The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Charlotte, NC

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 27 doctor with experience in Neurofibromatosis Type 1 (NF1) near Charlotte, NC. Of these, 9 are Experienced and 2 are Advanced.

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27 providers found
    Experienced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology

    Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

    1001 Blythe Blvd., Suite 3000, 
    Charlotte, NC 
     (1.5 miles away)
    Experience:
    29+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Chad Jacobsen is a Hematologist and an Oncologist practicing medicine in Charlotte, North Carolina. He has been practicing medicine for over 29 years. Dr. Jacobsen is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Medulloblastoma, Neurofibromatosis, and Embryonal Tumor with Multilayered Rosettes. Dr. Jacobsen is board certified in American Board Of Pediatrics, Pediatric Hematology And Oncology. Dr. Jacobsen is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatrics | Hematology | Oncology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatrics | Hematology | Oncology

    Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

    1001 Blythe Blvd., Suite 3000, 
    Charlotte, NC 
     (1.5 miles away)
    Experience:
    25+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Joel Kaplan is a Hematologist and a Pediatrics provider practicing medicine in Charlotte, North Carolina. He has been practicing medicine for over 25 years. Dr. Kaplan is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Neuroblastoma, Embryonal Tumor with Multilayered Rosettes, Medulloblastoma, Langerhans Cell Histiocytosis, and Bone Marrow Aspiration. Dr. Kaplan is board certified in American Board Of Pediatrics and American Board Of Pediatrics, Pediatric Hematology And Oncology. Dr. Kaplan is currently accepting new patients.

    Hematology | Oncology
    Hematology | Oncology

    Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

    1001 Blythe Blvd., Suite 3000, 
    Charlotte, NC 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    David Gass is a Hematologist and an Oncologist practicing medicine in Charlotte, North Carolina. Dr. Gass is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Diffuse Midline Glioma H3 K27M-Mutant, Infantile Neutropenia, Brain Stem Cancer, and Glioma. Dr. Gass is board certified in American Board Of Pediatrics. Dr. Gass is currently accepting new patients.

    Learn about our expert tiers
    Pediatric Cardiology
    Pediatric Cardiology

    Atrium Health Levine Children's HEARTest Yard Congenital Heart Center

    1001 Blythe Blvd., Suite 500, 
    Charlotte, NC 
     (1.5 miles away)
    Experience:
    40+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Andrew Bensky is a Pediatric Cardiologist practicing medicine in Charlotte, North Carolina. He has been practicing medicine for over 40 years. Dr. Bensky is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses End-Stage Renal Disease (ESRD), X-Linked Cardiac Valvular Dysplasia, Cardiac Diverticulum, and Congenital Heart Disease (CHD). Dr. Bensky is board certified in American Board Of Pediatrics and American Board Of Pediatrics, Pediatric Cardiology. Dr. Bensky is currently accepting new patients.

    Nurse Practitioner | Hematology | Oncology
    Nurse Practitioner | Hematology | Oncology

    Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

    1001 Blythe Blvd., Suite 3000, 
    Charlotte, NC 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Amy Kelly is a Hematologist and an Oncologist practicing medicine in Charlotte, North Carolina. Ms. Kelly is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Pediatric Low-Grade Glioma (pLGG), Simpson-Golabi-Behmel Syndrome, Cantu Syndrome, and Megalencephaly-Capillary Malformation Syndrome. Ms. Kelly is currently accepting new patients.

    Neuroradiology
    Neuroradiology

    Charlotte Radiology

    700 E. Morehead St., Suite 300, 
    Charlotte, NC 
     (0.9 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Aaron Baer is a Neuroradiologist practicing medicine in Charlotte, North Carolina. He has been practicing medicine for over 17 years. Dr. Baer is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses CAPOS Syndrome, Headache, Brain Aneurysm, and Mikulicz Disease. Dr. Baer is board certified in American Board Of Radiology. Dr. Baer is currently accepting new patients.

    Pediatrics
    Pediatrics

    St. Jude Affiliate Clinic At Novant Health Hemby Children's Hospital

    301 Hawthorne Lane, Suite 100, 
    Charlotte, NC 
     (1.3 miles away)
    Experience:
    24+ years
    Languages Spoken:
    English
    Offers Telehealth

    Jessica Bell is a Pediatrics provider practicing medicine in Charlotte, North Carolina. She has been practicing medicine for over 24 years. Dr. Bell is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Fanconi Anemia, Shwachman-Diamond Syndrome, Ataxia-Pancytopenia Syndrome, and Pure Red Cell Aplasia. Dr. Bell is board certified in Pediatrics.

    St. Jude Affiliate Clinic At Novant Health Hemby Children's Hospital

    301 Hawthorne Lane, Suite 100, 
    Charlotte, NC 
     (1.3 miles away)
    Experience:
    11+ years
    Languages Spoken:
    English
    Offers Telehealth

    Holly Edington is a Pediatrics provider practicing medicine in Charlotte, North Carolina. She has been practicing medicine for over 11 years. Dr. Edington is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Chromosome 7p Deletion, Hemophagocytic Lymphohistiocytosis, Evans Syndrome, and Non-Langerhans-Cell Histiocytosis. Dr. Edington is board certified in Pediatric Hematology-Oncology.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology

    Atrium Health Levine Cancer Institute (Thoracic-Pulmonary)

    1021 Morehead Medical Drive, Building 2, Suite 30500, 
    Charlotte, NC 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Daniel Haggstrom is a Hematologist and an Oncologist practicing medicine in Charlotte, North Carolina. Dr. Haggstrom is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Lung Cancer, Non-Small Cell Lung Cancer (NSCLC), Pleuropulmonary Blastoma, and Small Cell Lung Cancer (SCLC). Dr. Haggstrom is board certified in American Board Of Internal Medicine. Dr. Haggstrom is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    Atrium Health Levine Children's Neurology

    1001 Blythe Blvd., Suite 4151, 
    Charlotte, NC 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Cecilia Fernandes is a Neurologist practicing medicine in Charlotte, North Carolina. Dr. Fernandes is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Seizures, Memory Loss, Absence Seizure, and Dravet Syndrome. Dr. Fernandes is board certified in American Board Of Psychiatry/Neurology-Child Neuro. Dr. Fernandes is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatrics | Pediatric Orthopedics
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatrics | Pediatric Orthopedics

    Atrium Health Myers Park Orthopedics

    1350 S. Kings Drive, 
    Charlotte, NC 
     (2.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Steven Frick is a Pediatric Orthopedics specialist and a Pediatrics provider practicing medicine in Charlotte, North Carolina. Dr. Frick is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Clubfoot, Claw Foot, Macrodactyly of the Foot, Osteotomy, and Tenotomy. Dr. Frick is board certified in American Board Of Orthopaedic Surgery. Dr. Frick is currently accepting new patients.

    Hematology | Oncology
    Hematology | Oncology

    Atrium Health Levine Cancer Institute (Medical Oncology & Immunotherapy)

    1021 Morehead Medical Drive, Suite 6100, 
    Charlotte, NC 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Ashley Sumrall is a Hematologist and an Oncologist practicing medicine in Charlotte, North Carolina. Dr. Sumrall is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Glioma, Gliosarcoma, Brain Tumor, and Astrocytoma. Dr. Sumrall is board certified in American Board Of Internal Medicine and American Board Of Internal Medicine, Medical Oncology. Dr. Sumrall is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    Mecklenburg Neurological Associates

    1900 Scott Ave., 
    Charlotte, NC 
     (1.8 miles away)
    Experience:
    35+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Michael Amiri is a Neurologist practicing medicine in Charlotte, North Carolina. He has been practicing medicine for over 35 years. Dr. Amiri is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 46 other conditions, according to our data. His clinical expertise encompasses Seizures, Memory Loss, Epilepsy, and Alzheimer's Disease. Dr. Amiri is currently accepting new patients.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology | Pediatrics
    Advanced in Neurofibromatosis Type 1 (NF1)
    Ophthalmology | Pediatrics

    Charlotte Eye, Ear, Nose & Throat Associates, P.A. - SouthPark

    6035 Fairview Road, 
    Charlotte, NC 
     (5.2 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Elliott Mckee is a Pediatrics specialist and an Ophthalmologist practicing medicine in Charlotte, North Carolina. He has been practicing medicine for over 17 years. Dr. Mckee is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Strabismus, Oculomotor Apraxia Cogan Type, Isolated Duane Retraction Syndrome, and Hyperferritinemia-Cataract Syndrome. Dr. Mckee is board certified in American Academy Of Ophthalmology. Dr. Mckee is currently accepting new patients.

    St. Jude Affiliate Clinic At Novant Health Hemby Children's Hospital

    301 Hawthorne Lane, Suite 100, 
    Charlotte, NC 
     (1.3 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English

    Courtney Saine is a Pediatrics provider practicing medicine in Charlotte, North Carolina. She has been practicing medicine for over 17 years. Dr. Saine is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1). Dr. Saine is board certified in Nurse Practitioner, Pediatrics.

    Medical Genetics
    Medical Genetics

    Atrium Health Levine Cancer Institute (Genetic Counseling)

    1021 Morehead Medical Drive, Suite 2300, 
    Charlotte, NC 
     (1.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Sara Elrefai is a Medical Genetics provider practicing medicine in Charlotte, North Carolina. Dr. Elrefai is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Li-Fraumeni Syndrome, HER2 Negative Breast Cancer, BRCA Positive Breast Cancer, and Peutz-Jeghers Syndrome. Dr. Elrefai is board certified in American Board Of Medical Genetics.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatrics | Pediatric Cardiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatrics | Pediatric Cardiology

    Atrium Health Levine Children's HEARTest Yard Congenital Heart Center

    1001 Blythe Blvd., Suite 500, 
    Charlotte, NC 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Munes Fares is a Pediatrics specialist and a Pediatric Cardiologist practicing medicine in Charlotte, North Carolina. Dr. Fares is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 60 other conditions, according to our data. His clinical expertise encompasses Transposition of the Great Arteries, Coronary Artery Aneurysm, Ventricular Septal Defects, Tetralogy of Fallot, and Heart Transplant. Dr. Fares is board certified in American Board Of Pediatrics, Pediatric Cardiology and American Board Of Pediatrics/Pediatric Cardiology, Pediatrics. Dr. Fares is currently accepting new patients.

    Physician Assistant | Pediatrics
    Physician Assistant | Pediatrics

    Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

    1001 Blythe Blvd., Suite 3000, 
    Charlotte, NC 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Katharine Pearsall is a Pediatrics specialist and a Physician Assistant practicing medicine in Charlotte, North Carolina. Ms. Pearsall is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1). Ms. Pearsall is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    Atrium Health Neurology

    10660 Park Road, Suite 4500, 
    Charlotte, NC 
     (9.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Ryan Gleason is a Neurologist practicing medicine in Charlotte, North Carolina. Dr. Gleason is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Opsoclonus-Myoclonus Syndrome, Seizures, Generalized Tonic-Clonic Seizure, and Trigeminal Neuralgia. Dr. Gleason is board certified in American Board Of Psychiatry And Neurology. Dr. Gleason is currently accepting new patients.

    Hematology | Oncology
    Hematology | Oncology

    Atrium Health Levine Cancer Institute

    10660 Park Road, Suite 2100, 
    Charlotte, NC 
     (9.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Megan Jagosky is a Hematologist and an Oncologist practicing medicine in Charlotte, North Carolina. Dr. Jagosky is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Congenital Generalized Fibromatosis, Desmoid Tumor, Infantile Myofibromatosis, and Intraductal Papilloma. Dr. Jagosky is board certified in American Board Of Internal Medicine, American Board Of Internal Medicine, Hematology, and American Board Of Internal Medicine, Medical Oncology. Dr. Jagosky is currently accepting new patients.

    Showing 1-20 of 27

    Last Updated: 04/28/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor near Charlotte, NC?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Charlotte, NC?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Charlotte, NC?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Charlotte, NC?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Charlotte, NC?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Charlotte, NC?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Charlotte, NC?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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