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    Last Updated: 10/30/2025

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    MediFind found 348 doctor with experience in Pelizaeus-Merzbacher Disease near The United States. Of these, 269 are Experienced, 75 are Advanced and 4 are Distinguished.

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    LocationClose
    348 providers found
      Advanced in Pelizaeus-Merzbacher Disease
      Advanced in Pelizaeus-Merzbacher Disease

      University Of Cincinnati Physicians Company LLC

      3188 Bellevue Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Lawrence Goldstick is a Neurologist in Cincinnati, Ohio. Dr. Goldstick is rated as an Advanced provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Cerebellar Degeneration, and Peripheral Neuropathy. Dr. Goldstick is currently accepting new patients.

      Advanced in Pelizaeus-Merzbacher Disease
      Advanced in Pelizaeus-Merzbacher Disease
      3300 Main Street, 3rd Floor Suite C&d, 
      Springfield, MA 
      Languages Spoken:
      English

      Meghan Hickey is a Neurologist in Springfield, Massachusetts. Dr. Hickey is rated as an Advanced provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. Her top areas of expertise are Seizures, Migraine, Autosomal Dominant Partial Epilepsy with Auditory Features, and Tension Headache.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Pelizaeus-Merzbacher Disease
      Neurology
      Experienced in Pelizaeus-Merzbacher Disease
      Neurology

      University Of Cincinnati Physicians Company LLC

      68 Cavalier Blvd, 
      Florence, KY 
      Languages Spoken:
      English, Farsi
      Accepting New Patients
      Offers Telehealth

      Aram Zabeti is a Neurologist in Florence, Kentucky. Dr. Zabeti is rated as an Experienced provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Optic Neuritis, and Neuromyelitis Optica. Dr. Zabeti is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Pelizaeus-Merzbacher Disease
      Experienced in Pelizaeus-Merzbacher Disease

      University Of Virginia Physicians Group

      1221 Lee St, 
      Charlottesville, VA 
      Languages Spoken:
      English, Hebrew
      Accepting New Patients
      Offers Telehealth

      Brian Weinshenker is a Neurologist in Charlottesville, Virginia. Dr. Weinshenker is rated as an Experienced provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. His top areas of expertise are Transverse Myelitis, Neuromyelitis Optica, Optic Neuritis, and Multiple Sclerosis (MS). Dr. Weinshenker is currently accepting new patients.

      Experienced in Pelizaeus-Merzbacher Disease
      Experienced in Pelizaeus-Merzbacher Disease

      Froedtert Andthe Medical College Of Wisconsin Community Physicians Inc

      4805 S Moorland Rd, 
      New Berlin, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ryan Brennan is a Neurologist in New Berlin, Wisconsin. Dr. Brennan is rated as an Experienced provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. His top areas of expertise are Movement Disorders, Parkinson's Disease, Essential Tremor, Camptocormism, and Deep Brain Stimulation. Dr. Brennan is currently accepting new patients.

      Experienced in Pelizaeus-Merzbacher Disease
      Family Medicine
      Experienced in Pelizaeus-Merzbacher Disease
      Family Medicine

      Loyola University Medical Center

      2160 S 1st Ave, 
      Maywood, IL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Amy Blair is a primary care provider, practicing in Family Medicine in Maywood, Illinois. Dr. Blair is rated as an Experienced provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. Her top areas of expertise are Breast Cancer, Type 2 Diabetes (T2D), Hypertension, and Familial Hypertension. Dr. Blair is currently accepting new patients.

      Distinguished in Pelizaeus-Merzbacher Disease
      Pediatric Neurology | Neurology
      Distinguished in Pelizaeus-Merzbacher Disease
      Pediatric Neurology | Neurology

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Adeline Vanderver is a Pediatric Neurologist and a Neurologist in Philadelphia, Pennsylvania. Dr. Vanderver is rated as a Distinguished provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. Her top areas of expertise are Aicardi-Goutieres Syndrome, Leukodystrophy, CACH Syndrome, Pol 3-Related Leukodystrophy, and Gastrostomy.

      Distinguished in Pelizaeus-Merzbacher Disease
      Family Medicine
      Distinguished in Pelizaeus-Merzbacher Disease
      Family Medicine

      The Board Of Trustees Of The University Of Illinois

      1740 W Taylor St, 
      Chicago, IL 
      Languages Spoken:
      English, Japanese

      Masahito Jimbo is a primary care provider, practicing in Family Medicine in Chicago, Illinois. Dr. Jimbo is rated as a Distinguished provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. His top areas of expertise are Farber Lipogranulomatosis, CACH Syndrome, Leukodystrophy, and Pelizaeus-Merzbacher Disease.

      Distinguished in Pelizaeus-Merzbacher Disease
      Distinguished in Pelizaeus-Merzbacher Disease

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Jacinda Sampson is a Neurologist in Stanford, California. Dr. Sampson is rated as a Distinguished provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. Her top areas of expertise are Oculodentodigital Dysplasia, Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, and Thymectomy.

      Distinguished in Pelizaeus-Merzbacher Disease
      Distinguished in Pelizaeus-Merzbacher Disease

      University Of Texas Southwestern Medical Center At Dallas

      5303 Harry Hines Blvd, Fl 6, 
      Dallas, TX 
      Languages Spoken:
      English
      Offers Telehealth

      Vikram Shakkottai is a Neurologist in Dallas, Texas. Dr. Shakkottai is rated as a Distinguished provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. His top areas of expertise are Olivopontocerebellar Atrophy, Spinocerebellar Ataxia, Spinocerebellar Ataxia Type 1, and Drug Induced Dyskinesia.

      Christopher R. Barnes
      Advanced in Pelizaeus-Merzbacher Disease
      Advanced in Pelizaeus-Merzbacher Disease

      Corewell Health Advanced Primary Care - Alpine

      2332 Alpine Avenue Northwest, 
      Grand Rapids, MI 
      Experience:
      27+ years
      Languages Spoken:
      English
      Accepting New Patients

      Christopher Barnes is a primary care provider, practicing in Geriatrics in Grand Rapids, Michigan. Dr. Barnes has been practicing medicine for over 27 years and is rated as an Advanced provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. His top areas of expertise are Alexander Disease, Pelizaeus-Merzbacher Disease, Canavan Disease, and Metachromatic Leukodystrophy. Dr. Barnes is currently accepting new patients.

      Sumit Parikh
      Advanced in Pelizaeus-Merzbacher Disease
      Pediatric Neurology
      Advanced in Pelizaeus-Merzbacher Disease
      Pediatric Neurology

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
      Experience:
      32+ years
      Languages Spoken:
      English

      Sumit Parikh is a Pediatric Neurologist in Cleveland, Ohio. Dr. Parikh has been practicing medicine for over 32 years and is rated as an Advanced provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. His top areas of expertise are Leigh Syndrome, Kearns-Sayre Syndrome, Maternally Inherited Leigh Syndrome, and MELAS Syndrome.

      Kerry R. Bianchi
      Advanced in Pelizaeus-Merzbacher Disease
      Internal Medicine
      Advanced in Pelizaeus-Merzbacher Disease
      Internal Medicine

      Atrium Health Kannapolis Internal Medicine

      201 Dale Earnhardt Blvd., Suite 200, 
      Kannapolis, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kerry Bianchi is a primary care provider, practicing in Internal Medicine in Kannapolis, North Carolina. Dr. Bianchi is rated as an Advanced provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. Her top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Hypertension, Familial Hypertension, and Maturity Onset Diabetes of the Young. Dr. Bianchi is currently accepting new patients.

      Mary Rensel
      Advanced in Pelizaeus-Merzbacher Disease
      Neurology
      Advanced in Pelizaeus-Merzbacher Disease
      Neurology

      Cleveland Clinic Main Campus

      1950 East 89th Street, 
      Cleveland, OH 
      Experience:
      38+ years
      Languages Spoken:
      English
      Offers Telehealth

      Mary Rensel is a Neurologist in Cleveland, Ohio. Dr. Rensel has been practicing medicine for over 38 years and is rated as an Advanced provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. Her top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Transverse Myelitis, and Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease.

      Keith Mckee
      Advanced in Pelizaeus-Merzbacher Disease
      Physiatry
      Advanced in Pelizaeus-Merzbacher Disease
      Physiatry

      Avon - Richard E. Jacobs Health Center

      33100 Cleveland Clinic Boulevard, 
      Avon, OH 
      Experience:
      33+ years
      Languages Spoken:
      English
      Offers Telehealth

      Keith Mckee is a Physiatrist in Avon, Ohio. Dr. Mckee has been practicing medicine for over 33 years and is rated as an Advanced provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. His top areas of expertise are Spastic Paraplegia Type 2, Spastic Paraplegia-Epilepsy-Intellectual Disability Syndrome, Troyer Syndrome, and Spastic Paraplegia Type 5A.

      Todd Rafferty
      Advanced in Pelizaeus-Merzbacher Disease
      Family Medicine
      Advanced in Pelizaeus-Merzbacher Disease
      Family Medicine

      Stow-Falls Express And Outpatient Care

      857 Graham Road, 
      Cuyahoga Fls, OH 
      Languages Spoken:
      English

      Todd Rafferty is a primary care provider, practicing in Family Medicine in Cuyahoga Fls, Ohio. Dr. Rafferty is rated as an Advanced provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. His top areas of expertise are Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, Pelizaeus-Merzbacher Disease, and Farber Lipogranulomatosis.

      Experienced in Pelizaeus-Merzbacher Disease
      Experienced in Pelizaeus-Merzbacher Disease

      Integrated Neurology Services

      6355 Walker Lane, Suite 313, 
      Alexandria, VA 
      Languages Spoken:
      English
      Offers Telehealth

      Simon Fishman is a Neurologist in Alexandria, Virginia. Dr. Fishman is rated as an Experienced provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. His top areas of expertise are Wernicke-Korsakoff Syndrome, Primary Orthostatic Tremor, Migraine, and Athetosis.

      Advanced in Pelizaeus-Merzbacher Disease
      Advanced in Pelizaeus-Merzbacher Disease

      Mainehealth

      22 Bramhall St, 
      Portland, ME 
      Languages Spoken:
      English

      Robert Stein is a Neurologist in Portland, Maine. Dr. Stein is rated as an Advanced provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. His top areas of expertise are Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE), Seizures, Stroke, and Myasthenia Gravis.

      Advanced in Pelizaeus-Merzbacher Disease
      Family Medicine
      Advanced in Pelizaeus-Merzbacher Disease
      Family Medicine

      The Curators Of The University Of Missouri

      551 Veterans United Dr, 
      Columbia, MO 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Christine Wilson is a primary care provider, practicing in Family Medicine in Columbia, Missouri. Dr. Wilson is rated as an Advanced provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. Her top areas of expertise are Alexander Disease, Metachromatic Leukodystrophy, Farber Lipogranulomatosis, and Leukodystrophy. Dr. Wilson is currently accepting new patients.

      Advanced in Pelizaeus-Merzbacher Disease
      Advanced in Pelizaeus-Merzbacher Disease
      601 Elmwood Ave, Box 278984, 
      Rochester, NY 
      Languages Spoken:
      English

      Steven Goldman is a Neurologist in Rochester, New York. Dr. Goldman is rated as an Advanced provider by MediFind in the treatment of Pelizaeus-Merzbacher Disease. His top areas of expertise are Pelizaeus-Merzbacher Disease, Huntington Disease, CACH Syndrome, and Movement Disorders.

      Showing 1-20 of 348

      Last Updated: 10/30/2025

      What is the definition of Pelizaeus-Merzbacher Disease?

      Pelizaeus-Merzbacher disease is a disorder that affects the brain and spinal cord. It is a type of leukodystrophy and is characterized by problems with coordination, motor skills, and learning. It is caused by an inability to form myelin due to genetic changes in the PLP1 gene. It is passed through families in an X-linked recessive pattern. The condition primarily affects males.

      When should I see a Pelizaeus-Merzbacher Disease doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Pelizaeus-Merzbacher Disease doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Pelizaeus-Merzbacher Disease doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Pelizaeus-Merzbacher Disease doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Pelizaeus-Merzbacher Disease doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Pelizaeus-Merzbacher Disease doctor search results page. 

      Why is it important to get a second opinion from a different Pelizaeus-Merzbacher Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Pelizaeus-Merzbacher Disease doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Pelizaeus-Merzbacher Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Pelizaeus-Merzbacher Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Pelizaeus-Merzbacher Disease doctors in The United States?

      Look for the filter feature on the left side of the Pelizaeus-Merzbacher Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Pelizaeus-Merzbacher Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Pelizaeus-Merzbacher Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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