The 20 Best Neurofibromatosis Doctors Near Me in Wilmington, DE

Karen Gripp is a Medical Genetics provider in Wilmington, Delaware. Dr. Gripp is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Costello Syndrome, RASopathies, Noonan Syndrome, and Gingival Fibromatosis with Hypertrichosis.

Dr. Pimpiroon Ploysangam spent most of her childhood in Bangkok, Thailand. She graduated with distinction from Boston University and received her medical degree from the University of Cincinnati. Her ophthalmology residency was at State University of New York (SUNY) Buffalo, where she served as chief resident and cultivated her interests in pediatrics and oculoplastics. She completed her pediatric ophthalmology and strabismus fellowship at Duke University, followed by an oculoplastics fellowship at the University of Pittsburgh Medical Center. Pediatrics has always had a special place in my heart. Pediatric ophthalmology truly marries my love of working with our children with the large scope of practice and surgical procedures. I have a special interest in pediatric oculoplastics. Oculoplastics beautiful balances creativity and anatomy to create an outcome that is functional but also cosmetically appropriate. Every case is unique. As a physician, I recognize that I am sometimes meeting a sick patient and their family at their worst. Such encounters are humbling, and it reminds me that it is a privilege to be my patient’s advocate. Dr. Ploysangam is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Strabismus, Epicanthal Folds, Oculomotor Apraxia Cogan Type, and Microphthalmia Syndromic 9.

I was born in India to a family of doctors, so I did not have to look far for inspiration. I’m married to a pediatric cardiologist, also with duPont Hospital for Children, and I’m grateful for the opportunities I have every day to improve lives for kids and their families. As a father and surgeon, I have a soft spot for helping children in any way I can. It’s a privilege to be able to improve their lives even if there are challenges. I love to see kids getting back to enjoying life to its fullest and being able to help people deal with difficult issues. One of my proudest professional moments was the day I walked into the operating room and had the privilege to start surgically caring for children. I’m still passionate about my work and the opportunities I have every day to improve the lives of kids, one child at a time. The children I treat have serious medical problems, and it takes a whole team of professionals, working in lots of related medical and sociological fields, to make a difference in their lives, and the lives of their families. It’s an honor to be part of that team. At the end of the day, it’s all about the kids. Dr. Thacker is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Osteochondroma, Knock Knees, Hereditary Multiple Osteochondromas, Chondroblastoma, and Osteotomy.

Dr. Dorothy Hendricks has been a pediatric ophthalmologist at Nemours for 16 years. She enjoys treating children as they grow and helping to change their lives. I treat children because of the impact that can be made on a child’s life. Even small beneficial changes to a child’s vision can help emotionally, psychologically, and socially. It’s important for me to help children not feel held back. I’m passionate about being part of a multidisciplinary group that can holistically care for a child. By treating a child from birth to adulthood, I can help improve the vision and overall health of a child; allowing the child to thrive and succeed in whatever they choose to do. Dr. Hendricks is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Amblyopia, Strabismus, Retinochoroidal Coloboma, and Esotropia.

Dr. Jin completed her Internship, Residency, and Fellowship at Duke University Medical Center. She has also completed a graduate study on retinal degeneration. Dr. Jin has been with Nemours since 2002. I decided to go into pediatric ophthalmology because my amazing mentors during residency showed me the true value of helping children. I also had two young children of my own at the time, which made me realize the importance of keeping children healthy. I am passionate about working with my skilled team of colleagues to develop the best treatment plans for my patients. I strive to treat children and their families the same way that I would want my family treated. Dr. Jin is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Amblyopia, Strabismus, Retinopathy Pigmentary Mental Retardation, Ocular Albinism, and Thrombectomy.

Joseph Handler is a Neurologist in Wilmington, Delaware. Dr. Handler has been practicing medicine for over 38 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Cerebellar Degeneration, Alzheimer's Disease, Lewy Body Dementia (LBD), and Memory Loss.

John Pollard is a Neurologist in Wilmington, Delaware. Dr. Pollard is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Epilepsy, Seizures, Generalized Tonic-Clonic Seizure, and Memory Loss.

Both of my parents were in the medical field and strongly influenced the direction of my career. I became a physical therapist, which I enjoyed immensely, but I thought I could make a different contribution to patient care by becoming a physician. In radiology, we are part of the medical team that helps diagnose or exclude an illness and we help to direct the course of our patient’s treatment. Working with children is an amazing experience. Kids are so resilient and bounce back from all types of difficult situations. They each have such a unique perspective and we try our best to tailor our interactive imaging procedures to the child. Sometimes this involves providing anatomy lessons to teen patients, other times it involves just “getting it over with.” We aim to make our imaging procedures as interesting and as comfortable as possible. My areas of interest include: Pediatric Body Imaging  Fetal Imaging Child Abuse I try to provide the most accurate information based on our imaging studies to the patient’s medical team so that the child can be treated as quickly as possible. I am fortunate to work with an incredible group of medical practitioners at Nemours/Alfred I. duPont Hospital for Children who share my passion to provide the highest quality medical care to all children. Dr. Harty is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are X-Linked Spondyloepiphyseal Dysplasia Tarda, Weissenbacher-Zweymuller Syndrome, Kniest Dysplasia, and Spondyloepiphyseal Dysplasia.

Dr. Joseph Piatt is the chief of the Division of Pediatric Neurosurgery, and a current professor of neurological surgery and pediatrics at the Sidney Kimmel Medical College of Thomas Jefferson University. Born in Pittsburgh, Dr. Piatt obtained his undergraduate degree from Swarthmore College. He went to medical school at the University of Pennsylvania; residency at Duke University in North Carolina; and fellowship at The Hospital for Sick Children in Toronto while he was on active duty for the U.S. Army. After 2 more years in uniform at Madigan Army Medical Center, Dr. Piatt took his first academic position at the Oregon Health Science University in Portland, Oregon. At the end of the millennium, he returned to the East to work at St. Christopher’s in Philadelphia and then at Nemours Children’s Hospital, Delaware. He has been at Nemours for 14 years. I enjoy working with the family dynamics of children and their parents/guardians. I love being able to help children and bring joy to their families. I am passionate about providing clarity and understanding in issues surrounding a child’s health. My goals are to employ all the resources of medical science and my own personal experience to provide the best quality care to children with neurological conditions that require surgical intervention. I strive to continue to help advance the medical science of pediatric neurosurgery for all patients and families. I take advantage of 35 years of experience in finding the right word to communicate with patients and parents with respect and clarity. Dr. Piatt is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Increased Head Circumference, Hydrocephalus, Moyamoya Disease, and Plagiocephaly.

Michael Moore is a Pediatric Radiologist and a Radiologist in Wilmington, Delaware. Dr. Moore has been practicing medicine for over 22 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Spondylocarpotarsal Synostosis Syndrome, Caudal Regression Syndrome, Scoliosis, and Hypochondroplasia.

Archana Malik is a Pediatric Radiologist and a Radiologist in Wilmington, Delaware. Dr. Malik is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Spondylocarpotarsal Synostosis Syndrome, Caudal Regression Syndrome, Scoliosis, and Caffey Disease.

In addition to my work as a pediatric orthopedic surgeon, the Shands/MacEwen Endowed Chair of Orthopaedic Surgery at Nemours Children’s Hospital, Delaware, and division chief of the Nemours Spine and Scoliosis Center, I help educate the next generation of orthopedic physicians. I am the Clinical Fellowship Director Emeritus for the orthopedics department at Nemours Children’s Hospital, Delaware. I train residents, fellows and visiting observers in advanced spinal deformity techniques. I’m a professor of orthopedic surgery and pediatrics at Sidney Kimmel Medical College of Thomas Jefferson University, and frequently teach and lecture at national and international courses, educational symposia, conferences and other institutions. I am vice president of the Scoliosis Research Society, president of Setting Scoliosis Straight Foundation, a member of the Pediatric Orthopaedic Society of North America and a member of the Medical and Scientific Board of the National Spine Health Foundation. In addition, I have authored more than 200 research articles and 30 book chapters, and serve as a reviewer of four journals. Children are amazing. They just want to get better so they can get back to being kids. I enjoy giving each patient and family the personalized and customized attention they need, and making sure their questions are answered. There’s no template for this kind of care. I’m proud to be at Nemours Children’s Hospital, Delaware. We handle the most complex cases and teach the techniques other people come here to learn to do. Every person in our department is a national leader in his or her field. You couldn’t duplicate a group like this. It’s a real privilege to work with a team this good. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Scoliosis, Kyphosis, Adolescent Idiopathic Scoliosis, Spinal Fusion, and Osteotomy.

Dr. Evan Graber is a board-certified pediatrician who specializes in pediatric endocrinology. He has authored several papers about endocrine disorders. He is a member of the American Academy of Pediatrics, the American Osteopathic Association, the Pediatric Endocrine Society and the Endocrine Society. I worked a lot with children throughout high school and college and I have always felt like I establish a good rapport with children and their families. I love coming to work every day.Endocrinology always interested me because it’s a field that allows a physician to follow a patient from childhood until he or she “graduates” to adult medical care. It’s really important for me to be able to see these kids grow and succeed, as well as being able to form a relationship with their families. I also enjoy the problem-solving aspect of endocrinology, where I can put the pieces of the puzzle together to get a diagnosis and hopefully improve my patients’ quality of life. Every child is different, every family is different, and I like to be able to personalize medical care. I also think establishing a dialogue with families is very important when it comes to providing good patient care. I am passionate about advocating for my patients. It’s amazing to me that in 2015, there is still a lot of misunderstanding about how to handle conditions like diabetes —mostly from community members who might interact with kids with diabetes. They’re scared of the condition because they’re not familiar with the care involved with diabetes treatment the way the families are. I think it’s important to make people comfortable with it, and help them understand that kids with diabetes can live like everyone else, and that there are set protocols that we teach children and families — there’s nothing to be scared of. When I describe diabetes to children I explain that they’re just like everyone else, they just have to do a little “extra.” I think it’s important to spread that message. I try to keep the lines of communication open between the families I treat and me. I want my patients to understand why I’m doing a given test. I find that families are more willing to discuss options when they understand their care, and they appreciate when I discuss why I’m choosing a certain treatment. It results in a better relationship with the family, and that improves patient care.I also try to make myself as accessible as I can. I’ll call families with test results, and will make time to see families if they need to come to the hospital to discuss things with me personally. I’ll advocate for my patients with insurance companies or pharmacies to get medications cleared. I want my patient families to know that I’ll work with them to make sure they get the best care possible. Dr. Graber is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Short Stature (Growth Disorders), Idiopathic Short Stature (ISS), Familial Short Stature (FSS), Precocious Puberty, and Hormone Replacement Therapy (HRT).

Russell Cross is a Cardiologist in Wilmington, Delaware. Dr. Cross has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Heart Murmurs, Orthostatic Hypotension, Familial Dysautonomia, and Ebstein's Anomaly.

Nisha Agasthya is an Intensive Care Medicine specialist and a Pediatrics provider in Wilmington, Delaware. Dr. Agasthya has been practicing medicine for over 14 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Asthma in Children, Legius Syndrome, Type 1 Diabetes (T1D), and Genetic Epilepsy with Febrile Seizures Plus (GEFS+).

Maura Mcmanus is a Physiatrist in Wilmington, Delaware. Dr. Mcmanus has been practicing medicine for over 8 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Spasticity, and Moebius Syndrome.

Dr. Jeffery Campbell has been a pediatric neurosurgeon at Nemours for 20 years. His most notable work is with kids that have skeletal dysplasia and he acts as the neurosurgical component of our larger skeletal dysplasia program at Nemours. Most of his research has been in dwarfism and osteogenesis imperfecta (OI). Prior to Nemours, he worked in a private practice in Charleston, SC. When I was in medical school, I knew that I wanted to do something “brain-related.” During my fourth year, I did a neurology rotation and thoroughly enjoyed the immediate feedback of surgery. I split my residency time between pediatric and adult hospitals, but quickly realized that I loved working with kids. I was able to see kids get better and found the impact I had on them gratifying. My goal as a doctor is to have a long-term impact on someone’s life and treating kids was my path to do just that. I am passionate about providing the best possible care for all children. I enjoy being on the cutting edge of treating rare problems on the skeletal dysplasia spectrum and I take pride in people traveling to Nemours from all over the country to seek such treatment. I love that I can do things that can’t be done anywhere else. I believe that health care should be a team sport. I always advocate for team approaches, especially with complicated cases. I actively create multidisciplinary teams for many of my patients to give them the very best care. Dr. Campbell is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Achondroplasia, Increased Head Circumference, Syringomyelia, Bone Graft, and Adenoidectomy.

I’ve always enjoyed puzzles and the satisfaction once a puzzle is completed. That is one reason that attracted me to the field of pediatric neurology, specifically epilepsy. It’s heart-warming when the puzzle pieces fit together and I’m able to help my patients understand their neurological disorder so we can work as a team to find the best treatment plan. I love working with children because they are honest and resilient. When they smile and laugh, the world just lights up. I chose my field of pediatric neurology because of my fascination with the brain, in particular the plasticity of a young brain where timely treatment can have an impact on the child’s cognitive future. I’m passionate about helping my patients and their families attain the best quality of life, and to achieve this requires a trusting partnership and teamwork between my team, my patients and their families.  I have special interest in the treatment of intractable epilepsy, and am very familiar with the use of dietary therapies, neurostimulation and epilepsy surgery in the treatment of epilepsy. Few people know a child better than the child’s caretaker. So I always try to listen and work together as a team with my patients and their caretakers. I strive to stay up-to-date with the latest innovations and treatment options to provide my patients the best care possible so they can live life to its fullest. Dr. Tran is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), and Absence Seizure.

I grew up and attended medical school in India before moving to the U.S. My dad, an engineer, influenced my deep understanding that many people lack the advantages other people enjoy. It’s humbling to be able to positively impact the life of every child. Radiologists work with clinicians behind the scenes to help guide their decision-making and we don’t often meet patients personally. But we do get great personal satisfaction from our work. I once visited with an infant who had a rare condition I’d helped doctors diagnose. When the baby started crawling toward me, it was truly amazing and rewarding. It’s heartbreaking to see handicapped children who can’t get the medical care they need. I feel strongly about caring for people who don’t have the economic resources to take care of themselves. Dr. Kandula is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Aplasia Cutis Congenita, and Ectodermal Dysplasias.

I grew up in the New York City area. As a child, I was something of a science geek. I enjoyed applying what I learned to real life situations. As a pediatric cancer specialist, I always focus on helping kids with cancer and brain tumors enjoy the best possible quality of life. I have tremendous respect for the children in my care. Although most are very sick, they handle adversity amazingly well. They don’t complain and just want to be done with treatment so they can go on with their lives. I try to make a difference through hope and healing. The fact that Nemours is so active in cancer research means we have access to experimental treatment options that offer real hope for a cure. Just as important, we do everything we can to make a terrible process less terrible by alleviating any suffering. Dr. Walter is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Medulloblastoma, Glioma, Acute Lymphoblastic Leukemia (ALL), and Embryonal Tumor with Multilayered Rosettes.