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    Last Updated: 02/22/2026

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    MediFind found 9 doctor with experience in Paramyotonia Congenita near Charlotte, NC. Of these, 6 are Experienced and 3 are Advanced.

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    9 providers found
      Urvi G. Desai
      Advanced in Paramyotonia Congenita
      Sleep Medicine | Neuromusculoskeletal Medicine
      Advanced in Paramyotonia Congenita
      Sleep Medicine | Neuromusculoskeletal Medicine

      Atrium Health Neurology Specialty Care, A Facility Of Carolinas Medical Center

      1010 Edgehill Road N., 
      Charlotte, NC 
       (2.5 miles away)
      Languages Spoken:
      English, Gujarati , Hindi
      Accepting New Patients
      Offers Telehealth

      Urvi Desai is a Neuromusculoskeletal Medicine specialist and a Sleep Medicine provider in Charlotte, North Carolina. Dr. Desai is rated as an Advanced provider by MediFind in the treatment of Paramyotonia Congenita. Her top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Dysferlinopathy, Facioscapulohumeral Muscular Dystrophy (FSHD), and Myasthenia Gravis. Dr. Desai is currently accepting new patients.

      Leo F. Mccluskey
      Experienced in Paramyotonia Congenita
      Neurology | Neuromusculoskeletal Medicine
      Experienced in Paramyotonia Congenita
      Neurology | Neuromusculoskeletal Medicine

      Atrium Health Neurology Specialty Care, A Facility Of Carolinas Medical Center

      1010 Edgehill Road N., 
      Charlotte, NC 
       (2.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Leo Mccluskey is a Neurologist and a Neuromusculoskeletal Medicine provider in Charlotte, North Carolina. Dr. Mccluskey is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), and Spinal and Bulbar Muscular Atrophy. Dr. Mccluskey is currently accepting new patients.

      Experienced in Paramyotonia Congenita
      Experienced in Paramyotonia Congenita

      Mecklenburg Neurological Associates

      1900 Scott Ave., 
      Charlotte, NC 
       (1.8 miles away)
      Experience:
      35+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Michael Amiri is a Neurologist in Charlotte, North Carolina. Dr. Amiri has been practicing medicine for over 35 years and is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Seizures, Memory Loss, Epilepsy, and Alzheimer's Disease. Dr. Amiri is currently accepting new patients.

      Learn about our expert tiers
      John S. Story
      Advanced in Paramyotonia Congenita
      Neurology | Neuromusculoskeletal Medicine
      Advanced in Paramyotonia Congenita
      Neurology | Neuromusculoskeletal Medicine

      Atrium Health Neurology Specialty Care, A Facility Of Carolinas Medical Center

      1010 Edgehill Road N., 
      Charlotte, NC 
       (2.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      John Story is a Neurologist and a Neuromusculoskeletal Medicine provider in Charlotte, North Carolina. Dr. Story is rated as an Advanced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3. Dr. Story is currently accepting new patients.

      Advanced in Paramyotonia Congenita
      Advanced in Paramyotonia Congenita
      1010 Edgehill Rd N, 
      Charlotte, NC 
       (1.7 miles away)
      Languages Spoken:
      English

      Benjamin Brooks is a Neurologist in Charlotte, North Carolina. Dr. Brooks is rated as an Advanced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Spinal and Bulbar Muscular Atrophy, and Gastrostomy.

      Robert C. Bowen
      Experienced in Paramyotonia Congenita
      Internal Medicine
      Experienced in Paramyotonia Congenita
      Internal Medicine

      Tryon Medical Partners, PLLC

      6060 Piedmont Row Dr S, 
      Charlotte, NC 
       (5.5 miles away)
      Experience:
      27+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Robert Bowen is a primary care provider, practicing in Internal Medicine in Charlotte, North Carolina. Dr. Bowen has been practicing medicine for over 27 years and is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Osmotic Diuresis, Antiphospholipid Syndrome, Continuous Muscle Fiber Activity Hereditary, and Sitosterolemia. Dr. Bowen is currently accepting new patients.

      Sarah E. Goodman
      Experienced in Paramyotonia Congenita
      Family Medicine
      Experienced in Paramyotonia Congenita
      Family Medicine

      Atrium Health Primary Care One Health Family Medicine

      4815 Johnston Oehler Road, Suite 100, 
      Charlotte, NC 
       (7.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sarah Goodman is a primary care provider, practicing in Family Medicine in Charlotte, North Carolina. Dr. Goodman is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. Her top areas of expertise are Obesity in Children, Bronchitis, Folate Deficiency, and Multiple Carboxylase Deficiency. Dr. Goodman is currently accepting new patients.

      Ashok V. Patel
      Experienced in Paramyotonia Congenita
      Neurology | Neuromusculoskeletal Medicine
      Experienced in Paramyotonia Congenita
      Neurology | Neuromusculoskeletal Medicine

      Atrium Health Neurology

      15110 John J. Delaney Drive, Suite 200, 
      Charlotte, NC 
       (12.1 miles away)
      Languages Spoken:
      English, Gujarati 
      Accepting New Patients
      Offers Telehealth

      Ashok Patel is a Neurologist and a Neuromusculoskeletal Medicine provider in Charlotte, North Carolina. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Peripheral Neuropathy, Movement Disorders, Parkinson's Disease, and Tension Headache. Dr. Patel is currently accepting new patients.

      Experienced in Paramyotonia Congenita
      Ophthalmology | Pediatrics | Neurology
      Experienced in Paramyotonia Congenita
      Ophthalmology | Pediatrics | Neurology
      6035 Fairview Rd, 
      Charlotte, NC 
       (5.2 miles away)
      Languages Spoken:
      English

      Brian White is an Ophthalmologist and a Pediatrics provider in Charlotte, North Carolina. Dr. White is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Papilledema, Agnosia, Strabismus, and Color Blindness.

      Showing 1-9 of 9

      Last Updated: 02/22/2026

      What is the definition of Paramyotonia Congenita?

      Paramyotonia congenita is a disorder that affects muscles used for movement (skeletal muscles). Beginning in infancy or early childhood, people with this condition experience bouts of sustained muscle tensing (myotonia) that prevent muscles from relaxing normally. Myotonia causes muscle stiffness that typically appears after exercise and can be induced by muscle cooling. This stiffness chiefly affects muscles in the face, neck, arms, and hands, although it can also affect muscles used for breathing and muscles in the lower body. Unlike many other forms of myotonia, the muscle stiffness associated with paramyotonia congenita tends to worsen with repeated movements.

      When should I see a Paramyotonia Congenita doctor near Charlotte, NC?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Paramyotonia Congenita doctor near Charlotte, NC?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Paramyotonia Congenita doctors near Charlotte, NC?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Paramyotonia Congenita doctors near Charlotte, NC?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Paramyotonia Congenita doctor near Charlotte, NC?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Paramyotonia Congenita doctor search results page. 

      Why is it important to get a second opinion from a different Paramyotonia Congenita doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Paramyotonia Congenita doctor near Charlotte, NC?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Paramyotonia Congenita doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Paramyotonia Congenita doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Paramyotonia Congenita doctors near Charlotte, NC?

      Look for the filter feature on the left side of the Paramyotonia Congenita doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Paramyotonia Congenita doctor that offers video calls?

      Look for the filter feature on the left-side of the Paramyotonia Congenita doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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