The 20 Best Neurofibromatosis Doctors Near Me in Detroit, MI

Find the Top Neurofibromatosis Experts and Specialists

Last Updated: 04/28/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 321 doctor with experience in Neurofibromatosis near Detroit, MI. Of these, 290 are Experienced, 28 are Advanced and 3 are Distinguished.

Location
LocationClose
321 providers found
    Distinguished in Neurofibromatosis
    Pediatrics | Surgical Oncology
    Distinguished in Neurofibromatosis
    Pediatrics | Surgical Oncology

    Corewell Health Orthopedic Oncology - Lemmen-Holton

    145 Michigan Street Northeast, Suite 5500, 
    Grand Rapids, MI 
    Experience:
    24+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Matthew Steensma is a Pediatrics specialist and a Surgical Oncologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 24 years. Dr. Steensma is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Fibrosarcoma, Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis, Adult Soft Tissue Sarcoma, and Hip Replacement. Dr. Steensma is board certified in American Board Of Orthopaedic Surgery. Dr. Steensma is currently accepting new patients.

    Distinguished in Neurofibromatosis
    Internal Medicine
    Distinguished in Neurofibromatosis
    Internal Medicine

    Corewell Health Grand Rapids Hospitals Academic Medicine Associates - 275 Michigan St NE

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
    Experience:
    33+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Bernard Eisenga is an Internal Medicine provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 33 years. Dr. Eisenga is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Hypertension, Legius Syndrome, and Obesity in Children. Dr. Eisenga is board certified in American Board Of Internal Medicine. Dr. Eisenga is currently accepting new patients.

    Advanced in Neurofibromatosis
    Advanced in Neurofibromatosis

    Corewell Health Grand Rapids Hospitals Neurology - 275 Michigan St NE

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
    Experience:
    30+ years
    Languages Spoken:
    English

    Cynthia Hingtgen is a Neurologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 30 years. Dr. Hingtgen is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Multiple Sclerosis (MS), and Relapsing Multiple Sclerosis (RMS). Dr. Hingtgen is board certified in American Board Of Psychiatry And Neurology.

    Learn about our expert tiers
    Advanced in Neurofibromatosis
    Pediatric Neurology
    Advanced in Neurofibromatosis
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
    Experience:
    34+ years
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Fain is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 34 years. Dr. Fain is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 84 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and Seizures. Dr. Fain is board certified in American Board Of Psychiatry And Neurology, Epilepsy - 2016 and American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 1999. Dr. Fain is currently accepting new patients.

    Advanced in Neurofibromatosis
    Pediatric Neurology
    Advanced in Neurofibromatosis
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
    Experience:
    12+ years
    Languages Spoken:
    English
    Accepting New Patients

    Robin Cook is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 12 years. Dr. Cook is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Absence Seizure, Partial Seizure, Epilepsy Juvenile Absence, and Tuberous Sclerosis Complex. Dr. Cook is board certified in American Board Of Psychiatry And Neurology, Epilepsy - 2020 and American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 2019. Dr. Cook is currently accepting new patients.

    Advanced in Neurofibromatosis
    Advanced in Neurofibromatosis

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
    Experience:
    17+ years
    Languages Spoken:
    English

    Julie Conley is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 17 years. Dr. Conley is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 39 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Legius Syndrome, Esotropia, and RASopathies. Dr. Conley is board certified in American Board Of Ophthalmology.

    Advanced in Neurofibromatosis
    Pediatric Hematology Oncology
    Advanced in Neurofibromatosis
    Pediatric Hematology Oncology

    Helen DeVos Children's Hospital Hematology And Oncology

    100 Michigan Street Northeast, Floor 10, 
    Grand Rapids, MI 
    Experience:
    44+ years
    Languages Spoken:
    English
    Accepting New Patients

    Albert Cornelius is a Pediatric Hematologist Oncology provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 44 years. Dr. Cornelius is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Hereditary Spherocytosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Medulloblastoma. Dr. Cornelius is board certified in American Board Of Pediatrics, Pediatric Hematology-Oncology - 1992. Dr. Cornelius is currently accepting new patients.

    Advanced in Neurofibromatosis
    Advanced in Neurofibromatosis

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
    Experience:
    13+ years
    Languages Spoken:
    English

    Lauren Fletcher is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 13 years. Dr. Fletcher is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Esotropia, Amblyopia, and Astigmatism. Dr. Fletcher is board certified in American Osteopathic Board Of Ophthalmology & Otolaryngology.

    Advanced in Neurofibromatosis
    Ophthalmology
    Advanced in Neurofibromatosis
    Ophthalmology

    Children's Eye Care PC

    7001 Orchard Lake Road, Suite 200, 
    West Bloomfield, MI 
    Experience:
    29+ years
    Languages Spoken:
    English, French, Hindi, Spanish
    Accepting New Patients

    Lisa Bohra is an Ophthalmologist practicing medicine in West Bloomfield, Michigan. She has been practicing medicine for over 29 years. Dr. Bohra is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 32 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Brown Syndrome, Esotropia, and Amblyopia. Dr. Bohra is board certified in American Board Of Ophthalmology. Dr. Bohra is currently accepting new patients.

    Advanced in Neurofibromatosis
    Advanced in Neurofibromatosis

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
    Experience:
    21+ years
    Languages Spoken:
    English

    Brooke Geddie is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 21 years. Dr. Geddie is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 47 other conditions, according to our data. Her clinical expertise encompasses Coloboma, Strabismus, Congenital Cataract, Esotropia, and Vitrectomy. Dr. Geddie is board certified in American Osteopathic Board Of Ophthalmology & Otolaryngology.

    Advanced in Neurofibromatosis
    Ophthalmology
    Advanced in Neurofibromatosis
    Ophthalmology

    Children's Eye Care PC

    7001 Orchard Lake Road, Suite 200, 
    West Bloomfield, MI 
    Experience:
    34+ years
    Languages Spoken:
    English
    Accepting New Patients

    Rajesh Rao is an Ophthalmologist practicing medicine in West Bloomfield, Michigan. He has been practicing medicine for over 34 years. Dr. Rao is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Strabismus, Esotropia, Amblyopia, and Oculocutaneous Albinism Type 1. Dr. Rao is board certified in American Board Of Ophthalmology. Dr. Rao is currently accepting new patients.

    Advanced in Neurofibromatosis
    Ophthalmology
    Advanced in Neurofibromatosis
    Ophthalmology

    Children's Eye Care PC

    7001 Orchard Lake Road, Suite 200, 
    West Bloomfield, MI 
    Experience:
    26+ years
    Languages Spoken:
    English, Hebrew, Spanish
    Accepting New Patients

    Leemor Rotberg is an Ophthalmologist practicing medicine in West Bloomfield, Michigan. She has been practicing medicine for over 26 years. Dr. Rotberg is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 46 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Brown Syndrome, Amblyopia, and Esotropia. Dr. Rotberg is board certified in American Board Of Ophthalmology. Dr. Rotberg is currently accepting new patients.

    Advanced in Neurofibromatosis
    Neuroradiology | Radiology
    Advanced in Neurofibromatosis
    Neuroradiology | Radiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Eric Liao is a Radiologist and a Neuroradiologist practicing medicine in Ann Arbor, Michigan. Dr. Liao is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Meningioma, Pediatric Low-Grade Glioma (pLGG), Arachnoid Cysts, and Neurofibromatosis Type 2 (NF2). Dr. Liao is board certified in Neuroradiology and Diagnostic Radiology.

    Distinguished in Neurofibromatosis
    Distinguished in Neurofibromatosis

    Henry Ford Cancer-Detroit

    2800 W Grand Blvd, 
    Detroit, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Tobias Walbert is a Neurologist practicing medicine in Detroit, Michigan. Dr. Walbert is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Glioma, Brain Tumor, Glioblastoma, and Astrocytoma.

    Experienced in Neurofibromatosis
    Cardiology | Internal Medicine
    Experienced in Neurofibromatosis
    Cardiology | Internal Medicine

    Frankel Cardiovascular Center

    1425 E Ann St, Floor 3 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Dr. Santhi Ganesh is a physician in the Division of Cardiovascular Medicine and Section of Vascular Medicine, and she specializes in spontaneous coronary artery dissection (SCAD), fibromuscular dysplasia (FMD), and genetic considerations of arterial diseases. She is a Professor (with tenure) of Internal Medicine and Professor of Human Genetics where she is jointly appointed. Her clinical work and research program is connected with the multidisciplinary faculty of the Arterial Dysplasia Program. Dr. Ganesh serves as the Associate Chief of the Division of Cardiovascular Medicine. Dr. Ganesh is a leader in the genetics of vascular diseases and runs an independent research laboratory as Principal Investigator, with extramural funding from NIH and other foundations and professional organizations. The laboratory is working to define the genetic basis of cardiovascular diseases and study these genetic effects in model systems, bringing together trainees from all levels and faculty from diverse clinical and scientific backgrounds.Dr. Ganesh has published over 140 scientific papers in high impact journals. Her contributions include the discovery of clinically actionable gene findings and understanding of new biology underlying several vascular diseases, including FMD, arterial dissections, aneurysms and renovascular hypertension and other hypertensive disorders. Dr. Ganesh has been inspired to work on these and other diseases, because she sees a great unmet clinical need. Her lab is working towards the development of novel treatment strategies for these diseases.As a testament to her impact in the field, she has received numerous awards and honorifics. She is the inaugural David J. Pinsky Endowed Professor of Cardiovascular Medicine and the mBIOFAR award at the University of Michigan, and has received awards from the American Heart Association, Doris Duke Charitable Foundation, and National Institutes of Health. She serves as the Director for the M-BRISC initiative at the University of Michigan Health Frankel Cardiovascular Center focused on understanding sex differences of cardiovascular diseases. She is a distinguished teacher and mentor, and collaborates effectively across disciplines. Dr. Ganesh completed undergraduate and medical school at Northwestern University, after which she trained in Internal Medicine at the University of Michigan and in Cardiovascular Medicine at Johns Hopkins School of Medicine. She completed postdoctoral fellowships at the National Heart, Lung and Blood Institute, National Human Genome Research Institute, and Johns Hopkins School of Medicine, Institute of Genetic Medicine. Dr. Ganesh is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Spontaneous Coronary Artery Dissection (SCAD), Hypertension, Congenital Coronary Artery Malformation, Angioplasty, and Cardiac Ablation. Dr. Ganesh is board certified in Cardiovascular Disease.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis

    Pediatric Ophthalmology PC - Cascade Road

    5050 Cascade Road Southeast, 
    Grand Rapids, MI 
    Experience:
    46+ years
    Languages Spoken:
    English
    Accepting New Patients

    Patrick Droste is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 46 years. Dr. Droste is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 35 other conditions, according to our data. His clinical expertise encompasses Strabismus, Esotropia, Amblyopia, and Brown Syndrome. Dr. Droste is board certified in American Board Of Ophthalmology. Dr. Droste is currently accepting new patients.

    Experienced in Neurofibromatosis
    Endocrinology | Internal Medicine
    Experienced in Neurofibromatosis
    Endocrinology | Internal Medicine

    Rogel Cancer Center

    1500 E Medical Center Dr, Floor B1 Reception A, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Else’s primary appointment is with the Division of Metabolism, Endocrinology and Diabetes. He received his MD degree from the University of Hamburg, Germany. He pursued his clinical training at the University of Hamburg (Residency: Internal Medicine) and the University of Michigan (Residency: Internal Medicine, Fellowship: Endocrinology). His main research interests are the genetics of endocrine tumors. Dr. Else’s clinical practice focuses on the care for patients with benign and malignant endocrine tumors, particularly pheochromocytoma, adrenocortical tumors and neuroendocrine tumors as well as accompanying hormone excess syndromes (e.g Cushing syndrome, primary aldosteronism). Dr. Else has a particular interest in taking care of patients with hereditary syndromes that predispose to the development of endocrine tumors (e.g. Multiple Endocrine Neoplasia (MEN) type 1, MEN2A & MEN2B, Hereditary Paraganglioma Syndrome). He attends the Multidisciplinary Endocrine Oncology Clinic, where patients with tumors receive diagnostic procedures and treatment. In addition he is part of the Cancer Genetics Clinic, which evaluates patients for hereditary syndromes and also facilitates regular exams and surveillance for patients at risk for endocrine tumors. Dr. Else is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 105 other conditions, according to our data. His clinical expertise encompasses Adrenal Cancer, Adrenocortical Carcinoma, Adrenal Gland Adenoma, Neuroendocrine Tumor, and Thyroidectomy. Dr. Else is board certified in Internal Medicine and Endocrinology, Diabetes & Metabolism.

    Experienced in Neurofibromatosis
    Ophthalmology
    Experienced in Neurofibromatosis
    Ophthalmology

    Grand Rapids Ophthalmology - East Beltline Avenue

    750 East Beltline Avenue Northeast, 
    Grand Rapids, MI 
    Experience:
    29+ years
    Languages Spoken:
    English
    Accepting New Patients

    Laura Piippo is an Ophthalmologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 29 years. Dr. Piippo is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Esotropia, Amblyopia, and Isolated Duane Retraction Syndrome. Dr. Piippo is board certified in American Board Of Ophthalmology. Dr. Piippo is currently accepting new patients.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis

    Children's Eye Care PC

    22731 Newman Street, Suite 245, 
    Dearborn, MI 
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Alexandra Apkarian is an Ophthalmologist practicing medicine in Dearborn, Michigan. She has been practicing medicine for over 17 years. Dr. Apkarian is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Esotropia, Amblyopia, and Marcus Gunn Phenomenon. Dr. Apkarian is board certified in American Board Of Ophthalmology. Dr. Apkarian is currently accepting new patients.

    Experienced in Neurofibromatosis
    Radiology | Neuroradiology
    Experienced in Neurofibromatosis
    Radiology | Neuroradiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Diana Gomez is a Radiologist and a Neuroradiologist practicing medicine in Ann Arbor, Michigan. Dr. Gomez is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Sciatica, Relapsing Multiple Sclerosis (RMS), Cerebellar Degeneration, and Meningioma. Dr. Gomez is board certified in Diagnostic Radiology and Neuroradiology.

    Showing 1-20 of 321

    Last Updated: 04/28/2026

    When should I see a Neurofibromatosis doctor near Detroit, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis doctor near Detroit, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis doctors near Detroit, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis doctors near Detroit, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis doctor near Detroit, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis doctor near Detroit, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis doctors near Detroit, MI?

    Look for the filter feature on the left side of the Neurofibromatosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy