The 20 Best Neurofibromatosis Doctors Near Me

Find Doctors who have experience with Mirdametinib

Last Updated: 09/26/2026

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MediFind found 41 doctor with experience in Neurofibromatosis.

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41 providers found
    Elite in Neurofibromatosis
    Elite in Neurofibromatosis
    Referral may be required

    Henry Ford Cancer-Detroit

    2800 W Grand Blvd, 
    Detroit, MI 
    Languages Spoken:
    English, French, German
    Accepting New Patients
    Offers Telehealth

    Tobias Walbert is a Neurologist practicing medicine in Detroit, Michigan. Dr. Walbert is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Glioma, Brain Tumor, Glioblastoma, and Astrocytoma. Dr. Walbert is currently accepting new patients.

    Elite in Neurofibromatosis
    Elite in Neurofibromatosis
    Referral may be required
    9135 Southwest Barnes Road, Suite 461, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Prakash Ambady is a Neurologist practicing medicine in Portland, Oregon. Dr. Ambady is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Astrocytoma, Glioblastoma, Glioma, and Brain Tumor. Dr. Ambady is currently accepting new patients.

    Elite in Neurofibromatosis
    Medical Genetics
    Elite in Neurofibromatosis
    Medical Genetics
    Referral may be required

    University Of Utah Pediatric Genetic & Metabolism Clinic

    81 North Mario Capecchi Drive, 
    Salt Lake City, UT 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    David Viskochil is a Medical Genetics provider practicing medicine in Salt Lake City, Utah. Dr. Viskochil is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and Prader-Willi Syndrome. Dr. Viskochil is board certified in American Board Of Medical Genetics & Genomics. Dr. Viskochil is currently accepting new patients.

    Learn about our expert tiers
    Elite in Neurofibromatosis
    Elite in Neurofibromatosis
    Referral may be required

    UCI Health - Irvine Chao Family Comprehensive Cancer Center & Ambulatory Care

    19208 Jamboree Road, 
    Irvine, CA 
    Languages Spoken:
    English, Romanian
    Offers Telehealth

    Dr. Daniela A. Bota is a UCI Health neuro-oncologist who specializes in the treatment of primary and metastatic brain and spinal cord tumors, as well as in the neurological complications of cancers.She earned her medical degree at Carol Davila University of Medicine and Pharmacy in Bucharest, Romania. She completed a residency in neurology at University of Kansas Medical Center in Kansas City, followed by a fellowship in neuro-oncology at Duke University School of Medicine in Durham, N.C.Bota's academic research and clinical practice focus on innovative treatments for brain malignancies. She currently serves as a principal investigator for numerous studies including novel glioblastoma stem-cell targeted chemotherapy agents, cellular immunotherapy studies and wearable devices. She consults for multiple companies involved in developing drugs, cellular therapies and devices for human use. In support of these efforts, Bota’s translational research lab investigates potential therapies for malignant gliomas.She also serves as vice dean for Clinical Research at theUCI School of Medicineand director of theUCI Alpha Stem Cell Clinic. Dr. Bota is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Glioblastoma, Astrocytoma, Glioma, and Brain Tumor.

    Elite in Neurofibromatosis
    Pediatrics | Oncology
    Elite in Neurofibromatosis
    Pediatrics | Oncology
    Referral may be required

    Johns Hopkins Children's Center

    Baltimore, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Dr. Christine Pratilas is a pediatric medical oncologist at the Sidney Kimmel Comprehensive Cancer Center and Associate Professor of Oncology, Pediatrics & Cellular and Molecular Medicine at the Johns Hopkins University School of Medicine. She joined the Hopkins pediatric sarcoma team in 2014. Dr. Pratilas received her undergraduate degree in Biology from Drew University in New Jersey and her medical degree from UMDNJ - Robert Wood Johnson Medical School (now Rutgers University), where she also completed her internship and residency from 1999 to 2002. From 2002 to 2005 she was a fellow in hematology and oncology in the Memorial Sloan Kettering Cancer Center (MSKCC) Department of Pediatrics, and in the Department of Pediatric Hematology and Oncology at New York Weill Cornell Medical Center. She was a postdoctoral research fellow in Dr. Neal Rosen’s Molecular Oncogenesis Laboratory at MSKCC. From 2006 to 2014 she was attending in Pediatric Oncology at MSKCC, specializing in developmental therapeutics & sarcoma. She has been the director of the pediatric sarcoma program at Hopkins since 2018. Dr. Pratilas focuses her research on cancer-associated pathways and signal transduction, which involves figuring out how a cell’s internal molecular pathways work, and how those pathways can be molecularly controlled. This knowledge is the basis for developing promising new molecularly targeted cancer therapies, which is the focus of Dr. Pratilas’s research. Among her important scientific contributions is advancing our understanding of how certain proteins that can be mutated in cancer, known as RAF kinases (specifically BRAF), affect a cancer cell’s behavior. The research in Dr. Pratilas' laboratory is focused on RAS signal transduction pathways, concentrating on pediatric sarcomas such as rhabdomyosarcoma and malignant peripheral nerve sheath tumors, in order to develop novel therapeutics for children with these tumors. Dr. Pratilas is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Osteotomy. Dr. Pratilas is board certified in American Board Of Pediatrics. Dr. Pratilas is currently accepting new patients.

    Elite in Neurofibromatosis
    Pediatric Neurology | Neurology
    Elite in Neurofibromatosis
    Pediatric Neurology | Neurology
    Referral may be required

    Comer Children's Hospital - Hyde Park

    5721 S. Maryland Ave., 
    Chicago, IL 
    Languages Spoken:
    English, Italian
    Accepting New Patients
    Offers Telehealth

    James Tonsgard is a Pediatric Neurologist and a Neurologist practicing medicine in Chicago, Illinois. Dr. Tonsgard is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and RASopathies. Dr. Tonsgard is board certified in Pediatrics and Practicing Since1978. Dr. Tonsgard is currently accepting new patients.

    Elite in Neurofibromatosis
    Elite in Neurofibromatosis
    Referral may be required

    Office

    300 Medical Plz, 
    Los Angeles, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Phioanh Nghiemphu is a Neurologist practicing medicine in Los Angeles, California. Dr. Nghiemphu is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 26 other conditions, according to our data. Her clinical expertise encompasses Glioma, Glioblastoma, Astrocytoma, and Brain Tumor.

    Elite in Neurofibromatosis
    Elite in Neurofibromatosis
    Referral may be required

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
    Languages Spoken:
    English
    Accepting New Patients

    Angela Hirbe is an Oncologist practicing medicine in Saint Louis, Missouri. Dr. Hirbe is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis. Dr. Hirbe is currently accepting new patients.

    Elite in Neurofibromatosis
    Hematology | Oncology
    Elite in Neurofibromatosis
    Hematology | Oncology
    Referral may be required

    Office

    8906 Bradmoor Dr, 
    Bethesda, MD 
    Languages Spoken:
    English

    Brigitte Widemann is a Hematologist and an Oncologist practicing medicine in Bethesda, Maryland. Dr. Widemann is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Medullary Thyroid Carcinoma, and Thyroidectomy.

    Elite in Neurofibromatosis
    Hematology | Oncology
    Elite in Neurofibromatosis
    Hematology | Oncology
    Referral may be required

    Children's Hospital Colorado

    1811 Plaza Dr, 
    Highlands Ranch, CO 
    Languages Spoken:
    English
    Accepting New Patients

    Nicholas Foreman is a Hematologist and an Oncologist practicing medicine in Highlands Ranch, Colorado. Dr. Foreman is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Ependymoma, Brain Tumor, Medulloblastoma, and Ganglioglioma. Dr. Foreman is currently accepting new patients.

    Elite in Neurofibromatosis
    Hematology | Oncology
    Elite in Neurofibromatosis
    Hematology | Oncology
    Referral may be required

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English
    Accepting New Patients

    Brian Weiss is a Hematologist and an Oncologist practicing medicine in Indianapolis, Indiana. Dr. Weiss is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Neuroblastoma, Embryonal Tumor with Multilayered Rosettes, Neurofibromatosis, Lithotripsy, and Bone Marrow Transplant. Dr. Weiss is currently accepting new patients.

    Distinguished in Neurofibromatosis
    Distinguished in Neurofibromatosis
    Referral may be required

    Texas Scottish Rite Hospital For Children

    2222 Welborn St, 
    Dallas, TX 
    Languages Spoken:
    English
    Accepting New Patients

    David Podeszwa is an Orthopedics provider practicing medicine in Dallas, Texas. Dr. Podeszwa is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Slipped Capital Femoral Epiphysis, Collins Pope Syndrome, Knock Knees, Osteotomy, and Endoscopy. Dr. Podeszwa is board certified in Orthopaedic Surgery- American Board Of Orthopaedic Surgery. Dr. Podeszwa is currently accepting new patients.

    Distinguished in Neurofibromatosis
    Allergy and Immunology
    Distinguished in Neurofibromatosis
    Allergy and Immunology
    Referral may be required

    The Johns Hopkins Hospital

    1800 Orleans Street, 
    Baltimore, MD 
    Languages Spoken:
    English, German
    Accepting New Patients

    Dr. Charles Eberhart is a professor of pathology, oncology, and ophthalmology, at the Johns Hopkins University School of Medicine. His research primarily focuses on molecular genetics and treatment of medulloblastoma, gliomas, retinoblastoma, uveal melanoma and other tumors of the brain and eye. Dr. Eberhart serves as the director of the Divisions of Neuropathology and Ophthalmic Pathology. Major research areas in his laboratory include targeting functionally important signaling pathways in tumors, identifying the genetic drivers of rare neoplasms in the brain and eye, and building new models of tumors. He received his undergraduate degree in biochemistry from the University of Texas at Austin and earned his M.D./Ph.D. from UT Southwestern Medical School. He also was a fellow at the Max Planck Institute for one year. Dr. Eberhart completed both a residency in anatomic pathology and a fellowship in neuropathology at The Johns Hopkins Hospital, then joined the Johns Hopkins faculty in 2001. Dr. Eberhart has been recognized with the Howard Hughes Medical Institute Postdoctoral Research Fellowship for Physicians, and career development awards from the Burroughs Wellcome Fund and the National Institutes of Health. He has published more than 350 original research articles, numerous case reports, reviews and book chapters, and is on the editorial board of the Journal of Neuro-Oncology, Brain Pathology and the Journal of Neuropathology and Experimental Neurology. Dr. Eberhart is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Pediatric Low-Grade Glioma (pLGG), Neurofibromatosis, Conjunctivitis (Pink Eye), IgG4-Related Disease, and Vitrectomy. Dr. Eberhart is board certified in American Board Of Pathology. Dr. Eberhart is currently accepting new patients.

    Advanced in Neurofibromatosis
    Medical Genetics | Pediatrics
    Advanced in Neurofibromatosis
    Medical Genetics | Pediatrics
    Referral may be required

    State University Of Iowa

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English
    Accepting New Patients

    Alpa Sidhu is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Iowa City, Iowa. Dr. Sidhu is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Jacobsen Syndrome, and Gastroschisis. Dr. Sidhu is currently accepting new patients.

    Advanced in Neurofibromatosis
    Hematology | Oncology | Pediatric Hematology Oncology
    Advanced in Neurofibromatosis
    Hematology | Oncology | Pediatric Hematology Oncology
    Referral may be required

    Johns Hopkins All Children's Outpatient Care, Tampa

    12220 Bruce B Downs Boulevard, 
    Tampa, FL 
    Languages Spoken:
    English
    Accepting New Patients

    Dr. Stapleton is the division chief of oncology and director of pediatric neuro-oncology at Johns Hopkins All Children’s Hospital. Dr. Stapleton joined the hospital in 2007. She has formal training in pediatric neuro-oncology. She received the Armstrong Award for Quality and Patient Safety for Johns Hopkins All Children's in the 2024 Johns Hopkins Medicine Clinical Awards. Dr. Stapleton is on the Pediatric Palliative Care Team at Johns Hopkins All Children’s, and she specializes in symptom control and end of life care. She has been awarded numerous grants for phase I studies for patients with brain and spinal cord tumors as well as clinical research in pediatric palliative care. Dr. Stapleton’s research experience includes investigator-initiated and multi-center research projects. Dr. Stapleton is an associate professor of pediatrics at the University of South Florida and an assistant professor in the department of pediatrics at Johns Hopkins University. Dr. Stapleton completed her medical training at St. Louis University School of Medicine, residency training at Lackland Air Force Base in Texas and fellowship training at Baylor College of Medicine/Texas Children’s Hospital. Dr. Stapleton also served 13 years in the United States Air Force. Dr. Stapleton is a member of the American Board of Pediatrics, the Children’s Oncology Group, the Society of Neuro-Oncology, American Society of Pediatric Hematology/Oncology, and America Academy of Hospice and Palliative Medicine. Dr. Stapleton is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Medulloblastoma, Embryonal Tumor with Multilayered Rosettes, Ependymoma, Glioma, and Bone Marrow Aspiration. Dr. Stapleton is board certified in Pediatrics, American Board Of Pediatrics, and Pediatric Hematology-Oncology. Dr. Stapleton is currently accepting new patients.

    Distinguished in Neurofibromatosis
    Hematology | Oncology
    Distinguished in Neurofibromatosis
    Hematology | Oncology
    Referral may be required

    University Of Minnesota Medical Center Fairview Riverside

    2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Christopher Moertel is a Hematologist and an Oncologist practicing medicine in Minneapolis, Minnesota. Dr. Moertel is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and RASopathies. Dr. Moertel is currently accepting new patients.

    Distinguished in Neurofibromatosis
    Hematology | Oncology
    Distinguished in Neurofibromatosis
    Hematology | Oncology
    Referral may be required

    Office

    2001 Inwood Rd, 
    Dallas, TX 
    Languages Spoken:
    English

    Laura Klesse is a Hematologist and an Oncologist practicing medicine in Dallas, Texas. Dr. Klesse is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 29 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), RASopathies, and Acute Lymphoblastic Leukemia (ALL).

    Distinguished in Neurofibromatosis
    Distinguished in Neurofibromatosis
    Referral may be required
    13400 E Shea Blvd, 
    Scottsdale, AZ 
    Languages Spoken:
    English
    Accepting New Patients

    Dusica Babovic-Vuksanovic is a Medical Genetics provider practicing medicine in Scottsdale, Arizona. Dr. Babovic-Vuksanovic is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and Hereditary Multiple Osteochondromas. Dr. Babovic-Vuksanovic is currently accepting new patients.

    Distinguished in Neurofibromatosis
    Hematology | Oncology
    Distinguished in Neurofibromatosis
    Hematology | Oncology
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Experience:
    18+ years
    Languages Spoken:
    English, Polish, Spanish

    Miriam Bornhorst is a Hematologist and an Oncologist practicing medicine in Chicago, Illinois. She has been practicing medicine for over 18 years. Dr. Bornhorst is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Brain Tumor, and Glioma.

    Distinguished in Neurofibromatosis
    Distinguished in Neurofibromatosis
    Referral may be required

    Indiana University Health University Hospital

    550 University Blvd, 
    Indianapolis, IN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kathryn Nevel is a Neurologist practicing medicine in Indianapolis, Indiana. Dr. Nevel is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 33 other conditions, according to our data. Her clinical expertise encompasses Oligodendroglioma, Glioma, Atypical Teratoid Rhabdoid Tumor (ATRT), and Brain Tumor. Dr. Nevel is currently accepting new patients.

    Showing 1-20 of 41

    Last Updated: 09/26/2026

    When should I see a Neurofibromatosis doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis doctors near me?

    Look for the filter feature on the left side of the Neurofibromatosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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