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    Last Updated: 10/30/2025

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    MediFind found 21 doctor with experience in Odontotrichomelic Syndrome near Massachusetts, US. Of these, 19 are Experienced and 2 are Advanced.

    Location
    LocationClose
    21 providers found
      Advanced in Odontotrichomelic Syndrome
      Family Medicine
      Advanced in Odontotrichomelic Syndrome
      Family Medicine

      Atrius Health Inc

      1250 Hancock St, 
      Quincy, MA 
      Languages Spoken:
      English
      Offers Telehealth

      Tu-mai Tran is a primary care provider, practicing in Family Medicine in Quincy, Massachusetts. Dr. Tran is rated as an Advanced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Coffin-Lowry Syndrome, Kabuki Syndrome, Galactosialidosis, and Odontotrichomelic Syndrome.

      Advanced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology
      Advanced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      David Urion is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Urion is rated as an Advanced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Agyria Pachygyria Polymicrogyria, VLDLR-Associated Cerebellar Hypoplasia, Lissencephaly 1, Joubert Syndrome, and Gastrostomy. Dr. Urion is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Christopher Elitt is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Elitt is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Cortical Dysplasia, Aicardi Syndrome, Acrocallosal Syndrome, and Bone Dysplasia Corpus Callosum Agenesis. Dr. Elitt is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Siddharth Srivastava is a Pediatric Neurologist and a Pediatrics provider in Boston, Massachusetts. Dr. Srivastava is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Ruvalcaba Syndrome, Autism Spectrum Disorder, Cerebral Palsy, Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant, and Deep Brain Stimulation. Dr. Srivastava is currently accepting new patients.

      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology
      300 Longwood Ave, Fegan 11, 
      Boston, MA 
      Languages Spoken:
      English

      Laura Lehman is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Lehman is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Moyamoya Disease, Stroke, Wyburn-Mason Syndrome, Thrombectomy, and Craniectomy.

      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology
      300 Longwood Ave, Fegan 11, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Caitlin Rollins is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Rollins is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Corpus Callosum Agenesis, Multisystem Inflammatory Syndrome in Children (MIS-C), Cardiomyopathic Lentiginosis, and Noonan Syndrome. Dr. Rollins is currently accepting new patients.

      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Kerri Larovere is a Pediatric Neurologist and a Pediatrics provider in Boston, Massachusetts. Dr. Larovere is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Multisystem Inflammatory Syndrome in Children (MIS-C), Infant Epilepsy with Migrant Focal Crisis, Epilepsy in Children, and Epilepsy with Myoclonic-Atonic Seizures. Dr. Larovere is currently accepting new patients.

      Experienced in Odontotrichomelic Syndrome
      Internal Medicine
      Experienced in Odontotrichomelic Syndrome
      Internal Medicine

      Brigham And Womens Physicians Organization Inc

      301 S Huntington Ave, 
      Jamaica Plain, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ishani Ganguli is a primary care provider, practicing in Internal Medicine in Jamaica Plain, Massachusetts. Dr. Ganguli is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are COVID-19, 3MC Syndrome, Jumping Frenchmen of Maine, and Galactosialidosis. Dr. Ganguli is currently accepting new patients.

      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology | Pediatrics
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology | Pediatrics
      300 Longwood Ave, Fegan 11, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Janet Soul is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Soul is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Seizures, Epilepsy in Children, Absence Seizure, and Generalized Tonic-Clonic Seizure. Dr. Soul is currently accepting new patients.

      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Sleep Medicine | Neurology
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Sleep Medicine | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Robert Stowe is a Pediatric Neurologist and a Sleep Medicine provider in Boston, Massachusetts. Dr. Stowe is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Landau-Kleffner Syndrome, West Syndrome, Seizures, Epilepsy in Children, and Thrombectomy. Dr. Stowe is currently accepting new patients.

      Experienced in Odontotrichomelic Syndrome
      Neurology | Pediatric Neurology
      Experienced in Odontotrichomelic Syndrome
      Neurology | Pediatric Neurology
      300 Longwood Ave, Boston Children's Hospital, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Leslie Hayes is a Neurologist and a Pediatric Neurologist in Boston, Massachusetts. Dr. Hayes is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy with Arthrogryposis, X-Linked Infantile Spinal Muscular Atrophy, Spinal Muscular Atrophy Type 1, and Gastrostomy. Dr. Hayes is currently accepting new patients.

      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Peter Raffalli is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Raffalli is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Autism Spectrum Disorder, Aphantasia, Developmental Dysphasia Familial, and Developmental Expressive Language Disorder. Dr. Raffalli is currently accepting new patients.

      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      300 Longwood Ave, Fegan 11, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Elizabeth Barkoudah is a Pediatric Neurologist and a Pediatrics provider in Boston, Massachusetts. Dr. Barkoudah is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Cerebral Palsy, Moebius Syndrome, Spastic Diplegia Infantile Type, and Focal Dystonia. Dr. Barkoudah is currently accepting new patients.

      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Michael Rivkin is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Rivkin is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Stroke, Hemiplegia, Cavernous Sinus Thrombosis, Lissencephaly 1, and Craniectomy. Dr. Rivkin is currently accepting new patients.

      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Medical Genetics | Pediatrics
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Medical Genetics | Pediatrics

      C H Neurology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Basil Darras is a Pediatric Neurologist and a Medical Genetics provider in Boston, Massachusetts. Dr. Darras is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy Type 1, and Gastrostomy. Dr. Darras is currently accepting new patients.

      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology | Sleep Medicine
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology | Sleep Medicine

      C H Neurology Foundation Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
      Languages Spoken:
      English

      Kiran Maski is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Maski is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Drowsiness, Narcolepsy, Excessive Daytime Sleepiness, and Idiopathic Hypersomnia.

      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology
      300 Longwood Ave, Boston Children's Hospital, Fegan 11, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Peter Davis is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Davis is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Tuberous Sclerosis, Tuberous Sclerosis Complex, Autism Spectrum Disorder, and Aphantasia. Dr. Davis is currently accepting new patients.

      Experienced in Odontotrichomelic Syndrome
      Pediatrics | Internal Medicine
      Experienced in Odontotrichomelic Syndrome
      Pediatrics | Internal Medicine
      77 Avenue Louis Pasteur, Nrb 455, 
      Boston, MA 
      Languages Spoken:
      English

      Natasha Frank is a primary care provider, practicing in Pediatrics and Internal Medicine in Boston, Massachusetts. Dr. Frank is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Epidermolysis Bullosa, Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), and Larynx Atresia.

      Experienced in Odontotrichomelic Syndrome
      Experienced in Odontotrichomelic Syndrome

      Umass Memorial Medical Group Inc

      55 Lake Ave N, 
      Worcester, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Felicia Chu is a Neurologist in Worcester, Massachusetts. Dr. Chu is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Epilepsy, Seizures, Memory Loss, and Generalized Tonic-Clonic Seizure. Dr. Chu is currently accepting new patients.

      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Mark Libenson is a Pediatric Neurologist and a Pediatrics provider in Boston, Massachusetts. Dr. Libenson is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are West Syndrome, Epilepsy in Children, Seizures, and Epilepsy. Dr. Libenson is currently accepting new patients.

      Showing 1-20 of 21

      Last Updated: 10/30/2025

      What is the definition of Odontotrichomelic Syndrome?

      Odontotrichomelic syndrome is a very rare ectodermal dysplasia affecting the hair, teeth, and nails and all four extremities. The main problems are malformations of all the extremities including absence of several bones in the hands and feet, abnormal teeth, and sparse hair (hypotrichosis). Other signs and symptoms may include: very small or undeveloped (hypoplastic) nails; abnormalities of the ear; excessive sweating (hyperhidrosis); an unusual facial appearance with malformed ears, large nose, high forehead, and protruding lips; as well as a flat head, long neck, and sloping shoulders with dimples on top. The cause is unknown. Inheritance is autosomal recessive.

      When should I see an Odontotrichomelic Syndrome doctor in Massachusetts, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Odontotrichomelic Syndrome doctor in Massachusetts, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Odontotrichomelic Syndrome doctors in Massachusetts, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Odontotrichomelic Syndrome doctors in Massachusetts, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Odontotrichomelic Syndrome doctor in Massachusetts, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Odontotrichomelic Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Odontotrichomelic Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Odontotrichomelic Syndrome doctor in Massachusetts, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Odontotrichomelic Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Odontotrichomelic Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Odontotrichomelic Syndrome doctors in Massachusetts, US?

      Look for the filter feature on the left side of the Odontotrichomelic Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Odontotrichomelic Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Odontotrichomelic Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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