The 20 Best Phacomatosis Pigmentovascularis Doctors in The United Kingdom

Find the Top Phacomatosis Pigmentovascularis Experts and Specialists

Last Updated: 04/28/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 31 doctor with experience in Phacomatosis Pigmentovascularis near The United Kingdom. Of these, 21 are Experienced, 7 are Advanced, 2 are Elite and 1 are Distinguished.

Location
LocationClose
31 providers found
    Elite in Phacomatosis Pigmentovascularis
    Elite in Phacomatosis Pigmentovascularis
    London, ENG, GB 

    Veronica Kinsler practices practicing medicine in London, United Kingdom. Ms. Kinsler is rated as an Elite expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Giant Congenital Melanocytic Nevus, Mosaicism, Phacomatosis Pigmentovascularis, and Aplasia Cutis Congenita.

    Elite in Phacomatosis Pigmentovascularis
    Elite in Phacomatosis Pigmentovascularis
    London, ENG, GB 

    Satyamaanasa Polubothu practices practicing medicine in London, United Kingdom. Polubothu is rated as an Elite expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. They are also highly rated in 14 other conditions, according to our data. Their clinical expertise encompasses Mosaicism, Phacomatosis Pigmentovascularis, Giant Congenital Melanocytic Nevus, and Linear Nevus Sebaceous Syndrome.

    Distinguished in Phacomatosis Pigmentovascularis
    Distinguished in Phacomatosis Pigmentovascularis
    London, ENG, GB 

    Davide Zecchin practices practicing medicine in London, United Kingdom. Mr. Zecchin is rated as a Distinguished expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Phacomatosis Pigmentovascularis, Mosaicism, Aplasia Cutis Congenita, and Clouston Syndrome.

    Learn about our expert tiers
    Advanced in Phacomatosis Pigmentovascularis
    Advanced in Phacomatosis Pigmentovascularis
    Oxford, ENG, GB 

    Zhiqiang Zeng practices practicing medicine in Oxford, United Kingdom. Zeng is rated as an Advanced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Phacomatosis Pigmentovascularis, Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias.

    Advanced in Phacomatosis Pigmentovascularis
    Advanced in Phacomatosis Pigmentovascularis
    Oxford, ENG, GB 

    Rajesh Thakker practices practicing medicine in Oxford, United Kingdom. Mr. Thakker is rated as an Advanced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Hypercalcemia, Milk-Alkali Syndrome, Multiple Endocrine Neoplasia Type 1, Parathyroidectomy, and Thyroidectomy.

    Advanced in Phacomatosis Pigmentovascularis
    Advanced in Phacomatosis Pigmentovascularis
    Newcastle Upon Tyne, ENG, GB 

    Neil Rajan practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Mr. Rajan is rated as an Advanced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Adenoid Cystic Carcinoma, Eccrine Porocarcinoma, Phacomatosis Pigmentokeratotica, and Aplasia Cutis Congenita.

    Advanced in Phacomatosis Pigmentovascularis
    Advanced in Phacomatosis Pigmentovascularis
    UCL NIHR BRC Great Ormond Street Institute Of Child Health, 
    London, ENG, GB 

    Martin Tisdall practices practicing medicine in London, United Kingdom. Mr. Tisdall is rated as an Advanced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Epilepsy, Hypothalamic Hamartomas, Seizures, Generalized Tonic-Clonic Seizure, and Deep Brain Stimulation.

    Advanced in Phacomatosis Pigmentovascularis
    Advanced in Phacomatosis Pigmentovascularis
    47 Little France Crescent, 
    Edinburgh, SCT, GB 

    Robert Semple practices practicing medicine in Edinburgh, United Kingdom. Mr. Semple is rated as an Advanced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Donohue Syndrome, Type B Insulin Resistance Syndrome, Type A Insulin Resistance Syndrome, and Acanthosis Nigricans.

    Advanced in Phacomatosis Pigmentovascularis
    Advanced in Phacomatosis Pigmentovascularis
    Great Ormond St Hospital For Children, 
    London, ENG, GB 

    Sarah Aylett practices practicing medicine in London, United Kingdom. Ms. Aylett is rated as an Advanced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Parkes Weber Syndrome, Sturge-Weber Syndrome, Hemangioma, and Stork Bite.

    Advanced in Phacomatosis Pigmentovascularis
    Advanced in Phacomatosis Pigmentovascularis
    London, ENG, GB 

    Ulrike Lobel practices practicing medicine in London, United Kingdom. Ms. Lobel is rated as an Advanced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Mosaicism, CLN1 Disease, CLN2 Disease, and CLN3 Disease.

    Experienced in Phacomatosis Pigmentovascularis
    Experienced in Phacomatosis Pigmentovascularis
    Tennis Court Road, 
    Cambridge, ENG, GB 

    Sony Malhotra practices practicing medicine in Cambridge, United Kingdom. Malhotra is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. Their clinical expertise encompasses Leprosy, Phacomatosis Pigmentovascularis, Infant Epilepsy with Migrant Focal Crisis, Stiff Person Syndrome, and Deep Brain Stimulation.

    Experienced in Phacomatosis Pigmentovascularis
    Experienced in Phacomatosis Pigmentovascularis

    Great Ormond Street Hospital For Children NHS Foundation Trust

    London, ENG, GB 

    Olumide Ogunbiyi practices practicing medicine in London, United Kingdom. Mr. Ogunbiyi is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Linear Nevus Sebaceous Syndrome, Mosaicism, Phacomatosis Pigmentovascularis, and Epidermal Nevus.

    Experienced in Phacomatosis Pigmentovascularis
    Experienced in Phacomatosis Pigmentovascularis

    Great Ormond St Hospital For Children

    London, ENG, GB 

    Karolina Gholam practices practicing medicine in London, United Kingdom. Ms. Gholam is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her clinical expertise encompasses Linear Nevus Sebaceous Syndrome, PARC Syndrome, Phacomatosis Pigmentovascularis, and Rothmund-Thomson Syndrome.

    Experienced in Phacomatosis Pigmentovascularis
    Experienced in Phacomatosis Pigmentovascularis

    Great Ormond Street Hospital For Children

    London, ENG, GB 

    Lea Solman practices practicing medicine in London, United Kingdom. Ms. Solman is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Incontinentia Pigmenti, Hemangioma, Atopic Dermatitis, and Clouston Syndrome.

    Experienced in Phacomatosis Pigmentovascularis
    Experienced in Phacomatosis Pigmentovascularis
    Hills Road, 
    Cambridge, ENG, GB 

    Nigel Burrows practices practicing medicine in Cambridge, United Kingdom. Burrows is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. They are also highly rated in 6 other conditions, according to our data. Their clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), Aplasia Cutis Congenita, and Clouston Syndrome.

    Experienced in Phacomatosis Pigmentovascularis
    Experienced in Phacomatosis Pigmentovascularis
    Queen Square, 
    London, ENG, GB 

    Simon Heales practices practicing medicine in London, United Kingdom. Mr. Heales is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Argininosuccinic Aciduria, Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency, Gaucher Disease, and Urea Cycle Disorders (UCD).

    Experienced in Phacomatosis Pigmentovascularis
    Experienced in Phacomatosis Pigmentovascularis
    Newcastle Upon Tyne, ENG, GB 

    Siobhan Muthiah practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Ms. Muthiah is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her clinical expertise encompasses Phacomatosis Pigmentovascularis, Multiple Familial Trichoepithelioma, Giant Congenital Melanocytic Nevus, and Mosaicism.

    Experienced in Phacomatosis Pigmentovascularis
    Experienced in Phacomatosis Pigmentovascularis
    London, ENG, GB 

    Maya Topf practices practicing medicine in London, United Kingdom. Ms. Topf is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Stiff Person Syndrome, Hereditary Hyperekplexia, Oral Herpes, Infant Epilepsy with Migrant Focal Crisis, and Deep Brain Stimulation.

    Experienced in Phacomatosis Pigmentovascularis
    Experienced in Phacomatosis Pigmentovascularis
    Oxford, ENG, GB 

    Fadil Hannan practices practicing medicine in Oxford, United Kingdom. Mr. Hannan is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Milk-Alkali Syndrome, Hypercalcemia, Autosomal Dominant Hypocalcemia, and Familial Hypocalciuric Hypercalcemia Type 1.

    Experienced in Phacomatosis Pigmentovascularis
    Experienced in Phacomatosis Pigmentovascularis
    Great Ormond Street Hospital, Guilford St, 
    London, ENG, GB 

    Thomas Cullup practices practicing medicine in London, United Kingdom. Mr. Cullup is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Vici Syndrome, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 31

    Last Updated: 04/28/2026

    What is the definition of Phacomatosis Pigmentovascularis?

    Phacomatosis pigmentovascularis (PPV) is a disorder characterized by the co-existence of vascular and pigmentary birthmarks. Signs and symptoms may include port wine stain, melanocytic nevi (commonly known as moles), epidermal nevi, dermal melanocytosis (areas of blue-gray discoloration), nevus spilus, and patches of hyperpigmentation (areas of darker skin). Other skin features may include nevus anemicus (areas of lighter skin) and café au lait spots. About half of people with PPV have systemic involvement, which means they have features affecting other areas of the body. People with systemic involvement may have neurologic, ocular (eye), or muscular abnormalities. Isolated PPV is typically a sporadic disorder that occurs for the first time in people with no family history of PPV. PPV can be caused by a somatic genetic change in the GNA11 or GNAQ gene that is present only in the affected tissues of the body. These genetic changes are not present in the blood or in unaffected tissues, which means the disorder is likely due to non-inherited genetic changes that are randomly acquired after conception. In some cases of isolated PPV, the underlying cause remains unknown.

    When should I see a Phacomatosis Pigmentovascularis doctor in The United Kingdom?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Phacomatosis Pigmentovascularis doctor in The United Kingdom?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Phacomatosis Pigmentovascularis doctors in The United Kingdom?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Phacomatosis Pigmentovascularis doctors in The United Kingdom?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Phacomatosis Pigmentovascularis doctor in The United Kingdom?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Phacomatosis Pigmentovascularis doctor search results page. 

    Why is it important to get a second opinion from a different Phacomatosis Pigmentovascularis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Phacomatosis Pigmentovascularis doctor in The United Kingdom?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Phacomatosis Pigmentovascularis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Phacomatosis Pigmentovascularis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Phacomatosis Pigmentovascularis doctors in The United Kingdom?

    Look for the filter feature on the left side of the Phacomatosis Pigmentovascularis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Phacomatosis Pigmentovascularis doctor that offers video calls?

    Look for the filter feature on the left-side of the Phacomatosis Pigmentovascularis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy

    Recommended has been selected.