The 20 Best Neurofibromatosis Doctors Near Me in Raleigh, NC

Find the Top Neurofibromatosis Experts and Specialists

Last Updated: 09/19/2026

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MediFind found 169 doctor with experience in Neurofibromatosis near Raleigh, NC. Of these, 153 are Experienced, 13 are Advanced and 3 are Distinguished.

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169 providers found
    Advanced in Neurofibromatosis
    Advanced in Neurofibromatosis
    Referral may be required

    Duke Children's Health Center Hematology/Oncology Clinic

    2301 Erwin Rd, 
    Durham, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    David Van Mater is a Pediatrics provider practicing medicine in Durham, North Carolina. Dr. Van Mater is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), RASopathies, and Legius Syndrome. Dr. Van Mater is board certified in American Board Of Pediatrics, Pediatric Hematology-Oncology. Dr. Van Mater is currently accepting new patients.

    Advanced in Neurofibromatosis
    Advanced in Neurofibromatosis
    Referral may be required

    Office

    Medical Center Blvd Fl 3, 
    Winston Salem, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Roy Strowd-Iii is a Neurologist practicing medicine in Winston Salem, North Carolina. Dr. Strowd-Iii is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Brain Tumor, Glioma, Tuberous Sclerosis Complex, and Tuberous Sclerosis. Dr. Strowd-Iii is currently accepting new patients.

    Experienced in Neurofibromatosis
    Otolaryngology
    Experienced in Neurofibromatosis
    Otolaryngology
    Referral may be required

    Duke Ambulatory Surgery Center

    2400 Pratt St, 
    Durham, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    David Kaylie is an Otolaryngologist practicing medicine in Durham, North Carolina. Dr. Kaylie is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Acoustic Neuroma, Schwannoma, Hearing Loss, Mastoidectomy, and Myringotomy. Dr. Kaylie is board certified in American Board Of Otolaryngology, Neurotology, , and American Board Of Otolaryngology, Otolaryngology-Head And Neck Surgery . Dr. Kaylie is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis
    Referral may be required

    Lenox Baker Children's Hospital

    3000 Erwin Rd, 
    Durham, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Benjamin Alman is a Pediatrics provider practicing medicine in Durham, North Carolina. Dr. Alman is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His clinical expertise encompasses Cerebral Hypoxia, Neurofibromatosis, Osteoporosis, Polydactyly, and Hip Replacement. Dr. Alman is board certified in American Board Of Orthopaedic Surgery, Orthopaedic Surgery. Dr. Alman is currently accepting new patients.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis
    Referral may be required

    Atrium Health Wake Forest Baptist

    S Hawthorne Rd, 
    Winston Salem, NC 
    Languages Spoken:
    English
    Accepting New Patients

    Glenn Lesser is an Oncologist practicing medicine in Winston Salem, North Carolina. Dr. Lesser is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Brain Tumor, Glioblastoma, Astrocytoma, Glioma, and Bone Marrow Aspiration. Dr. Lesser is currently accepting new patients.

    Experienced in Neurofibromatosis
    Hematology | Oncology
    Experienced in Neurofibromatosis
    Hematology | Oncology
    Referral required

    Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

    1001 Blythe Blvd., Suite 3000, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Chad Jacobsen is a Hematologist and an Oncologist practicing medicine in Charlotte, North Carolina. Dr. Jacobsen is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Medulloblastoma, Neurofibromatosis, and Embryonal Tumor with Multilayered Rosettes. Dr. Jacobsen is board certified in American Board Of Pediatrics, Pediatric Hematology And Oncology. Dr. Jacobsen is currently accepting new patients.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis
    Referral may be required

    Atrium Health Levine Children's Neurology Concord

    100 Medical Park Drive, Suite 310, 
    Concord, NC 
    Languages Spoken:
    English, Urdu
    Accepting New Patients
    Offers Telehealth

    Adeel Yousaf is a Neurologist practicing medicine in Concord, North Carolina. Dr. Yousaf is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Seizures, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Yousaf is board certified in American Board Of Psychiatry And Neurology and American Board Of Pediatrics. Dr. Yousaf is currently accepting new patients.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis
    Referral may be required

    Duke Cancer Center Brain Tumor Clinic

    20 Duke Medicine Cir, 
    Durham, NC 
    Languages Spoken:
    English, German
    Accepting New Patients
    Offers Telehealth

    Allan Friedman is a Neurosurgery provider practicing medicine in Durham, North Carolina. Dr. Friedman is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Glioma, Astrocytoma, Glioblastoma, Awake Craniotomy, and Laminectomy. Dr. Friedman is board certified in American Board Of Neurological Surgery, Neurological Surgery. Dr. Friedman is currently accepting new patients.

    Experienced in Neurofibromatosis
    Radiation Oncology
    Experienced in Neurofibromatosis
    Radiation Oncology
    Referral may be required

    Duke Cancer Center

    20 Duke Medicine Cir, 
    Durham, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    John Kirkpatrick is a Radiation Oncologist practicing medicine in Durham, North Carolina. Dr. Kirkpatrick is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Brain Tumor, Meningioma, Glioma, Astrocytoma, and Gamma Knife Radiosurgery. Dr. Kirkpatrick is board certified in American Board Of Radiology, Radiation Oncology. Dr. Kirkpatrick is currently accepting new patients.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis
    Referral may be required

    Lenox Baker Children's Hospital

    3000 Erwin Rd, 
    Durham, NC 
    Languages Spoken:
    English, German
    Accepting New Patients
    Offers Telehealth

    Herbert Fuchs is a Pediatrics provider practicing medicine in Durham, North Carolina. Dr. Fuchs is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Hydrocephalus, Craniosynostosis, Sunken Fontanelles, Baller-Gerold Syndrome, and Posterior Fossa Decompression. Dr. Fuchs is board certified in American Board Of Neurological Surgery, Neurological Surgery. Dr. Fuchs is currently accepting new patients.

    Experienced in Neurofibromatosis
    Medical Genetics
    Experienced in Neurofibromatosis
    Medical Genetics
    Referral required

    Duke Health Integrated Practice Inc

    2301 Erwin Rd, 
    Durham, NC 
    Languages Spoken:
    English, Russian
    Accepting New Patients
    Offers Telehealth

    Dmitriy Niyazov is a Medical Genetics provider practicing medicine in Durham, North Carolina. Dr. Niyazov is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Early Infantile Epileptic Encephalopathy, Macroglossia, Ehlers-Danlos Syndrome (EDS), and Hypotonia. Dr. Niyazov is board certified in American Board Of Medical Genetics And Genomics, Clinical Genetics And Genomics - General. Dr. Niyazov is currently accepting new patients.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis
    Referral may be required

    Duke Cancer Center

    20 Duke Medicine Cir, 
    Durham, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Katherine Peters is a Neurologist practicing medicine in Durham, North Carolina. Dr. Peters is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Glioblastoma, Gliosarcoma, Embryonal Tumor with Multilayered Rosettes, and Atypical Teratoid Rhabdoid Tumor (ATRT). Dr. Peters is board certified in American Board Of Psychiatry/Neurology, Neurology. Dr. Peters is currently accepting new patients.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis
    Referral may be required

    Atrium Health Levine Children's Neurology

    1001 Blythe Blvd., Suite 4151, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients

    Cecilia Fernandes is a Neurologist practicing medicine in Charlotte, North Carolina. Dr. Fernandes is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Seizures, Memory Loss, Absence Seizure, and Dravet Syndrome. Dr. Fernandes is board certified in American Board Of Psychiatry/Neurology-Child Neuro. Dr. Fernandes is currently accepting new patients.

    Experienced in Neurofibromatosis
    Internal Medicine
    Experienced in Neurofibromatosis
    Internal Medicine

    Mountain Area Health Education Center Inc.

    123 Hendersonville Rd, 
    Asheville, NC 
    Languages Spoken:
    English, German
    Accepting New Patients
    Offers Telehealth

    Caroline Mueller is a primary care provider, practicing in Internal Medicine in Asheville, North Carolina. Dr. Mueller is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Mueller is currently accepting new patients.

    Experienced in Neurofibromatosis
    Hematology | Oncology
    Experienced in Neurofibromatosis
    Hematology | Oncology
    Referral may be required

    Duke University Hospital

    2301 Erwin Rd, 
    Durham, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Lars Wagner is a Hematologist and an Oncologist practicing medicine in Durham, North Carolina. Dr. Wagner is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Osteosarcoma, Ewing Sarcoma, Adult Soft Tissue Sarcoma, Rhabdomyosarcoma, and Bone Marrow Aspiration. Dr. Wagner is currently accepting new patients.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis
    Referral may be required

    Wake Forest Ambulatory Ventures LLC

    6441 Kinnamon Ct, 
    Winston Salem, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Cynthia Emory is an Oncologist practicing medicine in Winston Salem, North Carolina. Dr. Emory is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Adult Soft Tissue Sarcoma, Bone Tumor, Rhabdomyosarcoma Embryonal, Hip Replacement, and Knee Replacement. Dr. Emory is currently accepting new patients.

    Experienced in Neurofibromatosis
    General Surgery
    Experienced in Neurofibromatosis
    General Surgery
    Referral may be required

    North Carolina Baptist Hospital

    1 Medical Ctr Blvd, 
    Winston Salem, NC 
    Experience:
    44+ years
    Languages Spoken:
    English
    Accepting New Patients

    James Browne is a General Surgeon practicing medicine in Winston Salem, North Carolina. He has been practicing medicine for over 44 years. Dr. Browne is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Vocal Cord Dysfunction, Anaplastic Thyroid Cancer, Medullary Thyroid Carcinoma, Glossectomy, and Gastrostomy. Dr. Browne is currently accepting new patients.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis
    Referral may be required

    Atrium Health Wake Forest Baptist

    S Hawthorne Rd, 
    Winston Salem, NC 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Charles Branch is a Neurosurgery provider practicing medicine in Winston Salem, North Carolina. Dr. Branch is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Cervical Spondylosis, Spinal Stenosis, Microdiscectomy, and Herniated Disc Surgery. Dr. Branch is currently accepting new patients.

    Experienced in Neurofibromatosis
    Neurosurgery | General Surgery
    Experienced in Neurofibromatosis
    Neurosurgery | General Surgery
    Referral may be required

    Duke Cancer Center Brain Tumor Clinic

    20 Duke Medicine Cir, 
    Durham, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    C Rory-Goodwin is a Neurosurgery specialist and a General Surgeon practicing medicine in Durham, North Carolina. Dr. Rory-Goodwin is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Pituitary Tumor, Spinal Stenosis, Hemangioblastoma, Laminectomy, and Bone Graft. Dr. Rory-Goodwin is board certified in American Board Of Neurological Surgery, Neurological Surgery. Dr. Rory-Goodwin is currently accepting new patients.

    Distinguished in Neurofibromatosis
    Distinguished in Neurofibromatosis
    Referral may be required

    UT MD Anderson Cancer Center

    210 Ashville Ave # 408, 
    Cary, NC 
    Languages Spoken:
    English

    Ian Mccutcheon is a Neurosurgery provider practicing medicine in Cary, North Carolina. Dr. Mccutcheon is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 37 other conditions, according to our data. His clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Pituitary Tumor, Neurofibromatosis, Awake Craniotomy, and Gamma Knife Radiosurgery.

    Showing 1-20 of 169

    Last Updated: 09/19/2026

    When should I see a Neurofibromatosis doctor near Raleigh, NC?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis doctor near Raleigh, NC?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis doctors near Raleigh, NC?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis doctors near Raleigh, NC?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis doctor near Raleigh, NC?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis doctor near Raleigh, NC?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis doctors near Raleigh, NC?

    Look for the filter feature on the left side of the Neurofibromatosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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