereditary Multiple Osteochondromas, Rhabdomyosarcoma Embryonal, Knee Replacement, and Hip Replacement.

      Erik J. Uhlmann
      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      BIDMC Department Of Neurology

      330 Brookline Avenue, Tcc 8, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Erik Uhlmann is a Neurologist in Boston, Massachusetts. Dr. Uhlmann is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Metastatic Brain Tumor, Brain Tumor, Astrocytoma, Glioblastoma, and Gamma Knife Radiosurgery.

      Beth Israel Deaconess Medical Center

      330 Brookline Avenue, St-10, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English, French, Spanish
      Offers Telehealth

      Carrie Heincelman is an Orthopedics provider in Boston, Massachusetts. Dr. Heincelman is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Osteochondroma, Hereditary Multiple Osteochondromas, Chondroma, Osteotomy, and Hip Replacement.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Childrens Hospital Ophthalmology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Gena Heidary is an Ophthalmologist in Boston, Massachusetts. Dr. Heidary is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Strabismus, Papilledema, Optic Glioma, Increased Intracranial Pressure, and Cataract Removal.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Neuroradiology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Neuroradiology

      Massachusetts General Hospital

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English

      Otto Rapalino is a Neuroradiologist in Boston, Massachusetts. Dr. Rapalino is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Pediatric Low-Grade Glioma (pLGG), Gliomatosis Cerebri, and CACH Syndrome.

      Cardiology
      Cardiology

      Massachusetts General Hospital

      55 Fruit St, 
      Boston,, MA 
       (0.8 miles away)
      Languages Spoken:
      English

      Jacob Dal is a Cardiologist in Boston,, Massachusetts. Dr. Dal is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Aortic Valve Stenosis, Mitral Valve Regurgitation, Angina, Transcatheter Aortic Valve Replacement (TAVR), and Aortic Valve Replacement.

      Neuroradiology
      Neuroradiology

      Massachusetts General Hospital

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English

      Ramon Gonzalez is a Neuroradiologist in Boston, Massachusetts. His top areas of expertise are Pediatric Low-Grade Glioma (pLGG), ALK-Positive Non-Small Cell Lung Cancer, Radiation Induced Meningioma, and Meningioma.

      Massachusetts General Hospital

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English

      Jad Husseini is a Radiologist in Boston, Massachusetts. His top areas of expertise are Caffey Disease, Tenosynovitis, Synovial Osteochondromatosis, Rhizarthrosis, and Bone Marrow Aspiration.

      Cardiology
      Cardiology

      Massachusetts General Hospital

      55 Fruit St, 
      Boston,, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Rory Weiner is a Cardiologist in Boston,, Massachusetts. His top areas of expertise are Coronary Heart Disease, Pulmonary Hypertension, Pulmonary Veno-Occlusive Disease, Pacemaker Implantation, and Cardiac Ablation.

      Massachusetts General Hospital

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English

      Frank Simeone is a Radiologist in Boston, Massachusetts. His top areas of expertise are Caffey Disease, Rhizarthrosis, Tenosynovitis, Bone Marrow Aspiration, and Osteotomy.

      Ophthalmology
      Ophthalmology

      Beth Israel Deaconess Medical Center

      330 Brookline Avenue, Shapiro 5th Floor, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English, Spanish

      Michael Yoon is an Ophthalmologist in Boston, Massachusetts. His top areas of expertise are Eyelid Drooping, Ptosis, Blocked Tear Duct, and Entropion.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English

      Gerilyn Olsen is a Dermatologist in Boston, Massachusetts. Dr. Olsen is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are PHACE Syndrome, Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Julius Oatts is an Ophthalmologist in Boston, Massachusetts. Dr. Oatts is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Ocular Hypertension (OHT), Glaucoma, Strabismus, Trabeculectomy, and Cataract Removal.

      Pediatric Radiology
      Pediatric Radiology

      Department Of Radiology

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Abbey Winant is a Pediatric Radiologist in Boston, Massachusetts. Dr. Winant is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Infantile Pneumothorax, Pleural Effusion, Pulmonary Vein Stenosis, and Scoliosis.

      Brigham And Womens Physicians Organization Inc

      75 Francis St, 
      Boston, MA 
       (2.9 miles away)
      Languages Spoken:
      English

      Edward Lin is a Radiologist in Boston, Massachusetts. His top areas of expertise are Cerebral Arteriovenous Malformation, Familial Porencephaly, Choroid Plexus Cyst, and Brain Herniation.

      Showing 1-20 of 210

      Last Updated: 01/09/2026

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor near Boston, MA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Boston, MA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Boston, MA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Boston, MA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Boston, MA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Boston, MA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Boston, MA?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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