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    Last Updated: 10/30/2025

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    MediFind found 209 doctor with experience in Neurofibromatosis Type 1 (NF1) near Philadelphia, PA. Of these, 52 are Experienced, 16 are Advanced, 5 are Distinguished and 2 are Elite.

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    209 providers found
      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      Penn Pituitary Center

      3400 Civic Center Boulevard, South Pavilion, 2nd Floor, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Grant Liu is a Neurologist in Philadelphia, Pennsylvania. Dr. Liu is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Increased Intracranial Pressure, Papilledema, Pseudotumor Cerebri Syndrome, Thymectomy, and Cataract Removal. Dr. Liu is currently accepting new patients.

      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)
      3401 Civic Center Blvd, 
      Philadelphia, PA 
       (1.6 miles away)
      Languages Spoken:
      English

      Robert Avery is a Neurologist in Philadelphia, Pennsylvania. Dr. Avery is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Optic Glioma, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Increased Intracranial Pressure, and Thymectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Medical Genetics
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Medical Genetics

      Penn Translational Medicine And Human Genetics

      3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Staci Kallish is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Kallish is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Gaucher Disease Type 1, Fabry Disease, and Neurofibromatosis. Dr. Kallish is currently accepting new patients.

      Learn about our expert tiers
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurosurgery
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Neurosurgery

      Penn Neuroscience Center - Neurosurgery

      3400 Civic Center Boulevard, South Pavilion, 2nd Floor, 
      Philadelphia, PA 
       (1.5 miles away)
      Experience:
      43+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Eric Zager is a Neurosurgery provider in Philadelphia, Pennsylvania. Dr. Zager has been practicing medicine for over 43 years and is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Thoracic Outlet Syndrome, Hydrocephalus, Neurofibromatosis, Awake Craniotomy, and Gastrostomy. Dr. Zager is currently accepting new patients.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      3401 Civic Center Blvd, Children's Hospital Of Philadelphia - Hem/onc, 
      Philadelphia, PA 
       (1.6 miles away)
      Languages Spoken:
      English

      Jean Belasco is a Pediatric Hematologist Oncology provider in Philadelphia, Pennsylvania. Dr. Belasco is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Medulloblastoma, and Glioma.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Distinguished in Neurofibromatosis Type 1 (NF1)
      3401 Civic Center Blvd, Children's Hospital Of Philadelphia - General Peds, 
      Philadelphia, PA 
       (1.6 miles away)
      Languages Spoken:
      English

      Rachel Hachen is a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Hachen is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and RASopathies.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Plastic Surgery
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Plastic Surgery

      Penn Hernia Program University City

      3737 Market Street, 4th Floor, 
      Philadelphia, PA 
       (1.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Stephen Kovach is a Plastic Surgeon in Philadelphia, Pennsylvania. Dr. Kovach is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Melanoma, Hernia Surgery, and Lymphadenectomy. Dr. Kovach is currently accepting new patients.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Penn Dermatology Pennsylvania Hospital

      235 South 8th Street, 
      Philadelphia, PA 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Claire Hannah is a Dermatologist in Philadelphia, Pennsylvania. Dr. Hannah is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Epidermal Nevus, Hidradenitis Suppurativa, Systemic Lupus Erythematosus (SLE), and Cutaneous Lupus Erythematosus (CLE). Dr. Hannah is currently accepting new patients.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)

      Penn Translational Medicine And Human Genetics

      3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Katherine Nathanson is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Nathanson is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Pheochromocytoma, Cowden Syndrome, Peutz-Jeghers Syndrome, and Hypothalamic Hamartomas. Dr. Nathanson is currently accepting new patients.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)

      Rena Rowan Breast Center

      3400 Civic Center Boulevard, West Pavilion, 3rd Floor, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mersedeh Rohanizadegan is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Rohanizadegan is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Li-Fraumeni Syndrome, HER2 Negative Breast Cancer, BRCA Positive Breast Cancer, and Myhre Syndrome. Dr. Rohanizadegan is currently accepting new patients.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics
      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics

      Penn Translational Medicine And Human Genetics

      3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Theodore Drivas is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Drivas is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Retinopathy Pigmentary Mental Retardation, Hereditary Hemorrhagic Telangiectasia, Acrofacial Dysostosis Nager Type, and Acrofacial Dysostosis Catania Type. Dr. Drivas is currently accepting new patients.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)

      Penn Neuroscience Center - Neurology

      3400 Civic Center Boulevard, South Pavilion, 2nd Floor, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Amy Pruitt is a Neurologist in Philadelphia, Pennsylvania. Dr. Pruitt is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Medulloblastoma, and Brain Tumor. Dr. Pruitt is currently accepting new patients.

      Penn Endocrine And Oncologic Surgery Perelman 3rd Floor

      3400 Civic Center Boulevard, West Pavilion, 3rd Floor, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Giorgos Karakousis is a General Surgeon in Philadelphia, Pennsylvania. Dr. Karakousis is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Melanoma, Merkel Cell Carcinoma, Adult Soft Tissue Sarcoma, Lymphadenectomy, and Gastrectomy. Dr. Karakousis is currently accepting new patients.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English

      Chelsea Kotch is a Pediatric Hematologist Oncology provider in Philadelphia, Pennsylvania. Dr. Kotch is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Optic Glioma, Glioma, and Gastrostomy.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)

      Radiology Associates Of Children's Hospital

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English

      Deborah Zarnow is a Radiologist in Philadelphia, Pennsylvania. Dr. Zarnow is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Chiari Malformation, and Cortical Dysplasia.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English

      Jane Minturn is a Pediatric Hematologist Oncology provider in Philadelphia, Pennsylvania. Dr. Minturn is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Medulloblastoma, Glioma, Embryonal Tumor with Multilayered Rosettes, Diffuse Midline Glioma H3 K27M-Mutant, and Gastrostomy.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Hematology | Oncology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Hematology | Oncology

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
       (1.5 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Amish Shah is a Pediatrics specialist and a Hematologist in Philadelphia, Pennsylvania. Dr. Shah has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Retinoblastoma, Hereditary Retinoblastoma, Neurofibromatosis, and Neurofibromatosis Type 1 (NF1).

      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)

      Radiology Associates Of Children's Hospital

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English

      Karuna Shekdar is a Radiologist in Philadelphia, Pennsylvania. Dr. Shekdar is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Cortical Dysplasia, Neurofibromatosis, Craniopharyngioma, and Periventricular Heterotopia.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Neurology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Neurology

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
       (1.5 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Alyssa Rosen is a Pediatrics specialist and a Neurologist in Philadelphia, Pennsylvania. Dr. Rosen has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Autism Spectrum Disorder, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Seizures.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Advanced in Neurofibromatosis Type 1 (NF1)
      3401 Civic Center Blvd, Children's Hospital Of Philadelphia - Radiology, 
      Philadelphia, PA 
       (1.6 miles away)
      Languages Spoken:
      English

      Tamara Feygin is a Radiologist in Philadelphia, Pennsylvania. Dr. Feygin is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Cortical Dysplasia, and Increased Head Circumference.

      Showing 1-20 of 209

      Last Updated: 10/30/2025

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor near Philadelphia, PA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Philadelphia, PA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Philadelphia, PA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Philadelphia, PA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Philadelphia, PA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Philadelphia, PA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Philadelphia, PA?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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