Justin Decoux is a Nurse Practitioner in Fort Worth, Texas. Mr. Decoux has been practicing medicine for over 10 years and is rated as an Advanced provider by MediFind in the treatment of Perlman Syndrome. His top areas of expertise are Hemi 3 Syndrome, Simpson-Golabi-Behmel Syndrome, Megalencephaly-Capillary Malformation Syndrome, and Perlman Syndrome.

. Dr. Popescu is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. Her top areas of expertise are Hereditary Spherocytosis, Von Willebrand Disease (VWD), Evans Syndrome, and Hemophilic Arthropathy.

Stefanie Kienker is a Pediatrics specialist and a Nurse Practitioner in Charlotte, North Carolina. Ms. Kienker is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. Her top areas of expertise are Perlman Syndrome, Hemi 3 Syndrome, Megalencephaly-Capillary Malformation Syndrome, and Cantu Syndrome. Ms. Kienker is currently accepting new patients.

. Dr. Gibson is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. Her top areas of expertise are Obesity in Children, Delayed Growth, Autism Spectrum Disorder, and Diarrhea.

Majd Makhoul is a Pediatric Cardiologist in Charlotte, North Carolina. Dr. Makhoul is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. His top areas of expertise are X-Linked Cardiac Valvular Dysplasia, Cardiac Diverticulum, Congenital Heart Disease (CHD), and Congenital Mitral Malformation. Dr. Makhoul is currently accepting new patients.

Chad Jacobsen is a Hematologist and an Oncologist in Charlotte, North Carolina. Dr. Jacobsen has been practicing medicine for over 29 years and is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Medulloblastoma, Neurofibromatosis, and Embryonal Tumor with Multilayered Rosettes. Dr. Jacobsen is currently accepting new patients.

Amy Kelly is a Hematologist and an Oncologist in Charlotte, North Carolina. Ms. Kelly is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. Her top areas of expertise are Pediatric Low-Grade Glioma (pLGG), Marshall-Smith Syndrome, Hemi 3 Syndrome, and Simpson-Golabi-Behmel Syndrome. Ms. Kelly is currently accepting new patients.

. Dr. Emberesh is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. Her top areas of expertise are Hereditary Spherocytosis, Evans Syndrome, Febrile Neutropenia, and Congenital Hemolytic Anemia.

. Dr. Russi is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. His top areas of expertise are Increased Head Circumference, Ehlers-Danlos Syndrome (EDS), Chromosome 8p Deletion, and Chromosome 6q Duplication.

. Dr. Bullman is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. Her top areas of expertise are Obesity in Children, Delayed Growth, Croup, and Musculocontractural Ehlers-Danlos Syndrome (mcEDS).

Harry Lesmana is a Pediatrics provider in Cleveland, Ohio. Dr. Lesmana has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Perlman Syndrome. His top areas of expertise are Hemi 3 Syndrome, Marshall-Smith Syndrome, Simpson-Golabi-Behmel Syndrome, and Perlman Syndrome.

Richard Moretz is a Radiologist in Greenville, South Carolina. Dr. Moretz is rated as an Advanced provider by MediFind in the treatment of Perlman Syndrome. His top areas of expertise are Scoliosis, PIK3CA-Related Overgrowth Spectrum, Knock Knees, and Spondylocarpotarsal Synostosis Syndrome.

Brendan Mccleary is a Pediatric Radiologist in Cleveland, Ohio. Dr. Mccleary has been practicing medicine for over 21 years and is rated as an Advanced provider by MediFind in the treatment of Perlman Syndrome. His top areas of expertise are Mosaic Trisomy 9, Mosaic Trisomy 8, Trisomy 17 Mosaicism, and Increased Head Circumference.

John Amodio, MD, FACR, is Chief, Radiology and Division Lead, Pediatric Radiology at Children’s Hospital at Montefiore Einstein and Professor, Radiology at our Albert Einstein College of Medicine. Dr. Amodio has 40 years of experience in pediatric imaging. His particular interest is the use of contrast ultrasound in pediatric imaging. Dr. Amodio is rated as an Advanced provider by MediFind in the treatment of Perlman Syndrome. His top areas of expertise are Gas Bloat Syndrome, Schizencephaly, Porencephaly, and Tracheobronchopathia Osteoplastica.

Albair Guirguis is a Pediatric Radiologist in Cleveland, Ohio. Dr. Guirguis is rated as an Advanced provider by MediFind in the treatment of Perlman Syndrome. His top areas of expertise are Congenital Athymia, Tenosynovitis, Pectus Excavatum, and Short Stature (Growth Disorders).

Alex Kane is a Plastic Surgeon in Dallas, Texas. Dr. Kane is rated as an Advanced provider by MediFind in the treatment of Perlman Syndrome. His top areas of expertise are Craniosynostosis, Metopic Ridge, Plagiocephaly, Craniectomy, and Osteotomy.

John Frino is an Orthopedics provider in Winston Salem, North Carolina. Dr. Frino is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. His top areas of expertise are Scoliosis, Knock Knees, Clubfoot, Caudal Regression Syndrome, and Hip Replacement. Dr. Frino is currently accepting new patients.

Gary Mcphail is a Pediatric Pulmonologist and a Pediatrics provider in Cincinnati, Ohio. Dr. Mcphail is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. His top areas of expertise are Cystic Fibrosis, Sleepwalking (Somnambulism), Congenital Unilateral Pulmonary Hypoplasia, and Exocrine Pancreatic Insufficiency. Dr. Mcphail is currently accepting new patients.

Erin Frank is a Pediatrics provider in Cleveland, Ohio. Dr. Frank is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. Her top areas of expertise are GM1 Gangliosidosis, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Delayed Growth, and Cerebral Hypoxia. Dr. Frank is currently accepting new patients.

Raymond Liu is an Orthopedics provider in Cleveland, Ohio. Dr. Liu is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. His top areas of expertise are Slipped Capital Femoral Epiphysis, Legg-Calve-Perthes Disease (LCPD), Accessory Navicular Bone, Osteotomy, and Bone Graft. Dr. Liu is currently accepting new patients.