The 20 Best Neurofibromatosis Doctors Near Me in Rochester, NY

Find the Top Neurofibromatosis Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 11 doctor with experience in Neurofibromatosis near Rochester, NY. Of these, 10 are Experienced and 1 are Advanced.

Location
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11 providers found
    Experienced in Neurofibromatosis
    Radiology
    Experienced in Neurofibromatosis
    Radiology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Akm Rahman is a Radiologist practicing medicine in Rochester, New York. Dr. Rahman is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His clinical expertise encompasses Stroke, CAPOS Syndrome, Relapsing Multiple Sclerosis (RMS), and Cerebral Arteriovenous Malformation.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis

    Office

    2101 Lac De Ville Blvd Ste 1, 
    Rochester, NY 
     (4.0 miles away)
    Languages Spoken:
    English

    Allen Pettee is a Neurologist practicing medicine in Rochester, New York. Dr. Pettee is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Migraine, Relapsing Multiple Sclerosis (RMS), Multiple Sclerosis (MS), and Peripheral Neuropathy.

    Advanced in Neurofibromatosis
    Advanced in Neurofibromatosis

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Nimish Mohile is a Neurologist practicing medicine in Rochester, New York. Dr. Mohile is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Astrocytoma, Glioblastoma, Glioma, and Brain Tumor.

    Learn about our expert tiers
    Experienced in Neurofibromatosis
    Pediatric Neurology | Pediatrics | Nurse Practitioner
    Experienced in Neurofibromatosis
    Pediatric Neurology | Pediatrics | Nurse Practitioner

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Alexander Paciorkowski is a Pediatric Neurologist and a Pediatrics provider practicing medicine in Rochester, New York. Mr. Paciorkowski is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His clinical expertise encompasses Spinocerebellar Ataxia Type 31, Episodic Ataxia with Nystagmus, Spinocerebellar Ataxia Type 11, and Spinocerebellar Ataxia Type 7.

    Experienced in Neurofibromatosis
    Ophthalmology
    Experienced in Neurofibromatosis
    Ophthalmology

    University Of Rochester Pediatric Ophthalmology Services

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Alex Levin is an Ophthalmologist practicing medicine in Rochester, New York. Dr. Levin is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Leber Congenital Amaurosis, Sorsby Fundus Dystrophy, Retinitis Pigmentosa, and X-Linked Retinitis Pigmentosa (XLRP).

    Experienced in Neurofibromatosis
    Neurosurgery
    Experienced in Neurofibromatosis
    Neurosurgery

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jonathan Stone is a Neurosurgery provider practicing medicine in Rochester, New York. Dr. Stone is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Common Peroneal Nerve Dysfunction, Cervical Myelopathy, Schwannoma, Laminectomy, and Osteotomy.

    Experienced in Neurofibromatosis
    Ophthalmology
    Experienced in Neurofibromatosis
    Ophthalmology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Benjamin Hammond is an Ophthalmologist practicing medicine in Rochester, New York. Dr. Hammond is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Strabismus, Amblyopia, Legius Syndrome, and Esotropia.

    Experienced in Neurofibromatosis
    Neurosurgery
    Experienced in Neurofibromatosis
    Neurosurgery

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Kevin Walter is a Neurosurgery provider practicing medicine in Rochester, New York. Dr. Walter is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Meningioma, Congenital Cardiovascular Shunt, Normal Pressure Hydrocephalus, Awake Craniotomy, and Laminectomy.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Lauryn Hemminger is a Neurologist practicing medicine in Rochester, New York. Dr. Hemminger is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. Her clinical expertise encompasses Metastatic Brain Tumor, Gliosarcoma, Ependymoma, and Glioblastoma.

    Experienced in Neurofibromatosis
    Pain Medicine
    Experienced in Neurofibromatosis
    Pain Medicine

    Neurosurgery-Brighton

    2180 S Clinton Ave, 
    Rochester, NY 
     (2.9 miles away)
    Languages Spoken:
    English

    John Markman is a Pain Medicine provider practicing medicine in Rochester, New York. Dr. Markman is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Neuralgia, Chronic Pain, Drug Induced Dyskinesia, Rhizotomy, and Laminectomy.

    Experienced in Neurofibromatosis
    Dermatology
    Experienced in Neurofibromatosis
    Dermatology
    100 White Spruce Blvd # M101, 
    Rochester, NY 
     (5.1 miles away)
    Languages Spoken:
    English

    John Tu is a Dermatologist practicing medicine in Rochester, New York. Dr. Tu is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His clinical expertise encompasses Actinic Keratosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Aplasia Cutis Congenita.

    Showing 1-11 of 11

    Last Updated: 04/28/2026

    When should I see a Neurofibromatosis doctor near Rochester, NY?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis doctor near Rochester, NY?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis doctors near Rochester, NY?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis doctors near Rochester, NY?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis doctor near Rochester, NY?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis doctor near Rochester, NY?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis doctors near Rochester, NY?

    Look for the filter feature on the left side of the Neurofibromatosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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