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    Last Updated: 10/30/2025

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    MediFind found 10 doctor with experience in Otopalatodigital Syndrome Type 1 near Massachusetts, US. Of these, 9 are Experienced and 1 are Distinguished.

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    10 providers found
      Distinguished in Otopalatodigital Syndrome Type 1
      Internal Medicine
      Distinguished in Otopalatodigital Syndrome Type 1
      Internal Medicine

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Hans Kim is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Kim is rated as a Distinguished provider by MediFind in the treatment of Otopalatodigital Syndrome Type 1. His top areas of expertise are Greig Cephalopolysyndactyly Syndrome, Hypertrichosis-Acromegaloid Facial Appearance Syndrome, Craniofacial-Deafness-Hand Syndrome, and Ascher Syndrome. Dr. Kim is currently accepting new patients.

      Experienced in Otopalatodigital Syndrome Type 1
      Medical Genetics | Pediatrics
      Experienced in Otopalatodigital Syndrome Type 1
      Medical Genetics | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Stephanie Sacharow is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Sacharow is rated as an Experienced provider by MediFind in the treatment of Otopalatodigital Syndrome Type 1. Her top areas of expertise are Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Cat Eye Syndrome, and Dihydropteridine Reductase Deficiency. Dr. Sacharow is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Otopalatodigital Syndrome Type 1
      Medical Genetics | Pediatric Neurology | Pediatrics
      Experienced in Otopalatodigital Syndrome Type 1
      Medical Genetics | Pediatric Neurology | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Lance Rodan is a Medical Genetics specialist and a Pediatric Neurologist in Boston, Massachusetts. Dr. Rodan is rated as an Experienced provider by MediFind in the treatment of Otopalatodigital Syndrome Type 1. His top areas of expertise are Hennekam Syndrome, Increased Head Circumference, Polymicrogyria, Retinopathy Pigmentary Mental Retardation, and Deep Brain Stimulation. Dr. Rodan is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Otopalatodigital Syndrome Type 1
      Medical Genetics | Pediatrics
      Experienced in Otopalatodigital Syndrome Type 1
      Medical Genetics | Pediatrics
      Childrens Hospital, 300 Longwood Ave./genetics, Feg, 
      Boston, MA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Wen-hann Tan is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Tan is rated as an Experienced provider by MediFind in the treatment of Otopalatodigital Syndrome Type 1. His top areas of expertise are Incontinentia Pigmenti, Congenital Athymia, EEC Syndrome, and AEC Syndrome. Dr. Tan is currently accepting new patients.

      Experienced in Otopalatodigital Syndrome Type 1
      Medical Genetics | Pediatrics
      Experienced in Otopalatodigital Syndrome Type 1
      Medical Genetics | Pediatrics
      850 Harrison Ave Fl 6, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Aya Abu-El is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Abu-El is rated as an Experienced provider by MediFind in the treatment of Otopalatodigital Syndrome Type 1. Her top areas of expertise are Stickler Syndrome, Coffin-Lowry Syndrome, Kabuki Syndrome, and 3MC Syndrome. Dr. Abu-El is currently accepting new patients.

      Experienced in Otopalatodigital Syndrome Type 1
      Internal Medicine
      Experienced in Otopalatodigital Syndrome Type 1
      Internal Medicine

      Pratt Medical Group Inc

      800 Washigton St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Dineli Ahearn is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Ahearn is rated as an Experienced provider by MediFind in the treatment of Otopalatodigital Syndrome Type 1. Her top areas of expertise are Osteoporosis, Postmenopausal Osteoporosis, Cellulitis, and Obesity in Children. Dr. Ahearn is currently accepting new patients.

      Experienced in Otopalatodigital Syndrome Type 1
      Medical Genetics | Pediatrics
      Experienced in Otopalatodigital Syndrome Type 1
      Medical Genetics | Pediatrics
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Ingrid Holm is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Holm is rated as an Experienced provider by MediFind in the treatment of Otopalatodigital Syndrome Type 1. Her top areas of expertise are Sudden Infant Death Syndrome (SIDS), Brachydactyly Mononen Type, Mandibuloacral Dysplasia, and Lateral Meningocele Syndrome. Dr. Holm is currently accepting new patients.

      Experienced in Otopalatodigital Syndrome Type 1
      Medical Genetics | Pediatrics
      Experienced in Otopalatodigital Syndrome Type 1
      Medical Genetics | Pediatrics

      The General Hospital Corporation

      55 Fruit St, 
      Boston, MA 
      Languages Spoken:
      English

      Catherine Nowak is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Nowak is rated as an Experienced provider by MediFind in the treatment of Otopalatodigital Syndrome Type 1. Her top areas of expertise are Autosomal Cleft Palate, Prognathism, Syndactyly, and Proximal Symphalangism.

      Experienced in Otopalatodigital Syndrome Type 1
      Pediatrics | Internal Medicine
      Experienced in Otopalatodigital Syndrome Type 1
      Pediatrics | Internal Medicine

      Baystate Medical Practices Inc

      11 Wilbraham Rd, Baystate Mason Square, 
      Springfield, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Andrew Balder is a primary care provider, practicing in Pediatrics and Internal Medicine in Springfield, Massachusetts. Dr. Balder is rated as an Experienced provider by MediFind in the treatment of Otopalatodigital Syndrome Type 1. His top areas of expertise are Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Balder is currently accepting new patients.

      Experienced in Otopalatodigital Syndrome Type 1
      Medical Genetics
      Experienced in Otopalatodigital Syndrome Type 1
      Medical Genetics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Olaf Bodamer is a Medical Genetics provider in Boston, Massachusetts. Dr. Bodamer is rated as an Experienced provider by MediFind in the treatment of Otopalatodigital Syndrome Type 1. His top areas of expertise are Kabuki Syndrome, Classic Galactosemia, Niemann-Pick Disease, and Mucopolysaccharidoses (MPS). Dr. Bodamer is currently accepting new patients.

      Showing 1-10 of 10

      Last Updated: 10/30/2025

      What is the definition of Otopalatodigital Syndrome Type 1?

      Otopalatodigital syndrome type 1 is a disorder primarily involving abnormalities in skeletal development. It is a member of a group of related conditions called otopalatodigital spectrum disorders, which also includes otopalatodigital syndrome type 2, frontometaphyseal dysplasia, Melnick-Needles syndrome, and terminal osseous dysplasia. In general, these disorders involve hearing loss caused by malformations in the tiny bones in the ears (ossicles), problems in the development of the roof of the mouth (palate), and skeletal abnormalities involving the fingers or toes (digits).

      When should I see an Otopalatodigital Syndrome Type 1 doctor in Massachusetts, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Otopalatodigital Syndrome Type 1 doctor in Massachusetts, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Otopalatodigital Syndrome Type 1 doctors in Massachusetts, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Otopalatodigital Syndrome Type 1 doctors in Massachusetts, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Otopalatodigital Syndrome Type 1 doctor in Massachusetts, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Otopalatodigital Syndrome Type 1 doctor search results page. 

      Why is it important to get a second opinion from a different Otopalatodigital Syndrome Type 1 doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Otopalatodigital Syndrome Type 1 doctor in Massachusetts, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Otopalatodigital Syndrome Type 1 doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Otopalatodigital Syndrome Type 1 doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Otopalatodigital Syndrome Type 1 doctors in Massachusetts, US?

      Look for the filter feature on the left side of the Otopalatodigital Syndrome Type 1 doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Otopalatodigital Syndrome Type 1 doctor that offers video calls?

      Look for the filter feature on the left-side of the Otopalatodigital Syndrome Type 1 doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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