The 20 Best Neurofibromatosis Doctors Near Me

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Last Updated: 06/30/2026

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MediFind found 130 doctor with experience in Neurofibromatosis.

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130 providers found
    Elite in Neurofibromatosis
    Elite in Neurofibromatosis
    Referral may be required

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, Floor 5, 
    Baltimore, MD 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Jaishri Blakeley is the Marjorie Bloomberg Tiven Professor of Neurofibromatosis in Neurology, Oncology, and Neurosurgery at Johns Hopkins School of Medicine, director of the Johns Hopkins Comprehensive Neurofibromatosis Center and director of the Neurofibromatosis Therapeutic Acceleration Program (NTAP). She is an active clinician-scientist specializing in the care of people with NF1, NF2, LZTR1, SMARC1 schwannomatoses, and primary brain tumors. Her research expertise in the development of clinical trials for nervous system tumors and specifically, early clinical-translational studies including tumor pharmacokinetic and pharmacodynamic investigations, imaging biomarkers for rare nervous system tumors, and incorporation of patient-focused, functional endpoints into efficacy studies. She has been the national or international leader of 7 clinical trials focused on therapies for glioblastoma, NF1 and NF2. In 2012 she cofounded the NTAP to dramatically shift the landscape of NF1 via necessary, efficient, and expert discovery, translational and clinical research. NTAP focuses on therapeutics, fosters collaboration, facilitates open and timely sharing of results, and streamlines the research process to accelerate therapies for plexiform and cutaneous neurofibromas. Through NTAP, Dr. Blakeley has supported and collaborated with more than 80 laboratories and research teams across the globe enabling meaningful therapeutic development for NF1-associated neoplasms and supporting the development of an exceptional community of clinician scientists focused on NF1 via the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research. Her research and programmatic efforts are all in the service of improving outcomes for the patients with NF1, NF2, schwannomatosis, and primary brain cancer for whom she is honored to provide care. Dr. Blakeley is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy. Dr. Blakeley is board certified in American Board Of Psychiatry And Neurology.

    Elite in Neurofibromatosis
    Thoracic Surgery
    Elite in Neurofibromatosis
    Thoracic Surgery
    Referral may be required

    Baylor Scott & White Center For Thoracic Surgery - Dallas

    3410 Worth St, Ste 760, 
    Dallas, TX 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Schwartz is a thoracic surgeon with expertise in thoracic oncology, minimally invasive thoracic surgery, airway surgery, lung transplantation and extracorporeal membrane oxygenation. He completed a year of research focusing on thoracic oncology and endoscopic airway interventions. He has published many peer-reviewed publications and earned multiple clinical awards, including Chief Resident of the Year and the Charles McBurney Award. In addition, Dr. Schwartz serves in the following roles at Baylor University Medical Center: Chief, Department of Thoracic Surgery; Surgical Director, Lung Transplantation; Medical Director, Extracorporeal Membrane Oxygenation; and Surgical Director, Major Airway Disorders. He is married with four children and enjoys traveling, cooking, swimming and yoga. See Dr. Schwartz's Publications. Dr. Schwartz is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Adult Soft Tissue Sarcoma, Liposarcoma, Fibrosarcoma, Lung Transplant, and Gastrostomy. Dr. Schwartz is board certified in General Surgery- American Board Of Surgery/General Surgery, Thoracic And Cardiac Surgery- American Board Of Thoracic Surgery/Thoracic And Cardiac Surgery, General Surgery- American Board Of Surgery, and Thoracic And Cardiac Surgery- American Board Of Thoracic Surgery.

    Elite in Neurofibromatosis
    General Surgery
    Elite in Neurofibromatosis
    General Surgery
    Referral may be required

    UPMC Children's Hospital Of Pittsburgh, Pediatric Neurological Surgery

    4401 Penn Avenue, 
    Pittsburgh, PA 
    Languages Spoken:
    English

    Ian Pollack, MD, is Chief of Pediatric Neurosurgery at UPMC Children’s Hospital of Pittsburgh, A. Leland Albright Professor of Neurosurgery, and vice-chair for Academic Affairs at the University of Pittsburgh School of Medicine. He is professor of clinical and translational science and distinguished professor of neurosurgery at the University of Pittsburgh. Dr. Pollack is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Glioma, Gliomatosis Cerebri, Brain Tumor, Posterior Fossa Decompression, and Craniectomy. Dr. Pollack is board certified in American Board Of Neurological Surgery.

    Learn about our expert tiers
    Elite in Neurofibromatosis
    Radiation Oncology
    Elite in Neurofibromatosis
    Radiation Oncology
    Referral may be required

    Adult Neurofibromatosis Type 1 (NF1) And Schwannomatosis Clinic

    400 Parnassus Ave., Eighth Floor, 
    San Francisco, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. David Raleigh is a radiation oncologist who specializes in brain tumors. He cares for both adult and pediatric patients. Raleigh's research focuses on understanding the biological processes that cause brain tumors to grow. His goals are to uncover new measures of brain cancer and to identify cells for drugs to target. Raleigh earned a bachelor's degree in molecular and cell biology as well as a bachelor's degree in cognitive science from the University of California, Berkeley. He earned his doctoral degree in molecular pathogenesis – how disease develops at the molecular level – from the University of Chicago, followed by his medical degree from the Pritzker School of Medicine at the University of Chicago. He completed a residency in radiation oncology at UCSF. Raleigh is a member of the American Society of Clinical Oncology, American Society for Radiation Oncology, Pacific Pediatric Neuro-Oncology Consortium, Children's Oncology Group, Society for Neuro-Oncology, International Meningioma Society and North American Skull Base Society. At the UCSF Brain Tumor Center, Raleigh is a principal investigator with the Wolfe Meningioma Program Project. Dr. Raleigh is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Meningioma, Pineocytoma, Brain Tumor, and Gliomatosis Cerebri. Dr. Raleigh is board certified in American Board Of Radiology, Radiation Oncology. Dr. Raleigh is currently accepting new patients.

    Advanced in Neurofibromatosis
    Pediatrics | Hematology | Oncology
    Advanced in Neurofibromatosis
    Pediatrics | Hematology | Oncology
    Referral may be required

    Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

    1001 Blythe Blvd., Suite 3000, 
    Charlotte, NC 
    Experience:
    25+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Joel Kaplan is a Hematologist and a Pediatrics provider practicing medicine in Charlotte, North Carolina. He has been practicing medicine for over 25 years. Dr. Kaplan is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Neuroblastoma, Embryonal Tumor with Multilayered Rosettes, Medulloblastoma, Langerhans Cell Histiocytosis, and Bone Marrow Aspiration. Dr. Kaplan is board certified in American Board Of Pediatrics and American Board Of Pediatrics, Pediatric Hematology And Oncology. Dr. Kaplan is currently accepting new patients.

    Elite in Neurofibromatosis
    Elite in Neurofibromatosis
    Referral may be required
    Genoa, IT 

    Pasquale Striano practices practicing medicine in Genoa, Italy. Mr. Striano is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 72 other conditions, according to our data. His clinical expertise encompasses Epilepsy, Myoclonic Epilepsy, Epilepsy with Myoclonic-Atonic Seizures, Seizures, and Endoscopy.

    Elite in Neurofibromatosis
    Pediatrics
    Elite in Neurofibromatosis
    Pediatrics
    Referral may be required

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington, DC 
    Languages Spoken:
    English

    Roger Packer is a Pediatrics provider practicing medicine in Washington, Washington, D.c.. Dr. Packer is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Brain Tumor, Diffuse Midline Glioma H3 K27M-Mutant, Medulloblastoma, and Gliomatosis Cerebri.

    Elite in Neurofibromatosis
    Elite in Neurofibromatosis
    Referral may be required

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English
    Offers Telehealth

    Mohammed Milhem is a Hematologist practicing medicine in Iowa City, Iowa. Dr. Milhem is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Melanoma, Adult Soft Tissue Sarcoma, Alveolar Soft Part Sarcoma, and Fibrosarcoma.

    Elite in Neurofibromatosis
    Elite in Neurofibromatosis
    Referral may be required

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Angela Hirbe is an Oncologist practicing medicine in Saint Louis, Missouri. Dr. Hirbe is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), and Adult Soft Tissue Sarcoma.

    Elite in Neurofibromatosis
    Elite in Neurofibromatosis
    Referral may be required
    IT 

    Silverio Perrotta practices practicing medicine in Italy. Mr. Perrotta is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Anemia, Beta Thalassemia, Thalassemia, Congenital Hemolytic Anemia, and Splenectomy.

    Elite in Neurofibromatosis
    Elite in Neurofibromatosis
    Referral may be required
    Nagoya, JP 

    Yoshihiro Nishida practices practicing medicine in Nagoya, Japan. Mr. Nishida is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Desmoid Tumor, Fibromatosis, Adult Soft Tissue Sarcoma, Osteotomy, and Pancreaticoduodenectomy.

    Elite in Neurofibromatosis
    Hematology | Oncology
    Elite in Neurofibromatosis
    Hematology | Oncology
    Referral may be required

    Nationwide Children's Hospital

    700 Childrens Dr, 
    Columbus, OH 
    Languages Spoken:
    English

    Maryam Fouladi is a Hematologist and an Oncologist practicing medicine in Columbus, Ohio. Dr. Fouladi is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Diffuse Midline Glioma H3 K27M-Mutant, Glioma, Medulloblastoma, and Brain Stem Cancer.

    Elite in Neurofibromatosis
    Elite in Neurofibromatosis
    Referral may be required
    Université Paris Est, 
    Creteil, FR 

    Pierre Wolkenstein practices practicing medicine in Creteil, France. Mr. Wolkenstein is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Scalded Skin Syndrome, Stevens-Johnson Syndrome, and Kidney Transplant.

    Elite in Neurofibromatosis
    Hematology | Oncology
    Elite in Neurofibromatosis
    Hematology | Oncology
    Referral may be required

    Memorial Sloan Kettering Cancer Center

    1275 York Ave, 
    New York, NY 
    Languages Spoken:
    English
    Accepting New Patients

    Ira Dunkel is a Hematologist and an Oncologist practicing medicine in New York, New York. Dr. Dunkel is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Retinoblastoma, Diffuse Midline Glioma H3 K27M-Mutant, Glioma, and Brain Stem Cancer. Dr. Dunkel is currently accepting new patients.

    Elite in Neurofibromatosis
    Holistic Medicine
    Elite in Neurofibromatosis
    Holistic Medicine
    Referral may be required

    Office

    95 Trade St Ste 102, 
    Aurora, IL 
    Languages Spoken:
    English

    Jing Li is a Holistic Medicine provider practicing medicine in Aurora, Illinois. Ms. Li is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 53 other conditions, according to our data. Her clinical expertise encompasses Liver Failure, Pancreatic Ductal Adenocarcinoma, Periodontitis, Osteotomy, and Endoscopy.

    Elite in Neurofibromatosis
    Family Medicine
    Elite in Neurofibromatosis
    Family Medicine

    Siler City Community Health Center

    224 S 10th Ave, 
    Siler City, NC 
    Languages Spoken:
    English
    Offers Telehealth

    Michael Fisher is a primary care provider, practicing in Family Medicine in Siler City, North Carolina. Dr. Fisher is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), Osteotomy, and Intrauterine Device Insertion.

    Elite in Neurofibromatosis
    Hematology | Oncology
    Elite in Neurofibromatosis
    Hematology | Oncology
    Referral may be required

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Douglas Hawkins is a Hematologist and an Oncologist practicing medicine in Seattle, Washington. Dr. Hawkins is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Rhabdomyosarcoma, Adult Soft Tissue Sarcoma, Osteosarcoma, Osteotomy, and Bone Marrow Aspiration.

    Elite in Neurofibromatosis
    Hematology | Oncology
    Elite in Neurofibromatosis
    Hematology | Oncology
    Referral may be required

    Office

    8906 Bradmoor Dr, 
    Bethesda, MD 
    Languages Spoken:
    English

    Brigitte Widemann is a Hematologist and an Oncologist practicing medicine in Bethesda, Maryland. Dr. Widemann is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Adult Soft Tissue Sarcoma, and Thyroidectomy.

    Distinguished in Neurofibromatosis
    Distinguished in Neurofibromatosis
    Referral may be required

    Johns Hopkins Children's Center

    1800 Orleans Street, Bloomberg 11N, Bloomberg 11N, 
    Baltimore, MD 
    Languages Spoken:
    English

    Dr. Cohen is Director of Pediatric Neuro-Oncology and Clinical Director of the Division of Pediatric Oncology at the Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins. He received his undergraduate degree at Brown University and earned his MD at the Upstate Medical University, in Syracuse, NY. He did his general Pediatric Residency and Chief Residency at the University of Colorado and completed his Pediatric Hematology/Oncology Fellowship at Johns Hopkins. He has served on the faculty since 1994. His research centers on clinical trials of novel therapeutics for children with brain tumors. Dr. Cohen is co-chair of the High-Grade Glioma committee for the Children's Oncology Group and in that capacity has a particular research interest in the development of therapeutics for the treatment of infiltrating gliomas. He serves on the scientific advisory board for a number of organizations including St. Baldricks and the Childhood Brain Tumor Foundation. He is on the editorial board for PDQ with responsibility for authorship of the pediatric CNS brain tumor summaries. The Pediatric Neuro-Oncology program conducts a broad range of research centered primarily around the development and testing of novel therapeutics for children with brain tumors. The multidisciplinary nature of this work translates into continual collaboration with specialists in pediatric neurosurgery, radiation oncology, neuropathology, neuroradiology, neurology, neuro-ophthalmology, neuropsychology, and other related disciplines. Dr. Cohen is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Glioma, Medulloblastoma, Brain Stem Cancer, Embryonal Tumor with Multilayered Rosettes, and Bone Marrow Aspiration. Dr. Cohen is board certified in American Board Of Pediatrics.

    Distinguished in Neurofibromatosis
    Pediatric Hematology Oncology
    Distinguished in Neurofibromatosis
    Pediatric Hematology Oncology
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Mariko Sato is a Pediatric Hematologist Oncology provider practicing medicine in Orange, California. Dr. Sato is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 26 other conditions, according to our data. Her clinical expertise encompasses Glioma, Medulloblastoma, Hepatoblastoma, Embryonal Tumor with Multilayered Rosettes, and Bone Marrow Aspiration. Dr. Sato is currently accepting new patients.

    Showing 1-20 of 130

    Last Updated: 06/30/2026

    When should I see a Neurofibromatosis doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis doctors near me?

    Look for the filter feature on the left side of the Neurofibromatosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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