The 20 Best Neurofibromatosis Doctors Near Me

Dr. Jaishri Blakeley is the Marjorie Bloomberg Tiven Professor of Neurofibromatosis in Neurology, Oncology, and Neurosurgery at Johns Hopkins School of Medicine, director of the Johns Hopkins Comprehensive Neurofibromatosis Center and director of the Neurofibromatosis Therapeutic Acceleration Program (NTAP). She is an active clinician-scientist specializing in the care of people with NF1, NF2, LZTR1, SMARC1 schwannomatoses, and primary brain tumors. Her research expertise in the development of clinical trials for nervous system tumors and specifically, early clinical-translational studies including tumor pharmacokinetic and pharmacodynamic investigations, imaging biomarkers for rare nervous system tumors, and incorporation of patient-focused, functional endpoints into efficacy studies. She has been the national or international leader of 7 clinical trials focused on therapies for glioblastoma, NF1 and NF2. In 2012 she cofounded the NTAP to dramatically shift the landscape of NF1 via necessary, efficient, and expert discovery, translational and clinical research. NTAP focuses on therapeutics, fosters collaboration, facilitates open and timely sharing of results, and streamlines the research process to accelerate therapies for plexiform and cutaneous neurofibromas. Through NTAP, Dr. Blakeley has supported and collaborated with more than 80 laboratories and research teams across the globe enabling meaningful therapeutic development for NF1-associated neoplasms and supporting the development of an exceptional community of clinician scientists focused on NF1 via the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research. Her research and programmatic efforts are all in the service of improving outcomes for the patients with NF1, NF2, schwannomatosis, and primary brain cancer for whom she is honored to provide care. Dr. Blakeley is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy. Dr. Blakeley is board certified in American Board Of Psychiatry And Neurology. Dr. Blakeley is currently accepting new patients.

Dr. David Raleigh is a radiation oncologist who specializes in brain tumors. He cares for both adult and pediatric patients. Raleigh's research focuses on understanding the biological processes that cause brain tumors to grow. His goals are to uncover new measures of brain cancer and to identify cells for drugs to target. Raleigh earned a bachelor's degree in molecular and cell biology as well as a bachelor's degree in cognitive science from the University of California, Berkeley. He earned his doctoral degree in molecular pathogenesis – how disease develops at the molecular level – from the University of Chicago, followed by his medical degree from the Pritzker School of Medicine at the University of Chicago. He completed a residency in radiation oncology at UCSF. Raleigh is a member of the American Society of Clinical Oncology, American Society for Radiation Oncology, Pacific Pediatric Neuro-Oncology Consortium, Children's Oncology Group, Society for Neuro-Oncology, International Meningioma Society and North American Skull Base Society. At the UCSF Brain Tumor Center, Raleigh is a principal investigator with the Wolfe Meningioma Program Project. Dr. Raleigh is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Meningioma, Pineocytoma, Brain Tumor, and Gliomatosis Cerebri. Dr. Raleigh is board certified in American Board Of Radiology, Radiation Oncology. Dr. Raleigh is currently accepting new patients.

Dr. Christine Pratilas is a pediatric medical oncologist at the Sidney Kimmel Comprehensive Cancer Center and Associate Professor of Oncology, Pediatrics & Cellular and Molecular Medicine at the Johns Hopkins University School of Medicine. She joined the Hopkins pediatric sarcoma team in 2014. Dr. Pratilas received her undergraduate degree in Biology from Drew University in New Jersey and her medical degree from UMDNJ - Robert Wood Johnson Medical School (now Rutgers University), where she also completed her internship and residency from 1999 to 2002. From 2002 to 2005 she was a fellow in hematology and oncology in the Memorial Sloan Kettering Cancer Center (MSKCC) Department of Pediatrics, and in the Department of Pediatric Hematology and Oncology at New York Weill Cornell Medical Center. She was a postdoctoral research fellow in Dr. Neal Rosen’s Molecular Oncogenesis Laboratory at MSKCC. From 2006 to 2014 she was attending in Pediatric Oncology at MSKCC, specializing in developmental therapeutics & sarcoma. She has been the director of the pediatric sarcoma program at Hopkins since 2018. Dr. Pratilas focuses her research on cancer-associated pathways and signal transduction, which involves figuring out how a cell’s internal molecular pathways work, and how those pathways can be molecularly controlled. This knowledge is the basis for developing promising new molecularly targeted cancer therapies, which is the focus of Dr. Pratilas’s research. Among her important scientific contributions is advancing our understanding of how certain proteins that can be mutated in cancer, known as RAF kinases (specifically BRAF), affect a cancer cell’s behavior. The research in Dr. Pratilas' laboratory is focused on RAS signal transduction pathways, concentrating on pediatric sarcomas such as rhabdomyosarcoma and malignant peripheral nerve sheath tumors, in order to develop novel therapeutics for children with these tumors. Dr. Pratilas is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Osteotomy. Dr. Pratilas is board certified in American Board Of Pediatrics. Dr. Pratilas is currently accepting new patients.

Joel Kaplan is a Pediatrics specialist and a Hematologist practicing medicine in Charlotte, North Carolina. Dr. Kaplan is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Neuroblastoma, Embryonal Tumor with Multilayered Rosettes, Gliomatosis Cerebri, Medulloblastoma, and Bone Marrow Aspiration. Dr. Kaplan is board certified in American Board Of Pediatrics, Pediatric Hematology And Oncology and American Board Of Pediatrics. Dr. Kaplan is currently accepting new patients.

Pasquale Striano practices practicing medicine in Genoa, Italy. Mr. Striano is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 73 other conditions, according to our data. His clinical expertise encompasses Epilepsy, Myoclonic Epilepsy, Epilepsy with Myoclonic-Atonic Seizures, Seizures, and Endoscopy.

Angela Hirbe is an Oncologist practicing medicine in Saint Louis, Missouri. Dr. Hirbe is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis. Dr. Hirbe is currently accepting new patients.

Brigitte Widemann is a Hematologist and an Oncologist practicing medicine in Bethesda, Maryland. Dr. Widemann is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Medullary Thyroid Carcinoma, and Thyroidectomy.

Silverio Perrotta practices practicing medicine in Italy. Mr. Perrotta is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Beta Thalassemia, Thalassemia, Hemolytic Anemia, Congenital Hemolytic Anemia, and Splenectomy.

Yoshihiro Nishida practices practicing medicine in Nagoya, Japan. Mr. Nishida is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Desmoid Tumor, Fibromatosis, Adult Soft Tissue Sarcoma, Osteotomy, and Tenotomy.

Ira Dunkel is a Hematologist and an Oncologist practicing medicine in New York, New York. Dr. Dunkel is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Retinoblastoma, Gliomatosis Cerebri, Brain Tumor, and Glioma. Dr. Dunkel is currently accepting new patients.

Maryam Fouladi is a Hematologist and an Oncologist practicing medicine in Columbus, Ohio. Dr. Fouladi is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Brain Tumor, Medulloblastoma, Glioma, and Gliomatosis Cerebri. Dr. Fouladi is currently accepting new patients.

Douglas Hawkins is a Hematologist and an Oncologist practicing medicine in Seattle, Washington. Dr. Hawkins is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Rhabdomyosarcoma, Adult Soft Tissue Sarcoma, Osteosarcoma, Osteotomy, and Bone Marrow Aspiration. Dr. Hawkins is currently accepting new patients.

Sarah Leary is a Hematologist and an Oncologist practicing medicine in Seattle, Washington. Dr. Leary is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Medulloblastoma, Glioma, Gliomatosis Cerebri, Brain Tumor, and Bone Marrow Aspiration. Dr. Leary is currently accepting new patients.

Pierre Wolkenstein practices practicing medicine in Creteil, France. Mr. Wolkenstein is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Scalded Skin Syndrome, Stevens-Johnson Syndrome, and Kidney Transplant.

Brian Weiss is a Hematologist and an Oncologist practicing medicine in Indianapolis, Indiana. Dr. Weiss is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Neuroblastoma, Embryonal Tumor with Multilayered Rosettes, Neurofibromatosis, Lithotripsy, and Bone Marrow Transplant. Dr. Weiss is currently accepting new patients.

Michael Fisher is a primary care provider, practicing in Family Medicine in Chapel Hill, North Carolina. Dr. Fisher is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), Osteotomy, and Intrauterine Device Insertion. Dr. Fisher is currently accepting new patients.

Darren Hargrave practices practicing medicine in London, United Kingdom. Mr. Hargrave is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Glioma, Gliomatosis Cerebri, Brain Tumor, and Diffuse Midline Glioma H3 K27M-Mutant.

Lars Wagner is a Hematologist and an Oncologist practicing medicine in Durham, North Carolina. Dr. Wagner is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Osteosarcoma, Ewing Sarcoma, Adult Soft Tissue Sarcoma, Rhabdomyosarcoma, and Bone Marrow Aspiration. Dr. Wagner is currently accepting new patients.

Kaleb Yohay is a Pediatric Neurologist practicing medicine in New York, New York. Dr. Yohay is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), RASopathies, and Batten Disease.

Mina Lobbous is a Neurologist practicing medicine in Cleveland, Ohio. Dr. Lobbous is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 35 other conditions, according to our data. His clinical expertise encompasses Glioma, Glioblastoma, Astrocytoma, and Brain Tumor. Dr. Lobbous is board certified in American Board Of Psychiatry And Neurology, 2018. Dr. Lobbous is currently accepting new patients.