The 20 Best Porencephaly Doctors in Netherlands

Find the Top Porencephaly Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 15 doctor with experience in Porencephaly near Netherlands. Of these, 13 are Experienced and 2 are Advanced.

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15 providers found
    Advanced in Porencephaly
    Advanced in Porencephaly
    Referral may be required
    Maastricht, LI, NL 

    Suzanne Sallevelt practices practicing medicine in Maastricht, Netherlands. Ms. Sallevelt is rated as an Advanced expert by MediFind in the treatment of Porencephaly. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Porencephaly, Familial Porencephaly, Micrognathia, and Coffin-Siris Syndrome.

    Advanced in Porencephaly
    Advanced in Porencephaly
    Referral may be required
    Rotterdam, ZH, NL 

    Dicky Halley practices practicing medicine in Rotterdam, Netherlands. Mr. Halley is rated as an Advanced expert by MediFind in the treatment of Porencephaly. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Cortical Dysplasia, Focal or Multifocal Malformations in Neuronal Migration, Familial Porencephaly, and Porencephaly.

    Experienced in Porencephaly
    Experienced in Porencephaly
    Referral may be required

    Radboud UMC

    Nijmegen, GE, NL 

    Erik-jan Kamsteeg practices practicing medicine in Nijmegen, Netherlands. Kamsteeg is rated as an Experienced expert by MediFind in the treatment of Porencephaly. They are also highly rated in 39 other conditions, according to our data. Their clinical expertise encompasses Spastic Paraplegia Type 7, Spasticity, Paraplegia, and Rhabdomyolysis.

    Learn about our expert tiers
    Experienced in Porencephaly
    Experienced in Porencephaly
    Referral may be required
    Amsterdam, NH, NL 

    Marjo Van Der Knaap practices practicing medicine in Amsterdam, Netherlands. Ms. Van Der Knaap is rated as an Experienced expert by MediFind in the treatment of Porencephaly. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Leukodystrophy, CACH Syndrome, Metachromatic Leukodystrophy, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Bone Marrow Transplant.

    Experienced in Porencephaly
    Experienced in Porencephaly
    Referral may be required
    Waalwijk, NB, NL 

    Koen Santifort practices practicing medicine in Waalwijk, Netherlands. Mr. Santifort is rated as an Experienced expert by MediFind in the treatment of Porencephaly. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Syringomyelia, Cerebellum Agenesis Hydrocephaly, Hydranencephaly, Paraplegia, and Laminectomy.

    Experienced in Porencephaly
    Experienced in Porencephaly
    Referral may be required
    Nijmegen, GE, NL 

    Maartje Pennings practices practicing medicine in Nijmegen, Netherlands. Pennings is rated as an Experienced expert by MediFind in the treatment of Porencephaly. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Spastic Paraplegia Type 4, Acute Cerebellar Ataxia, Dopamine Beta-Hydroxylase Deficiency, and Paraplegia.

    Experienced in Porencephaly
    Experienced in Porencephaly
    Referral may be required
    Maastricht, LI, NL 

    Noel Bauer practices practicing medicine in Maastricht, Netherlands. Mr. Bauer is rated as an Experienced expert by MediFind in the treatment of Porencephaly. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Retinopathy of Prematurity, Astigmatism, Cataract, Nearsightedness, and Cataract Removal.

    Experienced in Porencephaly
    Experienced in Porencephaly
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Grazia Mancini practices practicing medicine in Rotterdam, Netherlands. Mancini is rated as an Experienced expert by MediFind in the treatment of Porencephaly. They are also highly rated in 26 other conditions, according to our data. Their clinical expertise encompasses Cerebellar Agenesis, Cortical Dysplasia, Focal or Multifocal Malformations in Neuronal Migration, and Polymicrogyria.

    Experienced in Porencephaly
    Experienced in Porencephaly
    Referral may be required
    Maastricht, LI, NL 

    Roland Vermeulen practices practicing medicine in Maastricht, Netherlands. Mr. Vermeulen is rated as an Experienced expert by MediFind in the treatment of Porencephaly. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Spastic Diplegia Infantile Type, Cerebral Palsy, Epilepsy Juvenile Absence, Spasticity, and Rhizotomy.

    Experienced in Porencephaly
    Experienced in Porencephaly
    Referral may be required
    Maastricht, LI, NL 

    Joost Nicolai practices practicing medicine in Maastricht, Netherlands. Nicolai is rated as an Experienced expert by MediFind in the treatment of Porencephaly. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Fryns Syndrome, Epilepsy, Porencephaly, and Familial Porencephaly.

    Experienced in Porencephaly
    Experienced in Porencephaly
    Referral may be required
    Utrecht, UT, NL 

    Jeroen Dudink practices practicing medicine in Utrecht, Netherlands. Mr. Dudink is rated as an Experienced expert by MediFind in the treatment of Porencephaly. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Premature Infant, Asphyxia Neonatorum, Intraventricular Hemorrhage of the Newborn, and Bilirubin Encephalopathy.

    Experienced in Porencephaly
    Experienced in Porencephaly
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Renske Oegema practices practicing medicine in Rotterdam, Netherlands. Oegema is rated as an Experienced expert by MediFind in the treatment of Porencephaly. They are also highly rated in 11 other conditions, according to our data. Their clinical expertise encompasses Agyria Pachygyria Polymicrogyria, Cortical Dysplasia, Periventricular Heterotopia, and Polymicrogyria.

    Experienced in Porencephaly
    Experienced in Porencephaly
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Rachel Schot practices practicing medicine in Rotterdam, Netherlands. Ms. Schot is rated as an Experienced expert by MediFind in the treatment of Porencephaly. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Achalasia Microcephaly Syndrome, Microcephaly, Cortical Dysplasia, and Periventricular Heterotopia.

    Experienced in Porencephaly
    Experienced in Porencephaly
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Hennie Bruggenwirth practices practicing medicine in Rotterdam, Netherlands. Ms. Bruggenwirth is rated as an Experienced expert by MediFind in the treatment of Porencephaly. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Swyer Syndrome, Thoracic Aortic Aneurysm, Abdominal Aortic Aneurysm (AAA), and Angelman Syndrome.

    Experienced in Porencephaly
    Experienced in Porencephaly
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Beerend Winkelman practices practicing medicine in Rotterdam, Netherlands. Winkelman is rated as an Experienced expert by MediFind in the treatment of Porencephaly. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses X-Linked Infantile Nystagmus, X-Linked Congenital Stationary Night Blindness, Nearsightedness, and Donnai-Barrow Syndrome.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-15 of 15

    Last Updated: 11/08/2026

    What is the definition of Porencephaly?

    Porencephaly is a rare condition that affects the central nervous system. People with Porencephaly develop fluid-filled cysts or cavities in the brain either before or shortly after birth. The severity of the condition and the associated signs and symptoms vary significantly based on the size, location, and number of cysts. Common features include developmental delay, reduced muscle tone (hypotonia), seizures, macrocephaly (unusually large head size), spastic hemiplegia, speech problems, delayed growth, and intellectual disability. Porencephaly is usually the result of damage from infection or stroke after birth. In these cases, the condition occurs sporadically in people with no family history of the condition. There is an inherited form of the condition called familial Porencephaly, which is caused by changes in the COL4A1 or COL4A2 genes and is inherited in an autosomal dominant manner.

    When should I see a Porencephaly doctor in Netherlands?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Porencephaly doctor in Netherlands?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Porencephaly doctor in Netherlands?

    You can find a Porencephaly doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Porencephaly doctors in Netherlands?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Porencephaly doctors in Netherlands?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Porencephaly doctor in Netherlands?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porencephaly doctor search results page. 

    Why is it important to get a second opinion from a different Porencephaly doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Porencephaly doctor in Netherlands?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Porencephaly doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Porencephaly doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Porencephaly doctors in Netherlands?

    Look for the filter feature on the left side of the Porencephaly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Porencephaly doctor that offers video calls?

    Look for the filter feature on the left-side of the Porencephaly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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