The 20 Best Orofaciodigital Syndrome 1 Doctors in The United States

Find the Top Orofaciodigital Syndrome 1 Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 237 doctor with experience in Orofaciodigital Syndrome 1 near The United States. Of these, 177 are Experienced, 59 are Advanced and 1 are Distinguished.

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237 providers found
    John Novak
    Experienced in Orofaciodigital Syndrome 1
    Internal Medicine
    Experienced in Orofaciodigital Syndrome 1
    Internal Medicine

    Bassett Health Center Cobleskill

    136 Parkway Drive, 
    Cobleskill, NY 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Novak is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Relapsing Multiple Sclerosis (RMS), Enlarged Prostate (BPH), Type 2 Diabetes (T2D), and Lymphangitis.

    Amy Grace
    Experienced in Orofaciodigital Syndrome 1
    Family Medicine
    Experienced in Orofaciodigital Syndrome 1
    Family Medicine

    Bassett Health Center Little Falls Primary Care

    170 Burwell Street, 
    Little Falls, NY 
    Languages Spoken:
    English

    . Dr. Grace is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. Her top areas of expertise are Hypothyroidism, Obesity in Children, Enlarged Prostate (BPH), and Familial Hypertension.

    Christine M. Jones
    Experienced in Orofaciodigital Syndrome 1
    Plastic Surgery
    Experienced in Orofaciodigital Syndrome 1
    Plastic Surgery

    St. Christopher's Pediatric Associates Plastic Surgery - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Jones is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. Her top areas of expertise are Microtia, Branchial Cleft Cyst, Autosomal Cleft Palate, Breast Enlargement In Males, and Fasciotomy.

    Learn about our expert tiers
    Hans S. Kim
    Distinguished in Orofaciodigital Syndrome 1
    Internal Medicine
    Distinguished in Orofaciodigital Syndrome 1
    Internal Medicine

    Healthcare Associates

    330 Brookline Avenue, East Shapiro 6, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Hans Kim is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Kim is rated as a Distinguished provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Oral-Facial-Digital Syndrome, Marden Walker Like Syndrome, Orofaciodigital Syndrome 1, and Orofaciodigital Syndrome 4.

    Alex A. Kane
    Advanced in Orofaciodigital Syndrome 1
    Plastic Surgery
    Advanced in Orofaciodigital Syndrome 1
    Plastic Surgery

    Fogelson Plastic & Craniofacial Surgery - Children's Specialty Center Dallas

    2350 N Stemmons Fwy, 
    Dallas, TX 
    Languages Spoken:
    English

    Alex Kane is a Plastic Surgeon in Dallas, Texas. Dr. Kane is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Metopic Ridge, Craniosynostosis, Lambdoid Synostosis, Craniectomy, and Osteotomy.

    Kongkrit Chaiyasate
    Advanced in Orofaciodigital Syndrome 1
    Plastic Surgery
    Advanced in Orofaciodigital Syndrome 1
    Plastic Surgery

    Corewell Health William Beaumont University Hospital Plastic & Reconstructive Surgery - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N120, 
    Royal Oak, MI 
    Experience:
    28+ years
    Languages Spoken:
    English, Thai
    Accepting New Patients

    Kongkrit Chaiyasate is a Plastic Surgeon in Royal Oak, Michigan. Dr. Chaiyasate has been practicing medicine for over 28 years and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Velopharyngeal Insufficiency, Head and Neck Squamous Cell Carcinoma (HNSCC), Sunken Fontanelles, Tissue Biopsy, and Osteotomy. Dr. Chaiyasate is currently accepting new patients.

    John A. Girotto
    Advanced in Orofaciodigital Syndrome 1
    General Surgery | Plastic Surgery
    Advanced in Orofaciodigital Syndrome 1
    General Surgery | Plastic Surgery

    Corewell Health Pediatric Craniofacial And Plastic Surgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5201, 
    Grand Rapids, MI 
    Experience:
    32+ years
    Languages Spoken:
    English
    Accepting New Patients

    John Girotto is a General Surgeon and a Plastic Surgeon in Grand Rapids, Michigan. Dr. Girotto has been practicing medicine for over 32 years and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Autosomal Cleft Palate, Goldenhar Disease, Cleft Lip and Palate, Osteotomy, and Bone Graft. Dr. Girotto is currently accepting new patients.

    Davinder J. Singh
    Advanced in Orofaciodigital Syndrome 1
    Plastic Surgery
    Advanced in Orofaciodigital Syndrome 1
    Plastic Surgery

    Plastic Surgery Department

    1920 E Cambridge Ave, Ste 201, 
    Phoenix, AZ 
    Languages Spoken:
    English
    Accepting New Patients

    Davinder Singh is a Plastic Surgeon in Phoenix, Arizona. Dr. Singh is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. Her top areas of expertise are Lambdoid Synostosis, Baller-Gerold Syndrome, Craniosynostosis, and Metopic Ridge. Dr. Singh is currently accepting new patients.

    Anna Carlson
    Advanced in Orofaciodigital Syndrome 1
    Pediatrics | General Surgery
    Advanced in Orofaciodigital Syndrome 1
    Pediatrics | General Surgery

    Corewell Health Pediatric Craniofacial And Plastic Surgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5201, 
    Grand Rapids, MI 
    Experience:
    12+ years
    Languages Spoken:
    English
    Accepting New Patients

    Anna Carlson is a Pediatrics specialist and a General Surgeon in Grand Rapids, Michigan. Dr. Carlson has been practicing medicine for over 12 years and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. Her top areas of expertise are Craniosynostosis, Plagiocephaly, Metopic Ridge, Osteotomy, and Bone Graft. Dr. Carlson is currently accepting new patients.

    Advanced in Orofaciodigital Syndrome 1
    Plastic Surgery
    Advanced in Orofaciodigital Syndrome 1
    Plastic Surgery

    Penn Plastic Surgery Perelman

    3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Scott Bartlett is a Plastic Surgeon in Philadelphia, Pennsylvania. Dr. Bartlett is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Craniosynostosis, Pfeiffer Syndrome, Acrocephalopolydactyly, Osteotomy, and Bone Graft. Dr. Bartlett is currently accepting new patients.

    Advanced in Orofaciodigital Syndrome 1
    Plastic Surgery
    Advanced in Orofaciodigital Syndrome 1
    Plastic Surgery

    Children's Health Dallas - Plastic Surgery

    1935 Medical District Dr, 
    Dallas, TX 
    Languages Spoken:
    English

    James Seaward is a Plastic Surgeon in Dallas, Texas. Dr. Seaward is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Craniosynostosis, Metopic Ridge, Cleft Lip and Palate, Craniectomy, and Osteotomy.

    Advanced in Orofaciodigital Syndrome 1
    Oral and Maxillofacial Surgery
    Advanced in Orofaciodigital Syndrome 1
    Oral and Maxillofacial Surgery
    4650 West Sunset Boulevard, Ms#96, 
    Los Angeles, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Mark Urata is an Oral and Maxillofacial Surgeon in Los Angeles, California. Dr. Urata is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Craniosynostosis, Metopic Ridge, Plagiocephaly, Osteotomy, and Bone Graft. Dr. Urata is currently accepting new patients.

    Advanced in Orofaciodigital Syndrome 1
    General Surgery | Plastic Surgery
    Advanced in Orofaciodigital Syndrome 1
    General Surgery | Plastic Surgery

    Penn Plastic Surgery University City

    3737 Market Street, 4th Floor, 
    Philadelphia, PA 
    Experience:
    18+ years
    Languages Spoken:
    English
    Accepting New Patients

    Jordan Swanson is a General Surgeon and a Plastic Surgeon in Philadelphia, Pennsylvania. Dr. Swanson has been practicing medicine for over 18 years and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Plagiocephaly, Craniosynostosis, Metopic Ridge, Lambdoid Synostosis, and Tissue Biopsy. Dr. Swanson is currently accepting new patients.

    Advanced in Orofaciodigital Syndrome 1
    Otolaryngology
    Advanced in Orofaciodigital Syndrome 1
    Otolaryngology

    Center For Craniofacial Surgery

    1601 East 19th Avenue, Suite 3000, 
    Denver, CO 
    Experience:
    44+ years
    Languages Spoken:
    English, French, Hindi
    Accepting New Patients

    Khalid Chowdhury is an Otolaryngologist in Denver, Colorado. Dr. Chowdhury has been practicing medicine for over 44 years and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Cleft Lip and Palate, Saethre-Chotzen Syndrome, Pfeiffer Syndrome, Tissue Biopsy, and Myringotomy. Dr. Chowdhury is currently accepting new patients.

    Bahar Gharb
    Experienced in Orofaciodigital Syndrome 1
    Plastic Surgery
    Experienced in Orofaciodigital Syndrome 1
    Plastic Surgery

    Cleveland Clinic Main Campus

    2049 East 100th Street, 
    Cleveland, OH 
    Languages Spoken:
    English, Farsi, Italian

    Bahar Gharb is a Plastic Surgeon in Cleveland, Ohio. Dr. Gharb is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. Her top areas of expertise are Carpal Tunnel Syndrome, Rhizarthrosis, Breast Enlargement In Males, Osteotomy, and Trapeziectomy.

    C A. De Mitchell
    Experienced in Orofaciodigital Syndrome 1
    General Surgery
    Experienced in Orofaciodigital Syndrome 1
    General Surgery

    Children's - Pediatric Craniofacial & Cleft Palate Clinic

    333 N. Santa Rosa St., Floor 3, 
    San Antonio, TX 
    Languages Spoken:
    English

    C De Mitchell is a General Surgeon in San Antonio, Texas. Dr. De Mitchell is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. Her top areas of expertise are Baller-Gerold Syndrome, Craniosynostosis, Lambdoid Synostosis, and Metopic Ridge.

    Peter Wang
    Experienced in Orofaciodigital Syndrome 1
    General Surgery
    Experienced in Orofaciodigital Syndrome 1
    General Surgery

    Children's - Pediatric Craniofacial & Cleft Palate Clinic

    333 N. Santa Rosa St., Floor 3, 
    San Antonio, TX 
    Languages Spoken:
    English

    Peter Wang is a General Surgeon in San Antonio, Texas. Dr. Wang is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Branchial Cleft Cyst, Cleft Lip and Palate, Autosomal Cleft Palate, Hypoplasia of the Tibia with Polydactyly, and Myringotomy.

    David C. Lobb
    Experienced in Orofaciodigital Syndrome 1
    Plastic Surgery
    Experienced in Orofaciodigital Syndrome 1
    Plastic Surgery

    Prisma Health Carolina Plastic Surgery & Aesthetics–Patewood

    209 Patewood Drive, Suite 200, 
    Greenville, SC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    David Lobb is a Plastic Surgeon in Greenville, South Carolina. Dr. Lobb is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Plagiocephaly, Metopic Ridge, Craniosynostosis, Autosomal Cleft Palate, and Bone Graft. Dr. Lobb is currently accepting new patients.

    Patrick Byrne
    Experienced in Orofaciodigital Syndrome 1
    Plastic Surgery
    Experienced in Orofaciodigital Syndrome 1
    Plastic Surgery

    Cleveland Clinic Main Campus

    2049 East 100th Street, 
    Cleveland, OH 
    Experience:
    37+ years
    Languages Spoken:
    English

    Patrick Byrne is a Plastic Surgeon in Cleveland, Ohio. Dr. Byrne has been practicing medicine for over 37 years and is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Facial Paralysis, Bell's Palsy, Recurrent Peripheral Facial Palsy, Herpes Zoster Oticus, and Septoplasty.

    Wellington J. Davis
    Experienced in Orofaciodigital Syndrome 1
    General Surgery
    Experienced in Orofaciodigital Syndrome 1
    General Surgery

    LVPG Pediatric General, Thoracic And Plastic Surgery-1210 Cedar Crest

    1210 S Cedar Crest Blvd, Suite 1100, 
    Allentown, PA 
    Languages Spoken:
    English, Spanish

    Philosophy of care | There is no clinical problem too big or too small. I am happy doing a total cranial vault reconstruction or removing an embedded earring backing. It's important to keep in mind that something that may be easy for a physician to treat is still an anxiety-producing problem for a patient and his or her family. Being mindful of a family’s needs and reducing their anxiety is a very important part of the care I provide. I think most parents of pediatric patients just want to know that their child is going to be okay. | Why I entered medicine | I entered medicine because, as a young person, I loved anatomy and physiology and wanted to contribute to society by helping people return to health as a doctor. It's an easy thing to forget about when we get caught up in – or even lost in – the complexities of health care. I like working with medical students and residents because they always remind me of how cool and important the work that I do is. | Community involvement | Over the years I have participated in multiple overseas medical volunteer trips. Two trips to Peru with the Peruvian American Medical Society, one trip to Lusaka, Zambia with the Pain Free Foundation, and one trip to Peru and one trip to the Ivory Coast with the Global Smile Foundation. On these trips, I have done cleft lip and palate work, burn reconstruction, and general pediatric plastic surgery, such as webbed hand reconstruction. I plan to continue working with the Global Smile Foundation in the future. | Personal interests | My interests outside of work focus on the creative: vinyl, attending concerts, playing music, exploring superhero mythology, and watching Marvel movies. Dr. Davis is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Hypoplasia of the Tibia with Polydactyly, Polydactyly, Velopharyngeal Insufficiency, Autosomal Cleft Palate, and Myringotomy.

    Showing 1-20 of 237

    Last Updated: 04/28/2026

    What is the definition of Orofaciodigital Syndrome 1?

    Orofaciodigital syndrome 1 (OFD1), also called orofaciodigital syndrome type 1, is a condition that affects the development of the oral cavity (the mouth and teeth), facial features, and digits (fingers and toes). This condition also causes polycystic kidney disease. Orofaciodigital syndrome 1 is caused by a change in a gene called OFD1 which appears to play an important role in the early development of many parts of the body including the brain, face, limbs, and kidneys. The syndrome is inherited in an X-linked dominant pattern. The diagnosis of OFD1 is sometimes made at birth, but it may be suspected only after polycystic kidney disease is found in later childhood or adulthood. OFD1 is the most common form of orofaciodigital syndrome and differs from the other types mainly by its association with polycystic kidney disease.

    When should I see an Orofaciodigital Syndrome 1 doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Orofaciodigital Syndrome 1 doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Orofaciodigital Syndrome 1 doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Orofaciodigital Syndrome 1 doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Orofaciodigital Syndrome 1 doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Orofaciodigital Syndrome 1 doctor search results page. 

    Why is it important to get a second opinion from a different Orofaciodigital Syndrome 1 doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Orofaciodigital Syndrome 1 doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Orofaciodigital Syndrome 1 doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Orofaciodigital Syndrome 1 doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Orofaciodigital Syndrome 1 doctors in The United States?

    Look for the filter feature on the left side of the Orofaciodigital Syndrome 1 doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Orofaciodigital Syndrome 1 doctor that offers video calls?

    Look for the filter feature on the left-side of the Orofaciodigital Syndrome 1 doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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