The 20 Best Neurofibromatosis Doctors Near Me
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Johns Hopkins Outpatient Center
Dr. Jaishri Blakeley is the Marjorie Bloomberg Tiven Professor of Neurofibromatosis in Neurology, Oncology, and Neurosurgery at Johns Hopkins School of Medicine, director of the Johns Hopkins Comprehensive Neurofibromatosis Center and director of the Neurofibromatosis Therapeutic Acceleration Program (NTAP). She is an active clinician-scientist specializing in the care of people with NF1, NF2, LZTR1, SMARC1 schwannomatoses, and primary brain tumors. Her research expertise in the development of clinical trials for nervous system tumors and specifically, early clinical-translational studies including tumor pharmacokinetic and pharmacodynamic investigations, imaging biomarkers for rare nervous system tumors, and incorporation of patient-focused, functional endpoints into efficacy studies. She has been the national or international leader of 7 clinical trials focused on therapies for glioblastoma, NF1 and NF2. In 2012 she cofounded the NTAP to dramatically shift the landscape of NF1 via necessary, efficient, and expert discovery, translational and clinical research. NTAP focuses on therapeutics, fosters collaboration, facilitates open and timely sharing of results, and streamlines the research process to accelerate therapies for plexiform and cutaneous neurofibromas. Through NTAP, Dr. Blakeley has supported and collaborated with more than 80 laboratories and research teams across the globe enabling meaningful therapeutic development for NF1-associated neoplasms and supporting the development of an exceptional community of clinician scientists focused on NF1 via the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research. Her research and programmatic efforts are all in the service of improving outcomes for the patients with NF1, NF2, schwannomatosis, and primary brain cancer for whom she is honored to provide care. Dr. Blakeley is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy. Dr. Blakeley is board certified in American Board Of Psychiatry And Neurology.
Baylor Scott & White Center For Thoracic Surgery - Dallas
Dr. Schwartz is a thoracic surgeon with expertise in thoracic oncology, minimally invasive thoracic surgery, airway surgery, lung transplantation and extracorporeal membrane oxygenation. He completed a year of research focusing on thoracic oncology and endoscopic airway interventions. He has published many peer-reviewed publications and earned multiple clinical awards, including Chief Resident of the Year and the Charles McBurney Award. In addition, Dr. Schwartz serves in the following roles at Baylor University Medical Center: Chief, Department of Thoracic Surgery; Surgical Director, Lung Transplantation; Medical Director, Extracorporeal Membrane Oxygenation; and Surgical Director, Major Airway Disorders. He is married with four children and enjoys traveling, cooking, swimming and yoga. See Dr. Schwartz's Publications. Dr. Schwartz is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Adult Soft Tissue Sarcoma, Liposarcoma, Fibrosarcoma, Lung Transplant, and Gastrostomy. Dr. Schwartz is board certified in General Surgery- American Board Of Surgery/General Surgery, Thoracic And Cardiac Surgery- American Board Of Thoracic Surgery/Thoracic And Cardiac Surgery, General Surgery- American Board Of Surgery, and Thoracic And Cardiac Surgery- American Board Of Thoracic Surgery.
UPMC Children's Hospital Of Pittsburgh, Pediatric Neurological Surgery
Ian Pollack, MD, is Chief of Pediatric Neurosurgery at UPMC Children’s Hospital of Pittsburgh, A. Leland Albright Professor of Neurosurgery, and vice-chair for Academic Affairs at the University of Pittsburgh School of Medicine. He is professor of clinical and translational science and distinguished professor of neurosurgery at the University of Pittsburgh. Dr. Pollack is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Glioma, Gliomatosis Cerebri, Brain Tumor, Posterior Fossa Decompression, and Craniectomy. Dr. Pollack is board certified in American Board Of Neurological Surgery.
Adult Neurofibromatosis Type 1 (NF1) And Schwannomatosis Clinic
Dr. David Raleigh is a radiation oncologist who specializes in brain tumors. He cares for both adult and pediatric patients. Raleigh's research focuses on understanding the biological processes that cause brain tumors to grow. His goals are to uncover new measures of brain cancer and to identify cells for drugs to target. Raleigh earned a bachelor's degree in molecular and cell biology as well as a bachelor's degree in cognitive science from the University of California, Berkeley. He earned his doctoral degree in molecular pathogenesis – how disease develops at the molecular level – from the University of Chicago, followed by his medical degree from the Pritzker School of Medicine at the University of Chicago. He completed a residency in radiation oncology at UCSF. Raleigh is a member of the American Society of Clinical Oncology, American Society for Radiation Oncology, Pacific Pediatric Neuro-Oncology Consortium, Children's Oncology Group, Society for Neuro-Oncology, International Meningioma Society and North American Skull Base Society. At the UCSF Brain Tumor Center, Raleigh is a principal investigator with the Wolfe Meningioma Program Project. Dr. Raleigh is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Meningioma, Pineocytoma, Brain Tumor, and Gliomatosis Cerebri. Dr. Raleigh is board certified in American Board Of Radiology, Radiation Oncology. Dr. Raleigh is currently accepting new patients.
Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center
Joel Kaplan is a Hematologist and a Pediatrics provider practicing medicine in Charlotte, North Carolina. He has been practicing medicine for over 25 years. Dr. Kaplan is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Neuroblastoma, Embryonal Tumor with Multilayered Rosettes, Medulloblastoma, Langerhans Cell Histiocytosis, and Bone Marrow Aspiration. Dr. Kaplan is board certified in American Board Of Pediatrics and American Board Of Pediatrics, Pediatric Hematology And Oncology. Dr. Kaplan is currently accepting new patients.
Pasquale Striano practices practicing medicine in Genoa, Italy. Mr. Striano is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 72 other conditions, according to our data. His clinical expertise encompasses Epilepsy, Myoclonic Epilepsy, Epilepsy with Myoclonic-Atonic Seizures, Seizures, and Endoscopy.
Children's National Hospital
Roger Packer is a Pediatrics provider practicing medicine in Washington, Washington, D.c.. Dr. Packer is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Brain Tumor, Diffuse Midline Glioma H3 K27M-Mutant, Medulloblastoma, and Gliomatosis Cerebri.
University Of Iowa Stead Family Children's Hospital
Mohammed Milhem is a Hematologist practicing medicine in Iowa City, Iowa. Dr. Milhem is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Melanoma, Adult Soft Tissue Sarcoma, Alveolar Soft Part Sarcoma, and Fibrosarcoma.
Washington University
Angela Hirbe is an Oncologist practicing medicine in Saint Louis, Missouri. Dr. Hirbe is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), and Adult Soft Tissue Sarcoma.
Silverio Perrotta practices practicing medicine in Italy. Mr. Perrotta is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Anemia, Beta Thalassemia, Thalassemia, Congenital Hemolytic Anemia, and Splenectomy.
Yoshihiro Nishida practices practicing medicine in Nagoya, Japan. Mr. Nishida is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Desmoid Tumor, Fibromatosis, Adult Soft Tissue Sarcoma, Osteotomy, and Pancreaticoduodenectomy.
Nationwide Children's Hospital
Maryam Fouladi is a Hematologist and an Oncologist practicing medicine in Columbus, Ohio. Dr. Fouladi is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Diffuse Midline Glioma H3 K27M-Mutant, Glioma, Medulloblastoma, and Brain Stem Cancer.
Pierre Wolkenstein practices practicing medicine in Creteil, France. Mr. Wolkenstein is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Scalded Skin Syndrome, Stevens-Johnson Syndrome, and Kidney Transplant.
Memorial Sloan Kettering Cancer Center
Ira Dunkel is a Hematologist and an Oncologist practicing medicine in New York, New York. Dr. Dunkel is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Retinoblastoma, Diffuse Midline Glioma H3 K27M-Mutant, Glioma, and Brain Stem Cancer. Dr. Dunkel is currently accepting new patients.
Office
Jing Li is a Holistic Medicine provider practicing medicine in Aurora, Illinois. Ms. Li is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 53 other conditions, according to our data. Her clinical expertise encompasses Liver Failure, Pancreatic Ductal Adenocarcinoma, Periodontitis, Osteotomy, and Endoscopy.
Siler City Community Health Center
Michael Fisher is a primary care provider, practicing in Family Medicine in Siler City, North Carolina. Dr. Fisher is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), Osteotomy, and Intrauterine Device Insertion.
Seattle Children's Hospital
Douglas Hawkins is a Hematologist and an Oncologist practicing medicine in Seattle, Washington. Dr. Hawkins is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Rhabdomyosarcoma, Adult Soft Tissue Sarcoma, Osteosarcoma, Osteotomy, and Bone Marrow Aspiration.
Office
Brigitte Widemann is a Hematologist and an Oncologist practicing medicine in Bethesda, Maryland. Dr. Widemann is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Adult Soft Tissue Sarcoma, and Thyroidectomy.
Johns Hopkins Children's Center
Dr. Cohen is Director of Pediatric Neuro-Oncology and Clinical Director of the Division of Pediatric Oncology at the Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins. He received his undergraduate degree at Brown University and earned his MD at the Upstate Medical University, in Syracuse, NY. He did his general Pediatric Residency and Chief Residency at the University of Colorado and completed his Pediatric Hematology/Oncology Fellowship at Johns Hopkins. He has served on the faculty since 1994. His research centers on clinical trials of novel therapeutics for children with brain tumors. Dr. Cohen is co-chair of the High-Grade Glioma committee for the Children's Oncology Group and in that capacity has a particular research interest in the development of therapeutics for the treatment of infiltrating gliomas. He serves on the scientific advisory board for a number of organizations including St. Baldricks and the Childhood Brain Tumor Foundation. He is on the editorial board for PDQ with responsibility for authorship of the pediatric CNS brain tumor summaries. The Pediatric Neuro-Oncology program conducts a broad range of research centered primarily around the development and testing of novel therapeutics for children with brain tumors. The multidisciplinary nature of this work translates into continual collaboration with specialists in pediatric neurosurgery, radiation oncology, neuropathology, neuroradiology, neurology, neuro-ophthalmology, neuropsychology, and other related disciplines. Dr. Cohen is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Glioma, Medulloblastoma, Brain Stem Cancer, Embryonal Tumor with Multilayered Rosettes, and Bone Marrow Aspiration. Dr. Cohen is board certified in American Board Of Pediatrics.
Mariko Sato is a Pediatric Hematologist Oncology provider practicing medicine in Orange, California. Dr. Sato is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 26 other conditions, according to our data. Her clinical expertise encompasses Glioma, Medulloblastoma, Hepatoblastoma, Embryonal Tumor with Multilayered Rosettes, and Bone Marrow Aspiration. Dr. Sato is currently accepting new patients.
Last Updated: 06/30/2026





