Filters

Distance
    Level of Expertise
    Availability
    Gender
    Years of Experience
    Insurance
    Specialty
    Additional Specialty
    Language

    Last Updated: 01/09/2026

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 30 doctor with experience in Phacomatosis Pigmentovascularis near The United Kingdom. Of these, 20 are Experienced, 7 are Advanced, 2 are Elite and 1 are Distinguished.

    Location
    LocationClose
    30 providers found
      Elite in Phacomatosis Pigmentovascularis
      Elite in Phacomatosis Pigmentovascularis
      London, ENG, GB 

      Veronica Kinsler practices in London, United Kingdom. Ms. Kinsler is rated as an Elite expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Giant Congenital Melanocytic Nevus, Mosaicism, Phacomatosis Pigmentovascularis, and Aplasia Cutis Congenita.

      Elite in Phacomatosis Pigmentovascularis
      Elite in Phacomatosis Pigmentovascularis
      Great Ormond Street Hospital For Children, 
      London, ENG, GB 

      Satyamaanasa Polubothu practices in London, United Kingdom. Polubothu is rated as an Elite expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. Their top areas of expertise are Giant Congenital Melanocytic Nevus, Phacomatosis Pigmentovascularis, Mosaicism, and Linear Nevus Sebaceous Syndrome.

      Distinguished in Phacomatosis Pigmentovascularis
      Distinguished in Phacomatosis Pigmentovascularis
      London, ENG, GB 

      Davide Zecchin practices in London, United Kingdom. Mr. Zecchin is rated as a Distinguished expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Mosaicism, Phacomatosis Pigmentovascularis, Clouston Syndrome, and Ectodermal Dysplasias.

      Learn about our expert tiers
      Advanced in Phacomatosis Pigmentovascularis
      Advanced in Phacomatosis Pigmentovascularis
      Edinburgh, SCT, GB 

      Zhiqiang Zeng practices in Edinburgh, United Kingdom. Zeng is rated as an Advanced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. Their top areas of expertise are Phacomatosis Pigmentovascularis, Ectodermal Dysplasias, Clouston Syndrome, and Aplasia Cutis Congenita.

      Advanced in Phacomatosis Pigmentovascularis
      Advanced in Phacomatosis Pigmentovascularis
      Newcastle Upon Tyne, ENG, GB 

      Neil Rajan practices in Newcastle Upon Tyne, United Kingdom. Mr. Rajan is rated as an Advanced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Adenoid Cystic Carcinoma, Eccrine Porocarcinoma, Phacomatosis Pigmentokeratotica, and Clouston Syndrome.

      Advanced in Phacomatosis Pigmentovascularis
      Advanced in Phacomatosis Pigmentovascularis
      Oxford, ENG, GB 

      Rajesh Thakker practices in Oxford, United Kingdom. Mr. Thakker is rated as an Advanced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Hypercalcemia, Milk-Alkali Syndrome, Multiple Endocrine Neoplasia Type 1, Parathyroidectomy, and Thyroidectomy.

      Advanced in Phacomatosis Pigmentovascularis
      Advanced in Phacomatosis Pigmentovascularis
      Great Ormond St Hospital For Children, 
      London, ENG, GB 

      Sarah Aylett practices in London, United Kingdom. Ms. Aylett is rated as an Advanced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Parkes Weber Syndrome, Sturge-Weber Syndrome, Hemangioma, and Stork Bite.

      Advanced in Phacomatosis Pigmentovascularis
      Advanced in Phacomatosis Pigmentovascularis
      47 Little France Crescent, 
      Edinburgh, SCT, GB 

      Robert Semple practices in Edinburgh, United Kingdom. Mr. Semple is rated as an Advanced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Donohue Syndrome, Type B Insulin Resistance Syndrome, Type A Insulin Resistance Syndrome, and Acanthosis Nigricans.

      Advanced in Phacomatosis Pigmentovascularis
      Advanced in Phacomatosis Pigmentovascularis

      Great Ormond Street Hospital

      London, ENG, GB 

      Martin Tisdall practices in London, United Kingdom. Mr. Tisdall is rated as an Advanced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Epilepsy, Hypothalamic Hamartomas, Seizures, Cortical Dysplasia, and Deep Brain Stimulation.

      Advanced in Phacomatosis Pigmentovascularis
      Advanced in Phacomatosis Pigmentovascularis
      Great Ormond Street Hospital For Children, 
      London, ENG, GB 

      Ulrike Lobel practices in London, United Kingdom. Ms. Lobel is rated as an Advanced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Batten Disease, CLN3 Disease, CLN4 Disease, and CLN5 Disease.

      Experienced in Phacomatosis Pigmentovascularis
      Experienced in Phacomatosis Pigmentovascularis
      Tennis Court Road, 
      Cambridge, ENG, GB 

      Sony Malhotra practices in Cambridge, United Kingdom. Malhotra is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. Their top areas of expertise are Leprosy, Phacomatosis Pigmentovascularis, Infant Epilepsy with Migrant Focal Crisis, Stiff Person Syndrome, and Deep Brain Stimulation.

      Experienced in Phacomatosis Pigmentovascularis
      Experienced in Phacomatosis Pigmentovascularis
      Leeds, ENG, GB 

      Julia Bishop-Newton practices in Leeds, United Kingdom. Ms. Bishop-Newton is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Melanoma, Melasma, Sunburn, and Vitamin D Deficiency.

      Experienced in Phacomatosis Pigmentovascularis
      Experienced in Phacomatosis Pigmentovascularis
      Oxford, ENG, GB 

      Fadil Hannan practices in Oxford, United Kingdom. Mr. Hannan is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Milk-Alkali Syndrome, Hypercalcemia, Autosomal Dominant Hypocalcemia, and Familial Hypocalciuric Hypercalcemia Type 1.

      Experienced in Phacomatosis Pigmentovascularis
      Experienced in Phacomatosis Pigmentovascularis
      Leeds, ENG, GB 

      Derrick Bishop practices in Leeds, United Kingdom. Mr. Bishop is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Phacomatosis Pigmentovascularis, Lynch Syndrome, Melasma, and Ectodermal Dysplasias.

      Experienced in Phacomatosis Pigmentovascularis
      Experienced in Phacomatosis Pigmentovascularis

      Great Ormond Street Hospital For Children NHS Foundation Trust

      London, ENG, GB 

      Olumide Ogunbiyi practices in London, United Kingdom. Mr. Ogunbiyi is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Linear Nevus Sebaceous Syndrome, Mosaicism, Epidermal Nevus, and Phacomatosis Pigmentovascularis.

      Experienced in Phacomatosis Pigmentovascularis
      Experienced in Phacomatosis Pigmentovascularis
      Leeds, ENG, GB 

      Mark Harland practices in Leeds, United Kingdom. Mr. Harland is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Melanoma, Phacomatosis Pigmentovascularis, Colorectal Polyps, and Mosaicism.

      Experienced in Phacomatosis Pigmentovascularis
      Experienced in Phacomatosis Pigmentovascularis
      Queen Square, 
      London, ENG, GB 

      Thomas Jacques practices in London, United Kingdom. Mr. Jacques is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Craniopharyngioma, Brain Tumor, Medulloblastoma, and Gliomatosis Cerebri.

      Experienced in Phacomatosis Pigmentovascularis
      Experienced in Phacomatosis Pigmentovascularis
      Hills Road, 
      Cambridge, ENG, GB 

      Nigel Burrows practices in Cambridge, United Kingdom. Burrows is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. Their top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Ehlers-Danlos Syndrome (EDS), Clouston Syndrome, and Ectodermal Dysplasias.

      Experienced in Phacomatosis Pigmentovascularis
      Experienced in Phacomatosis Pigmentovascularis
      Newcastle Upon Tyne, ENG, GB 

      Siobhan Muthiah practices in Newcastle Upon Tyne, United Kingdom. Ms. Muthiah is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Phacomatosis Pigmentovascularis, Multiple Familial Trichoepithelioma, Giant Congenital Melanocytic Nevus, and Mosaicism.

      Experienced in Phacomatosis Pigmentovascularis
      Experienced in Phacomatosis Pigmentovascularis
      London, ENG, GB 

      Maya Topf practices in London, United Kingdom. Ms. Topf is rated as an Experienced expert by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Stiff Person Syndrome, Hereditary Hyperekplexia, Oral Herpes, Infant Epilepsy with Migrant Focal Crisis, and Deep Brain Stimulation.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 30

      Last Updated: 01/09/2026

      What is the definition of Phacomatosis Pigmentovascularis?

      Phacomatosis pigmentovascularis (PPV) is a disorder characterized by the co-existence of vascular and pigmentary birthmarks. Signs and symptoms may include port wine stain, melanocytic nevi (commonly known as moles), epidermal nevi, dermal melanocytosis (areas of blue-gray discoloration), nevus spilus, and patches of hyperpigmentation (areas of darker skin). Other skin features may include nevus anemicus (areas of lighter skin) and café au lait spots. About half of people with PPV have systemic involvement, which means they have features affecting other areas of the body. People with systemic involvement may have neurologic, ocular (eye), or muscular abnormalities. Isolated PPV is typically a sporadic disorder that occurs for the first time in people with no family history of PPV. PPV can be caused by a somatic genetic change in the GNA11 or GNAQ gene that is present only in the affected tissues of the body. These genetic changes are not present in the blood or in unaffected tissues, which means the disorder is likely due to non-inherited genetic changes that are randomly acquired after conception. In some cases of isolated PPV, the underlying cause remains unknown.

      When should I see a Phacomatosis Pigmentovascularis doctor in The United Kingdom?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Phacomatosis Pigmentovascularis doctor in The United Kingdom?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Phacomatosis Pigmentovascularis doctors in The United Kingdom?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Phacomatosis Pigmentovascularis doctors in The United Kingdom?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Phacomatosis Pigmentovascularis doctor in The United Kingdom?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Phacomatosis Pigmentovascularis doctor search results page. 

      Why is it important to get a second opinion from a different Phacomatosis Pigmentovascularis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Phacomatosis Pigmentovascularis doctor in The United Kingdom?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Phacomatosis Pigmentovascularis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Phacomatosis Pigmentovascularis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Phacomatosis Pigmentovascularis doctors in The United Kingdom?

      Look for the filter feature on the left side of the Phacomatosis Pigmentovascularis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Phacomatosis Pigmentovascularis doctor that offers video calls?

      Look for the filter feature on the left-side of the Phacomatosis Pigmentovascularis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy