The 20 Best Neurofibromatosis Doctors Near Me in Washington, DC

Roger Packer is a Pediatrics provider practicing medicine in Washington, Washington, D.c.. Dr. Packer is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Brain Tumor, Diffuse Midline Glioma H3 K27M-Mutant, Medulloblastoma, and Gliomatosis Cerebri.

Srivandana Akshintala is a Hematologist and an Oncologist practicing medicine in Washington, Washington, D.c.. Dr. Akshintala is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neuroendocrine Tumor, Ectodermal Dysplasias, and Thyroidectomy.

Narendra Shet is a Pediatric Radiologist practicing medicine in Washington, Washington, D.c.. He has been practicing medicine for over 19 years. Dr. Shet is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Atresia of Small Intestine, Scoliosis, Short Stature (Growth Disorders), and Situs Inversus. Dr. Shet is board certified in Pediatric Radiology: American Board Of Radiology, 2015 and Diagnostic Radiology: American Board Of Radiology, 2012.

Harutyun Haroyan is a Pediatric Radiologist practicing medicine in Washington, Washington, D.c.. He has been practicing medicine for over 22 years. Dr. Haroyan is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Hirschsprung Disease, Cerebral Hypoxia, Atresia of Small Intestine, and Dextrocardia with Situs Inversus. Dr. Haroyan is board certified in Pediatric Radiology: American Board Of Radiology, 2016, Neuroradiology: American Board Of Radiology, 2016, and Diagnostic Radiology: American Board Of Radiology, 2013.

Ramon Sanchez is a Pediatric Radiologist practicing medicine in Washington, Washington, D.c.. He has been practicing medicine for over 33 years. Dr. Sanchez is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Hirschsprung Disease, Scoliosis, Caudal Regression Syndrome, and Spondylocarpotarsal Synostosis Syndrome. Dr. Sanchez is board certified in Pediatric Radiology: American Board Of Radiology, 2014 and Diagnostic Radiology: American Board Of Radiology, 2012.

Eglal Shalaby-Rana, MD, is a radiologist in the Division of Diagnostic Imaging and Radiology at Children's National Hospital. She is the director of performance improvement. Dr. Rana is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Hirschsprung Disease, Scoliosis, Knock Knees, and Biliary Atresia. Dr. Rana is board certified in Pediatric Radiology: American Board Of Radiology, 1995 and Diagnostic Radiology: American Board Of Radiology, 1987.

Jonathan Zember is a Pediatric Radiologist practicing medicine in Washington, Washington, D.c.. He has been practicing medicine for over 15 years. Dr. Zember is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His clinical expertise encompasses Marshall-Smith Syndrome, Perlman Syndrome, Cantu Syndrome, and Megalencephaly-Capillary Malformation Syndrome. Dr. Zember is board certified in Pediatric Radiology: American Board Of Radiology, 2019 and Diagnostic Radiology: American Board Of Radiology, 2017.

Steven Stasheff is a Pediatric Neurologist practicing medicine in Washington, Washington, D.c.. He has been practicing medicine for over 34 years. Dr. Stasheff is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Optic Glioma, Gomez Lopez Hernandez Syndrome, and Marcus Gunn Phenomenon. Dr. Stasheff is board certified in American Board Of Psychiatry And Neurology, 1999.

Lindsay Kilburn, MD, comes to Children's National Hospital from Texas Children’s Hospital in Houston, TX, where she was an assistant professor of pediatrics in the neuro-oncology and pharmacology programs. Dr. Kilburn graduated with a degree in Environmental Sciences from the University of Virginia. After graduating from Eastern Virginia Medical School, she completed her pediatric training at the Children’s Hospital of The King’s Daughters in Norfolk, VA, and her hematology/oncology fellowship at Texas Children’s Hospital/Baylor College of Medicine in Houston, TX. She also has received training in pharmacology from both Thomas Jefferson University in Philadelphia and the Baylor College of Medicine in Houston. Dr. Kilburn is an associate professor, pediatrics at George Washington University School of Medicine. Her research focuses on the development and evaluation of new therapeutic agents for children with pediatric brain tumors through clinical trials. She is committed to the improvement of palliative and supportive care. Dr. Kilburn grew up outside of Philadelphia and is married with young twins. Outside of work, she enjoys sailing, hiking, and traveling with her family. Dr. Kilburn is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Diffuse Midline Glioma H3 K27M-Mutant, Brain Stem Cancer, Glioma, and Optic Glioma. Dr. Kilburn is board certified in Pediatric Hematology-Oncology: American Board Of Pediatrics, 2009 and Pediatrics: American Board Of Pediatrics, 2004.

Mi Ran Shin, MD, MPH, is an assistant professor of pediatrics and a pediatric physiatrist at Children's National Hospital. She is a graduate of Cornell University and Korea University of Medicine. She completed her Physical Medicine and Rehabilitation training at Johns Hopkins Hospital and completed her Pediatric Rehabilitation Fellowship at Children’s National Hospital. She also completed her Master’s in Public Health at Johns Hopkins Bloomberg School of Public Health, with a focus on injury prevention for children with disabilities and advocacy for children with disabilities. Dr. Shin serves as pediatric physiatrist in a few multidisciplinary clinics including: Leukodystrophy Clinic, Neuro-oncology Clinic, Neurofibromatosis Clinic and Spina Bifida Clinic. She also serves a consultant in Safe Kids DC for children with disabilities and has a special interest in injury prevention. She is the associate program director for the Pediatric Rehabilitation Medicine Fellowship at Children’s National. Dr. Shin is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Myelomeningocele, X-Linked Infantile Spinal Muscular Atrophy, Spinal Muscular Atrophy Type 2, and Spinal Muscular Atrophy with Arthrogryposis. Dr. Shin is board certified in Pediatric Rehabilitation Medicine: American Board Of Physical Medicine And Rehabilitation, 2021 and American Board Of Physical Medicine And Rehabilitation, 2019.

Joseph Zahn is a Dermatologist practicing medicine in Washington, Washington, D.c.. Dr. Zahn is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Prurigo Nodularis, Squamous Cell Skin Carcinoma, Atopic Dermatitis, and Bowen's Disease.

Rajiv Chopra is a Neuroradiologist practicing medicine in Washington, Washington, D.c.. Dr. Chopra is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Herniated Disk, Retroversion of the Uterus, Rathke Cleft Cyst, and Schwannomatosis.

Michael Cardis is a Dermatologist practicing medicine in Washington, Washington, D.c.. Dr. Cardis is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Bullae, Bullous Pemphigoid, Linear Nevus Sebaceous Syndrome, and Acquired Ichthyosis.

Ellen Pritchett is a Dermatologist practicing medicine in Washington, Washington, D.c.. Dr. Pritchett is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Hidradenitis Suppurativa, Vitiligo, GAPO Syndrome, and Keloids.

Hung Kim is an Otolaryngologist practicing medicine in Washington, Washington, D.c.. Dr. Kim is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Acoustic Neuroma, Schwannoma, Neurofibromatosis Type 2 (NF2), Ruptured Eardrum, and Myringotomy.

"Eugene (Gene) Hwang, MD, is chief of the Division of Oncology at Children’s National Hospital in Washington, D.C. He is also part of the Children's National Hospital pediatric neuro-oncology team, focusing on treating children with brain tumors. Dr. Hwang has developed and led many novel early phase therapeutic clinical trials with a focus on immunotherapeutic trials, and he also leads trials focused on gene therapy and new, targeted agents. He is the site Principal Investigator of the Pediatric Brain Tumor Consortium, where he is the co-chair of the Immunotherapy Working Group. He serves on grant review committees and on the scientific advisory boards of several large foundations. For each patient, Dr. Hwang carefully considers the best possible options for treatment, trying new, cutting edge treatments coupled with the best available known therapies. Dr. Hwang is not only dedicated to finding a cure for cancer, but also to making the current treatments as safe as possible for children: ""We often focus on curing the children - that's the number one goal - but we also need to pay attention to the toxicity of these treatments, and what quality of life the children will have after treatment."" Dr. Hwang is involved in several international efforts to study how to best mitigate treatment side effects. In the meantime, Dr. Hwang makes sure he is doing everything he can to combat pain, dizziness, fatigue and other common side effects of cancer treatments by leveraging the multidisciplinary team approach of Children's National. He sees this as something the organization does exceptionally well, and thinks that having so many people focus on a single patient in a single visit is crucial to well-being during cancer treatment.". Dr. Hwang is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Pineocytoma, Glioma, Medulloblastoma, and Pineoblastoma. Dr. Hwang is board certified in Pediatric Hematology-Oncology: American Board Of Pediatrics, 2009 and Pediatrics: American Board Of Pediatrics, 2005.

Sinan Turnacioglu, MD, is a neurodevelopmental pediatrician and chief of the Division of Neurodevelopmental Pediatrics and Neurogenetics at Children’s National Hospital. He is also an assistant professor of Neurology and Pediatrics at the George Washington University School of Medicine and Health Sciences. He has been in practice for more than 20 years, beginning his career in general pediatrics before completing fellowship training in neurodevelopmental disabilities at Children’s National. Dr. Turnacioglu cares for children and adolescents across general developmental pediatrics and multiple specialty neurogenetics clinics. He has particular expertise in autism spectrum disorder, Fragile X syndrome, Smith‑Magenis syndrome, Rett syndrome, neurofibromatosis, and other rare genetic and neurodevelopmental conditions, reflecting his leadership roles in the Fragile X Clinic, Rett Syndrome Clinic and Neurofibromatosis Program at Children’s National. Dr. Turnacioglu’s clinical and academic work focuses on neurogenetics, family‑centered developmental care and improving access to high‑quality diagnostic and therapeutic services for neurodivergent children. He founded the DC Autism Clinic for the Underserved and has contributed to national efforts to expand access to genomic testing and evidence‑based neurodevelopmental care. He also serves as program director for the Neurodevelopmental Disabilities Fellowship at Children’s National and is active in medical education, mentorship and national curriculum development. In addition to his clinical work, Dr. Turnacioglu has led and contributed to multiple research studies and clinical trials involving autism, Fragile X syndrome, Rett syndrome and virtual‑reality–based interventions. He has served as a co‑investigator on federally-funded research and holds several U.S. patents related to therapeutic and diagnostic uses of virtual reality for autism spectrum disorder. His work with Floreo, Inc., where he was chief medical officer from 2017–2023, helped advance innovative digital tools to support social communication and safety skills for autistic individuals. He has authored peer‑reviewed publications and book chapters on neurodevelopmental disabilities, metabolic disorders, autism intervention research and conceptual frameworks in pediatric neurology. Dr. Turnacioglu is board‑certified in child neurology and in neurodevelopmental disabilities and remains active in national professional organizations, including the American Academy of Pediatrics, the American Academy of Neurology, the Child Neurology Society, the Society for Developmental and Behavioral Pediatrics and the Neurofibromatosis Clinical Research Consortium. He grew up in New Jersey and lives in Bethesda, MD, with his family. Outside of work, he enjoys running, reading and tabletop games. Publications ORCID. Dr. Turnacioglu is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Autism Spectrum Disorder, Neurofibromatosis, Rasmussen Encephalitis, and Legius Syndrome. Dr. Turnacioglu is board certified in Neurodevelopmental Disabilities: American Board Of Pediatrics, 2015, American Board Of Psychiatry And Neurology, 2013, and Pediatrics: American Board Of Pediatrics, 2003.

Brian R. Rood, MD, is the director of clinical neuro-oncology and the medical director of the Brain Tumor Institute at Children's National Hospital. Dr. Rood is also a principal investigator in the Center for Cancer and Immunology Research at Children's National Research Institute and a professor of pediatrics at the George Washington University School of Medicine and Health Sciences and adjunct professor at the Fralin Biomedical Research Institute at Virginia Tech. He received a Bachelor of Arts in English Literature from The Pennsylvania State University and completed medical school at Jefferson Medical College. He completed his pediatric residency training at the University of Vermont. Dr. Rood received his pediatric hematology/oncology training at Children's National. He joined the faculty of Children’s National in 2002 after completing a fellowship in pediatric hematology/oncology, as well as a research fellowship in the molecular biology of brain tumors, both at Children’s National and Children’s National Research Institute. Currently, Dr. Rood’s research focuses on the application of proteomics in cancer biology investigation, neoantigen identification and biomarker development. He has also been studying the contribution of germline microsatellite genotypes to pediatric brain tumor predisposition. He currently serves as the executive co-chair of the Children’s Brain Tumor Network, an international consortium of 28 institutions that maintains the world’s largest pediatric brain tumor tissue and data repository, which are freely provided to the research community to support the development of groundbreaking clinical trials through data-driven precision medicine. Dr. Rood has two children. His favorite pastimes include designing and building furniture, sailing, reading, and playing the mandolin. Dr. Rood is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Medulloblastoma, Embryonal Tumor with Multilayered Rosettes, Glioma, and Diffuse Midline Glioma H3 K27M-Mutant. Dr. Rood is board certified in Pediatric Hematology-Oncology: American Board Of Pediatrics, 2002 and Pediatrics: American Board Of Pediatrics, 1998.

Robert Keating, MD, is currently a McCullough distinguished professor, interim senior vice president, Neuroscience and Behavioral Medicine Center and chief of Neurosurgery at Children’s National Hospital. A graduate of Georgetown University Medical School, he completed a neurosurgery residency and fellowship in pediatric neurosurgery/craniofacial surgery at the Albert Einstein and Montefiore Medical Center in the Bronx, NY. Following his training, Dr. Keating served in the U.S. Navy and was stationed at the Oakland Naval Hospital serving as the chief from 1991-1994. After his time in the Navy, he returned to the Bronx where he was on staff at Montefiore Medical Center as well as the Bronx Municipal Hospital Center for two years before coming back to Washington, D.C., in 1996 to join the faculty at Children’s National Dr. Keating's past appointments include the president of the medical staff at Children’s National, as well as head of credentials. He currently maintains a busy practice of pediatric neurosurgery, with an emphasis on tumors, Chiari malformations, craniofacial reconstruction, spinal dysraphism, spasticity and brachial plexus surgery. As a member of the American Society of Pediatric Neurosurgery and International Society of Pediatric Neurosurgery, he has published and presented extensively in the field. His publications include the previous texts, “An Atlas of Orbitocranial Surgery” and “Tumors of the Pediatric Nervous System” (2nd edition published in 2013), with current work on Neurosurgical Operative Atlas, (2nd ed. Goodrich JT, and Keating RF, Thieme) due for publication in 2018. He is also chair, medical advisory committee on the Board of the American Syringomyelia Alliance Project as well as a founding member of the Posterior Fossa Society and maintains long-standing membership in the CNS, AANS, ASPN and ISPN. Dr. Keating is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Craniosynostosis, Metopic Ridge, Chiari Malformation Type 1, Posterior Fossa Decompression, and Craniectomy. Dr. Keating is board certified in Neurological Surgery: American Board Of Neurological Surgery, 2000 and Neurological Surgery: American Board Of Neurological Surgery, 1993.

Pooja Gupta is a Pediatrics provider practicing medicine in Washington, Washington, D.c.. She has been practicing medicine for over 11 years. Dr. Gupta is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. Her clinical expertise encompasses Clouston Syndrome, Ectodermal Dysplasias, Neurofibromatosis, and Aplasia Cutis Congenita. Dr. Gupta is board certified in American Board Of Anesthesiology, 2021.