The 20 Best Neurofibromatosis Doctors Near Me

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Last Updated: 02/25/2026

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MediFind found 37 doctor with experience in Neurofibromatosis.

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37 providers found
    Elite in Neurofibromatosis
    Elite in Neurofibromatosis
    9135 Southwest Barnes Road, Suite 461, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Prakash Ambady is a Neurologist in Portland, Oregon. Dr. Ambady is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Astrocytoma, Glioblastoma, Glioma, and Brain Tumor. Dr. Ambady is currently accepting new patients.

    Elite in Neurofibromatosis
    Medical Genetics
    Elite in Neurofibromatosis
    Medical Genetics

    U Of U Medical Genetics

    50 N Medical Dr # 1, 
    Salt Lake City, UT 
    Experience:
    41+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    David Viskochil is a Medical Genetics provider in Salt Lake City, Utah. Dr. Viskochil has been practicing medicine for over 41 years and is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and Prader-Willi Syndrome. Dr. Viskochil is currently accepting new patients.

    Elite in Neurofibromatosis
    Elite in Neurofibromatosis

    Office

    200 Med Plz, 
    Los Angeles, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Phioanh Nghiemphu is a Neurologist in Los Angeles, California. Dr. Nghiemphu is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Glioma, Astrocytoma, Glioblastoma, and Brain Tumor.

    Learn about our expert tiers
    Elite in Neurofibromatosis
    Elite in Neurofibromatosis

    Henry Ford Cancer-Detroit

    2800 W Grand Blvd, 
    Detroit, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Tobias Walbert is a Neurologist in Detroit, Michigan. Dr. Walbert is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Glioma, Brain Tumor, Glioblastoma, and Astrocytoma.

    Elite in Neurofibromatosis
    Elite in Neurofibromatosis

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Angela Hirbe is an Oncologist in Saint Louis, Missouri. Dr. Hirbe is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), and Adult Soft Tissue Sarcoma.

    Elite in Neurofibromatosis
    Elite in Neurofibromatosis

    UCI Health

    101 The City Dr S, 
    Orange, CA 
    Languages Spoken:
    English

    Daniela Bota is a Neurologist in Orange, California. Dr. Bota is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Glioblastoma, Astrocytoma, Glioma, and Brain Tumor.

    Elite in Neurofibromatosis
    Elite in Neurofibromatosis

    University Of Chicago Medical Center

    5841 S Maryland Ave, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    James Tonsgard is a Pediatrics provider in Chicago, Illinois. Dr. Tonsgard is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and RASopathies.

    Christine Pratilas
    Distinguished in Neurofibromatosis
    Pediatrics | Oncology
    Distinguished in Neurofibromatosis
    Pediatrics | Oncology

    Johns Hopkins Children's Center

    Baltimore, MD 
    Languages Spoken:
    English

    Dr. Christine Pratilas is a pediatric medical oncologist at the Sidney Kimmel Comprehensive Cancer Center and Associate Professor of Oncology, Pediatrics & Cellular and Molecular Medicine at the Johns Hopkins University School of Medicine. She joined the Hopkins pediatric sarcoma team in 2014. Dr. Pratilas received her undergraduate degree in Biology from Drew University in New Jersey and her medical degree from UMDNJ - Robert Wood Johnson Medical School (now Rutgers University), where she also completed her internship and residency from 1999 to 2002. From 2002 to 2005 she was a fellow in hematology and oncology in the Memorial Sloan Kettering Cancer Center (MSKCC) Department of Pediatrics, and in the Department of Pediatric Hematology and Oncology at New York Weill Cornell Medical Center. She was a postdoctoral research fellow in Dr. Neal Rosen’s Molecular Oncogenesis Laboratory at MSKCC. From 2006 to 2014 she was attending in Pediatric Oncology at MSKCC, specializing in developmental therapeutics & sarcoma. She has been the director of the pediatric sarcoma program at Hopkins since 2018. Dr. Pratilas focuses her research on cancer-associated pathways and signal transduction, which involves figuring out how a cell’s internal molecular pathways work, and how those pathways can be molecularly controlled. This knowledge is the basis for developing promising new molecularly targeted cancer therapies, which is the focus of Dr. Pratilas’s research. Among her important scientific contributions is advancing our understanding of how certain proteins that can be mutated in cancer, known as RAF kinases (specifically BRAF), affect a cancer cell’s behavior. The research in Dr. Pratilas' laboratory is focused on RAS signal transduction pathways, concentrating on pediatric sarcomas such as rhabdomyosarcoma and malignant peripheral nerve sheath tumors, in order to develop novel therapeutics for children with these tumors. Dr. Pratilas is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Adult Soft Tissue Sarcoma, and Osteotomy.

    Distinguished in Neurofibromatosis
    Intensive Care Medicine
    Distinguished in Neurofibromatosis
    Intensive Care Medicine

    Office

    111 S 11th St Ste 8490, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Brian Weiss is an Intensive Care Medicine provider in Philadelphia, Pennsylvania. Dr. Weiss is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Neurofibromatosis, Ganglioneuroblastoma, Aplasia Cutis Congenita, Bone Marrow Transplant, and Bone Marrow Aspiration.

    Stacie L. Stapleton
    Advanced in Neurofibromatosis
    Pediatrics | Palliative Medicine | Pediatric Hematology Oncology
    Advanced in Neurofibromatosis
    Pediatrics | Palliative Medicine | Pediatric Hematology Oncology

    Johns Hopkins All Children's Outpatient Care, St. Petersburg

    Saint Petersburg, FL 
    Languages Spoken:
    English

    Dr. Stapleton is the division chief of oncology and director of pediatric neuro-oncology at Johns Hopkins All Children’s Hospital. Dr. Stapleton joined the hospital in 2007. She has formal training in pediatric neuro-oncology. She received the Armstrong Award for Quality and Patient Safety for Johns Hopkins All Children's in the 2024 Johns Hopkins Medicine Clinical Awards. Dr. Stapleton is on the Pediatric Palliative Care Team at Johns Hopkins All Children’s, and she specializes in symptom control and end of life care. She has been awarded numerous grants for phase I studies for patients with brain and spinal cord tumors as well as clinical research in pediatric palliative care. Dr. Stapleton’s research experience includes investigator-initiated and multi-center research projects. Dr. Stapleton is an associate professor of pediatrics at the University of South Florida and an assistant professor in the department of pediatrics at Johns Hopkins University. Dr. Stapleton completed her medical training at St. Louis University School of Medicine, residency training at Lackland Air Force Base in Texas and fellowship training at Baylor College of Medicine/Texas Children’s Hospital. Dr. Stapleton also served 13 years in the United States Air Force. Dr. Stapleton is a member of the American Board of Pediatrics, the Children’s Oncology Group, the Society of Neuro-Oncology, American Society of Pediatric Hematology/Oncology, and America Academy of Hospice and Palliative Medicine. Dr. Stapleton is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Medulloblastoma, Embryonal Tumor with Multilayered Rosettes, Glioma, Histiocytosis, and Bone Marrow Aspiration.

    Distinguished in Neurofibromatosis
    Hematology | Oncology
    Distinguished in Neurofibromatosis
    Hematology | Oncology

    Office

    8906 Bradmoor Dr, 
    Bethesda, MD 
    Languages Spoken:
    English

    Brigitte Widemann is a Hematologist and an Oncologist in Bethesda, Maryland. Dr. Widemann is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Adult Soft Tissue Sarcoma, and Thyroidectomy.

    Distinguished in Neurofibromatosis
    Hematology | Oncology
    Distinguished in Neurofibromatosis
    Hematology | Oncology

    Children's Hospital Colorado

    13123 E 16th Ave, 
    Aurora, CO 
    Languages Spoken:
    English

    Nicholas Foreman is a Hematologist and an Oncologist in Aurora, Colorado. Dr. Foreman is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Medulloblastoma, Ganglioglioma, Glioma, and Rhabdoid Tumor.

    Distinguished in Neurofibromatosis
    Hematology | Oncology
    Distinguished in Neurofibromatosis
    Hematology | Oncology

    University Of Minnesota Medical Center Fairview Riverside

    2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Christopher Moertel is a Hematologist and an Oncologist in Minneapolis, Minnesota. Dr. Moertel is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and RASopathies.

    Distinguished in Neurofibromatosis
    Hematology | Oncology
    Distinguished in Neurofibromatosis
    Hematology | Oncology

    Children's Medical Center/Children's Health

    1935 Medical District Dr, 
    Dallas, TX 
    Languages Spoken:
    English

    Laura Klesse is a Hematologist and an Oncologist in Dallas, Texas. Dr. Klesse is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Acute Lymphoblastic Leukemia (ALL), and RASopathies.

    Distinguished in Neurofibromatosis
    Medical Genetics
    Distinguished in Neurofibromatosis
    Medical Genetics
    200 1st St Sw, 
    Rochester, MN 
    Languages Spoken:
    English

    Dusica Babovic is a Medical Genetics provider in Rochester, Minnesota. Dr. Babovic is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and Hereditary Multiple Osteochondromas.

    Distinguished in Neurofibromatosis
    Distinguished in Neurofibromatosis

    Office

    355 W 16th St Ste 5400, 
    Indianapolis, IN 
    Languages Spoken:
    English
    Offers Telehealth

    Kathryn Nevel is a Neurologist in Indianapolis, Indiana. Dr. Nevel is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Oligodendroglioma, Atypical Teratoid Rhabdoid Tumor (ATRT), Glioma, and Gliosarcoma.

    Distinguished in Neurofibromatosis
    Pediatric Neurology
    Distinguished in Neurofibromatosis
    Pediatric Neurology

    Facial Reconstructive Surgical And Medical Center

    750 Welch Rd Ste 317, 
    Palo Alto, CA 
    Languages Spoken:
    English

    Cynthia Campen is a Pediatric Neurologist in Palo Alto, California. Dr. Campen is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Medulloblastoma, and Optic Glioma.

    Distinguished in Neurofibromatosis
    Hematology | Oncology
    Distinguished in Neurofibromatosis
    Hematology | Oncology

    Children's National Hospital

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
    Languages Spoken:
    English

    Miriam Bornhorst is a Hematologist and an Oncologist in Silver Spring, Maryland. Dr. Bornhorst is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Optic Glioma, and Glioma.

    Distinguished in Neurofibromatosis
    Hematology | Oncology
    Distinguished in Neurofibromatosis
    Hematology | Oncology

    Nationwide Children's Hospital

    700 Childrens Dr, 
    Columbus, OH 
    Languages Spoken:
    English

    Ryan Roberts is a Hematologist and an Oncologist in Columbus, Ohio. Dr. Roberts is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Osteosarcoma, Adult Soft Tissue Sarcoma, Ewing Sarcoma, and Rhabdomyosarcoma.

    Distinguished in Neurofibromatosis
    Pediatrics
    Distinguished in Neurofibromatosis
    Pediatrics

    St Josephs Medical Group PC

    703 Main St, 
    Paterson, NJ 
    Languages Spoken:
    English

    Punita Gupta is a Pediatrics provider in Paterson, New Jersey. Dr. Gupta is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Gaucher Disease Type 1, and Gaucher Disease.

    Showing 1-20 of 37

    Last Updated: 02/25/2026

    When should I see a Neurofibromatosis doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis doctors near me?

    Look for the filter feature on the left side of the Neurofibromatosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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