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    Last Updated: 02/22/2026

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    MediFind found 8 doctor with experience in Oculopharyngeal Muscular Dystrophy near Rochester, NY. Of these, 7 are Experienced and 1 are Advanced.

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    8 providers found
      Advanced in Oculopharyngeal Muscular Dystrophy
      Advanced in Oculopharyngeal Muscular Dystrophy
      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Alrabi Tawil is a Neurologist in Rochester, New York. Dr. Tawil is rated as an Advanced provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Spinal Muscular Atrophy (SMA), Limb-Girdle Muscular Dystrophy Type 2C, and Limb-Girdle Muscular Dystrophy Type 2I.

      Experienced in Oculopharyngeal Muscular Dystrophy
      Pediatrics | Internal Medicine
      Experienced in Oculopharyngeal Muscular Dystrophy
      Pediatrics | Internal Medicine

      Highland Hospital Of Rochester

      1000 S Ave, 
      Rochester, NY 
       (1.5 miles away)
      Languages Spoken:
      English

      Enrico Caiola is a primary care provider, practicing in Pediatrics and Internal Medicine in Rochester, New York. Dr. Caiola is rated as an Experienced provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. His top areas of expertise are Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), Fukuyama Type Muscular Dystrophy, and Miyoshi Myopathy.

      Experienced in Oculopharyngeal Muscular Dystrophy
      Geriatrics | Internal Medicine
      Experienced in Oculopharyngeal Muscular Dystrophy
      Geriatrics | Internal Medicine

      Highland Hospital Of Rochester

      1000 S Ave, 
      Rochester, NY 
       (1.5 miles away)
      Languages Spoken:
      English

      Jennifer Muniak is a primary care provider, practicing in Geriatrics and Internal Medicine in Rochester, New York. Dr. Muniak is rated as an Experienced provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. Her top areas of expertise are Idiopathic Edema, Myelitis, Neuronal Intranuclear Inclusion Disease (NIID), and Dementia.

      Learn about our expert tiers
      Experienced in Oculopharyngeal Muscular Dystrophy
      Experienced in Oculopharyngeal Muscular Dystrophy

      University Of Rochester

      738 Library Rd, 
      Rochester, NY 
       (2.1 miles away)
      Languages Spoken:
      English

      Emma Ciafaloni is a Neurologist in Rochester, New York. Dr. Ciafaloni is rated as an Experienced provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. Her top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Myasthenia Gravis, Spinal Muscular Atrophy (SMA), and Thymectomy.

      Experienced in Oculopharyngeal Muscular Dystrophy
      Experienced in Oculopharyngeal Muscular Dystrophy

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Chad Heatwole is a Neurologist in Rochester, New York. Dr. Heatwole is rated as an Experienced provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. His top areas of expertise are Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, and Facioscapulohumeral Muscular Dystrophy (FSHD).

      Experienced in Oculopharyngeal Muscular Dystrophy
      Experienced in Oculopharyngeal Muscular Dystrophy

      University Of Rochester

      919 Westfall Rd, Suite C220, 
      Rochester, NY 
       (3.0 miles away)
      Languages Spoken:
      English

      Phillip Mongiovi is a Neurologist in Rochester, New York. Dr. Mongiovi is rated as an Experienced provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. His top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 3, and Peripheral Neuropathy.

      Experienced in Oculopharyngeal Muscular Dystrophy
      Internal Medicine
      Experienced in Oculopharyngeal Muscular Dystrophy
      Internal Medicine

      University Of Rochester

      2400 S Clinton Ave, Bldg H, 
      Rochester, NY 
       (3.2 miles away)
      Languages Spoken:
      English

      John Cox is a primary care provider, practicing in Internal Medicine in Rochester, New York. Dr. Cox is rated as an Experienced provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. His top areas of expertise are Familial Hypertension, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Enlarged Liver.

      Experienced in Oculopharyngeal Muscular Dystrophy
      Family Medicine
      Experienced in Oculopharyngeal Muscular Dystrophy
      Family Medicine

      Highland Hospital Of Rochester

      2212 Penfield Rd, Suite 100, 
      Penfield, NY 
       (8.7 miles away)
      Languages Spoken:
      English

      Kim Abell is a primary care provider, practicing in Family Medicine in Penfield, New York. Dr. Abell is rated as an Experienced provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. His top areas of expertise are Folliculitis, Boils, Kidney Stones, and Type 2 Diabetes (T2D).

      Showing 1-8 of 8

      Last Updated: 02/22/2026

      What is the definition of Oculopharyngeal Muscular Dystrophy?

      Oculopharyngeal muscular dystrophy is a genetic condition characterized by muscle weakness that begins in adulthood, typically after age 40. The term "oculopharyngeal" refers to the eyes (oculo-) and a part of the throat called the pharynx (-pharyngeal). Affected individuals usually first experience weakness of the muscles in both eyelids that causes droopy eyelids (ptosis). Ptosis can worsen over time, causing the eyelid to impair vision, and in some cases, limit eye movement. Along with ptosis, affected individuals develop weakness of the throat muscles that causes difficulty swallowing (dysphagia). Dysphagia begins with dry food, but over time, liquids can also become difficult to swallow. Dysphagia can cause saliva to accumulate and a wet-sounding voice. Many people with oculopharyngeal muscular dystrophy also have weakness and wasting (atrophy) of the tongue. These problems with food intake may cause malnutrition, choking, or a bacterial lung infection called aspiration pneumonia.

      When should I see an Oculopharyngeal Muscular Dystrophy doctor near Rochester, NY?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Oculopharyngeal Muscular Dystrophy doctor near Rochester, NY?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Oculopharyngeal Muscular Dystrophy doctors near Rochester, NY?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Oculopharyngeal Muscular Dystrophy doctors near Rochester, NY?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Oculopharyngeal Muscular Dystrophy doctor near Rochester, NY?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Oculopharyngeal Muscular Dystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Oculopharyngeal Muscular Dystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Oculopharyngeal Muscular Dystrophy doctor near Rochester, NY?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Oculopharyngeal Muscular Dystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Oculopharyngeal Muscular Dystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Oculopharyngeal Muscular Dystrophy doctors near Rochester, NY?

      Look for the filter feature on the left side of the Oculopharyngeal Muscular Dystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Oculopharyngeal Muscular Dystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Oculopharyngeal Muscular Dystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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