The 20 Best Phacomatosis Pigmentovascularis Doctors in The United States

Find the Top Phacomatosis Pigmentovascularis Experts and Specialists

Last Updated: 09/26/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 649 doctor with experience in Phacomatosis Pigmentovascularis near The United States. Of these, 531 are Experienced, 110 are Advanced and 8 are Distinguished.

Location
LocationClose
649 providers found
    Experienced in Phacomatosis Pigmentovascularis
    Internal Medicine
    Experienced in Phacomatosis Pigmentovascularis
    Internal Medicine

    Bassett Health Center Cobleskill

    136 Parkway Drive, 
    Cobleskill, NY 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    John Novak is a primary care provider, practicing in Internal Medicine in Cobleskill, New York. Dr. Novak is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Relapsing Multiple Sclerosis (RMS), Enlarged Prostate (BPH), Type 2 Diabetes (T2D), and Lymphangitis. Dr. Novak is currently accepting new patients.

    Advanced in Phacomatosis Pigmentovascularis
    Advanced in Phacomatosis Pigmentovascularis
    Referral may be required

    Office

    Medical Center Blvd Fl 3, 
    Winston Salem, NC 
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Roy Strowd-Iii is a Neurologist practicing medicine in Winston Salem, North Carolina. He has been practicing medicine for over 17 years. Dr. Strowd-Iii is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Brain Tumor, Glioma, Tuberous Sclerosis, and Tuberous Sclerosis Complex. Dr. Strowd-Iii is currently accepting new patients.

    Advanced in Phacomatosis Pigmentovascularis
    Advanced in Phacomatosis Pigmentovascularis
    Referral may be required

    Stanford Hospital And Clinics

    965 High St, 
    Palo Alto, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Benjamin Chung is a Urologist practicing medicine in Palo Alto, California. Dr. Chung is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Renal Cell Carcinoma (RCC), Prostate Cancer, Chromophobe Renal Cell Carcinoma, Nephrectomy, and Cystectomy.

    Learn about our expert tiers
    Advanced in Phacomatosis Pigmentovascularis
    Advanced in Phacomatosis Pigmentovascularis
    Referral may be required

    Stanford Hospital And Clinics

    300 Pasteur Dr, 
    Stanford, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Lawrence Shuer is a Neurosurgery provider practicing medicine in Stanford, California. Dr. Shuer is rated as an Advanced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Meningioma, Choroid Plexus Papilloma, Pallister-Hall Syndrome, Awake Craniotomy, and Thrombectomy.

    Experienced in Phacomatosis Pigmentovascularis
    Experienced in Phacomatosis Pigmentovascularis
    Referral may be required

    University Hospital Neurosurgery Clinic

    600 Highland Ave, 
    Madison, WI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Robert Dempsey is a Neurosurgery provider practicing medicine in Madison, Wisconsin. Dr. Dempsey is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Radiation Induced Meningioma, Meningioma, Dysembryoplastic Neuroepithelial Tumors (DNET), Carotid Artery Surgery, and Awake Craniotomy. Dr. Dempsey is board certified in Neurological Surgery. Dr. Dempsey is currently accepting new patients.

    Experienced in Phacomatosis Pigmentovascularis
    Neurosurgery
    Experienced in Phacomatosis Pigmentovascularis
    Neurosurgery
    Referral required
    550 17th Avenue, Suite 500, 
    Seattle, WA 
    Languages Spoken:
    English, Castilian, Farsi, Korean, Spanish
    Accepting New Patients
    Offers Telehealth

    Rod Oskouian is a Neurosurgery provider practicing medicine in Seattle, Washington. Dr. Oskouian is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Epidural Hematoma, Spondylolisthesis, Scoliosis, Laminectomy, and Spinal Fusion. Dr. Oskouian is board certified in American Board Of Neurological Surgery. Dr. Oskouian is currently accepting new patients.

    Experienced in Phacomatosis Pigmentovascularis
    Experienced in Phacomatosis Pigmentovascularis
    Referral may be required

    Urology Clinic At Lauritzen Outpatient Center

    4014 Leavenworth St., 
    Omaha, NE 
    Languages Spoken:
    English, American Sign Language
    Accepting New Patients
    Offers Telehealth

    Judson Davies is a Urologist practicing medicine in Omaha, Nebraska. Dr. Davies is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Prostate Cancer, Familial Prostate Cancer, Muscle Invasive Bladder Cancer, Ureteroscopy, and Reconstructive Urology Surgery. Dr. Davies is currently accepting new patients.

    Experienced in Phacomatosis Pigmentovascularis
    Family Medicine
    Experienced in Phacomatosis Pigmentovascularis
    Family Medicine

    LVPG Family Medicine-Hamburg

    700 Hawk Ridge Drive, 
    Hamburg, PA 
    Languages Spoken:
    English

    Adam Haydt is a primary care provider, practicing in Family Medicine in Hamburg, Pennsylvania. Dr. Haydt is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. His clinical expertise encompasses Hypothalamic Hamartomas, Sturge-Weber Syndrome, Tieche-Jadassohn Nevus, and Phacomatosis Pigmentokeratotica. Dr. Haydt is board certified in American Board Of Family Medicine - Family Medicine.

    Experienced in Phacomatosis Pigmentovascularis
    Endocrinology
    Experienced in Phacomatosis Pigmentovascularis
    Endocrinology
    Referral required

    Endocrinology - Froedtert Hospital

    8850 William Coffey Dr., 
    Milwaukee, WI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    James Findling is an Endocrinologist practicing medicine in Milwaukee, Wisconsin. Dr. Findling is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Cushing's syndrome, Cushing's disease, Addison's Disease, Exogenous Cushing's syndrome, and Hormone Replacement Therapy (HRT). Dr. Findling is board certified in Endocrinology, Diabetes And Metabolism and Internal Medicine. Dr. Findling is currently accepting new patients.

    Experienced in Phacomatosis Pigmentovascularis
    Neurosurgery
    Experienced in Phacomatosis Pigmentovascularis
    Neurosurgery
    Referral may be required

    Jefferson Neurological Surgery Associates

    1101 Chestnut Street, Floor 10, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    James Evans is a Neurosurgery provider practicing medicine in Philadelphia, Pennsylvania. Dr. Evans is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 54 other conditions, according to our data. His clinical expertise encompasses Meningioma, Pituitary Tumor, Prolactinoma, Septoplasty, and Gamma Knife Radiosurgery. Dr. Evans is board certified in Neurological Surgery. Dr. Evans is currently accepting new patients.

    Experienced in Phacomatosis Pigmentovascularis
    Experienced in Phacomatosis Pigmentovascularis
    Referral may be required

    Loyola University Medical Center

    2160 S 1st Ave, 
    Maywood, IL 
    Languages Spoken:
    English, Hindi
    Accepting New Patients
    Offers Telehealth

    Gopal Gupta is a Urologist practicing medicine in Maywood, Illinois. Dr. Gupta is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Chromophobe Renal Cell Carcinoma, Renal Cell Carcinoma (RCC), Prostate Cancer, Nephrectomy, and Cystectomy. Dr. Gupta is currently accepting new patients.

    Experienced in Phacomatosis Pigmentovascularis
    Experienced in Phacomatosis Pigmentovascularis
    Referral may be required

    Duke Cancer Center Brain Tumor Clinic

    20 Duke Medicine Cir, 
    Durham, NC 
    Languages Spoken:
    English, German
    Accepting New Patients
    Offers Telehealth

    Allan Friedman is a Neurosurgery provider practicing medicine in Durham, North Carolina. Dr. Friedman is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Glioma, Astrocytoma, Glioblastoma, Awake Craniotomy, and Laminectomy. Dr. Friedman is board certified in American Board Of Neurological Surgery, Neurological Surgery. Dr. Friedman is currently accepting new patients.

    Experienced in Phacomatosis Pigmentovascularis
    Internal Medicine
    Experienced in Phacomatosis Pigmentovascularis
    Internal Medicine

    Intermountain Health West End Clinic Internal Medicine

    602 Henry Chapple Street, 
    Billings, MT 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Edward Malters is a primary care provider, practicing in Internal Medicine in Billings, Montana. Dr. Malters is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Urinary Tract Infection in Children, Urinary Tract Infection (UTI), Myasthenia Gravis, Hip Replacement, and Endoscopy. Dr. Malters is board certified in American Board Of Internal Medicine. Dr. Malters is currently accepting new patients.

    Experienced in Phacomatosis Pigmentovascularis
    Experienced in Phacomatosis Pigmentovascularis
    Referral may be required

    OSF Illinois Neurological Institute - Neurosurgery

    1505 Eastland Drive Suite 330, 
    Bloomington, IL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Charles Rosen is a Neurosurgery provider practicing medicine in Bloomington, Illinois. Dr. Rosen is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Ear Barotrauma, Stroke, Hydrocephalus, Hormone Replacement Therapy (HRT), and Thrombectomy. Dr. Rosen is board certified in American Board Of Neurological Surgery. Dr. Rosen is currently accepting new patients.

    Experienced in Phacomatosis Pigmentovascularis
    Internal Medicine
    Experienced in Phacomatosis Pigmentovascularis
    Internal Medicine

    Internal Medicine - Froedtert Hospital Specialty Clinics

    8850 William Coffey Dr., 
    Milwaukee, WI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Ann Maguire is a primary care provider, practicing in Internal Medicine in Milwaukee, Wisconsin. Dr. Maguire is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Richter Syndrome, Chronic B-Cell Leukemia (CBCL), Chronic Lymphocytic Leukemia (CLL), and Adrenal Insufficiency Pediatric. Dr. Maguire is board certified in Internal Medicine. Dr. Maguire is currently accepting new patients.

    Distinguished in Phacomatosis Pigmentovascularis
    Ophthalmology | Oncology
    Distinguished in Phacomatosis Pigmentovascularis
    Ophthalmology | Oncology
    Referral may be required

    Ophthalmology - Wills Eye Hospital

    840 Walnut Street, Floor 10, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Carol Shields is an Oncologist and an Ophthalmologist practicing medicine in Philadelphia, Pennsylvania. Dr. Shields is rated as a Distinguished provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. She is also highly rated in 49 other conditions, according to our data. Her clinical expertise encompasses Retinoblastoma, Melanoma of the Eye, Uveal Melanoma, Vitrectomy, and Iridectomy. Dr. Shields is board certified in Ophthalmology. Dr. Shields is currently accepting new patients.

    Distinguished in Phacomatosis Pigmentovascularis
    Distinguished in Phacomatosis Pigmentovascularis
    Referral may be required

    Penn Translational Medicine And Human Genetics

    3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Katherine Nathanson is a Medical Genetics provider practicing medicine in Philadelphia, Pennsylvania. Dr. Nathanson is rated as a Distinguished provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Pheochromocytoma, Cowden Syndrome, Peutz-Jeghers Syndrome, and Phacomatosis Pigmentovascularis. Dr. Nathanson is board certified in Clinical Genetics And Genomics, 2020.

    Experienced in Phacomatosis Pigmentovascularis
    Experienced in Phacomatosis Pigmentovascularis
    Referral may be required

    University Of Alabama Health Services Foundation PC

    2000 6th Ave S, 
    Birmingham, AL 
    Languages Spoken:
    English
    Accepting New Patients

    Winfield Fisher-Iii is a Neurosurgery provider practicing medicine in Birmingham, Alabama. Dr. Fisher-Iii is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 57 other conditions, according to our data. His clinical expertise encompasses Brain Aneurysm, Cerebellum Agenesis Hydrocephaly, Hydrocephalus, Awake Craniotomy, and Gastrostomy. Dr. Fisher-Iii is currently accepting new patients.

    Experienced in Phacomatosis Pigmentovascularis
    Medical Genetics | Pediatrics
    Experienced in Phacomatosis Pigmentovascularis
    Medical Genetics | Pediatrics
    Referral may be required

    State University Of Iowa

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English
    Accepting New Patients

    Alpa Sidhu is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Iowa City, Iowa. Dr. Sidhu is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Jacobsen Syndrome, and Gastroschisis. Dr. Sidhu is currently accepting new patients.

    Experienced in Phacomatosis Pigmentovascularis
    Ophthalmology
    Experienced in Phacomatosis Pigmentovascularis
    Ophthalmology
    Referral may be required

    University Of Vermont Medical Center

    111 Colchester Ave, 
    Burlington, VT 
    Languages Spoken:
    English
    Accepting New Patients

    Robert Millay is an Ophthalmologist practicing medicine in Burlington, Vermont. Dr. Millay is rated as an Experienced provider by MediFind in the treatment of Phacomatosis Pigmentovascularis. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Retinal Detachment, and Choroid Plexus Carcinoma. Dr. Millay is currently accepting new patients.

    Showing 1-20 of 649

    Last Updated: 09/26/2026

    What is the definition of Phacomatosis Pigmentovascularis?

    Phacomatosis pigmentovascularis (PPV) is a disorder characterized by the co-existence of vascular and pigmentary birthmarks. Signs and symptoms may include port wine stain, melanocytic nevi (commonly known as moles), epidermal nevi, dermal melanocytosis (areas of blue-gray discoloration), nevus spilus, and patches of hyperpigmentation (areas of darker skin). Other skin features may include nevus anemicus (areas of lighter skin) and café au lait spots. About half of people with PPV have systemic involvement, which means they have features affecting other areas of the body. People with systemic involvement may have neurologic, ocular (eye), or muscular abnormalities. Isolated PPV is typically a sporadic disorder that occurs for the first time in people with no family history of PPV. PPV can be caused by a somatic genetic change in the GNA11 or GNAQ gene that is present only in the affected tissues of the body. These genetic changes are not present in the blood or in unaffected tissues, which means the disorder is likely due to non-inherited genetic changes that are randomly acquired after conception. In some cases of isolated PPV, the underlying cause remains unknown.

    When should I see a Phacomatosis Pigmentovascularis doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Phacomatosis Pigmentovascularis doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Phacomatosis Pigmentovascularis doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Phacomatosis Pigmentovascularis doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Phacomatosis Pigmentovascularis doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Phacomatosis Pigmentovascularis doctor search results page. 

    Why is it important to get a second opinion from a different Phacomatosis Pigmentovascularis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Phacomatosis Pigmentovascularis doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Phacomatosis Pigmentovascularis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Phacomatosis Pigmentovascularis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Phacomatosis Pigmentovascularis doctors in The United States?

    Look for the filter feature on the left side of the Phacomatosis Pigmentovascularis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Phacomatosis Pigmentovascularis doctor that offers video calls?

    Look for the filter feature on the left-side of the Phacomatosis Pigmentovascularis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy.