Pantothenate Kinase-Associated NeurodegenerationSymptoms, Doctors, Treatments, Advances & More
Pantothenate Kinase-Associated Neurodegeneration Overview
Learn About Pantothenate Kinase-Associated Neurodegeneration
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However, there may be experts who have treated this or similar conditions in our Find a Doctor section and research may be available in our Latest Advances section.
Thomas Klopstock practices practicing medicine in Munich, Germany. Mr. Klopstock is rated as an Elite expert by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Leber Hereditary Optic Neuropathy (LHON), Optic Nerve Atrophy, Pantothenate Kinase-Associated Neurodegeneration, and Hallervorden-Spatz Disease.
Peter Stoeter practices practicing medicine in Dominican Republic. Mr. Stoeter is rated as an Elite expert by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Pantothenate Kinase-Associated Neurodegeneration, Hallervorden-Spatz Disease, Drug Induced Dyskinesia, Movement Disorders, and Gamma Knife Radiosurgery.
OHSU Hospital
Penelope Hogarth is a Neurologist practicing medicine in Portland, Oregon. Dr. Hogarth is rated as an Elite provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Pantothenate Kinase-Associated Neurodegeneration, Hallervorden-Spatz Disease, Beta-Propeller Protein-Associated Neurodegeneration, Movement Disorders, and Deep Brain Stimulation.
Summary: TIRCON-reg aims to * continue the provision of a global registry and natural history study for NBIA disorders * harmonize and cover existing national and single site registries * enable participation of countries and single sites that so far have no access to an NBIA registry * join forces in order to recruit sufficient numbers of patients * define the natural history of NBIA disorders * define th...