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    Last Updated: 10/30/2025

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    MediFind found 74 doctor with experience in Neurofibromatosis Type 1 (NF1) near Minneapolis, MN. Of these, 26 are Experienced and 1 are Elite.

    Location
    LocationClose
    74 providers found
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
       (1.6 miles away)
      Languages Spoken:
      English

      Christopher Moertel is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Moertel is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and RASopathies.

      Pediatric Cardiology | Pediatrics | Cardiology
      Pediatric Cardiology | Pediatrics | Cardiology

      Fairview Express Care

      909 Fulton St Se, 
      Minneapolis, MN 
       (2.0 miles away)
      Languages Spoken:
      English

      Jamie Lohr is a Pediatric Cardiologist and a Pediatrics provider in Minneapolis, Minnesota. Her top areas of expertise are Congenital Heart Disease (CHD), Robinow Syndrome, Oculofaciocardiodental Syndrome, and Sjogren-Larsson Syndrome.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Hennepin Healthcare System Inc

      701 Park Ave, 
      Minneapolis, MN 
       (0.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Thuy Hoang-Tienor is a Neurologist in Minneapolis, Minnesota. Dr. Hoang-Tienor is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Epilepsy, and Post-Traumatic Epilepsy. Dr. Hoang-Tienor is currently accepting new patients.

      Learn about our expert tiers
      Radiology
      Radiology

      Mayo Clinic

      600 Hennepin Ave, Suite 350, 
      Minneapolis, MN 
       (0.5 miles away)
      Languages Spoken:
      English

      Kirk Welker is a Radiologist in Minneapolis, Minnesota. His top areas of expertise are Spinal Tumor, Subependymoma, Hydrocephalus, Pediatric Low-Grade Glioma (pLGG), and Deep Brain Stimulation.

      Radiology
      Radiology

      Mayo Clinic

      600 Hennepin Ave, Suite 350, 
      Minneapolis, MN 
       (0.5 miles away)
      Languages Spoken:
      English

      John Lane is a Radiologist in Minneapolis, Minnesota. His top areas of expertise are Radiation Induced Meningioma, Meningioma, Neurofibromatosis Type 2 (NF2), and Hydrocephalus.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      2525 Chicago Ave S, 
      Minneapolis, MN 
       (1.5 miles away)
      Languages Spoken:
      English

      Amy Lebedoff is a Medical Genetics specialist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Lebedoff is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Increased Head Circumference, and Marshall-Smith Syndrome.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Children's Health Care

      2525 Chicago Ave, 
      Minneapolis, MN 
       (1.5 miles away)
      Languages Spoken:
      English

      Michael Richards is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Richards is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Langerhans Cell Histiocytosis, Hepatoblastoma, Histiocytosis, Reticulohistiocytoma, and Bone Marrow Aspiration.

      Nurse Practitioner
      Nurse Practitioner

      Children's Health Care

      2525 Chicago Ave, 
      Minneapolis, MN 
       (1.5 miles away)
      Languages Spoken:
      English

      Allison Galkowski is a Nurse Practitioner in Minneapolis, Minnesota. Ms. Galkowski is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Pediatric Low-Grade Glioma (pLGG) and Neurofibromatosis Type 1 (NF1).

      2525 Chicago Ave, 
      Minneapolis, MN 
       (1.5 miles away)
      Languages Spoken:
      English

      Nathan Wegmann is a Pediatrics provider in Minneapolis, Minnesota. Dr. Wegmann is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Mosaic Monosomy 22 and Neurofibromatosis Type 1 (NF1).

      Pediatric Radiology | Radiology
      Pediatric Radiology | Radiology
      2525 Chicago Ave, 
      Minneapolis, MN 
       (1.5 miles away)
      Languages Spoken:
      English

      Lisa Laforest is a Pediatric Radiologist and a Radiologist in Minneapolis, Minnesota. Her top area of expertise is Neurofibromatosis Type 1 (NF1).

      Pediatric Radiology | Radiology
      Pediatric Radiology | Radiology
      2525 Chicago Ave, Department Of Radiology, 
      Minneapolis, MN 
       (1.5 miles away)
      Languages Spoken:
      English

      Mike Abdulhadi is a Pediatric Radiologist and a Radiologist in Minneapolis, Minnesota. His top area of expertise is Neurofibromatosis Type 1 (NF1).

      Radiology | Pediatric Radiology
      Radiology | Pediatric Radiology
      2525 Chicago Ave, 
      Minneapolis, MN 
       (1.5 miles away)
      Languages Spoken:
      English

      John Nicotra is a Radiologist and a Pediatric Radiologist in Minneapolis, Minnesota. His top areas of expertise are Appendicitis, Ureterocele, Short Stature (Growth Disorders), and Cerebellum Agenesis Hydrocephaly.

      Radiology | Pediatric Radiology
      Radiology | Pediatric Radiology
      2525 Chicago Ave, 
      Minneapolis, MN 
       (1.5 miles away)
      Languages Spoken:
      English

      Kelly Hagedorn is a Radiologist and a Pediatric Radiologist in Minneapolis, Minnesota. Her top areas of expertise are Appendicitis, Ureterocele, Cantu Syndrome, and Perlman Syndrome.

      Pediatric Hematology Oncology
      Pediatric Hematology Oncology
      2530 Chicago Ave, Children's Specialty Center Suite 175, 
      Minneapolis, MN 
       (1.5 miles away)
      Languages Spoken:
      English

      Mary Skrypek is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Skrypek is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Glioma, Pineocytoma, Medulloblastoma, and Embryonal Tumor with Multilayered Rosettes.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology
      2450 Riverside Ave, 
      Minneapolis, MN 
       (1.6 miles away)
      Languages Spoken:
      English

      Matthias Zinn is a Pediatric Neurologist and a Neurologist in Minneapolis, Minnesota. Dr. Zinn is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Zika Virus Disease, Microcephaly with Spastic Quadriplegia, Microcephaly, and Seizures.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
       (1.6 miles away)
      Experience:
      9+ years
      Languages Spoken:
      English

      Robert Galvin is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Galvin has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Glioma, and Malignant Peripheral Nerve Sheath Tumor.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
       (1.6 miles away)
      Languages Spoken:
      English

      Michael Lee is an Ophthalmologist in Minneapolis, Minnesota. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Papilledema, Increased Intracranial Pressure, Optic Nerve Atrophy, Atherectomy, and Angioplasty.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
       (1.6 miles away)
      Languages Spoken:
      English

      Sasha Strul is an Ophthalmologist in Minneapolis, Minnesota. Dr. Strul is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Albinism, Oculocutaneous Albinism, Ocular Albinism, and Blepharophimosis Syndrome.

      Pediatric Cardiology | Pediatrics | Cardiology
      Pediatric Cardiology | Pediatrics | Cardiology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
       (1.6 miles away)
      Languages Spoken:
      English

      John Bass is a Pediatric Cardiologist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Bass is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Ventricular Septal Defects, Isthmian Coarctation, Coarctation of the Aorta, Patent Ductus Arteriosus, and Pacemaker Implantation.

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
       (1.6 miles away)
      Languages Spoken:
      English

      Brian Flemming is a Radiologist in Minneapolis, Minnesota. His top areas of expertise are Ascites, Visceromegaly, Progressive Familial Intrahepatic Cholestasis Type 3, and Progressive Familial Intrahepatic Cholestasis Type 1.

      Showing 1-20 of 74

      Last Updated: 10/30/2025

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor near Minneapolis, MN?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Minneapolis, MN?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Minneapolis, MN?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Minneapolis, MN?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Minneapolis, MN?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Minneapolis, MN?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Minneapolis, MN?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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