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    Last Updated: 10/30/2025

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    MediFind found 35 doctor with experience in Phacomatosis Pigmentovascularis near Boston, MA. Of these, 23 are Experienced and 12 are Advanced.

    Location
    LocationClose
    35 providers found
      David S. Walton
      Advanced in Phacomatosis Pigmentovascularis
      Ophthalmology | Pediatrics
      Advanced in Phacomatosis Pigmentovascularis
      Ophthalmology | Pediatrics
      2 Longfellow Pl, Suite 201, 
      Boston, MA 
       (0.7 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      David Walton is an Ophthalmologist and a Pediatrics provider in Boston, Massachusetts. Dr. Walton is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Aniridia, Walker Dyson Syndrome, Axenfeld-Rieger Syndrome, Trabeculectomy, and Cataract Removal. Dr. Walton is currently accepting new patients.

      Advanced in Phacomatosis Pigmentovascularis
      Advanced in Phacomatosis Pigmentovascularis

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English

      Gilbert Daniels is an Endocrinologist in Boston, Massachusetts. Dr. Daniels is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Thyroid Cancer, Follicular Thyroid Cancer, Thyroid Nodule, Papillary Thyroid Cancer, and Thyroidectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Phacomatosis Pigmentovascularis
      Pediatrics | Internal Medicine
      Advanced in Phacomatosis Pigmentovascularis
      Pediatrics | Internal Medicine

      The General Hospital Corporation

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jocelyn Ronda is a primary care provider, practicing in Pediatrics and Internal Medicine in Boston, Massachusetts. Dr. Ronda is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Phacomatosis Pigmentovascularis, Peutz-Jeghers Syndrome, Linear Nevus Sebaceous Syndrome, and Hypothalamic Hamartomas. Dr. Ronda is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Phacomatosis Pigmentovascularis
      Advanced in Phacomatosis Pigmentovascularis

      Mass General Brigham Cancer Institute: Neuro-Oncology

      55 Fruit Street, Yawkey Center For Outpatient Care, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Scott Plotkin is a Neurologist in Boston, Massachusetts. Dr. Plotkin is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, and Acoustic Neuroma. Dr. Plotkin is currently accepting new patients.

      Advanced in Phacomatosis Pigmentovascularis
      Ophthalmology
      Advanced in Phacomatosis Pigmentovascularis
      Ophthalmology

      Massachusetts Eye And Ear Associates, Inc

      243 Charles St, 
      Boston, MA 
       (0.9 miles away)
      Experience:
      43+ years
      Languages Spoken:
      English
      Accepting New Patients

      Shizuo Mukai is an Ophthalmologist in Boston, Massachusetts. Dr. Mukai has been practicing medicine for over 43 years and is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Retinal Detachment, Retinoblastoma, Von Hippel-Lindau (VHL) Syndrome, Sturge-Weber Syndrome, and Vitrectomy. Dr. Mukai is currently accepting new patients.

      Advanced in Phacomatosis Pigmentovascularis
      Ophthalmology
      Advanced in Phacomatosis Pigmentovascularis
      Ophthalmology

      Massachusetts Eye And Ear Associates, Inc

      243 Charles St, 
      Boston, MA 
       (0.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Allison Soneru is an Ophthalmologist in Boston, Massachusetts. Dr. Soneru is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Glaucoma, Tieche-Jadassohn Nevus, Linear Nevus Sebaceous Syndrome, and Phacomatosis Pigmentovascularis. Dr. Soneru is currently accepting new patients.

      Evangelos S. Gragoudas
      Experienced in Phacomatosis Pigmentovascularis
      Experienced in Phacomatosis Pigmentovascularis
      243 Charles St, 
      Boston, MA 
       (0.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Evangelos Gragoudas is an Ophthalmologist in Boston, Massachusetts. Dr. Gragoudas is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Melanoma of the Eye, Metastatic Uveal Melanoma, Uveal Melanoma, Choroid Plexus Carcinoma, and Vitrectomy. Dr. Gragoudas is currently accepting new patients.

      Advanced in Phacomatosis Pigmentovascularis
      Ophthalmology
      Advanced in Phacomatosis Pigmentovascularis
      Ophthalmology

      Childrens Hospital Ophthalmology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Vu is an Ophthalmologist in Boston, Massachusetts. Dr. Vu is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Glaucoma, Ocular Hypertension (OHT), Peters Anomaly, Trabeculectomy, and Iridectomy. Dr. Vu is currently accepting new patients.

      Advanced in Phacomatosis Pigmentovascularis
      Advanced in Phacomatosis Pigmentovascularis
      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Deborah Vanderveen is an Ophthalmologist in Boston, Massachusetts. Dr. Vanderveen is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Congenital Cataract, Strabismus, Retinopathy of Prematurity, Cataract Removal, and Trabeculectomy. Dr. Vanderveen is currently accepting new patients.

      Advanced in Phacomatosis Pigmentovascularis
      Medical Genetics
      Advanced in Phacomatosis Pigmentovascularis
      Medical Genetics

      Dana-Farber Cancer Institute, Inc.

      450 Brookline Ave, 
      Boston, MA 
       (2.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Huma Rana is a Medical Genetics provider in Boston, Massachusetts. Dr. Rana is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Li-Fraumeni Syndrome, HER2 Negative Breast Cancer, BRCA Positive Breast Cancer, and Peutz-Jeghers Syndrome. Dr. Rana is currently accepting new patients.

      Advanced in Phacomatosis Pigmentovascularis
      Ophthalmology
      Advanced in Phacomatosis Pigmentovascularis
      Ophthalmology

      Massachusetts Eye And Ear Associates, Inc

      800 Huntington Ave, 
      Boston, MA 
       (3.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Milica Margeta is an Ophthalmologist in Boston, Massachusetts. Dr. Margeta is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Glaucoma, Ocular Hypertension (OHT), Phacomatosis Pigmentokeratotica, Trabeculectomy, and Cataract Removal. Dr. Margeta is currently accepting new patients.

      Experienced in Phacomatosis Pigmentovascularis
      Hematology Oncology | Oncology
      Experienced in Phacomatosis Pigmentovascularis
      Hematology Oncology | Oncology

      The General Hospital Corporation

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Douglas Micalizzi is a Hematologist Oncology specialist and an Oncologist in Boston, Massachusetts. Dr. Micalizzi is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are HER2 Negative Breast Cancer, BRCA Positive Breast Cancer, Li-Fraumeni Syndrome, and Hypothalamic Hamartomas. Dr. Micalizzi is currently accepting new patients.

      Experienced in Phacomatosis Pigmentovascularis
      Experienced in Phacomatosis Pigmentovascularis

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Douglas Dahl is an Urologist in Boston, Massachusetts. Dr. Dahl is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Prostate Cancer, Renal Cell Carcinoma (RCC), Familial Prostate Cancer, Prostatectomy, and Nephrectomy. Dr. Dahl is currently accepting new patients.

      Experienced in Phacomatosis Pigmentovascularis
      Experienced in Phacomatosis Pigmentovascularis

      The General Hospital Corporation

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Giuseppe Barbesino is an Endocrinologist in Boston, Massachusetts. Dr. Barbesino is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Thyroid Cancer, Graves Disease, Follicular Thyroid Cancer, and Thyroid Nodule.

      Experienced in Phacomatosis Pigmentovascularis
      Hematology Oncology | Pediatric Neurology | Neurology
      Experienced in Phacomatosis Pigmentovascularis
      Hematology Oncology | Pediatric Neurology | Neurology

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Nancy Wang is a Hematologist Oncology specialist and a Pediatric Neurologist in Boston, Massachusetts. Dr. Wang is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Astrocytoma, Glioblastoma, Embryonal Tumor with Multilayered Rosettes, Gliosarcoma, and Awake Craniotomy. Dr. Wang is currently accepting new patients.

      Experienced in Phacomatosis Pigmentovascularis
      Ophthalmology
      Experienced in Phacomatosis Pigmentovascularis
      Ophthalmology

      Massachusetts Eye And Ear Associates, Inc

      243 Charles St, 
      Boston, MA 
       (0.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Lucy Young is an Ophthalmologist in Boston, Massachusetts. Dr. Young is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Retinal Vein Occlusion, and Retinal Artery Occlusion. Dr. Young is currently accepting new patients.

      Experienced in Phacomatosis Pigmentovascularis
      Experienced in Phacomatosis Pigmentovascularis

      Massachusetts Eye And Ear Associates, Inc

      243 Charles St, 
      Boston, MA 
       (0.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Demetrios Vavvas is an Ophthalmologist in Boston, Massachusetts. Dr. Vavvas is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Retinal Detachment, Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, Vitrectomy, and Cataract Removal. Dr. Vavvas is currently accepting new patients.

      Experienced in Phacomatosis Pigmentovascularis
      Medical Genetics | Pediatrics
      Experienced in Phacomatosis Pigmentovascularis
      Medical Genetics | Pediatrics
      850 Harrison Ave Fl 6, 
      Boston, MA 
       (1.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Aya Abu-El is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Abu-El is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Stickler Syndrome, Coffin-Lowry Syndrome, Kabuki Syndrome, and 3MC Syndrome. Dr. Abu-El is currently accepting new patients.

      Experienced in Phacomatosis Pigmentovascularis
      Experienced in Phacomatosis Pigmentovascularis

      Boston University Neurosurgical Associates Inc

      1 Boston Medical Ctr Pl, 
      Boston, MA 
       (1.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Urvashi Upadhyay is a Neurosurgery provider in Boston, Massachusetts. Dr. Upadhyay is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Meningioma, Subdural Hematoma, Pituitary Tumor, Balloon Sinuplasty, and Awake Craniotomy. Dr. Upadhyay is currently accepting new patients.

      Experienced in Phacomatosis Pigmentovascularis
      Pediatrics | Internal Medicine
      Experienced in Phacomatosis Pigmentovascularis
      Pediatrics | Internal Medicine

      The General Hospital Corporation

      388 Commonwealth Ave, 
      Boston, MA 
       (1.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Diana Lemly is a primary care provider, practicing in Pediatrics and Internal Medicine in Boston, Massachusetts. Dr. Lemly is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Anorexia, Asperger's Syndrome, Trichomoniasis, and Tuberous Sclerosis. Dr. Lemly is currently accepting new patients.

      Showing 1-20 of 35

      Last Updated: 10/30/2025

      What is the definition of Phacomatosis Pigmentovascularis?

      Phacomatosis pigmentovascularis (PPV) is a disorder characterized by the co-existence of vascular and pigmentary birthmarks. Signs and symptoms may include port wine stain, melanocytic nevi (commonly known as moles), epidermal nevi, dermal melanocytosis (areas of blue-gray discoloration), nevus spilus, and patches of hyperpigmentation (areas of darker skin). Other skin features may include nevus anemicus (areas of lighter skin) and café au lait spots. About half of people with PPV have systemic involvement, which means they have features affecting other areas of the body. People with systemic involvement may have neurologic, ocular (eye), or muscular abnormalities. Isolated PPV is typically a sporadic disorder that occurs for the first time in people with no family history of PPV. PPV can be caused by a somatic genetic change in the GNA11 or GNAQ gene that is present only in the affected tissues of the body. These genetic changes are not present in the blood or in unaffected tissues, which means the disorder is likely due to non-inherited genetic changes that are randomly acquired after conception. In some cases of isolated PPV, the underlying cause remains unknown.

      When should I see a Phacomatosis Pigmentovascularis doctor near Boston, MA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Phacomatosis Pigmentovascularis doctor near Boston, MA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Phacomatosis Pigmentovascularis doctors near Boston, MA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Phacomatosis Pigmentovascularis doctors near Boston, MA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Phacomatosis Pigmentovascularis doctor near Boston, MA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Phacomatosis Pigmentovascularis doctor search results page. 

      Why is it important to get a second opinion from a different Phacomatosis Pigmentovascularis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Phacomatosis Pigmentovascularis doctor near Boston, MA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Phacomatosis Pigmentovascularis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Phacomatosis Pigmentovascularis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Phacomatosis Pigmentovascularis doctors near Boston, MA?

      Look for the filter feature on the left side of the Phacomatosis Pigmentovascularis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Phacomatosis Pigmentovascularis doctor that offers video calls?

      Look for the filter feature on the left-side of the Phacomatosis Pigmentovascularis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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