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    Last Updated: 10/30/2025

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    MediFind found 4 doctor with experience in Odontotrichomelic Syndrome near Philadelphia, PA. Of these, 4 are Experienced.

    Location
    LocationClose
    4 providers found
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English

      Sonika Agarwal is a Pediatric Neurologist and a Neurologist in Philadelphia, Pennsylvania. Dr. Agarwal is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Corpus Callosum Agenesis, Cortical Dysplasia, Focal or Multifocal Malformations in Neuronal Migration, Acrocallosal Syndrome, and Thrombectomy.

      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology
      Experienced in Odontotrichomelic Syndrome
      Pediatric Neurology | Neurology

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English

      Samuel Alperin is a Pediatric Neurologist and a Neurologist in Philadelphia, Pennsylvania. Dr. Alperin is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. His top areas of expertise are Tourette Syndrome, Zika Virus Disease, Microcephaly with Spastic Quadriplegia, and Microcephaly.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Odontotrichomelic Syndrome
      Pediatrics | Neurology
      Experienced in Odontotrichomelic Syndrome
      Pediatrics | Neurology
      3401 Civic Center Blvd, 9nw63, 
      Philadelphia, PA 
       (1.6 miles away)
      Languages Spoken:
      English

      Naomi Lewin is a Pediatrics specialist and a Neurologist in Philadelphia, Pennsylvania. Dr. Lewin is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Seizures, Continuous Spike-Wave During Slow Sleep Syndrome, Photosensitive Epilepsy, and Memory Loss.

      Learn about our expert tiers
      Experienced in Odontotrichomelic Syndrome
      Neurology | Pediatrics
      Experienced in Odontotrichomelic Syndrome
      Neurology | Pediatrics
      3401 Civic Center Blvd, Division Of Neurology, 
      Philadelphia, PA 
       (1.6 miles away)
      Languages Spoken:
      English

      Marisa Prelack is a Neurologist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Prelack is rated as an Experienced provider by MediFind in the treatment of Odontotrichomelic Syndrome. Her top areas of expertise are Seizures, Epilepsy Juvenile Absence, Absence Seizure, and Epilepsy.

      Showing 1-4 of 4

      Last Updated: 10/30/2025

      What is the definition of Odontotrichomelic Syndrome?

      Odontotrichomelic syndrome is a very rare ectodermal dysplasia affecting the hair, teeth, and nails and all four extremities. The main problems are malformations of all the extremities including absence of several bones in the hands and feet, abnormal teeth, and sparse hair (hypotrichosis). Other signs and symptoms may include: very small or undeveloped (hypoplastic) nails; abnormalities of the ear; excessive sweating (hyperhidrosis); an unusual facial appearance with malformed ears, large nose, high forehead, and protruding lips; as well as a flat head, long neck, and sloping shoulders with dimples on top. The cause is unknown. Inheritance is autosomal recessive.

      When should I see an Odontotrichomelic Syndrome doctor near Philadelphia, PA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Odontotrichomelic Syndrome doctor near Philadelphia, PA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Odontotrichomelic Syndrome doctors near Philadelphia, PA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Odontotrichomelic Syndrome doctors near Philadelphia, PA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Odontotrichomelic Syndrome doctor near Philadelphia, PA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Odontotrichomelic Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Odontotrichomelic Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Odontotrichomelic Syndrome doctor near Philadelphia, PA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Odontotrichomelic Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Odontotrichomelic Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Odontotrichomelic Syndrome doctors near Philadelphia, PA?

      Look for the filter feature on the left side of the Odontotrichomelic Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Odontotrichomelic Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Odontotrichomelic Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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