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    Last Updated: 01/09/2026

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    MediFind found 29 doctor with experience in Porencephaly near The United Kingdom. Of these, 28 are Experienced and 1 are Advanced.

    Location
    LocationClose
    29 providers found
      Advanced in Porencephaly
      Advanced in Porencephaly
      Glasgow, SCT, GB 

      Kali Lazzerini practices in Glasgow, United Kingdom. Ms. Lazzerini is rated as an Advanced expert by MediFind in the treatment of Porencephaly. Her top areas of expertise are Meningocele, Meningoencephalocele, Familial Porencephaly, and Porencephaly.

      Experienced in Porencephaly
      Experienced in Porencephaly
      Cambridge, ENG, GB 

      Catherine Tudor practices in Cambridge, United Kingdom. Ms. Tudor is rated as an Experienced expert by MediFind in the treatment of Porencephaly. Her top areas of expertise are Agenesis of the Dorsal Pancreas, Familial Porencephaly, Porencephaly, and Holoprosencephaly.

      Experienced in Porencephaly
      Experienced in Porencephaly
      Hawkshead Lane, 
      North Mymms, ENG, GB 

      Simon Priestnall practices in North Mymms, United Kingdom. Mr. Priestnall is rated as an Experienced expert by MediFind in the treatment of Porencephaly. His top areas of expertise are Waterhouse-Friderichsen Syndrome, Meningocele, Meningoencephalocele, Osteotomy, and Cataract Removal.

      Learn about our expert tiers
      Experienced in Porencephaly
      Experienced in Porencephaly

      UCL Queen Square Institute Of Neurology

      London, ENG, GB 

      Simona Balestrini practices in London, United Kingdom. Ms. Balestrini is rated as an Experienced expert by MediFind in the treatment of Porencephaly. Her top areas of expertise are Myoclonic Epilepsy, Epilepsy, Epilepsy with Myoclonic-Atonic Seizures, Deep Brain Stimulation, and Gastrostomy.

      Experienced in Porencephaly
      Experienced in Porencephaly
      Solihull, ENG, GB 

      Luisa De Risio practices in Solihull, United Kingdom. Ms. De Risio is rated as an Experienced expert by MediFind in the treatment of Porencephaly. Her top areas of expertise are Arachnoid Cysts, Leukocytosis, Neurogenic Bowel, Meningoencephalocele, and Laminectomy.

      Experienced in Porencephaly
      Experienced in Porencephaly
      Southfields, ENG, GB 

      Fabio Stabile practices in Southfields, United Kingdom. Mr. Stabile is rated as an Experienced expert by MediFind in the treatment of Porencephaly. His top areas of expertise are Choroid Plexus Carcinoma, Cerebral Ventricle Cancer, Meningoencephalocele, and Familial Porencephaly.

      Experienced in Porencephaly
      Experienced in Porencephaly
      Marlow, ENG, GB 

      Lorenzo Mari practices in Marlow, United Kingdom. Mr. Mari is rated as an Experienced expert by MediFind in the treatment of Porencephaly. His top areas of expertise are Neurogenic Bowel, Meningocele, Spinal Shock, and Meningoencephalocele.

      Experienced in Porencephaly
      Experienced in Porencephaly
      Cambridge, ENG, GB 

      Diane Gleeson practices in Cambridge, United Kingdom. Ms. Gleeson is rated as an Experienced expert by MediFind in the treatment of Porencephaly. Her top areas of expertise are Porencephaly and Familial Porencephaly.

      Experienced in Porencephaly
      Experienced in Porencephaly
      Basildon, ENG, GB 

      Roberto Lopez-Jose practices in Basildon, United Kingdom. Mr. Lopez-Jose is rated as an Experienced expert by MediFind in the treatment of Porencephaly. His top areas of expertise are Meningocele, Meningoencephalocele, Oligodendroglioma, and Familial Porencephaly.

      Experienced in Porencephaly
      Experienced in Porencephaly
      Wirral, ENG, GB 

      Fraser Mcconnell practices in Wirral, United Kingdom. Mr. Mcconnell is rated as an Experienced expert by MediFind in the treatment of Porencephaly. His top areas of expertise are Meningoencephalocele, Familial Porencephaly, Porencephaly, and Meningocele.

      Experienced in Porencephaly
      Experienced in Porencephaly
      Bearsden Road, G61 1QH, 
      Glasgow, SCT, GB 

      Jacques Penderis practices in Glasgow, United Kingdom. Mr. Penderis is rated as an Experienced expert by MediFind in the treatment of Porencephaly. His top areas of expertise are Meningoencephalocele, Pelizaeus-Merzbacher Disease, Familial Porencephaly, Porencephaly, and Laminectomy.

      Experienced in Porencephaly
      Experienced in Porencephaly
      1 Midland Road, 
      London, ENG, GB 

      Timothy Mohun practices in London, United Kingdom. Mr. Mohun is rated as an Experienced expert by MediFind in the treatment of Porencephaly. His top areas of expertise are Ventricular Septal Defects, Cerebral Hypoxia, Hypertrophic Cardiomyopathy (HCM), and Transposition of the Great Arteries.

      Experienced in Porencephaly
      Experienced in Porencephaly
      Newcastle Upon Tyne, ENG, GB 

      Cassey Muir practices in Newcastle Upon Tyne, United Kingdom. Ms. Muir is rated as an Experienced expert by MediFind in the treatment of Porencephaly. Her top areas of expertise are Meningoencephalocele, Familial Porencephaly, Porencephaly, and Meningocele.

      Experienced in Porencephaly
      Experienced in Porencephaly
      London, ENG, GB 

      Steven De Decker practices in London, United Kingdom. Mr. De Decker is rated as an Experienced expert by MediFind in the treatment of Porencephaly. His top areas of expertise are Herniated Disk, Meningoencephalocele, Tethered Cord Syndrome, Empyema, and Laminectomy.

      Experienced in Porencephaly
      Experienced in Porencephaly
      Cambridge, ENG, GB 

      Antonella Galli practices in Cambridge, United Kingdom. Ms. Galli is rated as an Experienced expert by MediFind in the treatment of Porencephaly. Her top areas of expertise are Familial Porencephaly, Porencephaly, Cortical Dysplasia, and Chondrodystrophy.

      Experienced in Porencephaly
      Experienced in Porencephaly
      Fitzpatrick Referrals Halfway Lane, 
      Godalming, ENG, GB 

      Clare Rusbridge practices in Godalming, United Kingdom. Ms. Rusbridge is rated as an Experienced expert by MediFind in the treatment of Porencephaly. Her top areas of expertise are Syringomyelia, Chiari Malformation, Chiari Malformation Type 2, Lafora Disease, and Laminectomy.

      Experienced in Porencephaly
      Experienced in Porencephaly
      Hinxton, ENG, GB 

      Elizabeth Tuck practices in Hinxton, United Kingdom. Ms. Tuck is rated as an Experienced expert by MediFind in the treatment of Porencephaly. Her top areas of expertise are Multiple Synostoses Syndrome 1, Familial Porencephaly, Porencephaly, and Brachydactyly.

      Experienced in Porencephaly
      Experienced in Porencephaly
      Downing Street, 
      Cambridge, ENG, GB 

      Rita Goncalves practices in Cambridge, United Kingdom. Ms. Goncalves is rated as an Experienced expert by MediFind in the treatment of Porencephaly. Her top areas of expertise are Meningitis, Encephalitis, Aural Polyps, and Meningocele.

      Experienced in Porencephaly
      Experienced in Porencephaly
      Crick Advanced Light Microscopy Facility, 
      London, ENG, GB 

      Fabrice Prin practices in London, United Kingdom. Mr. Prin is rated as an Experienced expert by MediFind in the treatment of Porencephaly. His top areas of expertise are Agenesis of the Dorsal Pancreas, Familial Porencephaly, Porencephaly, and Cohen Syndrome.

      Experienced in Porencephaly
      Experienced in Porencephaly
      Bearsden Road, G61 1QH, 
      Glasgow, SCT, GB 

      Rodrigo Quintana-Gutierrez practices in Glasgow, United Kingdom. Mr. Quintana-Gutierrez is rated as an Experienced expert by MediFind in the treatment of Porencephaly. His top areas of expertise are Hereditary Sensory Neuropathy Type 1 (HSN1), Anhidrosis, Hajdu-Cheney Syndrome, Hereditary Sensory and Autonomic Neuropathy Type 2, and Laminectomy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 29

      Last Updated: 01/09/2026

      What is the definition of Porencephaly?

      Porencephaly is a rare condition that affects the central nervous system. People with Porencephaly develop fluid-filled cysts or cavities in the brain either before or shortly after birth. The severity of the condition and the associated signs and symptoms vary significantly based on the size, location, and number of cysts. Common features include developmental delay, reduced muscle tone (hypotonia), seizures, macrocephaly (unusually large head size), spastic hemiplegia, speech problems, delayed growth, and intellectual disability. Porencephaly is usually the result of damage from infection or stroke after birth. In these cases, the condition occurs sporadically in people with no family history of the condition. There is an inherited form of the condition called familial Porencephaly, which is caused by changes in the COL4A1 or COL4A2 genes and is inherited in an autosomal dominant manner.

      When should I see a Porencephaly doctor in The United Kingdom?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Porencephaly doctor in The United Kingdom?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Porencephaly doctors in The United Kingdom?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Porencephaly doctors in The United Kingdom?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Porencephaly doctor in The United Kingdom?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porencephaly doctor search results page. 

      Why is it important to get a second opinion from a different Porencephaly doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Porencephaly doctor in The United Kingdom?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Porencephaly doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Porencephaly doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Porencephaly doctors in The United Kingdom?

      Look for the filter feature on the left side of the Porencephaly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Porencephaly doctor that offers video calls?

      Look for the filter feature on the left-side of the Porencephaly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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