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    Last Updated: 10/30/2025

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    MediFind found 62 doctor with experience in Porencephaly near Boston, MA. Of these, 52 are Experienced, 9 are Advanced and 1 are Distinguished.

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    LocationClose
    62 providers found
      Distinguished in Porencephaly
      Neurosurgery
      Distinguished in Porencephaly
      Neurosurgery

      New England Medical Center Group Practice Inc

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Carl Heilman is a Neurosurgery provider in Boston, Massachusetts. Dr. Heilman is rated as a Distinguished provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Meningioma, Hydrocephalus, Acoustic Neuroma, Endoscopic Transnasal Transsphenoidal Surgery, and Mastoidectomy. Dr. Heilman is currently accepting new patients.

      Advanced in Porencephaly
      Pediatric Neurology | Neurology
      Advanced in Porencephaly
      Pediatric Neurology | Neurology
      800 Washington St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English

      Ju Tang is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Tang is rated as an Advanced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Seizures, Epilepsy, Generalized Tonic-Clonic Seizure, and Memory Loss.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Porencephaly
      Advanced in Porencephaly

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jonathan Rosand is a Neurologist in Boston, Massachusetts. Dr. Rosand is rated as an Advanced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Cerebral Amyloid Angiopathy, Stroke, Siderosis, Primary Amyloidosis, and Gastrostomy. Dr. Rosand is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Porencephaly
      Advanced in Porencephaly

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kristopher Kahle is a Neurosurgery provider in Boston, Massachusetts. Dr. Kahle is rated as an Advanced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Hydrocephalus, Normal Pressure Hydrocephalus, Vein of Galen Aneurysm, Craniectomy, and Posterior Fossa Decompression. Dr. Kahle is currently accepting new patients.

      Advanced in Porencephaly
      Pediatric Neurology | Neurology | Pediatrics
      Advanced in Porencephaly
      Pediatric Neurology | Neurology | Pediatrics
      300 Longwood Ave, Fegan 11, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Janet Soul is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Soul is rated as an Advanced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Seizures, Epilepsy in Children, Absence Seizure, and Generalized Tonic-Clonic Seizure. Dr. Soul is currently accepting new patients.

      Advanced in Porencephaly
      Advanced in Porencephaly

      Boston Pediatric Neurosurgical Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Benjamin Warf is a Neurosurgery provider in Boston, Massachusetts. Dr. Warf is rated as an Advanced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Hydrocephalus, Myelomeningocele, Syringomyelia, Posterior Fossa Decompression, and Endoscopy. Dr. Warf is currently accepting new patients.

      Advanced in Porencephaly
      Pediatric Neurology | Neurology
      Advanced in Porencephaly
      Pediatric Neurology | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Christopher Elitt is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Elitt is rated as an Advanced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Cortical Dysplasia, Aicardi Syndrome, Acrocallosal Syndrome, and Bone Dysplasia Corpus Callosum Agenesis. Dr. Elitt is currently accepting new patients.

      Advanced in Porencephaly
      Pediatric Radiology | Radiology
      Advanced in Porencephaly
      Pediatric Radiology | Radiology

      Children's Hospital Radiology Foundation, Inc.

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Judy Estroff is a Pediatric Radiologist and a Radiologist in Boston, Massachusetts. Dr. Estroff is rated as an Advanced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Schizencephaly, Porencephaly, Cortical Dysplasia, and Visceromegaly.

      Advanced in Porencephaly
      Radiology
      Advanced in Porencephaly
      Radiology

      Children's Hospital Radiology Foundation, Inc.

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Edward Yang is a Radiologist in Boston, Massachusetts. Dr. Yang is rated as an Advanced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Cortical Dysplasia, Polymicrogyria, Agyria Pachygyria Polymicrogyria, and Focal or Multifocal Malformations in Neuronal Migration.

      Advanced in Porencephaly
      Advanced in Porencephaly

      Children's Hospital Radiology Foundation, Inc.

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Michelle Larosa is a Radiologist in Boston, Massachusetts. Dr. Larosa is rated as an Advanced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Bronchogenic Cyst, Gas Bloat Syndrome, Tracheobronchopathia Osteoplastica, Collapsed Lung, and Reconstructive Urology Surgery.

      Experienced in Porencephaly
      Pediatric Radiology | Radiology
      Experienced in Porencephaly
      Pediatric Radiology | Radiology

      Pratt Radiology Associates Inc

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English

      Terri Williams is a Pediatric Radiologist and a Radiologist in Boston, Massachusetts. Dr. Williams is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Visceromegaly, Progressive Familial Intrahepatic Cholestasis Type 1, Progressive Familial Intrahepatic Cholestasis Type 3, and Progressive Familial Intrahepatic Cholestasis Type 2.

      Experienced in Porencephaly
      Neurosurgery
      Experienced in Porencephaly
      Neurosurgery

      New England Medical Center Group Practice Inc

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Marie Roguski is a Neurosurgery provider in Boston, Massachusetts. Dr. Roguski is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Subdural Hematoma, Dandy-Walker Syndrome, Glioma, Awake Craniotomy, and Posterior Fossa Decompression.

      Experienced in Porencephaly
      Neurosurgery
      Experienced in Porencephaly
      Neurosurgery

      New England Medical Center Group Practice Inc

      800 Washington St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Julian Wu is a Neurosurgery provider in Boston, Massachusetts. Dr. Wu is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Meningioma, Acoustic Neuroma, Schwannoma, Gamma Knife Radiosurgery, and Thrombectomy. Dr. Wu is currently accepting new patients.

      Experienced in Porencephaly
      Experienced in Porencephaly

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      William Butler is a Neurosurgery provider in Boston, Massachusetts. Dr. Butler is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Tethered Cord Syndrome, Hydrocephalus, Chiari Malformation Type 1, Posterior Fossa Decompression, and Laminectomy. Dr. Butler is currently accepting new patients.

      Experienced in Porencephaly
      Radiology | Pediatric Radiology
      Experienced in Porencephaly
      Radiology | Pediatric Radiology
      55 Fruit St, Fnd 2, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English

      Sjirk Westra is a Radiologist and a Pediatric Radiologist in Boston, Massachusetts. Dr. Westra is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Intussusception in Children, Lung Nodules, Infantile Pyloric Stenosis, and Scoliosis.

      Experienced in Porencephaly
      Experienced in Porencephaly

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English

      Randheer Shailam is a Radiologist in Boston, Massachusetts. Dr. Shailam is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Familial Short Stature (FSS), Idiopathic Short Stature (ISS), Short Stature (Growth Disorders), Scoliosis, and Thyroidectomy.

      Experienced in Porencephaly
      Neurosurgery
      Experienced in Porencephaly
      Neurosurgery

      MGH Brain Tumor Center

      55 Fruit St, Yawkey 9E, Room 9026, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Brian Nahed is a Neurosurgery provider in Boston, Massachusetts. Dr. Nahed is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Astrocytoma, Glioma, Glioblastoma, Awake Craniotomy, and Thrombectomy. Dr. Nahed is currently accepting new patients.

      Experienced in Porencephaly
      Neurosurgery
      Experienced in Porencephaly
      Neurosurgery

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Rafael Vega is a Neurosurgery provider in Boston, Massachusetts. Dr. Vega is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Subdural Hematoma, Brain Tumor, Posterior Fossa Tumor, Awake Craniotomy, and Craniectomy. Dr. Vega is currently accepting new patients.

      Experienced in Porencephaly
      Experienced in Porencephaly
      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English

      Ghusn Al Sideiri is a Neurosurgery provider in Boston, Massachusetts. Dr. Al Sideiri is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Choroid Plexus Cyst, Familial Porencephaly, Arachnoid Cysts, and Ganglioglioma.

      Experienced in Porencephaly
      Experienced in Porencephaly

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Joshua Aronson is a Neurosurgery provider in Boston, Massachusetts. Dr. Aronson has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Subdural Hematoma, Seizures, Parkinson's Disease, Deep Brain Stimulation, and Awake Craniotomy. Dr. Aronson is currently accepting new patients.

      Showing 1-20 of 62

      Last Updated: 10/30/2025

      What is the definition of Porencephaly?

      Porencephaly is a rare condition that affects the central nervous system. People with Porencephaly develop fluid-filled cysts or cavities in the brain either before or shortly after birth. The severity of the condition and the associated signs and symptoms vary significantly based on the size, location, and number of cysts. Common features include developmental delay, reduced muscle tone (hypotonia), seizures, macrocephaly (unusually large head size), spastic hemiplegia, speech problems, delayed growth, and intellectual disability. Porencephaly is usually the result of damage from infection or stroke after birth. In these cases, the condition occurs sporadically in people with no family history of the condition. There is an inherited form of the condition called familial Porencephaly, which is caused by changes in the COL4A1 or COL4A2 genes and is inherited in an autosomal dominant manner.

      When should I see a Porencephaly doctor near Boston, MA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Porencephaly doctor near Boston, MA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Porencephaly doctors near Boston, MA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Porencephaly doctors near Boston, MA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Porencephaly doctor near Boston, MA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porencephaly doctor search results page. 

      Why is it important to get a second opinion from a different Porencephaly doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Porencephaly doctor near Boston, MA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Porencephaly doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Porencephaly doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Porencephaly doctors near Boston, MA?

      Look for the filter feature on the left side of the Porencephaly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Porencephaly doctor that offers video calls?

      Look for the filter feature on the left-side of the Porencephaly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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