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    Last Updated: 01/09/2026

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    MediFind found 712 doctor with experience in Phacomatosis Pigmentovascularis near The United States. Of these, 587 are Experienced, 116 are Advanced and 9 are Distinguished.

    Location
    LocationClose
    712 providers found
      Miguel A. Materin
      Advanced in Phacomatosis Pigmentovascularis
      Ophthalmology
      Advanced in Phacomatosis Pigmentovascularis
      Ophthalmology

      Duke Eye Center

      2351 Erwin Rd, 
      Durham, NC 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Miguel Materin is an Ophthalmologist in Durham, North Carolina. Dr. Materin is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Melanoma of the Eye, Metastatic Uveal Melanoma, Uveal Melanoma, and Choroid Plexus Carcinoma. Dr. Materin is currently accepting new patients.

      Allan H. Friedman
      Experienced in Phacomatosis Pigmentovascularis
      Experienced in Phacomatosis Pigmentovascularis

      Duke Cancer Center Brain Tumor Clinic

      20 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English, German
      Accepting New Patients
      Offers Telehealth

      Allan Friedman is a Neurosurgery provider in Durham, North Carolina. Dr. Friedman is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Glioma, Astrocytoma, Glioblastoma, Awake Craniotomy, and Laminectomy. Dr. Friedman is currently accepting new patients.

      Anne M. Comi
      Distinguished in Phacomatosis Pigmentovascularis
      Pediatric Neurology
      Distinguished in Phacomatosis Pigmentovascularis
      Pediatric Neurology

      The Kennedy Krieger Institute

      801 North Broadway, Room 553, Room 553, 
      Baltimore, MD 
      Languages Spoken:
      English

      Dr. Comi graduated from SUNY Buffalo School of Medicine and received her training in pediatrics at the Children's Hospital of Buffalo and her child neurology training at Johns Hopkins Medicine. Her clinical specialization is in the treatment of the neurological aspects of Sturge-Weber syndrome and other disorders related to capillary malformation. Dr. Comi's clinical research interests focus on improving the early diagnosis and treatment of brain involvement in Sturge-Weber syndrome in order to prevent ischemic brain injury in affected infants and young children, and on studies to understand what causes Sturge-Weber syndrome. Her laboratory research work deals with the pathogenesis of Sturge-Weber syndrome, recently shown to be caused by a somatic mutation, and on developing new drug targets, screening assays, models and therapeutic strategies for Sturge-Weber syndrome. Her lab group also works on developing better neuroprotective and neuroregenerative responses to brain injury resulting from impaired blood flow to the brain. Dr. Comi is rated as a Distinguished provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Sturge-Weber Syndrome, Parkes Weber Syndrome, Stork Bite, Epilepsy in Children, and Endovascular Embolization.

      Learn about our expert tiers
      Distinguished in Phacomatosis Pigmentovascularis
      Distinguished in Phacomatosis Pigmentovascularis

      Penn Translational Medicine And Human Genetics

      3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Katherine Nathanson is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Nathanson is rated as a Distinguished provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Pheochromocytoma, Cowden Syndrome, Peutz-Jeghers Syndrome, and Hypothalamic Hamartomas. Dr. Nathanson is currently accepting new patients.

      Distinguished in Phacomatosis Pigmentovascularis
      Nurse Practitioner | Medical Genetics
      Distinguished in Phacomatosis Pigmentovascularis
      Nurse Practitioner | Medical Genetics

      Penn Renal Electrolyte And Hypertension Perelman

      3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Maria Bonanni is a Medical Genetics specialist and a Nurse Practitioner in Philadelphia, Pennsylvania. Ms. Bonanni is rated as a Distinguished provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Peutz-Jeghers Syndrome, Cowden Syndrome, Hypothalamic Hamartomas, and Phacomatosis Pigmentovascularis. Ms. Bonanni is currently accepting new patients.

      Advanced in Phacomatosis Pigmentovascularis
      Advanced in Phacomatosis Pigmentovascularis

      Eyeone Plc

      17 N Medical Park Dr, 
      Fishersville, VA 
      Languages Spoken:
      English, Russian, Spanish
      Accepting New Patients
      Offers Telehealth

      Yevgeniy Shildkrot is an Ophthalmologist in Fishersville, Virginia. Dr. Shildkrot is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Retinal Detachment, Choroid Plexus Carcinoma, Melanoma of the Eye, Vitrectomy, and Cataract Removal. Dr. Shildkrot is currently accepting new patients.

      Advanced in Phacomatosis Pigmentovascularis
      Urology | General Surgery
      Advanced in Phacomatosis Pigmentovascularis
      Urology | General Surgery

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Benjamin Chung is an Urologist and a General Surgeon in Stanford, California. Dr. Chung is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Ureterocele, WT1-Related Wilms Tumor Syndromes, Chromophobe Renal Cell Carcinoma, Reconstructive Urology Surgery, and Nephrectomy.

      Advanced in Phacomatosis Pigmentovascularis
      Neurosurgery | General Surgery
      Advanced in Phacomatosis Pigmentovascularis
      Neurosurgery | General Surgery

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Lawrence Shuer is a Neurosurgery specialist and a General Surgeon in Stanford, California. Dr. Shuer is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Meningioma, Choroid Plexus Papilloma, Pallister-Hall Syndrome, Awake Craniotomy, and Thrombectomy.

      Advanced in Phacomatosis Pigmentovascularis
      Advanced in Phacomatosis Pigmentovascularis

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
      Languages Spoken:
      English

      Prithvi Mruthyunjaya is an Ophthalmologist in Stanford, California. Dr. Mruthyunjaya is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Melanoma of the Eye, Uveal Melanoma, Retinal Detachment, Vitrectomy, and Trabeculectomy.

      Gopal N. Gupta
      Experienced in Phacomatosis Pigmentovascularis
      Experienced in Phacomatosis Pigmentovascularis

      Loyola University Medical Center

      719 W N Ave, 
      Melrose Park, IL 
      Languages Spoken:
      English, Hindi
      Accepting New Patients
      Offers Telehealth

      Gopal Gupta is an Urologist in Melrose Park, Illinois. Dr. Gupta is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Chromophobe Renal Cell Carcinoma, Renal Cell Carcinoma (RCC), Prostate Cancer, Nephrectomy, and Cystectomy. Dr. Gupta is currently accepting new patients.

      Ann M. Maguire
      Experienced in Phacomatosis Pigmentovascularis
      Internal Medicine
      Experienced in Phacomatosis Pigmentovascularis
      Internal Medicine

      The Medical College Of Wisconsin Inc

      8701 Watertown Plank Rd, Room 4041 Mfrc, 
      Milwaukee, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ann Maguire is a primary care provider, practicing in Internal Medicine in Milwaukee, Wisconsin. Dr. Maguire is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Chronic Lymphocytic Leukemia (CLL), Richter Syndrome, Chronic B-Cell Leukemia (CBCL), Addison's Disease, and Intrauterine Device Insertion. Dr. Maguire is currently accepting new patients.

      Carol L. Shields
      Distinguished in Phacomatosis Pigmentovascularis
      Ophthalmology | Oncology
      Distinguished in Phacomatosis Pigmentovascularis
      Ophthalmology | Oncology

      Ophthalmology - Wills Eye Hospital

      840 Walnut Street, Floor 10, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Carol Shields is an Oncologist and an Ophthalmologist in Philadelphia, Pennsylvania. Dr. Shields is rated as a Distinguished provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Retinoblastoma, Melanoma of the Eye, Uveal Melanoma, Vitrectomy, and Iridectomy. Dr. Shields is currently accepting new patients.

      Pratap R. Challa
      Advanced in Phacomatosis Pigmentovascularis
      Ophthalmology
      Advanced in Phacomatosis Pigmentovascularis
      Ophthalmology

      Duke Eye Center South Durham

      234 Crooked Creek Pkwy, 
      Durham, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Pratap Challa is an Ophthalmologist in Durham, North Carolina. Dr. Challa is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Glaucoma, Ocular Hypertension (OHT), Pigment-Dispersion Syndrome, Iridectomy, and Cataract Removal. Dr. Challa is currently accepting new patients.

      Tony Tsai
      Advanced in Phacomatosis Pigmentovascularis
      Ophthalmology
      Advanced in Phacomatosis Pigmentovascularis
      Ophthalmology
      3 Parkcenter Dr., Suite 100, 
      Sacramento, CA 
      Languages Spoken:
      English
      Accepting New Patients

      Tony Tsai is an Ophthalmologist in Sacramento, California. Dr. Tsai is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Melanoma of the Eye, Choroid Plexus Carcinoma, Retinal Detachment, and Metastatic Uveal Melanoma. Dr. Tsai is currently accepting new patients.

      Sol Jacobs
      Advanced in Phacomatosis Pigmentovascularis
      Endocrinology
      Advanced in Phacomatosis Pigmentovascularis
      Endocrinology

      Emory University Hospital Midtown Campus

      550 Peachtree Street Northeast, MedicalOfficeTower, 
      Atlanta, GA 
      Experience:
      34+ years
      Languages Spoken:
      English
      Offers Telehealth

      Sol Jacobs is an Endocrinologist in Atlanta, Georgia. Dr. Jacobs has been practicing medicine for over 34 years and is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, Melorheostosis, Melorheostosis with Osteopoikilosis, and Coronary Artery Bypass Graft (CABG).

      Rimas V. Lukas
      Advanced in Phacomatosis Pigmentovascularis
      Hematology Oncology | Neurology | Hematology
      Advanced in Phacomatosis Pigmentovascularis
      Hematology Oncology | Neurology | Hematology
      675 N St Clair St Ste 20-100, Galter Pavilion, 
      Chicago, IL 
      Experience:
      24+ years
      Languages Spoken:
      English
      Offers Telehealth

      Rimas Lukas is a Hematologist Oncology specialist and a Neurologist in Chicago, Illinois. Dr. Lukas has been practicing medicine for over 24 years and is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His top areas of expertise are Astrocytoma, Glioma, Glioblastoma, Brain Tumor, and Gastrostomy.

      Shazia Goraya
      Advanced in Phacomatosis Pigmentovascularis
      Internal Medicine
      Advanced in Phacomatosis Pigmentovascularis
      Internal Medicine

      Beachwood Family Health And Surgery Center

      26900 Cedar Road, 
      Beachwood, OH 
      Languages Spoken:
      English, Hindi, Urdu

      Shazia Goraya is a primary care provider, practicing in Internal Medicine in Beachwood, Ohio. Dr. Goraya is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Breast Infection, Fibrocystic Breast Disease, Breast Cancer, and Li-Fraumeni Syndrome.

      Yelena Yavich
      Advanced in Phacomatosis Pigmentovascularis
      Internal Medicine
      Advanced in Phacomatosis Pigmentovascularis
      Internal Medicine

      Corewell Health Internal Medicine - 4069 Lake Dr SE

      4069 Lake Drive Southeast, Suite 315, 
      Grand Rapids, MI 
      Experience:
      41+ years
      Languages Spoken:
      English
      Offers Telehealth

      Yelena Yavich is a primary care provider, practicing in Internal Medicine in Grand Rapids, Michigan. Dr. Yavich has been practicing medicine for over 41 years and is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Melorheostosis, Melorheostosis with Osteopoikilosis, Familial Combined Hyperlipidemia, and Osteopenia.

      Gabrielle R. Bonhomme
      Advanced in Phacomatosis Pigmentovascularis
      Advanced in Phacomatosis Pigmentovascularis

      UPMC Vision Institute

      203 Lothrop Street, Floor 6, 
      Pittsburgh, PA 
      Languages Spoken:
      English, Creole, French, Haitian
      Accepting New Patients
      Offers Telehealth

      Gabrielle Bonhomme is an Ophthalmologist in Pittsburgh, Pennsylvania. Dr. Bonhomme is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Papilledema, Increased Intracranial Pressure, Optic Neuritis, and Punctate Inner Choroidopathy. Dr. Bonhomme is currently accepting new patients.

      Marie H. Errera
      Advanced in Phacomatosis Pigmentovascularis
      Ophthalmology
      Advanced in Phacomatosis Pigmentovascularis
      Ophthalmology

      UPMC Vision Institute

      1622 Locust Street, Floor 2, 
      Pittsburgh, PA 
      Languages Spoken:
      English, French
      Accepting New Patients
      Offers Telehealth

      Marie Errera is an Ophthalmologist in Pittsburgh, Pennsylvania. Dr. Errera is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. Her top areas of expertise are Neuroretinitis, Uveitis, Phacomatosis Pigmentovascularis, Linear Nevus Sebaceous Syndrome, and Vitrectomy. Dr. Errera is currently accepting new patients.

      Showing 1-20 of 712

      Last Updated: 01/09/2026

      What is the definition of Phacomatosis Pigmentovascularis?

      Phacomatosis pigmentovascularis (PPV) is a disorder characterized by the co-existence of vascular and pigmentary birthmarks. Signs and symptoms may include port wine stain, melanocytic nevi (commonly known as moles), epidermal nevi, dermal melanocytosis (areas of blue-gray discoloration), nevus spilus, and patches of hyperpigmentation (areas of darker skin). Other skin features may include nevus anemicus (areas of lighter skin) and café au lait spots. About half of people with PPV have systemic involvement, which means they have features affecting other areas of the body. People with systemic involvement may have neurologic, ocular (eye), or muscular abnormalities. Isolated PPV is typically a sporadic disorder that occurs for the first time in people with no family history of PPV. PPV can be caused by a somatic genetic change in the GNA11 or GNAQ gene that is present only in the affected tissues of the body. These genetic changes are not present in the blood or in unaffected tissues, which means the disorder is likely due to non-inherited genetic changes that are randomly acquired after conception. In some cases of isolated PPV, the underlying cause remains unknown.

      When should I see a Phacomatosis Pigmentovascularis doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Phacomatosis Pigmentovascularis doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Phacomatosis Pigmentovascularis doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Phacomatosis Pigmentovascularis doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Phacomatosis Pigmentovascularis doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Phacomatosis Pigmentovascularis doctor search results page. 

      Why is it important to get a second opinion from a different Phacomatosis Pigmentovascularis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Phacomatosis Pigmentovascularis doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Phacomatosis Pigmentovascularis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Phacomatosis Pigmentovascularis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Phacomatosis Pigmentovascularis doctors in The United States?

      Look for the filter feature on the left side of the Phacomatosis Pigmentovascularis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Phacomatosis Pigmentovascularis doctor that offers video calls?

      Look for the filter feature on the left-side of the Phacomatosis Pigmentovascularis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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