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    Last Updated: 10/30/2025

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    MediFind found 26 doctor with experience in Neurofibromatosis Type 1 (NF1) near Charlotte, NC. Of these, 9 are Experienced and 2 are Advanced.

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    26 providers found
      Chad T. Jacobsen
      Experienced in Neurofibromatosis Type 1 (NF1)
      Hematology | Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Hematology | Oncology

      Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

      1001 Blythe Blvd., Suite 3000, 
      Charlotte, NC 
       (1.1 miles away)
      Experience:
      28+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Chad Jacobsen is a Hematologist and an Oncologist in Charlotte, North Carolina. Dr. Jacobsen has been practicing medicine for over 28 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Medulloblastoma, Neurofibromatosis, and Embryonal Tumor with Multilayered Rosettes. Dr. Jacobsen is currently accepting new patients.

      Joel A. Kaplan
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Hematology | Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Hematology | Oncology

      Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

      1001 Blythe Blvd., Suite 3000, 
      Charlotte, NC 
       (1.1 miles away)
      Experience:
      24+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Joel Kaplan is a Hematologist and a Pediatrics provider in Charlotte, North Carolina. Dr. Kaplan has been practicing medicine for over 24 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neuroblastoma, Embryonal Tumor with Multilayered Rosettes, Medulloblastoma, Langerhans Cell Histiocytosis, and Bone Marrow Aspiration. Dr. Kaplan is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Amy Kelly
      Nurse Practitioner | Hematology | Oncology
      Nurse Practitioner | Hematology | Oncology

      Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

      1001 Blythe Blvd., Suite 3000, 
      Charlotte, NC 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Amy Kelly is a Hematologist and an Oncologist in Charlotte, North Carolina. Ms. Kelly is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Pediatric Low-Grade Glioma (pLGG), Marshall-Smith Syndrome, Megalencephaly-Capillary Malformation Syndrome, and Perlman Syndrome. Ms. Kelly is currently accepting new patients.

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      Amy L. Svenson
      Pediatric Cardiology
      Pediatric Cardiology

      Atrium Health Levine Children's HEARTest Yard Congenital Heart Center

      1001 Blythe Blvd., Suite 500, 
      Charlotte, NC 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Amy Svenson is a Pediatric Cardiologist in Charlotte, North Carolina. Dr. Svenson is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Cardiac Diverticulum, X-Linked Cardiac Valvular Dysplasia, Congenital Heart Disease (CHD), and Ventricular Septal Defects. Dr. Svenson is currently accepting new patients.

      Andrew S. Bensky
      Pediatric Cardiology
      Pediatric Cardiology

      Atrium Health Levine Children's HEARTest Yard Congenital Heart Center

      1001 Blythe Blvd., Suite 500, 
      Charlotte, NC 
       (1.1 miles away)
      Experience:
      39+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Andrew Bensky is a Pediatric Cardiologist in Charlotte, North Carolina. His top areas of expertise are End-Stage Renal Disease (ESRD), X-Linked Cardiac Valvular Dysplasia, Cardiac Diverticulum, and Congenital Heart Disease (CHD). Dr. Bensky is currently accepting new patients.

      David A. Gass
      Hematology | Oncology
      Hematology | Oncology

      Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

      1001 Blythe Blvd., Suite 3000, 
      Charlotte, NC 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      David Gass is a Hematologist and an Oncologist in Charlotte, North Carolina. His top areas of expertise are Diffuse Midline Glioma H3 K27M-Mutant, Infantile Neutropenia, Brain Stem Cancer, and Glioma. Dr. Gass is currently accepting new patients.

      Aaron Baer
      Neuroradiology
      Neuroradiology

      Charlotte Radiology

      700 E. Morehead St., Suite 300, 
      Charlotte, NC 
       (0.6 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Aaron Baer is a Neuroradiologist in Charlotte, North Carolina. Dr. Baer has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are CAPOS Syndrome, Headache, Brain Aneurysm, and Mikulicz Disease. Dr. Baer is currently accepting new patients.

      Jessica Bell
      Pediatrics
      Pediatrics

      St. Jude Affiliate Clinic At Novant Health Hemby Children's Hospital

      301 Hawthorne Lane, Suite 100, 
      Charlotte, NC 
       (1.0 miles away)
      Experience:
      23+ years
      Languages Spoken:
      English
      Offers Telehealth

      Jessica Bell is a Pediatrics provider in Charlotte, North Carolina. Her top areas of expertise are Fanconi Anemia, Ataxia-Pancytopenia Syndrome, Shwachman-Diamond Syndrome, and Pure Red Cell Aplasia.

      St. Jude Affiliate Clinic At Novant Health Hemby Children's Hospital

      301 Hawthorne Lane, Suite 100, 
      Charlotte, NC 
       (1.0 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English

      Courtney Saine is a Pediatrics provider in Charlotte, North Carolina. Her top area of expertise is Neurofibromatosis Type 1 (NF1).

      St. Jude Affiliate Clinic At Novant Health Hemby Children's Hospital

      301 Hawthorne Lane, Suite 100, 
      Charlotte, NC 
       (1.0 miles away)
      Experience:
      10+ years
      Languages Spoken:
      English
      Offers Telehealth

      Holly Edington is a Pediatrics provider in Charlotte, North Carolina. Her top areas of expertise are Chromosome 7p Deletion, Hemophagocytic Lymphohistiocytosis, Evans Syndrome, and Non-Langerhans-Cell Histiocytosis.

      Daniel E. Haggstrom
      Experienced in Neurofibromatosis Type 1 (NF1)
      Hematology | Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Hematology | Oncology

      Atrium Health Levine Cancer Institute (Thoracic-Pulmonary)

      1021 Morehead Medical Drive, Building 2, Suite 30500, 
      Charlotte, NC 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Daniel Haggstrom is a Hematologist and an Oncologist in Charlotte, North Carolina. Dr. Haggstrom is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Lung Cancer, Non-Small Cell Lung Cancer (NSCLC), Pleuropulmonary Blastoma, and Small Cell Lung Cancer (SCLC). Dr. Haggstrom is currently accepting new patients.

      Sara M. Elrefai
      Medical Genetics
      Medical Genetics

      Atrium Health Levine Cancer Institute (Genetic Counseling)

      1021 Morehead Medical Drive, Suite 2300, 
      Charlotte, NC 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sara Elrefai is a Medical Genetics provider in Charlotte, North Carolina. Dr. Elrefai is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Li-Fraumeni Syndrome, HER2 Negative Breast Cancer, BRCA Positive Breast Cancer, and Phacomatosis Pigmentovascularis. Dr. Elrefai is currently accepting new patients.

      Munes Fares
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Pediatric Cardiology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Pediatric Cardiology

      Atrium Health Levine Children's HEARTest Yard Congenital Heart Center

      1001 Blythe Blvd., Suite 500, 
      Charlotte, NC 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Munes Fares is a Pediatrics specialist and a Pediatric Cardiologist in Charlotte, North Carolina. Dr. Fares is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Transposition of the Great Arteries, Truncus Arteriosus, Coronary Artery Aneurysm, and Ventricular Septal Defects. Dr. Fares is currently accepting new patients.

      Cecilia S. Fernandes
      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Atrium Health Levine Children's Neurology

      1001 Blythe Blvd., Suite 4151, 
      Charlotte, NC 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Cecilia Fernandes is a Neurologist in Charlotte, North Carolina. Dr. Fernandes is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Seizures, Memory Loss, Absence Seizure, and Dravet Syndrome. Dr. Fernandes is currently accepting new patients.

      Katharine B. Pearsall
      Physician Assistant | Pediatrics
      Physician Assistant | Pediatrics

      Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

      1001 Blythe Blvd., Suite 3000, 
      Charlotte, NC 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Katharine Pearsall is a Pediatrics specialist and a Physician Assistant in Charlotte, North Carolina. Her top area of expertise is Neurofibromatosis Type 1 (NF1). Ms. Pearsall is currently accepting new patients.

      Steven L. Frick
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Pediatric Orthopedics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Pediatric Orthopedics

      Atrium Health Myers Park Orthopedics

      1350 S. Kings Drive, 
      Charlotte, NC 
       (1.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Steven Frick is a Pediatric Orthopedics specialist and a Pediatrics provider in Charlotte, North Carolina. Dr. Frick is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Clubfoot, Claw Foot, Macrodactyly of the Foot, Osteotomy, and Tenotomy. Dr. Frick is currently accepting new patients.

      Hematology | Oncology
      Hematology | Oncology

      Atrium Health Levine Cancer Institute (Medical Oncology & Immunotherapy)

      1021 Morehead Medical Drive, Suite 6100, 
      Charlotte, NC 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ashley Sumrall is a Hematologist and an Oncologist in Charlotte, North Carolina. Dr. Sumrall is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Glioma, Gliosarcoma, Brain Tumor, and Astrocytoma. Dr. Sumrall is currently accepting new patients.

      Charlotte Radiology PA

      1000 Blythe Blvd, 
      Charlotte, NC 
       (1.2 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Christopher Norbet is a Radiologist in Charlotte, North Carolina. His top areas of expertise are Pleural Effusion, Pleurisy, Emphysema, and Ascites.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Mecklenburg Neurological Associates

      1900 Scott Ave., 
      Charlotte, NC 
       (1.5 miles away)
      Experience:
      34+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Michael Amiri is a Neurologist in Charlotte, North Carolina. Dr. Amiri has been practicing medicine for over 34 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Seizures, Memory Loss, Epilepsy, and Alzheimer's Disease. Dr. Amiri is currently accepting new patients.

      Hematology Oncology | Hematology | Oncology
      Hematology Oncology | Hematology | Oncology

      Oncology Specialists Of Charlotte PA

      2711 Randolph Rd, Suite 400, 
      Charlotte, NC 
       (2.1 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Nasfat Shehadeh is a Hematologist Oncology specialist and a Hematologist in Charlotte, North Carolina. Dr. Shehadeh is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Stomach Cancer, Pancreatic Cancer, Pleuropulmonary Blastoma, Familial Pancreatic Cancer, and Bone Marrow Aspiration.

      Showing 1-20 of 26

      Last Updated: 10/30/2025

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor near Charlotte, NC?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Charlotte, NC?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Charlotte, NC?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Charlotte, NC?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Charlotte, NC?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Charlotte, NC?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Charlotte, NC?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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