The 20 Best Porencephaly Doctors Near Me in Massachusetts, US

Find the Top Porencephaly Experts and Specialists

The 20 Best Porencephaly Doctors in Massachusetts, US

Last Updated: 02/22/2026

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MediFind found 90 doctor with experience in Porencephaly near Massachusetts, US. Of these, 79 are Experienced, 10 are Advanced and 1 are Distinguished.

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90 providers found
    Distinguished in Porencephaly
    Neurosurgery
    Distinguished in Porencephaly
    Neurosurgery

    Tufts Medical Center Neely Neurosurgery

    800 Washington St Bldg 7TH Fl 7, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Carl Heilman is a Neurosurgery provider in Boston, Massachusetts. Dr. Heilman is rated as a Distinguished provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Meningioma, Hydrocephalus, Acoustic Neuroma, Endoscopic Transnasal Transsphenoidal Surgery, and Mastoidectomy. Dr. Heilman is currently accepting new patients.

    Advanced in Porencephaly
    Pediatric Radiology
    Advanced in Porencephaly
    Pediatric Radiology

    Department Of Radiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Judy Estroff is a Pediatric Radiologist in Boston, Massachusetts. Dr. Estroff is rated as an Advanced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Schizencephaly, Porencephaly, Cortical Dysplasia, and Subependymal Nodular Heterotopia.

    Advanced in Porencephaly
    Radiology
    Advanced in Porencephaly
    Radiology

    Department Of Radiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Edward Yang is a Radiologist in Boston, Massachusetts. Dr. Yang is rated as an Advanced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Cortical Dysplasia, Agyria Pachygyria Polymicrogyria, Focal or Multifocal Malformations in Neuronal Migration, and Polymicrogyria.

    Learn about our expert tiers
    Advanced in Porencephaly
    Advanced in Porencephaly

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Michelle Larosa is a Radiologist in Boston, Massachusetts. Dr. Larosa is rated as an Advanced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Bronchogenic Cyst, Gas Bloat Syndrome, Tracheobronchopathia Osteoplastica, Collapsed Lung, and Reconstructive Urology Surgery.

    Edward R. Smith
    Experienced in Porencephaly
    Neurosurgery | Pediatrics
    Experienced in Porencephaly
    Neurosurgery | Pediatrics

    Boston Pediatric Neurosurgical Foundation Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Edward Smith is a Pediatrics specialist and a Neurosurgery provider in Boston, Massachusetts. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Moyamoya Disease, Vein of Galen Aneurysm, Arteriovenous Malformation, Endovascular Embolization, and Posterior Fossa Decompression.

    Rafael A. Vega
    Experienced in Porencephaly
    Neurosurgery
    Experienced in Porencephaly
    Neurosurgery

    Beth Israel Deaconess Medical Center - Neurosurgery

    110 Francis Street, Suite 3B, 
    Boston, MA 
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    Rafael Vega is a Neurosurgery provider in Boston, Massachusetts. Dr. Vega is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Brain Tumor, Subdural Hematoma, Posterior Fossa Tumor, Awake Craniotomy, and Craniectomy.

    Timothy R. Smith
    Experienced in Porencephaly
    Experienced in Porencephaly

    Brigham And Women's Hospital, Neurosciences Center

    60 Fenwood Road, 1st Floor Hale Building For Transformative Medicine, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Timothy Smith is a neurosurgeon-scientist who seeks to understand, predict, and improve clinical outcomes for neurosurgical patients by combining the use of epidemiological data, advanced statistical analysis, machine learning, and emerging biological/information system technologies. Trained as an epidemiologist and statistician in addition to his neurosurgical residency, he focuses primarily on the utilization of data science to optimize neurosurgical patient care.Dr. Smith’s clinical interests focus on tumors of the brain and spine that arise innately from the central nervous system and the meningeal covering of the brain, or metastasize from other primary cancer sites. Dr. Smith is the Director of the Computational Neuroscience Outcomes Center (CNOC) in the Department of Neurosurgery at Brigham and Women’s Hospital. This center strives to collect and maintain prospective data on all neurosurgical patients cared for by the department, synthesize high volume data streams, as well as implement process and outcome improvement through comparison with national data.Dr. Smith is committed to the education of future neurosurgeons and plays an active role in the Brigham and Women’s Hospital’s neurosurgical residency program. He is a committee vice-chair for Medical-Legal Issues with the Council of State Neurosurgical Societies (CSNS) as well as the President of the Boston Society for Neurology, Neurosurgery, and Psychiatry, the oldest academic neuroscience society in the United States. He serves on numerous committees both in the US and worldwide which focus on the ethics of neurosurgery, oncology, skull base surgery, and neurologic outcomes assessment. He is an active member of committees at Brigham and Women’s Hospital addressing information technology, physician wellness, and process improvement.Dr. Smith maintains active membership in both national and international neurosurgical societies, including the American Association of Neurological Surgeons, the Congress of Neurological Surgeons, the North American Skull Base Society, the Society for Neuro-Oncology, and the Pituitary Society. He presents his research regularly at national and international meetings. He has published over 150 peer-reviewed journal articles and several book chapters. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Pituitary Tumor, Meningioma, Brain Tumor, Awake Craniotomy, and Laminectomy.

    Nirav J. Patel
    Experienced in Porencephaly
    Neurosurgery | Radiology
    Experienced in Porencephaly
    Neurosurgery | Radiology

    Brigham And Women's Hospital, Neurosciences Center

    60 Fenwood Road, 1st Floor Hale Building For Transformative Medicine, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Nirav Patel is a Radiologist and a Neurosurgery provider in Boston, Massachusetts. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Posterior Fossa Tumor, Primitive Neuroectodermal Tumor (PNET), Brain Aneurysm, Stent Placement, and Transmyocardial Revascularization.

    Joshua P. Aronson
    Experienced in Porencephaly
    Experienced in Porencephaly

    Beth Israel Deaconess Medical Center - Neurosurgery

    110 Francis Street, Suite 3B, 
    Boston, MA 
    Experience:
    17+ years
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    Joshua Aronson is a Neurosurgery provider in Boston, Massachusetts. Dr. Aronson has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Subdural Hematoma, Seizures, Parkinson's Disease, Deep Brain Stimulation, and Awake Craniotomy.

    Michael A. Mooney
    Experienced in Porencephaly
    Experienced in Porencephaly

    Brigham And Women's Hospital, Neurosciences Center

    60 Fenwood Road, 1st Floor Hale Building For Transformative Medicine, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Mooney is an Attending Neurosurgeon in the Department of Neurosurgery and an Assistant Professor of Neurosurgery at Harvard Medical School. Dr. Mooney completed his undergraduate training at the University of Michigan where he studied Neuroscience. He subsequently completed a research fellowship in neurogenetics at the National Institutes of Health prior to attending medical school at Cornell. He completed his residency training at the Barrow Neurological Institute with a focus on complex cranial and spine surgery, and he completed a clinical fellowship in skull base surgery at the Brigham and Women’s Hospital.Dr. Mooney’s clinical practice covers both brain and spine surgery, including brain and spine tumors, degenerative spine disease/spinal stenosis, and minimally-invasive spine techniques. He is dedicated to thoughtful patient selection and preoperative evaluation in order to ensure the best possible outcomes for patients, and he is committed to improving healthcare delivery for patients through his work as the Director of Clinical Care Redesign within Mass General Brigham. Dr. Mooney is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Subdural Hematoma, Brain Tumor, Chronic Subdural Hematoma, Awake Craniotomy, and Laminectomy.

    Oguz I. Cataltepe
    Advanced in Porencephaly
    Advanced in Porencephaly

    UMass Memorial Medical Center - University Campus

    55 Lake Avenue North, 
    Worcester, MA 
    Experience:
    44+ years
    Languages Spoken:
    English, Turkish
    Offers Telehealth

    Oguz Cataltepe is a Neurosurgery provider in Worcester, Massachusetts. Dr. Cataltepe has been practicing medicine for over 44 years and is rated as an Advanced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Cerebellum Agenesis Hydrocephaly, Hydrocephalus, Normal Pressure Hydrocephalus, Gastrostomy, and Tissue Biopsy.

    Experienced in Porencephaly
    Experienced in Porencephaly

    UMass Memorial Children's Medical Center

    55 Lake Ave N, 
    Worcester, MA 
    Languages Spoken:
    English

    Douglas Fellows is a Radiologist in Worcester, Massachusetts. Dr. Fellows is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Familial Porencephaly, Porencephaly, Aseptic and Alopecic Nodules of Scalp (AANS), and Herniated Disk.

    Experienced in Porencephaly
    Experienced in Porencephaly

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English

    Richard Assaker is a Radiologist in Boston, Massachusetts. Dr. Assaker is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Familial Porencephaly, Porencephaly, Multiple Symmetric Lipomatosis, and Familial Multiple Lipomatosis.

    Experienced in Porencephaly
    Pediatric Radiology
    Experienced in Porencephaly
    Pediatric Radiology

    Department Of Radiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Abbey Winant is a Pediatric Radiologist in Boston, Massachusetts. Dr. Winant is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Infantile Pneumothorax, Pleural Effusion, Pulmonary Vein Stenosis, and Scoliosis.

    Experienced in Porencephaly
    Pediatric Radiology
    Experienced in Porencephaly
    Pediatric Radiology

    Beverly Hospital

    85 Herrick St, 
    Beverly, MA 
    Languages Spoken:
    English

    Kellie Hemme is a Pediatric Radiologist in Beverly, Massachusetts. Dr. Hemme is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Lung Nodules, Tenosynovitis, ALK-Positive Non-Small Cell Lung Cancer, and Bronchogenic Cyst.

    Experienced in Porencephaly
    Radiology
    Experienced in Porencephaly
    Radiology

    South Shore Radiological Associates Inc

    55 Fogg Rd, 
    South Weymouth, MA 
    Languages Spoken:
    English

    Henry Su is a Radiologist in South Weymouth, Massachusetts. Dr. Su is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Stroke, CAPOS Syndrome, Vertigo, and Headache.

    Experienced in Porencephaly
    Neuroradiology
    Experienced in Porencephaly
    Neuroradiology

    Berkshire Medical Center

    725 North St, 
    Pittsfield, MA 
    Languages Spoken:
    English
    Offers Telehealth

    David Winger is a Neuroradiologist in Pittsfield, Massachusetts. Dr. Winger is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are CAPOS Syndrome, Aseptic and Alopecic Nodules of Scalp (AANS), Herniated Disk, Endoscopy, and Colonoscopy.

    Experienced in Porencephaly
    Experienced in Porencephaly

    Falmouth Hospital

    100 Ter Heun Dr, 
    Falmouth, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Robb Hoehlein is a Radiologist in Falmouth, Massachusetts. Dr. Hoehlein is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Tenosynovitis, Osteopenia, Melorheostosis, and Melorheostosis with Osteopoikilosis.

    Experienced in Porencephaly
    Pediatric Radiology
    Experienced in Porencephaly
    Pediatric Radiology

    Atrius Health Inc.

    133 Brookline Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Kee Chung is a Pediatric Radiologist in Boston, Massachusetts. Dr. Chung is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Thyroid Nodule, Lung Nodules, Chronic Cough, and Meckel Syndrome.

    Experienced in Porencephaly
    Experienced in Porencephaly

    Department Of Radiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Stephan Voss is a Radiologist in Boston, Massachusetts. Dr. Voss is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Adrenal Cancer, Pulmonary Vein Stenosis, Idiopathic Dilatation of the Pulmonary Artery, Rhabdomyosarcoma, and Nerve Decompression.

    Showing 1-20 of 90

    Last Updated: 02/22/2026

    What is the definition of Porencephaly?

    Porencephaly is a rare condition that affects the central nervous system. People with Porencephaly develop fluid-filled cysts or cavities in the brain either before or shortly after birth. The severity of the condition and the associated signs and symptoms vary significantly based on the size, location, and number of cysts. Common features include developmental delay, reduced muscle tone (hypotonia), seizures, macrocephaly (unusually large head size), spastic hemiplegia, speech problems, delayed growth, and intellectual disability. Porencephaly is usually the result of damage from infection or stroke after birth. In these cases, the condition occurs sporadically in people with no family history of the condition. There is an inherited form of the condition called familial Porencephaly, which is caused by changes in the COL4A1 or COL4A2 genes and is inherited in an autosomal dominant manner.

    When should I see a Porencephaly doctor in Massachusetts, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Porencephaly doctor in Massachusetts, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Porencephaly doctors in Massachusetts, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Porencephaly doctors in Massachusetts, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Porencephaly doctor in Massachusetts, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porencephaly doctor search results page. 

    Why is it important to get a second opinion from a different Porencephaly doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Porencephaly doctor in Massachusetts, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Porencephaly doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Porencephaly doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Porencephaly doctors in Massachusetts, US?

    Look for the filter feature on the left side of the Porencephaly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Porencephaly doctor that offers video calls?

    Look for the filter feature on the left-side of the Porencephaly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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